April 2015 Chemo Crew... Starting in April? Please join us!

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  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited May 2015

    Beautifully written post lynne....so so true!

  • Rpayton
    Rpayton Member Posts: 235
    edited May 2015

    Lynne, that post was awesome and said it so well! Exactly how I feel, OK. Brilliantly put into words.

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2015

    Beautifully said, Lynne.

  • SueH58
    SueH58 Member Posts: 632
    edited May 2015

    A note today from one of my "peeps": at work:

    I thought you were one of the "Beautiful People" before, now it is going to be double!!

    The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not just happen.

    Elizabeth Kubler-Ross

  • Fran2014
    Fran2014 Member Posts: 140
    edited May 2015


    OK...I love you all!! You make me laugh and cry simultaneously! Today was the first day since this all started that I walked into the "chemo bar" (for fluids)  and the lovely and wonderful lab nurse looked right at me and said, "Oh Miss Fran, you really are having the crap kicked out of you aren't you?". No bullshit, no false pick me up crap! The tears just started running down my face and she hugged me when I started to apologize and simply said, "sometimes you gotta let it out-it's what you need". By the way, I really do look like crap!!

    Fran

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2015

    Fran, (((HUGS))) I hope better moments, hours, and days are in your very near future.

    SueH, love the note!

    Lynne, you put it beautifully!


  • SueH58
    SueH58 Member Posts: 632
    edited May 2015

    Fran, at least she didn't tell you you looked great!!!

  • mich74
    mich74 Member Posts: 3
    edited May 2015

    Lynne - What a great post and so true.

    Sue - What a lovely note to get at work, you have some good people supporting you through your journey.

    Addie - I was having regular periods before chemo. I just got AC#4 yesterday. My second period after starting chemo started on time but just spotting and then later in week got what i would call light. Would not be surprised if i don't have a period next month.

    Don' recall who but someone asked about neulasta with taxol. I was told this week that i would no longer get neulasta once i started taxol in 2 weeks and that they would keep an eye on my blood counts and add neuprogen if my blood counts warranted it.

    I liked the bio idea, so here is mine.

    Born in Compton, California. When i was 5 my parents moved to Wyoming, i graduated high school there and then about a year later joined the Army. Was in the Army for 3 years and prior to getting out i went to a technical school for computer programming and continue to work as an Application Analyst at a University. I married while in the Army but later divorced in 2002. Had another long term relationship but have parted ways and been living single and enjoying for the past 3 years. I enjoy traveling, to include just going for a drive in the country and sight seeing. I picked up kayaking last summer and am really missing it this year.

    You all take care and keep up the good fight.


  • fmmbw
    fmmbw Member Posts: 41
    edited May 2015

    Blessings to all of you strong ladies!


    I felt like a failure with chemo, as it was not even close to what MO and I were expecting. Short story, tremendous weight loss due to pancreatitis, wouldn't eat/drink, horrible diarhhea, nausea etc. SE were maximized.

    Monday decision was made to stop chemo and do rads only. Will get the plan on 5/27 and thankfully many of the SE are lessening, but for 3 weeks out I'm still experiencing too many. Would have had 2 chemo treatment this week, haven't even come close to recovering from 1st.

    Wishing you strong warriors the best!

  • Alibeths
    Alibeths Member Posts: 656
    edited May 2015

    omg. These are great!!!!

    Mel, I'm doing cold caps too!!!

  • lemonadehk
    lemonadehk Member Posts: 106
    edited May 2015

    Lynne, love what you wrote! So true... Only those who have been through this can understand...

  • lemonadehk
    lemonadehk Member Posts: 106
    edited May 2015

    sorry for not checking in for a while... My pneumonia was not completely cleared up on Xray, but MO thought I was fit enough to proceed to Taxol ( he still thought it's safer to skip the last AC). I am doing the dose-dense Taxol. During the infusion, I had chest stuffiness, so they stopped the infusion for a few minutes. When they resumed infusion, I still had a bit of chest discomfort, so they slowed the infusion. Turned out the whole infusion took much longer than AC. After the infusion, I was very dizzy and went straight to bed. The SEs so far are tolerable in the first coupe of days, just fatigue and numbness in fingertips (guess that's the neuropathy they are talking about). But starting the third day, I am starting to have bone pain everywhere...

  • lemonadehk
    lemonadehk Member Posts: 106
    edited May 2015

    fmmbw, I am so sorry about all the terrible SEs you were experiencing. Hope you will recover from them soon and your radiotherapy goes well!

  • lemonadehk
    lemonadehk Member Posts: 106
    edited May 2015

    Lynne and AnewBeginning, sorry about the toenail. I have heard that people can lose toenail while on AC. Hope there is no infection.

    Fran, congratulations on finishing chemo. Worth a big celebration!

    Rockerwife, love hour picture! you look absolutely great!

    Kbee, when will you start your Taxol? Hope your Taxol goes smoothly

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited May 2015


    You are all so wonderful! I loved reading all these posts on comments.







  • Addie29
    Addie29 Member Posts: 307
    edited May 2015

    well today ended up to be a decent day. I felt good enough to do laundry, vacuum, dishes, clean All 3 of the kids rooms and even clean the garage. And now I am exhausted. I'm going to hate doing weekly treatments. I have one more ac than onto taxol. I hope taxol is nice to me.

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited May 2015


    WOW Addie! What other vitamins are you taking! LOL You moms with young children amaze me. I am a grandma (Nanny) to five and can't wait to see them again when this treatment is over



  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited May 2015

    this is just the best group of women, EVER! Thanks for all these posts which teach, guide, console, and inspire me. I am in a writing class with other cancer patients/ survivors. I wrote about stupid people this week, so Lynne's post made me smile. We are walking along the same path in our respective parts of the world

  • swissrn2002
    swissrn2002 Member Posts: 27
    edited May 2015

    Hi, I'm so happy to see others experiencing what I am. I had a modified radical mastectomy on March 19th and started my AC chemo on April 29th. I will be having my 3rd dose this Wednesday. I'm looking forward to finish this with the 4th dose. My worst SE are indigestion, nausea and gastric reflux. The chemo hasn't been as bad as I had invisioned, since I take three days of steroids, I eat like a horse. My hair fell out two days after my 2nd infusion, my husband shave the rest off for me. I was accepted into a clinical trial so on July 1st I'll be taking Kadcyla and perjeta every three weeks for a year. I might even get to grow a little hair back. Imhonored to get to follow my fellow cancer friends through this journey. Good luck to everyone.

  • Addie29
    Addie29 Member Posts: 307
    edited May 2015

    ha no vitamins but trying really hard to keep life the same as it was before. I don't want to let my kids see me sick. Yes I have my days where I just lounge around but for the most part I try to stay busy. I'm home all day with a 2 year old and my other 2 (11,6) are in school so I can get ally done. This last ac made me more nauseous than ever. My biggest se from ac is mouth sores, body aches, and fatigue. Actually the chemo makes me more sore than the neulasta.

  • lemonadehk
    lemonadehk Member Posts: 106
    edited May 2015

    well, i said it too early. Starting to get bone pain everywhere, three days after Taxol...

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2015

    mamajencuz, congats on finishing AC. How are you feeling?

    Addie, glad you are feeling better and can get some things done.

    fmmbw, sorry you were so sick. I hope rads goes well. You'll have to let us know how that goes since lots of us are headed there later.

    swissrn, welcome!

    lemonade, are you doing Taxol weekely or every 2 weeks?

    I start weekly Taxol on Tuesday

  • mamajencoz
    mamajencoz Member Posts: 52
    edited May 2015

    Feel like I've been run over a few times. Tired, like I've run a marathon, still SE of headache, a little nausea, but mostly no energy. But I survived!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited May 2015

    Last AC done! Came home doped to the gills on ativan yesterday and just piled up on the couch. Finally coming out of it this morning,. No SES yes but burned mouth. Been taking my antacids and anti nauseas and drinking tons to flush it out. Hate that pink pee! We shall see what the next two weeks bring, I hope taxol is kind to me. My MO has ordered ice gloves and boots, and says they will monitor me to see if I need neulasta, but I may not. He said I'd be doing DD again but if it looked like I was going to be prone to neuropathy they would switch me to Taxotere? I think, but that once can only be given every 3 weeks. It's a hard decision, since I tally want to be done, but my job is very physical and I need my balance. Anyone have any input or experiences to share?

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited May 2015

    Yeah Littleblue. Congrats on finishing the last AC!! So proud of you... my last AC is on Tuesday, May 26, I cannot wait until then. Doing a happy dance for you!

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2015

    mamajencoz, hope you start to get more energy back. It took a little longer this last round for me, but it has seemed to return.

    Littleblue, My MO is doing 12 weekly doses of Taxol because he can monitor for neuropathy more carefully. I did ice my hands and feet when I had Taxotere and had no neuropathy. I have not asked my MO about it this time because I have seen his PA or another doc for a couple visits because of his days off, vacation, etc. I am assuming he'll allow it since my last MO did, and really, I would do it anyway because I need my feet for balance also and need feeling in my fingers fro IVs, etc. My MO is pretty open to it, so I am sure he will be fine with it. Timewise, I would have preferred dose dense though! Taxotere was nasty stuff, but like the others, manageable. I had back pain that was very similar to back labor for a few days each round, but Advil made it manageable. I am hoping the lower dose weekly Taxol is not as bad. I also ran fevers on Taxotere...neutropenic fevers. I think the neuropathy from Taxotere can be as bad as Taxol, so I am not sure of the reasoning to switch if it becomes a problem.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited May 2015

    Thanks kbeee, well I guess we will just see how it goes agsin. He did say he could start me o one and then switch if need be. So, knowing me, I will probably stay with the dose dense first and gut it out as long as I can, but try to switch if it looks like it's getting really bad. Is neuropathy cumulative? Ugh, fun fun fun! If AC was a dragon, T seems like it's gonna be a dangerous tree elf lol

  • Addie29
    Addie29 Member Posts: 307
    edited May 2015

    last ac for me is June 2nd. I can't wait to not have to ride that red devil anymore.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited May 2015

    Yay Addie! We got this!

  • AndreaC
    AndreaC Member Posts: 220
    edited May 2015

    Good morning all!

    Sorry to hear about the bad SE's some of you are experiencing.

    Addie, you are a rock star! I don't know how you go through this with young kids. It's all I can do to look after myself - my husband and cats fend for themselves! Haha!

    I'm doing pretty good after TC#2 on Thursday. Had mild nausea yesterday - took my Zofran morning and night, plus got a prescription for Maxeran and had one of those in the afternoon too. A bit of diarrhea and heartburn too. This morning the gastro stuff is gone, I am just really tired. I'll give myself the Neulasta injection tomorrow, I imagine I will be a bit sore after that. All in all, not too bad - so far!

    Hope you all have a good weekend.

    Andrea

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