Nurses with Breast Cancer
Comments
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So to update, I did make arrangements to return to hospice. I actually squeezed in two more weeks of work before my surgery. Still no return date yet. So of course now here is another issue. I deal mainly with cancer patients. I admit two per day to home hospice. I LOVE my job and love being able to bring help to families. I consider it an honor to spend any time with them. HOWEVER, those two weeks I went back after I had been diagnosed I was a wreck. Every cancer patient I had I said, "that could be me"....I could not separate myself from my job. Wondering if this will get better and wondering if there are other nurses out there in similar situations?
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Bethq--I,
too, work in Hospice.WhenI was diagnosed and going through treatment I
had to back away from Hospice work.I
was fortunate in that I had an opportunity to teach for a few years right
then.I'm back in Hospice full time now,
and still, once in a while, I get hit with the "that could be me"
brick.It WILL get better.If you can find something that will let you
take a break from full time direct patient care I think you will find it
helpful.You are processing a huge
amount of emotional stuff, and really only now getting to the point of really
dealing emotionally.Giving yourself a
bit of a break would help. -
Hi!
Wondering if this forum is still active for nurses with BC.
I'm a TCM/UR nurse (previously an ER nurse) & I'm trying to find out how surgery & subsequent
treatment has impacted anyone else's ability to work & support themselves;
I'm single & self-supporting.
thanks so much!
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Welcome daynar to BCO. Sorry to hear what you are going through! Glad to see this thread revived. If it doesn't pick up, you may want to start a new one.
Let us know how you are doing.
Warmly,
The Mods
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daynar- My surgeon took me off work for a month following my BMX without recon. I didn't have chemo. I did do RADs & scheduled myself to work only weekends(12hr shifts) during that time. I'm on Tamoxifen which is causing me GYN issues & have been able to schedule outpatient surgeries around my work schedule. I actually really enjoyed my month off following my BMX. One day I took a walk with my camera & came across this bobcat family. I could have gone back to work sooner but like I said, I was enjoying my time off. I walked everyday until I could run again. Hope you're healing & doing well.
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Daynar--the downtime needed for surgery is pretty variable depending on the surgery and the individual.I, too, am single and self supporting, was blessed to be teaching whenwas doing recon so could schedule it for summer break.One thing they don't tell you is that you don't have to do all the surgery at once.I mean you can have lumpectomy or mastectomy first, then reconstruction later.I took a year off from my last surgery (mastectomy due to radiation damage and constant pain) and recon.A lot also has to do with your work duties.I don't recognize TCM, but if UR is utilization review, that doesn't require much lifting and reaching, so you could get back to work sooner after mast or recon.What have you had done so far?
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(((Daynar))) so sorry you have to join us...several nurses at my hospital were diagnosed in the last 3 years, including me...I hate this disease:( it has attacked so many hard working, wonderful people...I took off 2 weeks after my first surgery and then worked thru chemo. My 2nd surgery was BMX with immediate implants (I didn't want TE's) I took 3 weeks off then came back on light duty to let my pec muscles heal. If you can do a less physically demanding job like UR that will make it easier. I think one of the toughest things for nurses is taking care of ourselves but this is a time when you really need to...let us know how you're doing...(((Hugs))) Maureen
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Coraleliz...awesome picture of the bobcats! Thanks for sharing it
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Hi daynar, I agree that we are sorry you have to join us! When I was diagnosed I went for BMX without reconstruction. I did have some post-surgical complications but was back to work in about three weeks. I am a DON in an assisted living facility but do sometimes have to do some lifting. I made sure that if someone needed to be lifted (after a fall, etc., that I had help). I later found out that I had to go through chemo. I was fortunate that my employer is very caring and they were very flexible about my schedule. I scheduled my chemo treatments on Fridays so I could have the weekend to recover. I did have three hospitalizations for febrile neutropenia. As Maureen said, nurses have a very hard time taking care of themselves. I found that I did not do a good job of that while I was in treatment, but I think I am doing a little bit better at it now. I see that you were diagnosed in November? Did you have any kind of surgery yet or are you waiting to decide what to do? Hugs to you XOXO
Martha
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Hi daynar! I'm also self-supporting & a single mom. I'm an ER nurse & scheduled for surgery on 3/30. I'm planning on taking 2 weeks off after surgery. My employers & co-workers have been really wonderful with all of this & have been very supportive in working with me through it all. I've been picking up some extra shifts when I can to build a little more financial "cushion" for my time off after surgery. I will be thinking of & praying for you & wishing you all the best!
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hey dayna,sorry you had to join us, i had lumpectomies so was off 48hrs, just had a tah/bso in november ,the lovely tamoxifen contributed to my decision and need f for surgeryand was off 5 weeks . we don't have light duty on my floor a very busy pcu . evne if you get hurt at work ,your shipped elsewhere so worked in a gift shop for 3 months when i hurt my shoulder in work
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hi Daynar, I too am a nurse, I've been thru chemo, which took 5 months, had right mastectomy with ALND and tissue expander placement last week. I was a charge nurse for a very busy 22 bed unit, I have been off work since my mediport insertion, between the stress from the job and the impaired decision making from the decadron and chemo, and the anxiety and side effects, I don't think I could do my job while going thru treatment, I've been on STD and will be switching to LTD until healed from surgery and possibly thru radiation if it's needed. I worked M-F 8 hour days before diagnosis, I've been told by my employer that my job as charge nurse will no longer be available when I go back, but because we have a union, I will have a job just don't know what I'll be doing. I've been there 27 years. My health comes first, but I'm sure if I'd made a mistake while working, I'd be on my own.
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I am so happy to have found this forum! I too am an RN...I work in ICU at a small hospital. I had colon cancer with a hemicolectomy in Dec. 2013, followed by 6 months of chemo. I went back to work halfway through my chemo because I felt pretty good...the chemo was oral (capacetibine). But when I went back I went casual, so that I could pick and choose shifts and I worked hardly any nights. I figured that would be better for my health and prevent any more cancer. Right? WRONG! I had a screening mammogram in early Dec. - sure enough, tumour was detected in my left breast. During a screening CT a second tumour was discovered in my right breast...so I am scheduled for a BMX in (gulp!) nine days - March 26.
Since my hospital is small, our oncologist also works as a general internist and is on-call often in the ICU, so I know him well. In fact, he is a neighbour! I know my surgeon well also, and most of the nursing staff. With my colon cancer I did not mind at all being a patient there. Everyone treats staff really well. While I am not thrilled with this latest diagnosis, I am glad to be in the hands of such knowledgeable, caring people. I am going to be off work at least 9 months because I will need intense chemo and radiation, and I will miss work. But I will still be going there for treatments, so I will see my work friends anyway! I will miss the patients though, and that feeling you get when you make a positive difference in someone's life.
Andrea
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Andrea--you are blessed to be able to get care at a place where you have confidence in the staff!So not fair about the second go 'round with cancer, and both breasts, too, just not fair.Will you be doing the BRCA mutation testing?
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Andrea c: did you file for FMLA..
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Hi AndreaC,
I am thinking and praying for you...next week will be very stressful I am sure! I also wanted to see if you have had any genetic testing. Although I am BRCA1/2 negative, I do have the PTEN mutation. Not as much is known about this, as BRCA is "Cinderella" and PTEN is just the "attendant"...but it is called Cowden's Syndrome. We have a much higher risk for the following: glioblastoma, melanoma, breast, kidney, endometrial and colon cancer. I have now had both breast cancer and melanoma-in-situ along with two epidermoid brain tumors. I always wondered why I was having such weird events at such a young age, as my first craniotomy was at the age of 24 and I was 42 last September...now it makes sense. I do not want to scare you, but there is a NCCN screening protocol for people with Cowden's Syndome and it is also an autosomal dominant mutation. So, my daughter has a 50% chance of having this as well. When she turns 18, we will have her tested...praying for her to have all my husband's genes. :-)
I am a Certified Nurse Midwife - started my career as an ER nurse and for the past 13 years have been working from home doing pharmaceutical research and development. No more direct patient care, but certainly making a difference in many lives bringing drugs to market. I love working from home and I really love not having to take call and catch babies at wee hours of the morning! What was I thinking?
Akitagirl
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Thanks for all the support! I often tell people that nurses are the most awesome group of people...NativeMainer - I haven't seen the oncologist yet, I will discuss the BCRA testing with him/her. (My initial contact will be at the B.C. Cancer Agency in Victoria, after which I will be handed over to my local oncologist). I definitely want to have the testing done.
Beatmon: what is FMLA? I am Canadian, if that makes a difference.
Akitagirl: I was very interested to read about Cowden's Syndrome. My grandmother died of endometrial cancer and my father died of melanoma. I will definitely ask the oncologist about being tested for that!! I have a daughter and now a baby granddaughter...I need to know as much as I can for their sakes!
Wow...this place has a wealth of information!
Andrea
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FMLA stands for Family Medical Leave Act. It allows people working for companies of more than 50 employees to take up to 12 weeks a year off, unpaid, without risking losing a job for medical care for ourselves, or to take care of an immediate family member. It also covers the birth or adoption of a child. -
Ah. I am not sure if there is anything like FMLA up here. I am on paid sick leave, which will last about 5 months. After that it's paid vacation for a few weeks, and my health authority offers long-term disability after that. I am lucky to have such great benefits...and to have a husband who works full time too.
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You know your a nurse when your head itch s you check for nits
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LOL!
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Hi, Bumping this back to the top again. Scheduled for R LX on Friday. Luckily I work as school nurse and school is almost out but had conference and classes scheduled for summer. Also help care for 2 yo. granddaughter and 87 yo. Mom. Nativemainer, I also live in Maine. (Southern)
Pat
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Another nurse here and wish I could say my employer has been supportive. I just started this job in February of this year (12 hour nights on a surgical floor) so don't qualify for FMLA yet. Short-term disability is on the horizon as soon as I can sign up for it during the benefit fair in July. When I got the dx, my manager said that she would work around my doctor's appointments, etc but we're so short staffed from people leaving that flexibility is an issue as I'm still low-person on the proverbial totem pole.
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Tempy, It is to your manager's benefit to work with you as it sounds like your floor needs "all hands on deck". You may be surprised how helpful your co workers are with switching etc. Good luck with everything! -
A lot of other people are picking up extra shifts and I would as the extra $$ would be nice but I've been so overwhelmed and exhausted I just do my 3 days per week. That and there are some weeks I have a lot of appointments and I had another biopsy last week this time on the right side. There's new people starting so hopefully once they get on their feet and running things will get a bit smoother.
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Tempy, {{{hugs}}} to you! It's bad enough to have to deal with the diagnosis, tests, and appointments (and waiting!) but it's too bad that your employer can't be more supportive. As a nurse manager, I have learned that sometimes we need to bite the bullet and suck it up to support our staff when they need it, it often makes them more loyal and dedicated. But through my own journey I have also finally realized that you need to look out for "No.1" (which is something that is hard for so many nurses!). I see from your stats that you have a mixed diagnosis, I did too. Let us know what you decide for your treatment plan! Are you having surgery?
Martha
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Rhody I'm leaning heavily towards BMX with immediate reconstruction (I hate being put under as I have a difficult time coming back out). Just have to wait until sometime in July/August until I can get signed up for STD. Saw the MO this past Monday and see the PS on the 27th with a return visit to the BS on the 29th. I worked oncology for years and it's so different being on the opposite side of things.
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I know exactly what you mean Tempy, I am also a former oncology nurse. In fact 25 years ago we did the clinical trials on the chemo regimen that I had to go through myself! That was scary for me because I knew way too much! When I first got the diagnosis the radiologist asked me if I wanted to schedule my initial appointment with the BS, etc., or did I want a nurse navigator to take care of it. I was so numb that I let them take care of getting everything started (my husband was out of town when I got the call and I decided to let the health care system do it's own job). Even with my knowledge base I could only retain so much information....it gave me a real appreciation for the importance of relaying clear information to patients who don't have a health care background. All of the doctors that I came in contact with did a wonderful job of explaining everything very thoroughly and clearly. I wish you all the best!
Martha
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My husband goes to all of the appointments and does not have a medical background - although he's learning quickly. The doctors talk to me knowing my background but then (at least with the second facility) take the time to explain everything to him and answer his questions which is great because I've been relatively overwhelmed and just exhausted so have a tendency to forget stuffs. When I was going in for the ultrasound guided biopsy at the initial facility (my BS wanted me to complete work-up where it started rather than shift mid-stream) the nurse navigator came up to me, handed me a big book of BC treatment and walked away. If I didn't have the education I have and all I was given for support is that one book .. well let's just say I was more than a little disappointed and we're not going back.
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Oh Tempy, I am sorry the nurse navigator did that! Some just assume that we can handle everything, or maybe she just does a lousy job in general! You can be sure that you will be in my thoughts and prayers as you go through the next weeks with your appointments and decision-making! I also immediately chose BMX so feel free to PM me if you have specific questions that I might be able to help you with.
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