Her2 + Starting TCHP tomorrow. Anybody else joining me?
Hi,
I am starting the TCHP regimen tomorrow. Terrified of it all but trying to go along with it and hoping for the best. Anybody else starting this particular regimen soon or just started or has been through it. It sounds like it's going to be a rough road. I would be great to give each other advice as we go through together. Thanks!
Comments
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hi mye,
Just droppin in to say you can do it! Join a chemo group here, it really helps to go thru it with sisters. It is different for every woman, so hope yours is mildly annoying only......prep is so helpful, so just do your best and it goes pretty fast. Best tip I got was eat whatever you are able to, drink loads of water, and be sure you let onco know of any issues asap.
I finish Herceptin on july 10!!!!! You are not alone. Mark your calendar for a huge party when done and it will get here. Hugs!!!
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Hi mye I am also on tchp I started last month April 16 I don't want to scare you but I am in the hospital right now my wbc count was extremely low so my advice to you is hydrate hydrate hydrate and get a neulesta if they offer it my oncologist didn't and that's why I am here I will be recieving the shot from now on! The good news I've only had 1 treatment and it's already sheunk my tumor a lot so this combo must work well there are her2 positive boards on here with lots of info good luck!!
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Dear Stephmoen,
Thank you for replying and sharing your experience sofar. You are not scaring me at all, no worries, and I am taking your advice about the Neulasta that I was dreading and hydration. I am just sad that you had to go to the hospital bc of the blood count. I hope they perked you up back up quickly.
I am happy that your tumor shrunk, it makes it all worth it :-)
I wish you strength and courage and success. Good Luck!
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Dear Bippy625,
Congratulations! And thank you so much your encouraging words. It is comforting to know that there is an end to this craziness and to know that you have reached it (or so close)!
I will drink lots, eat what I can and talk to my Onc when sth comes up. I have the tendency not to want to bug people too much but I think I have to learn to put that aside in this case. Happy July 10th :-)
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mye,
i too did not want to bug them when I had major issues with the big D aka diarrhea and nausea. I almost landed in hospital too! So never hesitate to call onco, that is part of their job. I did have to get iv to replace fluids once, but had my hubster not intervened and called, I surely would have had an overnight stay vs. the iv. I learned that during chemo our old habit of pushing thru on guts does not work.
Is today your first tx? Is someone going with you?
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hi Bippy625,
Yes, today is the first treatment. Trying to relax and let go and go with the flow. My husband is coming with me and I believe staying most of the time, maybe switching with my sister at some point. They said I was going to be there for about 8 hours.
I had heard from the nurse that it is the diarrhea, that I will need to watch out for. Not sure what the signs are. I will ask today. Did you take lots of Imodium or a prescription medicine? Did the diarrehea last for days?
Thanks for any insight you are willing to share,
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yes, I had major Big D but just for about 7 days post each tx. Then it tapered off. I took loads of Immodium and pounded gatorade. Most everyone in my chemo group had the D. As awful as it sounds, get a clean up kit ready in your car--wet wipes, change of clothes, towels, large ziploc bags, hand sanitizer,etc. believe me, you will be glad to have it one day. Just when you least expect it.....poo tsunamai!
I had unrelenting nausea for the second treatment and right on through to the end. Any movement, especially car riding, made me green. They gave me the Zofran and other rx things, but it only took it down to about 20%. Then my onco told me to smoke leaf marijuana for relief. That was great and really also helped anxiety, but took the nausea down to only about 10%. Desperate times, desperate measures. Some women don't get nauseous at all, or if so, the meds work great.
For most of my chemo I was on the BRAT diet. Some women have no trouble eating anything at all. I was very envious of them! I had many difficulties with food. Your tastes may change and your smell may be off, so things you normally absolutely love will disgust you. It is a very bizarre thing. I could always manage to eat mashed potatoes and gravy though. Just try to eat when you can, and what you can.
I tried to walk a little each night. Did not always succeed. It helps with the fatigue though.
Never was a pill taker pre BC, but found a little xanax very helpful before chemo and for sleep.
So best wishes for good sleeps tonight, it will be a scary rough day first time. I remember it well, and so good that your DH (darling hubby) is with you. It gets down to about 5 hours or so after the first few times. And when you get to herceptin, it only takes 1!
Hope i have not scared you but honestly these are things i wished I had been warned about a tad more. So here is hoping you need none of my tips!!!!
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Bippy,
Thank you for all the warnings and great tips. My first treatment day today was very long and tiring but at least it went as planned without any surprises.
According to the RN the I can look forward to the side effects in about two days. He said it can be diarrhea but he's had patients with the opposite, constipation. How can it be so different for everyone?!
I had to laugh reading your post and the big D and the "poo tsunami". You are hilarious! :-)
Doctor also ordered me Xanax and also Percocet for pain in case I needed it. Me too typically I stay away from pills but I'm trying to be more open to things.
Ready for my bed,
Goodnight!
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so glad you are done with number 1. Lol the poo tsunamai!
I forgot to mention that yes, it sets in in about 2 days. Ha! I prayed for constipation, never was that lucky
. But yes, that does happen to some ladies. I got miralax and only needed it after my surgery later on.
The neulasta shot, did anyone mention taking claritin to minimize aches after? I hated that darn shot.
The cycle is, chemo=side effects for about 10 days after, then gradual improvement till next tx, repeat. So you will have some good days, it is not all bad. You will feel almost normal a few days before the next tx! Fun times....
After the first tx, I felt both my very palpable tumors shrinking, and could not find either one after tx 2. That is a powerful, wonderful feeling! So if you can feel yours now, they should be going bye bye soon. Also, when they die off, i felt little jolts like tiny shocks. Not painful. I ended up with a total pcr (complete pathological response) to chemo.
Take good gentle care my friend......be kind to yourself and your body. Rest, hydrate, journal, netflix, whatever makes you feelbetter. The pills really do help, so it is good to have them. You will do fine!
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Hi,
I started my tchp treatment already. I am actually on tc #2. I been doing ok.
Bippy - I read about your treatments as you were going through it. You are so upbeat, positive and I love your sense of humor. Very strong. At first, I thought about not eating this or that but then I realized eat whatever you can during treatments even Captain Crunch. I love thoses.. Bippy you are an inspiration and I hope I can be as positive as you during my treatments.
Linda
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Hi,
I just joined in this group today and am glad I found this so I have sisters to ask and share with. I have HER2+ breast cancer and maybe in two weeks would start the treatment. But tomorrow I will have a surgery which will put a "thing" on my chest (forgot what the name was
).
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Hi Angel,
I just want to wish you good luck with the port surgery tomorrow. I had mine a little over a week ago. It was done without sedation, just local anesthesia. I think I probably would have preferred some sedation in hindsight. I guess I didn't want to be so aware of what was going on :-)
After surgery it was uncomfortable for 3-4 days, but tylenol worked.
I went back and forth about whether to install it or not, but as soon as the first treatement I started appreciating it.
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how is everyone doing front ttratment
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Linda, I forgot about Capt. crunch! Actually, my pal stronenough gets credit for that. And I could eat it at times with almond milk. I'm honestly happy that my words may help someone else, and it cheers me to know it has. I am a frustrated writer and am publishing a memoir about this mess. Ha! That is all I ever wanted to do, write, and never did after school. Now I am motivated.Silver linings, right?
Hope you all are doing good today. days 3-8 post tx were tough ones.
Mye, you get those meds yet, and did they help?
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Hi ladies!
I'll be finishing up with TCHP next week! I'd say (comparatively speaking) I had a pretty easy time of it. I'd feel tired right after chemo, and then the Nuelasta shot would have me down for about two days feeling achy like I had the flu and a horrible headache. The first week after treatment the worst SE was not being able to eat anything. Everything tasted horrible, sounded horrible—even seeing a commercial with food would make me cringe! And heartburn was pretty bad too—over the counter Prilosec worked for me. I had diarrhea, but never the "running to the bathroom" type (Imodium worked). Probably for the first 4 treatments, I'd have one bad week—then 2 good ones where I felt perfectly normal. Now I am feeling the cumulative effects with extreme muscle fatigue. Walking up one flight of stairs and I'll have to stop for a few seconds on the landing—my legs feeling like I've been climbing 5 flights! I can't WAIT till I feel strong again!
I will second what Bippy625 said…let your MO know right away if you have any issues. I had some acne like bumps appear on my face that was driving me crazy. I called MO to ask what I could do and they called in an Rx…those bumps were GONE after one application!
Here are a couple of threads you may not have seen, if you'd like to hear from some of us a little farther along… TCHP Ladies Late 2014/Early 2015 https://community.breastcancer.org/forum/69/topic/828404?page=6#idx_163
and
Neoadjuvant TCHP – Post Results Here https://community.breastcancer.org/forum/80/topic/823947?page=12#idx_354
--Lorie
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Does anyone feel VERY fuzzy after chemo for about a week??? Also, i get a rapid Heartbeat... : :
I did ACT in 2013, and I have to say i think this is "harder"!!
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I'm starting TCHP on March 23. I'm trying not to negatively anticipate the SE, but that is so hard! How do you cope with that?
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Dear Seashine, Welcome to the community. We are glad that you reached out and we send you good wishes as you begin your treatment. We notice that there has not been recent activity on this thread. You may want to take a look at and post on this thread where others have been recently posting. The Mods
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Hello seashine,
my mother (74) is going to start chemio next 17 march for a HER2+ cancer. The therapy will be herceptin (trastuzumab) + taxotere(docetaxol) + carboplatino.
You ask how to cope with the tension .... and I tell you I feel devoured by anxiety and anger and bad thoughts .... and I MUST NOT SHOW ANY OF THAT because I want to be a support for my mother and give her courage.
So ... I have started "acting as if" the cancer was not there, as if the chemio was just a promenade ... pretending that everything will be all right .... that she will not suffer any side effect, that she will not suffer any relevant damage to any vital organ ... that she will live happily for many, many, many years to come and .... you know what?
.... IT WORKS! ... I feel fine and she feels more reassured any time we meet and I am sure the future will be fine too.
I hate hypocrisy or day-dreaming ... but this is different and acting "as if" everything is well does no damage of any kind at all. It actually opens the door and the whole house to ... sunshine all day long!
I will tell you more in the coming months. Forgive my English. ciao,
lumacarrabbiata
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