newly diagnosed

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Mag1913
Mag1913 Member Posts: 20
edited May 2015 in Just Diagnosed

I'm new to the site. I was just diagnosed with IDC on May 12th. I had a mammogram, diagnostic mammogram, US, real time US all done on April 29th, the radiologist recommended a biopsy for 8mm abnormality discovered at 2:00 on left breast, I was sent to a surgeon for his determination, he agreed biopsy should be done, biopsy was done on May 8th back with radiologist...I called surgeon's office May 12th to get biopsy results on the phone I spoke to a person on the testing results line who told me it was benign and I would need to follow up with annual mammo, I was relieved and elated. A few minutes later the surgeon called to tell me I had BC...my bubble was popped immediately! I am now scheduled for a lumpectomy on May 21st, sentinel lymph lode removal for testing. My world seems turned on a dime, not sleeping well since the 29th of April! This is all so much to process! Is it normal to not sleep well during this time? To have no energy from stress? I'm lucky because I have wonderful support from my family but I keep hearing not to stress it will be okay! I want to scream I'M SCARED!! I know it wwas caught early and it will be okay but I'm a natural worrier! Thank you for taking the time to listen to me!

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  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited May 2015

    Hi mag - I'm sorry you have been diagnosed with BC. It's awful in the beginning - so much to process and yes it feels like somebody just pulled the rug out from under you. I didn't sleep well at all in the beginning. It took me hours to fall asleep and then I would wake shortly after. Then I would get up super early in the morning. I am happy to say that it does get better. I fell asleep last night around 1030 and didn't get up until 630. The whole BC thing will get better for you. I was a mess for a few months. Once I knew all the details it got better.

    You might want to ask for some Xanax or Ativan. My MO gave me Ativan. It definitely helped me in the beginning. I don't use it anymore, but I do take lexapro. It has really helped be myself again.

    Big hugs to you

    Nancy

  • Mag1913
    Mag1913 Member Posts: 20
    edited May 2015

    Thank you Nancy and I will definitely talk to my doctor about my sleep issues. I've been trying to stay positive with all this but it's been an emotional roller coaster...I'm hoping once the lumpectomy is over and I know that it didn't spread to the lymph nodes my mind will rest some. Plus this is my first surgery ever so it is weighing on my mind!

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited May 2015

    I understand completely. We all do!!! It's a shock. I had a lumpectomy and it was very easy. I think the surgery took just 45 minutes. I know it's scary, but you will be fine. PM me whenever you want. I hate seeing people go through this. Hang in there!!!!!

    More hugs to you

    Nancy

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2015

    Hi Mag-

    We want to welcome you to our community here at BCO. We're so sorry for the circumstances that bring you here, but we're glad you've found us, and hope you find all the support and advice you need.

    We have a a thread for our newly diagnosed members, with links to information that you might find helpful as you begin to navigate your way through treatment. You can find that thread here: https://community.breastcancer.org/forum/5/topic/8....

    Please keep us posted on how you're getting along, we'll be thinking of you!

    The Mods

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    Hi,

    First of all, good for you for reaching out. I want to start by saying that what you are feeling is totally normal. I know that doesn't make it feel any better necessarily, but it's true. Your feelings really are normal and healthy responses to a stressful and scary situation.

    And you are right. It is a lot to process. It's normal to be exhausted from the stress, and it's common to not sleep well and to experience a great deal of anxiety. People often feel a lot of fear. I saw that you wrote, "I want to scream I'M SCARED!" I hear you. It is scary.

    It's normal and healthy to experience all of those feelings. The tricky thing is to find ways to experience them without letting them drive you, rule you, or define you.

    One of the things that I do is that I help people learn ways to deal effectively with fear and anxiety that come up around their cancer experience. I recently wrote an article about a simple technique that I teach people that helps with this. I think it could be helpful to you as you figure out how you are going to deal with things. I've shared it with others here who have found it very helpful. It is simple and a good place to start from. The title of my article is How Something You Are Already Doing 20X a Minute Can Help You Focus and Regain Control When You Feel Lost or Overwhelmed. You should be able to access the article by clicking that link.

    If you find it helpful, you can get other free tips that other people have found useful on my website, livewellhealthtools.com. Everything is free. I'm simply writing about the tools and techniques that I've developed over the decades of my professional practice and sharing this now with the wider world through email, my website, and forums like this. I hope it can be helpful to you.

    Feel free to private message me here or email me at mary.e.makenna@gmail.com if you have questions for me or if I can help you with more things like this or anything else.

    -Mary

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    Mag1913, Welcome to BCO. That really stinks that they made that mistake over the phone. What a shock that 2nd phone call must have been. I have no kind words for a mistake like that. I'm sorry that happened to you.

    The beginning is the most difficult. Waiting is never easy. Once you have a treatment plan in place, it does get better. I had a horrible time sleeping too. My MO also prescribed Ativan and that did help. I'm glad you found BCO. The people here are wonderful and will help you every step of the way. Please keep us posted on your progress. Sending gentle hugs and best wishes to you.

  • MikaJ
    MikaJ Member Posts: 11
    edited May 2015

    Hi Mag1913 and all -- I just had my lumpectomy five days ago (actually 2 lumpectomies - one on each side). I just wanted to reach out since I think I'm just a step or two ahead of you. The lumpectomy went really well - I'd never had surgery before and was scared but it was pretty uneventful, as I'm sure yours will be. Now I'm waiting for the results of the biopsy - I know it's DCIS on the left but the extent on the right is much less clear and therefore so scary; I'm afraid of lymph nodes, I'm afraid of the 'stage' I'll land in, I'm afraid of all the things we get afraid of with this unwanted THING inside us. So best wishes to both of us, and we can probably both take comfort in the reassurances from so many who have gone before us that this newly diagnosed bit is the hardest part.....

  • speace
    speace Member Posts: 116
    edited May 2015

    Hello, my name is Sandy, I know exactly how you are feeling! Our stories are somewhat similar, I was just diagnosed on March 25 with stage 1 IDC, no lymph node affected! This came out of the blue for me. I went for my mammo like every year, this time though I got the call to come back! Well that was the beginning of my world turned upside down!!! I had my lumpectomy and got the bad news! Ugh! Time stood still! But like you it was caught early and the prognosis is great! Being a newbie to this my advise to you is to understand that from here on out everything is done in steps, and the waiting game for results is hell! But you WILL get through it! I too didn't sleep for the first week or so, I asked my doc for xanax and I just take it as needed. You will find that support from your family and friends will be amazing! I'm usually the person who likes to do things for other people, so having people fawn all over me was uncomfortable in the beginning but I learned to accept the attention and be so great full for it! I don't need chemo thank God, but I am just going into my second week out of 7 of radiation, and I've started taking tamoxifen. It's just the beginning of this journey for me and for you, but you will be surprised at the strength you will find you have!!! It's amazing!!! So just go day by day, and you'll be fine! Don't be afraid to ask for help!! Best of luck to you!!! Sandy

  • Mag1913
    Mag1913 Member Posts: 20
    edited May 2015

    Thank you all for the responses.

    Sandy: you're right the waiting game is hell! I have wonderful support, my sisters and mother are driving the two hours down just to be with me tomorrow.

    MikaJ: hope all is well and you aren't having to much discomfort from your lumpectomy. Thinking of you and hoping for the best results for you ((((hugs))))

    SLowDeepBreaths: that second phone call popped my balloon for sure!!

    Getting extremely nervous lumpectomy is tomorrow with sentinel lymph node removal with possible axillary lymph node dissection...the fear of not knowing everything at this stage of this beast is driving me crazy!!

    What I do know is I'm er+ 100%/pr+ 100% and I will be on blockers for 5 years and will have six weeks of radiation according to my surgeon. The radiologist said the abnormality was 8mm at my mammogram. I will be introduced to the oncologist group a couple weeks after surgery.

    This all started the day after my 44th birthday with my mammogram!! Happy "44th" year of life to me!!

    Hugs to you all

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    Mag, not a great way to spend the day after your birthday. Good luck tomorrow. Please let us know how it goes!!

  • NorthernCanuck
    NorthernCanuck Member Posts: 44
    edited May 2015

    Hi,

    I'm not actually new to this site since I had Atypical ductal Hyperplasia in my left breast last year. I was browsing around on this site and scaring myself. Eventually, I had a biopsy done followed by a lumpectomy, and then they sent me on my way. Hooray, nothing to worry about, right?

    You guessed it. Wrong. In the last 10 days I have been to the doctor 3 times, had a mammogram and an ultra sound, another ultrasound and a double biopsy. It has been feeling like a bum's rush. Today I received the news that I have IDC in my right breast. I don't know about stage / grade but the main lump is 27.5 x 4.8 x 25.2 mm (stage II?). There's also a second smaller lump.

    My biggest fear at this point is the chemo. Does everybody have to have chemo or does it depend, and if so, what does it depend on?

    Nice to meet you all.

    Thanks!

  • NorthernCanuck
    NorthernCanuck Member Posts: 44
    edited May 2015

    Hi Mag,

    I hope everything goes as well as it can for you. I'm new myself but have had a lumpectomy for an ADH diagnosis last year. It was pretty uncomfortable but it was a fairly easy recovery. Wearing a comfortable slightly too big sports bra helped immensely (I also kept it on when I was sleeping).

    I was just diagnosed with IDC this morning. It shook me up so much tears came involuntarily to my eyes and I couldn't return to work. So, I'm guessing some kind of surgery is in my future as well.

    Good luck.

  • speace
    speace Member Posts: 116
    edited May 2015

    Hi Mag1913, you have the same results as I did, although you didn't mention if it was in the lymph nodes? Mine was not. I'm so great full to be one of the lucky few to not need chemo. So far so good with radiation and tamoxifen. I hope you also have easy treatments!!!!! Xoxo

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    NorthernCanuck, I remember you from the "cure for stupid" thread. Sorry for the reason you have to be back here. Sending you best wishes and gentle hugs.

    speace, glad you didn't need chemo.

  • Mag1913
    Mag1913 Member Posts: 20
    edited May 2015

    Sandy - today I'll find out if it went to my lymph nodes, keeping fingers crossed it didn't!!


  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited May 2015

    Hoping those nodes are clear!!!!!

    Nancy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    Mag, hope you get good news today!!

  • Mag1913
    Mag1913 Member Posts: 20
    edited May 2015

    great news...nodes were clear!! Surgeon removed six in a cluster and they were all negative!! Now just healing from surgery...sore but doing fine with just Tylenol! Get to take bandage off and shower tomorrow...Yay!! I also got lucky with only one incision!

    I will find out Tuesday about clear margins...keeping fingers crossed it's all clear!!!

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited May 2015

    great news - what a relief. I only have one incision too!

    Nancy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    That is great news Mag!!

    Keeping everything crossed for good news from your pathology report!!

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