Tell us about your clinical trial experience!

Hi! I am considering the SWAG 1207 trial and began to consider it after chemotherapy. First and foremost because I have a 10 yr old son that needs his Mom! I I feel that if I get the drug what can it hurt to add to treatment??? I also want to be part of finding a cure for this horrible disease! Look forward to hearing others response.

I am an ongoing participant in SWOG S0221. I was approached by my MO after the results of my Oncotype test came back very high. The trial focuses on high-risk early stage,on the effectiveness of A-C/T chemo and randomized into 4 dd AC (biweekly) + 12 weekly Taxol, or 4 dd AC + 6 dd (biweekly) Taxol. I was randomized into the latter group and chose to participate even after being told the efficacy of dd Taxol is less than weekly treatment. The dd Taxol regimen had painful SEs, but I persevered through and am NED three years later. My purpose for joining is that 12 weekly treatments can be a challenge time-wise, between work and family and life, and maybe biweekly treatments are the answer. Hopefully we learn there is statistically no difference between the weekly and biweekly cycles. I will be followed every 6 months for 10 years

I was in a neratinib trial. What a miserable drug. The stomach pain, nausea and diahrea was not helped by much of anything. I would get cold sweats. No clue how they are going to be ale to keep people on it if they find out it actually works. I had high hopes for it, but came off after about 3 or 4 months. The drug goes in and out of ownership and trials. The doctor conducting the trial has been hounding me awhile - and even recently sent me a registered letter for some reason, that I have yet to pick up from the post office.

I'm currently enrolled in and very excited about being a part of NEOADAPT clinical trial. This is cutting edge and will change treatment for women with my diagnosis forever. I hope and pray this works and have faith that it will. It's a chemotherapy free approach to treating my type of her2 triple positive breast cancer. So far I've had some fatigue with not much of any other side effects. I have already noticed shrinking of my tumor and its only been one week. This approach uses targeted hormone therapy. I will need surgery and radiation after. I met one lady that has been doing the trial for 6 months, (before it was rolled out) she had 2 tumors they are both shrunk and undetectable on an mri. She was very inspiring to meet with. Dr. Ahn at Cancer Treatment Centers of America in Zion Illinois has impressed me beyond words. Thought this would be the perfect place to share this.