stage 3a breast cancer survivors

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  • jenni__ca
    jenni__ca Member Posts: 461
    edited May 2013

    tresa - remember many of the commonly available statistics (and the "i knew someone 30 years ago who had a tough time then died" stories)  are just that 30 years old ... we're making progress and none of us is a statistic ... even though my 9th anniversary is next month there are still moments when my heart stops and i think "oh crap" but i'm enjoying life and retirement .... take a deep breath when the panic hits and hang in there ...

  • Shanigirlbarbie
    Shanigirlbarbie Member Posts: 1
    edited May 2013

    Hello Mariar,  I am a stage IIIa survivor, four years outSmile

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2013

    Thank you Jenni. It's just so nice to hear from others like yourself. Where are you in CA? I lived in Laguna Niguel from 1980 til 92. Was a flight attendant with Northwest, then started a family in Western Wi. I have a 20 yr old daughter and 17 yr old son, wonderful husband, 4 dogs, 2 horses, and a cat.Lots to live for. My sister had stage 1 ILC 16 yrs ago and my mom the same just 2 yrs ago. They are both alive and well. I wish you and yours the best and hope to hear more from you

  • lifelover
    lifelover Member Posts: 553
    edited May 2013

    Hi there, I'm 2 years from diagnosis IIIa and excited to be enjoying my life again just like I used to Cool

    All scans including a brain scan negative!  Wha .  .  . hoooo!!!

  • AliceS
    AliceS Member Posts: 98
    edited May 2015

    Am so very happy to see all of your encouraging posts-- just finished chemo and radiation with few side effects-- continuing Herceptin every three weeks for the rest of the year. Pretty scared about a reoccurrence, though. Would love to have current information from some of you on more success stories. Always gives me a lift and lots of hope to read these--we all have so much to live for. I'm her2 positive, stage 3a.  (4/24 nodes). I'm AliceS but real name is Stephanie.

    Thanks and best wishes to all of you,

    Stephanie

  • Kicks
    Kicks Member Posts: 4,131
    edited May 2015

    HI - I'm IIIc and 5+ yrs post TX for IBC and as far as I know today still NED.

    Life is great and as active as ever. I now my yard (and a couple of other yards to help out others) with my push mower, ride (our horses and my bicycle), garden, fish/flyfish, anything I decide I want to do.

    The first Sat of June, I'll be doing the Crazy Horse Memorial Volksmarch which is 10k (6.2 miles). It starts in the parking lot at the building and winds through the woods at the base of the carving and then up to the arm in front of the face. Then the route back down to parking lot. The only time that people are allowed to go up on the carving is on the Volksmarch. Quite a spectacular view from up there.

    Since DX, I have always fished but after DX I took up fly fishing. Hubby bought me a rod and reel and got me some lessons from the local Fly Fishing store. I then took a few fly tying classes at Canellas.(Hubby got me the needed tools). Then I got in Project Healing Waters (a nationwide private program for Veterans) and learned how to build rods. So far I have built several fly rods and some spinning rods - working on a very customized spinning rod Son.

    I have also learned how to do Flint Knapping (making arrow points and blades) and how to carve Woodfellow.

    Trying to teach my bunny to do Rabbit Agility (basically it is same thing as Dog Agility but for rabbits).

    If it ever gets warm enough this summer, we are going to try kayaking. (We are under a Blizzard Warning as I write this.)

    So yeah I stay busy having fun. By the way, I'll be 69 years young next month.

  • HappyOwl
    HappyOwl Member Posts: 7
    edited July 2015

    I am just one year out, stage 3a. I am loving reading the encouragement here and also realizing that I am not alone in how I feel. Well meaning people expect that I should be perfectly fine and "back to normal" since everything is done, but in no way have I defined a "new normal" yet. Some days are better than others; being busy helps, but not a day goes back that I am not reminded about my cancer and the anxiety about recurrances. Intellectually, I believe I will be fine and I know there is new research being done every day, but emotionally it's another story. Thanks for the support everyone!


  • Holeinone
    Holeinone Member Posts: 2,478
    edited July 2015

    Hello happy owl,

    This thread has not been active for a couple of years. I wanted to say, our dx is the same, only mine being lobular, not ductal. Also I am a year ahead of you, almost.

    Life moves on. I am not confident about my odds, but enjoying life, keeping busy

  • Summerhayashi
    Summerhayashi Member Posts: 1
    edited September 2016

    hi

    Just want to say hi to all and hope that you are all still doing great. I too a stage 3a'er and right now undergoing AC chemo and it's been really tough to go through such strong chemo, this Thursday is my fourth and final round of AC and to be followed by 12 rounds of palitaxel chemo. I feel weak and amazed to read about some ladies are able to go normal lifelike such as exercise during AC, my salute to them

  • peacestrength
    peacestrength Member Posts: 690
    edited September 2016

    summerhayashi, chemo is tough...take it day by day...hugs.


  • ash123
    ash123 Member Posts: 99
    edited September 2016

    summerhayashi, hang in there, have been there, hugs.

  • LindaKR
    LindaKR Member Posts: 1,577
    edited September 2016

    stage 3a and almost 6 1/2 years out

  • damazon
    damazon Member Posts: 66
    edited September 2016

    I'm interested as I am Stage 3A lobular, 4.5 yrs out no problems until PMB a few weeks ago. Tomorrow I go for an endometrial biopsy. I am drinking wine tonight. Wish I felt like drinking a second bottle. But I think it might make me feel sick. Nonetheless, I am afraid. Not so much, of endometrial cancer, because that is apparently only a 14% likelihood, more likely, 60% I have hyperplasia, probably with atypia. And even though only 30% will proceed to endometrial cancer I do not want a hysterectomy. Nor do not want to now start Femara because I can no longer take Tamoxifen as I have osteopenia. I had an 18mm uterine lining thickness on TVUS 3 weeks ago. Am I in trouble? Life can be so hard. I am half way through implant unilateral reconstruction on my right breast. I want to get off this merry go round. Stick my head in the sand and allow fate to play.

  • lifelover
    lifelover Member Posts: 553
    edited September 2016

    Hi LindaKR and congratulations on 6 1/2 years!!!!

    Damazon, that is a real bummer. I hope it turns out to be okay. Good luck with your biopsy. Let us know the results. Head up and keep moving forward. I know what you mean about sticking your head in the sand. I wish that many times - but that would mean giving up and I for one, have kind of tried it - and it was overrated :)


  • damazon
    damazon Member Posts: 66
    edited September 2016

    Thanks Lifelover,

    I had the biopsy yesterday but the gyn/onc told me that he could only get partly up to my uterus and believes the sample will come back as insufficient. He told me he will make arrangements for me to come and see him perhaps as early as next week. He said he could try again because sometimes it will work but there seems to be an obstruction. He told me they could do a general anaesthetic and I think he said place a camera inside. Sigh! So much stress. My husband suggests not to worry as I have no information and therefore no need to worry yet.


  • lifelover
    lifelover Member Posts: 553
    edited September 2016

    Damazon, it's so hard not to worry, I know. Just follow through to make sure you get a sufficient biopsy.

    My first breast biopsy was done poorly and with my history of Hodgkins Lymphoma in my chest and radiation treatment to my chest there was no excuse for not having another one done. I should have followed through. Instead, what was possibly at least DCIS turned into my higher grade BC a year later.

    Try to distract yourself as much as you can from worry but do follow through and make sure you get the best care you can from your docs.

  • Frill
    Frill Member Posts: 311
    edited September 2016

    This is a good thread for me to read. I'm heading up on 1 year since DX and I thought this would be just about over and it's so so not. I haven't started rads yet, landed in the hospital for 8 days about 10 days PFC, so I see drs next week to talk about it. And foobs, we didn't get to finish BMX because I almost croaked on the operating table. It's been a roller coaster.

    I've always been so resilient, and I'm not sure cancer has taught me anything. I was stubborn before. Now I'm curled up in the fetal position. Still stubborn. I stubborned my way through chemo, worked, made everything think I was fine. "You look so healthy." I should get an academy award.

    I'm getting more and more to where I can't get out of bed when I'm at home. I travel out of town for treatment and work. It makes me ashamed of myself. But a year from now - instead of this year - maybe it will be different? Maybe I'll be getting ready to start recon. Ugh.

    But there is an end. Too many of you all are saying there's a light at the end of the tunnel.

  • ErenTo
    ErenTo Member Posts: 343
    edited September 2016

    Frill, I'm only a few months 'ahead' of you and can't say it's much easier. As long as I don't have any ache and pain or weird things going on with my body then I'm fine, but with instant menopause + AI, I do have something everyday! And then there is normal stuff, like a headache, which with cancer history takes on a whole new dimension.

    For me keeping busy is key. Exercise, dancing, travelling, socializing, studying, focusing on a hobby, mindfullness. All these distract me from myself, I hate being obsessed by cancer. It's a work in progress, we'll get there.

  • Frill
    Frill Member Posts: 311
    edited September 2016

    I think some of it is that it is taking so long. Everyone (it feels like) that I started with in the November 2015 surgeries thread is done with treatment. My January 2016 chemo thread peeps are done with rads. If I could just maybe finish the treatment phase, maybe I would have some closure, even with a uniboob. Or maybe I could talk Lucy Lawless (BC surgeon's nickname) into finishing what she started while I've met my deductible if recon isn't on the horizon for next year's deductible.

    There's no done with this-ness. Yes, I'm done with chemo, but I'm not done with them poisoning me. I wanna be done with that.

    I have hobbies. Had. I know how to knit, crochet, paint, read, every craft under the sun, yoga, gardening....my yard last year was so freaking gorgeous.

    A headache for me ...... I don't even.....two brain aneurysms AND cancer.....lol.......

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited September 2016

    Frill,

    I felt the same way when I was doing active treatment. I thought it would never end. I didn't do reconstruction, but I was HER2+. So, that was five months of chemo, surgery, six weeks of rads, and then a year of Herceptin! Ugh.

    BC is a marathon not a sprint, alas. Hope you get through treatment sooner rather than later so you can get on with your life. ((Hugs))

  • live_deliciously
    live_deliciously Member Posts: 346
    edited September 2016

    im right in there with you on time frame. I'm almost done with the trial drug, i finish Oct 11. I will finally get the exchange surgery Dec 1 which had to be delayed til I was finished with the trial drug. My attitude is that yes I'd like to be put back together again but the bigger picture is surviving first so my vanity had to wait. It will make it all so much greater since I've had to wait. I too have watched all my chemo friends move on but now it's my turn too. Yes bc still takes up retail space in my brain but it's way less than it used to be and I'm sure from what everyone tells me it will become less and less so you are not alone, there are others too. They told us the biggest recovery time was for the mental PTSD this bc stuff causes. I believe it. Reach out as you need. We all get it and are here for you. Hugs........

  • Denise-G
    Denise-G Member Posts: 1,777
    edited October 2016

    Five years ago today, I found out I had breast cancer - Stage 3 a, 6 cm plus tumor, Her 2 Pos, 9/14 nodes....had a heart attack during AC Chemo and permanent valve damage during Herceptin so only had 3 months of Herceptin instead of 12.

    And here I am, 5 years later - still here!  I am praising and thanking God all day. Sending hope and encouragement!!!

  • Ware
    Ware Member Posts: 70
    edited October 2016

    Wonderful! Here's to another 5 years filled with health and happiness!

  • Kayrem
    Kayrem Member Posts: 164
    edited October 2016

    Congratulations on 5 years from diagnosis Denise -G! Here's looking forward to the 10 year, 15 year, 20 year, etc anniversary

  • LM070917
    LM070917 Member Posts: 323
    edited October 2016

    Congratulations Denise, that's fantastic news! Here's to many more years/decades to come

  • reflect
    reflect Member Posts: 576
    edited October 2016

    Wonderful news Denise, and inspiring for us.

  • SSInUK
    SSInUK Member Posts: 245
    edited October 2016

    thank you and so pleased for you Denis

  • live_deliciously
    live_deliciously Member Posts: 346
    edited October 2016

    hi Denise. Love it! Thanks for reaching back to us newbies. Wishing you many more years cancer free . Hugs....

  • Janniree57
    Janniree57 Member Posts: 7
    edited October 2016

    Glad I found this thread...2 weeks post-op and 7/17 nodes were positive. Feeling more hopeful. Thanks for sharing your stories.

  • Pixiegirl23
    Pixiegirl23 Member Posts: 3
    edited July 2017

    So glad I found this thread. I am three weeks out from surgery. I had a double mastectomy and I'm getting reconstruction done.

    Today I went for my post op visit with my breast surgeon and I found out I'm Stage 3a. My tumor was almost 5 centimeters and 6 out of 15 nodes had cancer. I'm her2 negative and was told my tumor was estrogen based. To say I was surprised is an understatement. I felt like the rug was pulled out from under me. I had my daughter with me and when I heard what the doctor said I looked at her and just cried. I'm still crying.

    I'm not afraid to fight this battle but after today I was so afraid of dying and leaving my kids.

    Any successful stories are greatly appreciated. Any encouraging words would be awesome.

    Just feeling so down and lonely right now.

    Thanks for listening to me.

    Love and happiness to everyone.

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