Oncotype DX?

Debutante8
Debutante8 Member Posts: 45

Is running this test considered the standard of care? Is it something that is automatically run when invasive is found? Hoping I am not going to have to have a fight on my hands with my medical oncologist. Two weeks post op today.

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    I would think so based on your stats.... and be sure to request it!!

  • grammakathy
    grammakathy Member Posts: 407
    edited May 2015

    Mine was not automatically ordered.  In fact, I had no idea about the test until I met with the MO which was about a month after my surgery.  We discussed whether or not I was opposed to chemo if the results came back recommending it.  He said that if I was totally opposed to chemo, there was no sense in running the oncotype test.  It took about ten days after that for the results to come back, because the tumor sample has to be physically sent to the lab in the central California area.  Then we met again to find out the results. I hope this helps.

  • meljo614
    meljo614 Member Posts: 180
    edited May 2015

    The test is considered optional but was highly recommended to me by my BS and MO.  It can be very helpful with determining treatment options.  I opted not to do chemo based on my score of 17.  Score of 17 is considered high end of low risk for recurrence.  You will want to make sure your insurance covers it as the test is ridiculously expensive.  As you probably know, the test is only for patients with hormone positive cancer.  Are you wanting to have the test or not?  I couldn't quite read the tone of your post. 

  • edwards750
    edwards750 Member Posts: 3,761
    edited May 2015

    I had never heard of the test until my ONC requested it. She was on the fence about treatment because the Path report showed a micromet in my SN. My BS said automatic chemo. Thankfully my ONC disagreed - thus the test. She also said women with BC had been over treated for years so the test was a good tool. It is pricey but Genomic Labs who performs the test will work with you. Luckily for me BCBS paid for the test. It was 5k 3 years ago so have no clue what it costs now. Still it's worth it. My score came back 11. Took about 2 weeks to get the results. I had 33 Rads treatments instead. Good luck.

    Diane


  • Debutante8
    Debutante8 Member Posts: 45
    edited May 2015

    Yes, I want to have the test. I have an appointment with my MO on Friday...hoping Kaiser will pay for it.

  • justmaximom15
    justmaximom15 Member Posts: 264
    edited May 2015

    My MO told the lab to call me regarding insurance payment of the test. First call I got was last Friday while I was going in to get my bone scan and I understood her to say it wasn't covered but I couldn't stay on the line so I told her to call back. Got a call back on Monday and she said it was covered and my co-insurance would be $800 but they have a very generous assistance program. She asked me how many people reside in my home and if I made less than a certain amount, then she told me I qualified for 100% assistance to pay for it.

  • grammakathy
    grammakathy Member Posts: 407
    edited May 2015

    Kaiser Permanente paid for my test in November 2013.  From what I have heard the cost (about $3500) is less to them than scheduling chemo if it is unnecessary.  Good luck - I'm praying for a low score for you.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2015

    Do you know your Invasive component Her2 status yet? Oncotype Dx is not performed on Her2+ samples, so until you have that info your onc is unlikely to order the test

  • Debutante8
    Debutante8 Member Posts: 45
    edited May 2015

    Thanks for the info, everyone! I see my general surgeon today, so should know more then, including HER2.

    I am hoping they will be able to run the test, but invasive was small, less than 1 cm, so I hope they will have enough of a sample.


  • grammakathy
    grammakathy Member Posts: 407
    edited May 2015

    please make sure you ask for a written copy of your pathology report. It will help later on as you learn more.

  • Debutante8
    Debutante8 Member Posts: 45
    edited May 2015

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