Meeting with plastic surgeon in two hours. Have some questions.

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mazy123
mazy123 Member Posts: 38
edited May 2015 in Breast Reconstruction

Hi Everyone, I was diagnosed last week with Invasive Lobular Carcinoma in my right breast. I am 44. It has been a lot to take in this week and I so appreciate everyone who answered my questions on the ILC thread.

I just got the call that they had an opening with the plastic surgeon this afternoon and I have some questions. I am leaning towards a double mastectomy and hope to save the nipple and skin on the right side. I am assuming it won't be a problem on the left side since that side doesn't have cancer.

Are there some breast surgeons that are more likely to perform nipple saving surgeries? Does it all depend on what they find once they get in there? Are they able to tell you pretty accurately if they think they will be able to do it? If I got a second opinion would that doctor be likely to give me the same opinion and outcome?

I called this morning to talk to patient coordinator for my surgeon. She said that the doctor was leaning towards not doing nipple saving on my cancerous side. This is a question I didn't know to ask last Thursday.

It is a subareolar tumor, small size they think. I saw the mammogram at yesterday's radiologist oncologist appt and tumor isn't right up by nipple, but not sure how they make that decision.

I am also confused why some get tissue expanders and some get implants put in right away. Are the only people that get implants right away the ones who don't have any cancer yet? I can't seem to find the answer to that question. I understand that if the skin can't be saved then there is no room for an immediate implant, but what if skin is saved and there is a pocket for implant.

I realize that he will probably answer these questions, but wanted to get your perspective on it too.

Thanks so much,


Mazy

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2015

    I don't know if you will see this prior to your appointment but thought I would post anyway.  Breast and plastic surgeons usually perform the type of procedures they are comfortable with and have experience with.  Some docs will do nipple sparing and/or direct to implant, other won't.  If your initial BS/PS team does not recommend or do them, you can seek an opinion from a BS/PS team that you know does to see if it is something they would recommend for you.  Often when planning a direct to implant recon they will tell you they will bring both implants and expanders into the OR, plan for implants, but use expanders if they find something that prohibits them from going with implants off the bat.  I think, for the most part, whatever the original plan is does get followed - by the time you are in the OR they have done imaging and have a good idea of what your individual situation is, but it is prudent to be prepared.  The last thing you want is to wake up with neither because they did not bring options.  There are criteria beyond prophylactic breast removal that dictate whether nipple and skin sparing can be done, and whether direct to implant can take place. Generally for nipple sparing doctors prefer a smaller breast size, little to no ptosis (droop), and good skin elasticity and health.  Position of the cancer in relation to the nipple is also important.  For direct to implant you can only end being the size of what implant fits under your pectoral muscle.  You are limited to that so if you want to be larger expanders are usually suggested so that the pectoral muscle is stretched to the desired size to accommodate the larger implant.  That is not necessarily to say that you must remain small - only that you have a limit to what will fit behind that muscle without stretching it first - for some the size is perfect, and can be the same as their natural breasts, or even larger.  There are certainly cancer patients who have direct to implant, but in some cases if radiation is required doctors won't place them immediately because of the risk of capsular contracture, or issues with the reconstruction from rads, or if the implant will obscure the field of radiation. Good luck and hope you have a good meeting today!

  • mazy123
    mazy123 Member Posts: 38
    edited May 2015

    Thank you Special K for taking the time to give me such good information. That really helps. I met with the plastic surgeon and really liked him. He seems to have a great reputation and explained to me why he likes to do tissue expanders. It made sense to me, but I might seek a second opinion.

    You answered my question. I have been wondering if it is a doctor preference and comfort level or is it more patient based. I guess it is both. I am finding it interesting that different doctors might have different approaches. I guess that makes sense, but it is a little overwhelming to navigate.

    Thanks so much!

    Mazy

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2015

    mazy - you are welcome!  You will find that not all plastic surgeons have the same training, desire to learn new techniques, or comfort level with all procedures.  It can be a challenge to find one that you like who does the procedures you may want - but keep looking.  The good news is that you are in a geographic area with many choices - my son lives in Ashburn also!

  • kmahalick
    kmahalick Member Posts: 19
    edited May 2015

    SpecialK question, each revision takes a bit out of us, I notice you have multiple reconstructions listed, I am switching to another PS and wonder about the issue of the skin becoming thinner each time they redo things, did you have an issue with that?


  • mazy123
    mazy123 Member Posts: 38
    edited May 2015

    SpecialK, Thanks for your response. That is so funny that your son lives in Ashburn! I got a second opinion from a different breast surgeon yesterday and so glad I did. I really liked her a lot. I now have my surgery date set for May 21st. I really liked the plastic surgeon too and breast surgeon agreed that expanders would be best for me so that is what I will do. I feel like I am in good hands and it feels really good to have a plan in place.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2015

    mazy - excellent - glad you are set up and feeling good about your choices and docs. My son works in the ER at Fair Oaks hospital, is an Ashburn firefighter, and goes to George Mason - he's a busy kid!

    Kmahalick - my surgeries are listed as reconstructions because this site has few choices but they have not been revisions for aesthetics, other than one fat graft. I have had multiple skin repairs which have caused loss of expander, replacement, need for allograft repair, and currently,loss of implant. My incisions are IMF so I have not experienced skin thinning like those might who have incisions on the front on the breast who have needed repeat surgeries. I have had skin on the front on the left side excised six times in an area that had necrosis after Bmx and it was thin from that and remains compromised. I have had recent fat grafting, and will again in two weeks, in an effort to bulk up that area.

  • dtad
    dtad Member Posts: 2,323
    edited May 2015

    again if you are thinking of only a lumpectomy I would get a MRI first so you know exactly what you are dealing with. Especially if you have dense breasts

  • kmahalick
    kmahalick Member Posts: 19
    edited May 2015

    SpecialK, Thanks for the response, much appreciated.

  • KJSUN
    KJSUN Member Posts: 44
    edited May 2015

    SpecialK - Did you have your surgery at Moffitt? I have had both my surgeries there and may have my reconstruction there also. I was told about a place in New Orleans that specializes in reconstruction, that is all they do. I will definitely look into that too. I can't do anything until I lose weight but I hope to have that option. I was not aware of all the potential problems that can come up with the reconstruction. It really makes you think about it. Is it something you would do again? I guess they didn't go over everything with me because I can't do anything right now. I wonder if other health conditions would make a big difference on healing after reconstruction. I see that some people don't have anything done for quite a while. Do you think it is because of healing time or something else? I was told I can't even get a prosthesis yet, it is too early. I just want to go out and not be self-conscious. I guess I just have to be patient.

  • happynewyorker
    happynewyorker Member Posts: 39
    edited May 2015


    Hello, I can tell you the reason on the expanders and getting the implants.  I have type 2 diabetes and I had to get the breast expanders because with diabetes it doesn't always take because you had healing problems.  I had a mastectomy on my right breast on February 19, 2015, they removed 95% of my breast and no nipple and will be having my reconstructive surgery on Friday, May 15. 2015.  It will be 3 months since my surgery on the 14th, and I will still have my drainage after 3 months.  This darn thing doesn't want to go below 30.  My new drainage number is 60.  But my doctor will find out why it's not emptying out on Friday.  I can't wait.  I'm tired of my mini football (my name for my breast expander), it looks like a football, but feels like a basketball.  If you have it, make sure to get lots of gauze pads, to stuff underneath your football.   Happy It helps when it's hot outside and you're sweating. Don't want it rubbing. 

    In the beginning have the breast expander, it feels like your wearing armor.  The expander has a metal plate for the port, for the saline and you will feel it until it starts to expand.  They will wait about 3 weeks and that's when they add the saline.  The doctor will expand it every week. What ever you do, don't have them do a double, it's very painful.  I got oh, I have room, you can use a bit more.  B*tch I wanted to kill my doctor the following week.  SillyHeart It was painful.  But, I'm done with the filing and I'm happy.  I just want it out.  I've taken tons of pictures as it won't be part of me any more!!

    I'd suggest that you go to a breast cancer group meeting. Some hospitals have them.  Here you can speak to others that are or going through what you're going through and they can help you.  I went after and I did receive help from many of the ladies.  Many are older, about 4 are my age in my 50's. 

    Make a list of questions and every time you think of something write it down.  Also ask if you can email my doctor.  I did and I forgot my email but she had it and we were able to discuss all the questions I had. 

    Best regards,

    Lee 

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