LUPRON - how bad does it suck?

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shelleym1
shelleym1 Member Posts: 298
edited May 2015 in Hormonal Therapy - Before, During, and After
LUPRON - how bad does it suck?
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  • shelleym1
    shelleym1 Member Posts: 298
    edited May 2015

    Any of my pre-menopausal sisters out there taking Lupron + AI? This is my first attempt at hormone suppression. If I can't tolerate it we will go to Tamoxifen. I get my first Lupron shot tomorrow. How bad are the side effects of this shot? There are some really scary stories out there about Lupron so I'm kinda freaking out. I know that the AI has it's own set of issues, but I'm mostly curious about the Lupron since you basically have to endure the SEs for an entire month.

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  • Professor50
    Professor50 Member Posts: 220
    edited May 2015

    Hi! I have seen some horror stories about lupron shots but honestly, I have had no troubles so far. I just got my second shot yesterday and honestly it I wouldn't have known I did anything. (Now, I haven't had a period in awhile, but hormonally, I am premenopausal). I know that everyone is different but for me, the lupron shot felt like absolutely nothing. (And for me that + exemestane has been way better than tamoxifen).

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  • daisylover
    daisylover Member Posts: 310
    edited May 2015

    Lupron made my legs and abdomen swell. I had intense hot flashes at first but they mellowed over time. I chose to do an ooph over continuing with the SE of Lupron. The ooph was pretty easy surgery. I liked Tamoxifen and felt great on it,though. Aromasin has caused lots of skeletal pain for me. everyone seems to experience these treatments differently. I hope you do well however you decide!

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  • lauren32
    lauren32 Member Posts: 46
    edited May 2015


    Hi There

    I had a Zoladex 3 monthly injection 4 weeks ago and haven't noticed any real differences, I have some hot flushes at night and am not sleeping well but overall I feel fine (just still getting over the shock of getting breast cancer at 32 and now going through radiation :-( ) I start Aromasin tonight so I will see how that goes. Anything that can keep this at bay I am willing to try!

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  • shelleym1
    shelleym1 Member Posts: 298
    edited May 2015

    Keep in touch Lauren! I am 35. Trying to get over the shock as well. Glad you aren't having too many side effects

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  • alaskamama
    alaskamama Member Posts: 91
    edited May 2015

    I have been getting Lupron for a little over a year. I find it makes me a little sore for a few days but is tolerable. I've gone to a three-month dose, which is a little more intense, but then ... I only have to do it every three months. I have found some people are better at administering it than others, so find someone you like! I found this one nurse who is so careful and administers it with such care, I bring her little gifts of appreciation now!

    Good luck! You're not alone.

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  • shelleym1
    shelleym1 Member Posts: 298
    edited May 2015

    thanks for sharing! The nurse that gave me my first shot was incredible. It didn't hurt at all.

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  • Rseman
    Rseman Member Posts: 281
    edited May 2015

    Hey Shelley,

    I'm glad to hear your first shot went well! I have been on Lupron for a little over a year now. The hot flashes started to bother me and when they became unbearable I decided to go on a low dose of Effexor. It was very effective for me. I also think the weather has a lot to do with it and with it warming up the hot flashes start to increase.

    However, I think worse than the hot flashes is the vaginal dryness which unfortunately makes sex painful and then sad because it is a reminder of what is going on. I think that is the hardest part to work through. I'm lucky to have a very supportive partner.

    I hope you can tolerate the Lupron because the studies show that Lupron with an AI is more effective than Tamoxifen. At least that is what I have read.

    I also think it depends on who is giving the injection.

    Best of luck,

    Renee

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  • shelleym1
    shelleym1 Member Posts: 298
    edited May 2015

    hey Lauren how's the Aromasin going?

    Hi Renee I'm so glad you've been tolerating the Lupron well aside from the vaginal issues and hot flashes. I am concerned about the vaginal issues. Have you found anything in particular that helps ?

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