April 2015 Chemo Crew... Starting in April? Please join us!
Comments
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AndreaC, you look great! I see a lot of positivity in your eyes!
My BF came over and shaved my head the first time- my MO said it was alright yo have a "glass or two" so I bought champagne and we celebrated that I was the one making the decision to go bald- not cancer! I found it very empowering
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Good Morning All,Lynne & Addie-the mouth stuff just stinks! I will say that over time (at least a few days) the Biotene does seem to help when I use it repeatedly throughout the day. For some reason, post treatment, I get a sore on the top of my mouth that feels like I burnt it (like if you eat a piping hot bite of pizza before it has cooled). Hang in there!
thsizit- You and your daughters are truly lovely! Love the wig!
Addie-Good luck tomorrow
I am truly enjoying everyone's "mini bios"!!!
I was able to genuinely enjoy this past weekend down at the Jersey Shore (Long Beach Island) with my girlfriends. They are a crazy bunch who have helped me and my family tremendously!! The best thing is that they can actually laugh and crack jokes about the whole cancer thing (i.e. one of my friends brought enough headscarves for all 13 women and made them wear it for a "photo shoot" on the beach so I wouldn't feel alone- the scarves were Hideously Ugly-she had gotten them from a clearance bin at the local ShopRite!! It was hysterical!)
OK-I have to ask- now that it is getting warmer outside-is anyone else "breaking out" on their head? All of a sudden, I now have "pimples" on my head and neck popping out on my basically bald head and neck....really???????
Also, for those of you who will be starting the Taxol soon-my experience with it (4 years back) was actually not too bad. Again, not a "walk in the park" but definitely, definitely easier than the ACT treatments.
Wishing everyone a good week ahead.
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KBeee - your posts have really, really helped me as I think about recurrence after treatment. My MO would likes to tell me that everything will be fine and I am essentially 'cured'. I really don't like medical providers reassuring me when they don't even know what will happen in the future. I like to be on my guard since BC came out from nowhere and knocked me flat on my behind - I don't trust those cells! I would like to be proactive - can I ask how often check-ups were post chemo for you the first time around? How can I be proactive moving forward through treatment? I am almost done with chemo (AC) and then begin tamoxifen. I had a BMX, Oncotype of 20, decided to be aggressive and am getting AC chemo for 4 sessions, and then tamoxifen. I will ask my MO whether they tested all of my tumors for the Oncotype DX.
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Anyone know if Zyrtec works as well as Claritin for the bone pain? My allergies are KILLING me and Claritin isn't helping them at all!
Headed to AC#3 today!
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getting fluids right now. 😥I hate cancer.
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Alibeths -hope you are ok!?
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well heres my story. i am 29 married with 3 kids (11,6,2) I had my first child when i was only 18 and still have a year left of high school. sadly before my daughter was even a year old the father committed suicide, so then i was left to be the mommy and the daddy. me and my daughter moved out of my parents house when i was 19, i spent only a couple years by myself before meeting what is now my husband. we have been together 8 years and have 2 children together. i live in a small town close to the Baseball Hall of Fame in Cooperstown NY. Its a very nice quiet town and a great place to raise a family. well lets jump to my diagnoses. in December of 2014 i was laying in bed with my husband and my youngest. i remember brushing my hand across my chest and feeling just a little lump sticking out. i was also nursing at the time so i really didn't think too much of it, actually thought it was a clogged duct but i knew that it wasn't there before. days went by and i told my husband the lump was still there. he wasn't concerned because hey i was nursing.....breastfeeding is supposed to lower your risk of breast cancer- so they say. a few more weeks went on and i began to notcie that the lump was actually starting to cause me pain, like a burning pain that would shoot over to my shoulder and down my arm. now i was worried. i made an appointment with women's health and from there she made a referral to see a breast surgeon. the first breast surgeon i saw was a joke. his words exactly "well breast cancer doesn't typically cause pain so im not concerned" he said to come back in April for a biopsy if it didn't go away. i left there still wondering what the hell was in my breast. i went home and let it go another week before i finally called and demanded a 2nd opinion and man i am blessed that i did. i managed to get the most highly recommend breast dr there. She looked at me and told me that she didn't think it was anything BUT if it was that its very small and she would expect me to do well with treatment. she scheduled a biopsy for the following week and man oh man did that hurt. 2 days after the biopsy i had the results. Cancer. so some reason i wasn't surprised. i felt like i was getting signs from everywhere. i would open a magazine and see something on tv and it was about cancer. i also found out i am BRCA2 positive and the cancer is triple negative. just ducky. I found the cancer early. Stage 1A no lymph node involvement. Thank god. I underwent a bilateral mastectomy on 4/1- that was a cake walk compared to the 3 c sections i went though, i thought anyway. i started chemo on 4/21. the first A/C whopped me for about 5 days. the 2nd treatment was much much better and tomorrow i go in for my 3rd a/c. i will have a total of 16 treatments and cant wait for them to be over. i am hoping to get through this journey in my life with my sense of humor intact and be here for many many years to come.
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I just cannot imagine doing this. I will probably just try and cut it short myself when it starts falling out. Can I just cut it as short as I can? Then, does the rest just fall out? I have a cap I ca n wear at night and a satin pillowcase. I hate this!!!!!!!!!
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I ended up cutting my hair chin length before it actually started falling out. When it started falling out really fast I had my husband shave it with an electric buzzer. I wear a scarf around. You will also notice the rest of your hair falling out because you will find tiny little hairs all over. You can do it.
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Addie I was also 29 when diagnosed now 30..I randomly found my lump one day my daughter was 10 months old at the time but I noticed when I tried breast feeding her before at a younger age that breast wouldn't produce much milk..I went to my dr hesaid it's a cyst I'm too young for cancer over 2 months went by and my lump felt a little larger so I demanded a biopsy and yep it's cancer luckily it was still early as well no spreading to lymphs or anywhere else according to a pet scan I had done before chemo. Since I am trip pos I am doing chemo first then having a bilateral mastectomy. My surgeon told me that they are seeing more women develop breast cancer young and after recently having a baby our bodies are all crazy with hormones
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Stephmoen my breast I had the cancer in also didn't produce as much as the right. That's weird.
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Addie and Steph, I hope you both made those doctors who blew you off aware of your diagnosis. They really do need to change their attitudes and practice. My (former) MO told me when I had some lumps develop that I was not at risk for recurrence and I should ignore the lump unless it went from a grape to a golfball. Needless to say I never went back. When I was seen by a different doctor there (my current MO...who is awesome), I made it very clear that former MO is never, ever to see or treat met. In fact, I told them that if he is on call some weekend and I have to be seen, I would go to another hospital before he would ever lay eyes on me again. It is written in my chart.
Positive spirit, As for post chemo check ups, it's kind of frustrating to be honest. I would see MO every 3 months for a few visits and then every 6 months. I saw the breast surgeon every 6 months and then was scheduled about a year later. If you do not have BMX, you'll have mammograms and such, but other than that, there generally are no scans. After I had my fat grafting, I developed several lumps. These are what MO totally blew off. He would not even do an ultrasound to monitor if they were changing. There were so many, I could not tell if anything changed week to week or month to month. Once MO blew me off, I went for a second opinion at Mayo. They did an ultrasound and did a repeat one a few months later. The doc there, literally measured and tried to map all of the lumps, which though it did not help find my recurrence, did at least make me feel like someone would notice change. The first lump I found (recurrence) was at the site of the original tumor, was very superficial (as was my original one) and felt just like it did the first time. I happened to find it in the shower. BS sent me to PS to see if it was related to reconstruction. He thought it was since it is where he splits the pec muscle, but I insisted on a biopsy and am thankful I did. They found the second one at the time of my excisional surgery...it was amongst the other lumps that were previously ignored. It was very small and had not shown on MRI, etc. Once I am through chemo, rads, and such, I am going to ask for a clear plan on how they intend to assess those lumps and monitor them over time because I no longer want to hear that I am low risk for recurrence. Usually with breast cancer, they do not do routine scans, tumor markers, or anything which is kind of scary. You just have to be diligent about assessing for lumps and monitoring for any other unusual symptoms.
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I'm thinking that the first doc I saw is aware that is was cancer now. They do weekly tumor boards and I'm sure once he saw my stars pop up he felt like crap. Well at least I hope he did and I hope he knows better now. He was hair so sure that it was nothing because I am only 29 and was breast feeding.
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it was my gynecologist and he was the one who called and told me my results I know he felt like an idiot and If I could have reached through the phone I would have punched him the worst was how he called me like it was nothing at first asking me how I'm doing all cheerythen preceded to tell me he got the results on Friday but didn't want to "bother me" because it was bad news so he waited until Monday to call me at work. I will never see him again
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some people have no compassion. I was blessed with my MO, plastic surgeon and breast surgeon. My breast surgeon when I see her every time she comes over and pats me on the shoulder and sits right next to me to talk to me. My breast surgeon is the same way. Actually when I had the mastectomy they both stopped in both days I was there to see how I was doing. My oncologist is just absolutely amazing. He's serious yet comical and makes me at ease.
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My bio....looks like I may be one of the older ladies in this group. I'm 64. I grew up in Florida and relocated to SC as a young adult, where I met my husband. We have one son and two grandsons, age 2 and 5. I worked in university and school district settings until retirement at 60 and my husband and I moved to Bradenton Fl. We love it here; it's a great place to live - close to the beach and wonderful museums, restaurants, etc. I promised myself after retirement that I would take art lessons, and I've been very happy with the results. I've had my watercolors displayed in several shows, and may try to arrange a gallery exhibit once this is over.
I am probably everyone's worse nightmare when it comes to BC. Left IDC, < 1cm with negative nodes 13 years ago, treated with lumpectomy, radiation and tamoxifen. Extensive DCIS in same area 4 years ago - mastectomy and "cured". But a strange "thick" spot appeared on my right breast in Feb - mammo and ultrasound negative, but MRI birads 5. It was invasive lobular carcinoma covering a 5 cm area with 2 positive nodes. ILC doesn't form a lump...it just spreads out like water. That's while I was 6 month follow- along! However, I plan to be around a lot longer and I'm now officially out of breasts, so I figure this time, I'm going to kick this thing once and for all.
I've opted for no reconstruction...I really don't want to put myself through more surgery once chemo is over. If I were younger I might feel differently, but right now, I'm perfectly happy with those "killer boobs" gone. Of course, the hair is almost gone, too.
So many of you are inspirations - with your jobs and families to tend to, you just keep going despite the hard smacks from chemo! So I figure my worst day is still easier than what many of you are facing. Hang in there!
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I love all the personal stories - so great to get to know you all! Okay, it's my turn...
I'm 52. I am the middle child...older brother, younger sister. Grew up in Victoria BC - daughter of a teacher. When I was 14 my dad got a job teaching Army brats in Germany so we moved there for three years. We took advantage of it and travelled every chance we could get, all over Europe. It was amazing! I graduated from grade 12 once we were back in Canada, worked for a year in the office of a stockbrokerage then moved up-island to Nanaimo to live with (and subsequently marry) my boyfriend. We had two kids together but a miserable marriage...we divorced after 13 years. By this time I was a nursing student, halfway through my program.
I met and married my soulmate Ian about 4 years later. He's so kind and understanding...exactly opposite of hubby #1!
Anyway, my kids are now 32 and almost 29. My daughter Christina (also a nurse) has a 2 1/2 year old son and 5 month old daughter...the grandkids are absolutely the best things in my life!
My son James lives in Ottawa - all the way across the country so I don't see him much. But he is doing well, has a good job with IBM and is happy.
I graduated from nursing school in 1997 and since 1998 have been working at a small community hospital in Duncan BC, where we moved 10 years ago. I have been working in ICU for the last 9 years, although I am on medical leave now.
I was anemic for a few years and it was getting worse when I had a FIT (fecal immunochemical test) in fall of 2013. It was positive...so I had a colonoscopy which showed a tumour. On Dec. 5, 2013 I had a left hemicolectomy followed by 6 months of chemo. The cancer had not spread and I was deemed to be cancer-free.
Early December of 2014 I had a screening mammogram. I had not had one for 7 years..too busy...so I said. But I felt that I was low risk because I do not have a family history. Well, they saw something in my left breast so I went back for a diagnostic mammogram and ultrasound, then a biopsy on New Year's Eve, I found out about a week later that it was cancer. I was going to have a lumpectomy and radiation but had a screening CT, at which another tumour was detected in the right breast. I could actually feel that one. It had been missed on the mammogram.
So...the plan changed and I underwent a BMX on March 26 and am now on chemo - four cycles of TC - and will have radiation once this is over. I have lymph node involvement which is a bit scary, but only on the left side which was ER and PR positive. The tumour on the right was triple negative, which would have been bad if it had spread to the lymph nodes but it did not! It's very weird having had bilateral breast cancer - diagnosed at the same time but two different types of tumour. Neither has any relation to the colon cancer either. I am having a genetic counselling appointment in a year or so.
That's about it...sorry it's so wordy!
Andrea
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Loving all of the pictures and stories! We have such a fabulous group with such interesting and differing experiences!
Wow Andrea! You do NOT look old enough for grandkids; what is your secret to looking so young???!!!
How about a Monday check-in? Who heads to the chemo bar for your cocktail this week? This is my off week from chemo, but it is EMS Week, so I will be busy preparing for an educational open house event which will probably be attended by almost a thousand people. This is my last "off" week. Next week I begin weekly Taxol for 12 weeks.
My song for the week I just heard on my walk "Girl You're Amazing...Just the Way You Are." Each and everyone of you April gals is amazing!
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this week is my chemo cocktail. Tomorrow actually. I go for my 3rd a/c. Last chemo my nurse asked me if I wanted a juice- I asked for pineapple juice, then told her "I wouldn't mind if you added some coconut rum to that either" oh how I miss mixed drinks already. It's finally getting warm where I am and right about now I would be having a drink and sitting on my deck while I watch my kids play. But that's okay. This time next year I will be doing just that.
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Pretty fatigued this time around, but sleeping better, at least.
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Pineapple juice and coconut rum is my favorite! When we are both done, we will have to have a virtual toast! Pina coladas too...yum!
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that sounds like a plan to me :
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May I join you for Pina coladas? First day back at work here...about as tired as I expected to be. Going out in the feild tomorrow for a while...hope I can hack it! Moved my final AC to this Friday, so I will be wheels up most of next week....then on to taxol. Ladies who have moved on to that...how is it treating you? Hope everyone is feeling OK today! Thanks for the song Kbeeee!
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you absolutely can:) and I also wonder how taxol is treating everyone who is on it? I've heard several different things from some ladies and I'm scared to death to start it.
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I've done 3 TCs and while I am having SEs, they've been better than I expected. I don't know if I can sort out T versus C, but what SEs are you worried about?
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got Ac 3 today! 75% done with ac!! Not setting the world on Fire tonigt so we shall see how it goes
Good luck to the ladies that also go this week!
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one lady I spoke to had an allergic reaction to it during her infusion and actually had a hard time breathing, the other lady I spoke to had horrible reactions to it. She said her nails fell off. I guess this is all stuff I will speak to my MO about before I start.
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The nurses monitor us carefully. If you start to have any reaction, they stop the infusion and can give medication quickly. I started flushing during TC #2, and they took care of it immediately. They adjusted my other medications and the rest of TC #2, and TC #3, were fine.
My nails are somewhat achey, but still firmly attached!
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that's good to know. I will be sure to tell them how I'm feeling during the infusion. I still have 2 a/c to do.
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Whst is flushing
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