TRIPLE POSITIVE GROUP
Comments
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Debiann, a coworker of mine who's about three years out from her diagnosis and had Herceptin said she thought her hair started growing faster once she was done with Herceptin. That gives me hope.
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geewhiz, you are awesome!!
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gee whiz glad you had a day too yourself with kids, if he loved his mom so much he would get someone else to deal, he is using you, as most men do, my dr finally reamed out my hubby cause he thought I was not sick enough to be fatigued, when I finally went off on him, the dr said its all true, plus each body handles different side effects differently. Don't be taken advantaged of, we are all pretty sick from this horrid disease. Feel better all!
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Some very hopeful news....
A new type of blood test is starting to transform cancer treatment, sparing some patients the surgical and needle biopsies long needed to guide their care.
The tests, called liquid biopsies, capture cancer cells or DNA that tumors shed into the blood, instead of taking tissue from the tumor itself. A lot is still unknown about the value of these tests, but many doctors think they are a big advance that could make personalized medicine possible for far more people.
They give the first noninvasive way to repeatedly sample a cancer so doctors can profile its genes, target drugs to mutations, tell quickly whether treatment is working, and adjust it as the cancer evolves.
Two years ago, these tests were rarely used except in research. Now, several are sold, more than a dozen are in development, and some doctors are using them in routine care.
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Thanks - I should probably add, (so that I dont sound like a complete monster, just an exhausted mom) that other than her primary caretaker, I am the one who takes care of her the most. Her kids ignore her, or "can't handle the pain of not being recognized". I mean, wth? We had always been somewhat close, and she remembers my name. She seems to have forgotten most of her kids. But still, I have my own 2 parents to take care of, not to mention 3 kids. I am now very over my in-laws seeing me as nothing more than a sitting service. When they need me to take her for the week etc., they dont even bring her to me. I have to drive an hour, clean her up etc. And the cost of care would bankrupt her - its precarious. There is a lot of longevity in her blood (parents and most siblings live to 100 years old. Dad was 103, mom 101) and she is 88 and in good health OTHER than complete dementia.So a facility is 7k a month minimum and a nurse is $25 AN HOUR!!! So take that times another 10 years, and well...UGH!!!!!!!!!!!!
Rant done -sorry : )
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You don't sound like a monster at all, geewhiz, I completely understand. My mil had dementia too and we were the only family who helped her. While she stayed in her home, my DH ran his business only part time so he could care for her and he slept at her house many nights for a couple years. When she passed his siblings finally came around, wanting to know what they were getting.
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still sorry for your unshared responsibilities, I am really big on stress and cancer, and wholeheartedly agree that added stress does not help us recover as we might like to, or can! Please consider that her responsibility is NOT yours alone. Tough ! You have responsibility to your own children and self. Tell them they need to have a family meeting and make a decision, life is not fair, but you have your share already and if you want to get better, than you need to care for yourself, if you choose to care for her, I will pray for your complete peace of mind and health to do this job.
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geewhiz people don't understand the stress of caring for an elderly relative especially with some form on dementia. I know my mom cared for my grandfather. He lived with us. She cared for her mother when she was dying of cancer. Then cared for my other grandmother when she was dying of cancer. My other grandfather was upset when my mother wouldn't take him in too. (Note her father was still living with us). He never spoke to us again. Note that there are 5 kids in my dad's family. He went to live with his oncologist son (who had plenty of money to take care of him. Wife is a nurse).
Her father lived to 89. My other grandfather lived to 95!
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we all make choices in our life, we need to understand the choices we choose. Ignoring is not a choice by them, it's using you because they are probably selfish, I understand the part about not wanting to watch a parent drift away or forget them, yes it hurts, BUT. You have your own issues, and they won't go away magically either. Hugs to you and take care of you and your children and tell hubby to get a reality check, your doctor can intervene for you, mine did.
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Hi everyone - I have a few questions. My stepmother who was recently diagnosed with cancer is currently undergoing surgery and will be facing a long stretch of Chemo.
My dad said all three indicators they look at came back positive. I am not 100% sure what all that entails and I have tried to look up information but it doesn't make a whole lot of sense. Can anyone help me? My dad also said that when all three numbers come back positive it is not curable....Is this accurate or is he misunderstanding her doctor?
Thank you for any help you can provide.
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Hi FullerMomma!
"Triple positive" means that a cancer is fed by hormones (estrogen and progesterone) and that its growth is stimulated by the overproduction of a protein (HER2). That may or may not be what your Dad was referring to.
If your stepmother's cancer is triple positive, that doesn't mean that it can't be eliminated to the point that there is no evidence of disease. Indeed, many women diagnosed with triple positive cancer can be said to be "cured" if they never suffer from recurrence. But, such cancer is typically Stage I, II, or III.
Now, if your stepmother is Stage IV, that means that her cancer has metastasized. It has left the breast and near-lymph nodes and has made a home in her bones, liver, lungs, brain, or elsewhere. Stage IV cancer is typically treatable but not curable. Many women do live years with Stage IV cancer, but there's a good chance that they will succumb to the disease at some point.
Hope this helps!
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WOW Lago - your poor mom. Holy cow. There is SUCH a need for long term care in this country, and with the baby boomers aging...I cant even imagine what's coming down that pike.
Jerseygirl - not a bad idea to have doctor intervene if it gets overwhelming. I earned the cancer card, might as well play it occasionally lol.
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geewhiz I do have long term care insurance. It just went up last year but still worth every penny. I got it when I was 49 under my dad's former employer's group plan so still pretty reasonable. I have no kids and I'm younger than my husband who smokes. Granted I'm the one who got cancer.
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Today was one of the best days I ever had. My daughter had her baby and I got to stay and was there in the delivery room.I can't stop crying for once it is a very happy cry.
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Your grand baby is beautiful Angie
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ANG!!! What a blessing! I am so happy for you, I got teary! Beautiful baby. Congratulations, enjoy every delicious moment.
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congrats, she is beautiful, enjoy the endorphins.
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What a beautiful grandbaby! Thanks for sharing. Congrats to you and your family!
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Thank - you everyone . Just thought I would share some good news .
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She's a beauty, ang! Congrats!
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that is indeed a beautiful baby! Congratulations!
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ang - congrats to you and your family! Thanks for the picture - beautiful!
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Hugh congratulations to you Ang on the arrival of your grand-daughter, she is absolutely beautiful.
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Congrats on your grand baby ang. such a cutie!
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Ang - congrats on the beautiful Grandbaby. So happy for your blessings!
PMR53
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Ang - congrats on the beautiful Grandbaby. So happy for your blessings!
PMR53
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Ang wow how cuuuuuute!
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Again thanks everyone the little one already comes home today!!! I'm so excited
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Hi all~ It's been a very long time since I've been on the boards & I'm seeking your expertise for a friend of mine just recently diagnosed. She has Stage 1 triple positive IDC, 0.7cm, 0 node involvement. Her MO is recommending 2 rounds of chemo + Herceptin, followed by radiation. I am confused about this as it appears the NCCN does not recommend chemo?
In addition, the MO quoted her a recent study that just came out that involved 1000 women over 10 years (started in 1990) BUT the women were ER/PR+ and HER2- AND had (+) node involvement. Are any of you familiar with this study? Can you help me understand why the MO is recommending chemo at such an early stage with no node involvement?
Thanks for sharing your knowledge!
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c-squared - her treatment is driven by the Her2+ aspect, and chemo/Herceptin is usually recommended for anything over .5cm, so her onc is recommending recognized protocols. I am not sure what is meant by two rounds though - and for smaller Her2+ tumors many are now doing Taxol/Herceptin for 12 weekly for 12 rounds, then Herceptin for the balance of the year. Here is some info about Taxol and Herceptin:
http://www.breastcancer.org/research-news/herceptin-plus-taxol-reduces-recurrence
Page 40 of the patient version of the NCCN guidelines states that tumors greater than .5cm may be treated with with chemotherapy and Herceptin.
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