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Coopdizzle
Coopdizzle Member Posts: 91
edited December 2015 in Just Diagnosed With a Recurrence or Metastasis

It's been 6 months since ending treatment for Triple Negative Breast cancer. I was just told today that I am stage 4. It's in lymph nodes in my chest and on my diaphragm. I am 32 with a loving husband and 2 wonderful boys(3 and 7). I should be planning for a new port and once we hear back from a special group I should start on my new custom chemo. Anyone know of good facebook groups I could join?

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  • Stenokim
    Stenokim Member Posts: 172
    edited May 2015


    I do not know of any Facebook pages, but just wanted to let you know I'll be praying for you and your treatment and recovery and also for your wonderful family. Kim.

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  • Coopdizzle
    Coopdizzle Member Posts: 91
    edited May 2015

    What are they? Thank you

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  • theziz
    theziz Member Posts: 159
    edited June 2015

    Hi coopdizzle we are in the same boat.

    One year after I fin treatment, I was on tamoxifen and a shot every month and I am do with a recurrence.

    Now a PET CAT scan, MMR and brain scan.

    I have 2 young kids too. I'm 38 yrs.

    I will pray for you

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  • Coopdizzle
    Coopdizzle Member Posts: 91
    edited September 2015

    Sorry, I don't come on that often. Cancer sucks! You and your family are in my prayers also


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  • Kateingermany
    Kateingermany Member Posts: 3
    edited December 2015

    Hi, I am new to this forum - unfortunately just diagnosed with lung mets after a 5 year fight with TNBC. Like you I've been looking for some support groups especially on FB but I can't seem to find much. TNBC is so hard to deal with and getting told you are Stage IV is a punch to the stomach.

    I'm an expat (originally a Brit) living in Malaysia with my lovely husband and kids aged 8 and 10. They have only known my life with breast cancer and that really makes me sad. I've been through 2 lots of chemo in 2011 and 2013 and now it seems there are no definitive answers. I'm starting on Xeloda today because I want to go home to the UK for Christmas and it seems the most flexible regimen. I'm trying to stay positive but it's hard. There seems to be a lot of trials out there - my husband is convinced that immunotherapy is going to be the 'cure'! It's so positive that there are lots of things in the drug pipeline for TNBC - many more than when I was first diagnosed in 2011. We just have to hang on in there right?!!

    It would be really great if I could stay in touch with you ladies. It's a lonely place when you have MBC and nobody else really understands.

    Sending all of you positive vibes!


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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2015

    Hi Kate-

    We want to welcome you to our community here at BCO. We are so sorry for the circumstances that have brought you here, but just know that you're in the right place. You are not alone, and you will get the support you need here.

    We suggest taking some time to read through our MBC thread to familiarize yourself with the other members and their stories. Our MBC community is very welcoming and knowledgeable, so please don't hesitate to reach out to them.

    The Mods

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