WAITING!

angeld99
angeld99 Member Posts: 16
edited June 2015 in Waiting for Test Results

Ok,so about 3 months ago i found a pea size knot in my R breast. Around the end of March i realized that the knot i blew off had in grown in size now @ 3x3.32x1.4cm. Did mammo and u/s radiologist says probably benign, but the facial expressions were not matching up with his words. Saw the oncologist nurse and now i have my biopsy tomorrow. My mammo was BI-RADS 4 with very high density on my R breast. I am 34- 1yr and 7 months post complete and total hystorectomy with only 3 months of HRT. I am nervous,but staying strong. I just do not like the wait for tests and doctors and results, because they said that it could be a week before i hear anything back from pathology. It all has to go through the VA medical site. Yay for waiting...not really. Thanks for listening.

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  • bellajenn
    bellajenn Member Posts: 51
    edited April 2015

    Angeld99 - Welcome to the hardest waiting room ever!! There are several of us right there with you, so you came to the right place for support! I was rated BI-RADS 4 as well. What I found is that it's best not to try and interpret the doctors and other medical professionals and what they think it might be. They really won't know until after your biopsy and get your pathology reports back. I'm in the military side of things, and it did take a week to get the results. Find things to keep yourself occupied (and stay off of Google!). Big hugs!!

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  • Fakeboobs123
    Fakeboobs123 Member Posts: 92
    edited April 2015

    hey angeld99 we are close in age, I recently had a benign BIRADS 4. I'm sure given your hysterectomy history they will be being super vigilant with you, may explain the expressions on the radiologists face, they want to feel really good about your scans and one slight doubt they're going to biopsy. I don't know why you had a hysterectomy but from reading these boards I've establiahed that there is a connection between ovarian Cancer and Breast cancer but not womb cancer.. Correct me if I'm wrong! Force yourself to think good thoughts and keep coming here to talk, hugs

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  • artsee
    artsee Member Posts: 1,576
    edited April 2015

    bellajen, you are CORRECT! You cannot try and interpret the Med professionals. I've had nothing show on mamo and U.S....but pathologist and surgeon says by their 'eye' it looks like a recurrence. I don't get it. So biopsy was in order to make sure.......Ugh...roller coaster rides....I always hated them.

    Good luck all.....

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  • maxdog
    maxdog Member Posts: 147
    edited April 2015

    I am expecting pathology results tomorrow or Friday. The radiologist said I am at least stage 2, based on tumor size. Today I have had chest crushing anxiety. I am sick of waiting and want to move forward with treatment now! I feel your pain.

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  • Fakeboobs123
    Fakeboobs123 Member Posts: 92
    edited April 2015

    good luck Maxdog and anyone else waiting . My tech looked like she felt sooo sorry for me it was unnerving, As another poster has in their signature "never read into the look on the tech's/ radiologists face"

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  • tjh
    tjh Member Posts: 469
    edited April 2015

    The waiting is insane. My Onco DX test comes in Friday....surgery was 5 weeks ago.

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  • angeld99
    angeld99 Member Posts: 16
    edited April 2015

    Thank you ladies for your words of comfort. I have nipple pain but never thought to tell the doctor that or that sometimes my lymph nodes swell in my underarm on the same side. But again thank you for the advice

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  • bellajenn
    bellajenn Member Posts: 51
    edited April 2015

    Angeld99 - You and your thread responses remind me to tell my BS about my nipple issues at my next appointment. Right before my first mammo, I had serious itching issues with a change in the skin texture. It cleared up before my mammo, so I forgot about it. I figured it correlated with a change in my laundry detergent. I will update my BS! thanks!

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  • angeld99
    angeld99 Member Posts: 16
    edited April 2015

    You are most welcome bellajenn...i have had itching and pain in the nipple but no significant changes in skin texture in the last few months and no changes in clothes or soaps and things. I guess I will let them know maybe today. Hang in there!

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  • angeld99
    angeld99 Member Posts: 16
    edited April 2015

    So i just got back from the biopsy and since i will be out of town for work at a conference next week i have to wait until May 13th...UUUUGGGHHHH!!!!!!!!!!!!!!!!!!!! So frustrated, I just want to know what it is or is not!?!



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  • maxdog
    maxdog Member Posts: 147
    edited April 2015

    Well, it's time for me to move to a different area. Just spoke to my md. Grade 2, invasive ductal carcinoma. ER+, PR+, HER-.

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  • angeld99
    angeld99 Member Posts: 16
    edited May 2015

    Prayers and positive energy being sent your way from ohio

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  • AngelLynn
    AngelLynn Member Posts: 8
    edited May 2015

    Hey, ladies! I just joined the forum and saw this thread.

    I had a MRI last week for a nodule and they found a 9cm x 5cm "nonmass enhancement." I am now scheduled for a MRI guided biopsy next week. I am getting a little antsy given the size of the mass. I have had fibrocystic breast for a couple of years now but this seems so different. Doesn't that seem like a large mass? Am I overreacting?

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  • PistolMama
    PistolMama Member Posts: 56
    edited May 2015

    angeld99- Sorry you have to wait so long! That really bites!

    maxdog- Sorry you got such bad news :( I hope you find lots of comfort and camaraderie here.

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  • maxdog
    maxdog Member Posts: 147
    edited May 2015

    AngelLynn- I had a non mass like enhancement as well on my MRI. That biopsy came back as benign-just fibrocystic. It was just a long string of cysts. My other area was malignant. Good luck!

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  • artsee
    artsee Member Posts: 1,576
    edited May 2015

    Angeld99......can't they call you with the results? I'd ask them to that. My surgeon said they will call me when the biopsy results come in.

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  • angeld99
    angeld99 Member Posts: 16
    edited May 2015

    I ask them too and she says no that her policy regardless of outcome is to meet face to face with the patient. She said that it is not well defined and extremely hard mass, had trouble getting the core needle to go in to draw out the samples and measuring margins. I do not know what that means. It is all confusing and nerve wracking but i am thankful that i found this site to be able to ask questions from all of you.

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  • NATSGSG
    NATSGSG Member Posts: 231
    edited May 2015

    @angeld99. You hv every right to ask yr doctors office to fax a copy of yr results to you ahead of yr scheduled meeting with yr SO. You pay for medical treatment so it is not up to them to decide when you can see it. Suggest you insist on it.  I did on a few of mine and got them

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  • angeld99
    angeld99 Member Posts: 16
    edited May 2015

    Ok so the surgeon uploaded them to my patient portal and diagnostic code 217 and a diagnosis of nodular stromal sclerosis (fibrosis ). Can anyone tell me about this?

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  • art15
    art15 Member Posts: 66
    edited May 2015

    http://radiopaedia.org/articles/sclerosing-adenosis-of-the-breast

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  • angeld99
    angeld99 Member Posts: 16
    edited May 2015

    Thank you art15

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  • PistolMama
    PistolMama Member Posts: 56
    edited May 2015

    angeld99, are they saying what the next step will be?

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  • angeld99
    angeld99 Member Posts: 16
    edited May 2015

    i will find out at the actual appt next wed pistolmama

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  • PistolMama
    PistolMama Member Posts: 56
    edited May 2015

    We're appointment buddies! I get my results next Wednesday also. Hope they're able to better explain everything to you while you're there.

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  • Ettabetta
    Ettabetta Member Posts: 4
    edited May 2015

    I just wanted to chime in because I also have a results appt on Wednesday, angeld99 and PistolMama! Hoping we all get good news. :)


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  • PistolMama
    PistolMama Member Posts: 56
    edited May 2015

    B9 thoughts for all of us then, Ettabetta! :)

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  • angeld99
    angeld99 Member Posts: 16
    edited May 2015

    I am looking forward to my appt. Positive thoughts and prayers to you both!

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  • angeld99
    angeld99 Member Posts: 16
    edited May 2015

    Well the results are in and it is nodular stromal sclerosis, and was recommended to do an MRI or a lumpectomy to be sure that there is no underlying reason for concern. I chose to have the lumpectomy for peace of mind. I hope PistolMAMA AND Ettabetta HAVE GOOD RESULTS TOO!

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  • PistolMama
    PistolMama Member Posts: 56
    edited May 2015

    So glad to hear that angeld99! I also got b9 results! They are putting me in the high risk program due to the increased risk, but I'm so HAPPY and relieved. Hugs to anyone who didn't get those same results.

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  • bellajenn
    bellajenn Member Posts: 51
    edited May 2015

    angeld99 - Glad you found out what was going on, and that you and your doctors have made a decision that gives you peace of mind!!

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