Having a scan? Waiting on results? The waiting room is open!

Thanks for the laugh Modum.

Scan showed old lung nodules are stable and one new nodule grew & also two enlarged nodes in right axilla (left was primary side right was only a touch of DCIS).

Could have been worse. Ultrasound today said nodes may not be malignant - they could both be benign reaction to the two surgeries.

Pulmonologist is following up with the new lung nodule. Supposedly by Wednesday, but today is Thursday and though I called to nag them, no word...

In case anyone is looking for stuff to pass the time whilst waiting for scans or results, a friend gave me the Royal Marsden cookbook and I thought you might find it interesting. There is a v good advice section. You can get it on Amazon. Royal Marsden is one of England's leading cancer hospita

http://www.amazon.co.uk/Royal-Marsden-Cancer-Cookbook-Nutritious/dp/0857832328/ref=sr_1_2?ie=UTF8&qid=1431795020&sr=8-2&keywords=royal+cookbook

So - I had thought my next onc appt was in a week or two (and that she'd just call in the meantime with scan results) - found out it was this past Friday when I got the reminder call (I'm not always really good at keeping track of that stuff - never miss them, just don't always get them on the calendar and it's usually the last Friday of the month). Anyway, my son and his girlfriend were in town from Virginia, and I had to choose between spending their last day here at the cancer center (appt was at 1, including a zometa treatment, so that would have meant most of the afternoon), or postponing the appt a week and spending the whole day with my kids. I decided I'd rather have the day with them - we only see them twice a year. I've been feeling fine and it's been stable up until now, and even if there is anything new, I figured a week wasn't going to make much difference. It's funny, having made the choice, I'm actually less anxious about getting the results back right away - I might still call early in the week to check, but I think I'd be alright waiting until Friday too. It's going to be another busy week to keep me distracted!

So, I had bone scan today and radiographer asked could they do a second scan of my pelvis/lower back area as they saw 'something new' there which could be cancerous and wanted a more detailed scan. I know that there's lots of mets there already so this doesn't sound good. He also asked if I'd felt more pain which I had but put it down to Femara. After the scan I asked him what did they see and radiographer said they weren't authorised to tell me, that I'd have to wait 2 or 3 days for radiologist to write his report and send it to my onc. I'm scared now as I fear it has to be progression, no other reason for him to say what he did. CT tomorrow. Oh, how I hate this waiting...

Hi Aoibheann,

The waiting is the worst. It also hate how I always think that something they said to me or the way they looked at the screen, means something…. ! Probably it means nothing or something totally different.

I try to tell myself: until you heard the bad news, you have not got it yet!

Take care,

Marietjes

CT scan and bone scan tomorrow. I have trouble focusing on anything in the meantime. I try to stay busy but my mind wants to dwell on the dark side.

Yep...like exbrnxgrl said, right choices Amy.

Aiobeann...ugh...I'm always upset when the scanners say nothing...but then they say something, and wish they hadn't. I'm sorry for the uneasiness & hope it truly is femara wreaking havoc.

Wishing, hoping, praying for clean scans....always

hi all,

I agree, Amy- you made the right choice- one week will hopefully go by fast!

Aiobeann, I am sorry they added to your anxiety. Why do they say something like that and then say they can't talk?! I am praying your results will be good!

NorthTexas, Chris, Nancy, Lynn and Chanah- you are all in my thoughts!

Marietjes, nbnotes- wishing you well

Boo, sorry you had that to deal with on top of the scan- I had a horrible liver biopsy last year and really have to psych myself up for the one on June 5. Not sure I like having this much advance notice to think about it! So far, my CT Scans have been straightforward as attest goes- the waiting is another thing for sure! (My next CT is already scheduled for the end of June!)

I have the scan on a Friday and then am scheduled to see my MO the following Tuesday- I really hope they have the results that quickly! Would have to keep waiting AFTER the appt!

You are all in my thoughts -stay well,

Maureen

Scan results - liver & everywhere else is clear, but there is one groin lymph node that has decided to be enlarged and have some uptake. MO thinks it is inflammation rather than cancer as it would be very weird/rare for it to go there & switch from blood to lymph nodes, but it still makes me nervous. Too small to biopsy; so, we'll just wait and do another CT scan of that area in a few months.

nb...I'm taking that as great news! The blip...weird & rare...worry about that in a few months. For now...run away with Clear!!!!

Modum...I think you're only allowed 1 lousy liver biopsy...so this one should be fine! Will be with you on the 5th!

Boo...OMG...I can't believe what you had to go through :-( And bless your heart for finding kindness in such a painful experience. I'm wishing you had a port. Hoping the results help to dispel that fluid quickly...hoping, praying.

Kt...oh dear...sorry you're having to deal with pleural effusion & still having pain :-(. Is that why you stopped xeloda? That makes me nervous for you but...you know what's best for you. Praying that your scan shows improvement.

Hopeful for all.

Great news Boo! And we'll deserved after what you went through with your scan!

Nbnotes- I think that is good news too. Hopefully that groin node will be back to normal by the next scan.

Good thoughts to everyone still waiting!

Nice to see some good news!!!

Oh Leah - that's such good news BUT I know that stupid scanxiety rears it ugly head every time - I have started "living day to day" which I said I never would but it saves my sanity (the little I have left) because I am on the every three month schedule of tests. So go celebrate - chocolate comes to mind and I'll celebrate with you! Sending hugs, S.

Had my blood drawn today for next week's treatment. My Mom and Aunt are coming to visit for my birthday tomorrow, and I've promised myself I won't look at the tumor marker results on the portal until they leave on Sunday. I've had a tiny increase in pain (probably just from doing more, but who knows?) and I don't want it to ruin the weekend if they are increasing. Finding it very hard not to log in and peek.

So I got my PET- Scan results back today and there was no progression! There was only one spot on my hip that showed possible active cancer and it has not grown at all since the previous scans! GOOD NEWS and a great way to start the holiday weekend!