Interesting article."Alt believers journey back to science"

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Deblc
Deblc Member Posts: 479

Another interesting article on alt medicine. (Of course, I can't post it in the alt forum, because I will be lambasted for "bashing"). I have heard secondhand that acupuncture does help with pain. Placebo effect? I don't know. But there is some value in that (the placebo effect) I think.

http://www.wired.com/2015/04/alternative-medicine-...


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  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited May 2015

    A well-written article presenting both sides well. For me, alternative has a role to play in conventional medicine. What I struggle with is the misrepresentations of what alternative is capable of given the lack of evidence. It's one thing to drink mint tea to soothe mild indigestion, it's another to claim it will cure a bleeding ulcer. The "false hope" aspect of alternative sticks in my craw. There's something so predatory and wrong about it, not only because it takes advantage of desperate people, but it inherently blames the victim.

  • Deblc
    Deblc Member Posts: 479
    edited May 2015

    This is what really disturbed me in the article:

    "There are now integrative medicine centers and programs in many of the nation's top hospitals and universities, including the Cleveland Clinic, the Mayo Clinic, Duke, and Johns Hopkins . In 2013, the American Board of Physician Specialties added integrative medicine alongside more traditional board certification specialties ..."

    and

    "Novella is particularly perturbed that a degree from a naturopathic college—where there is no standard of care - counts towards board certification in integration medicine"

    So now "integrative medicine" , which consists of therapies that are unproven and has no standard of care, has been given the stamp of authenticity by the very fact that it is now considered a medical specialty by, what I assume is, a respected medical board. So of course the public is going to equate a person who goes to a naturopathic college with a medical doctor who often does 10+ years of med school before they finish their specialty.

    HOW DOES THIS MAKE SENSE? How is this "integrative doctor" at Johns Hopkins any better than the charlatans who tout coffee enemas as a cure?

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited May 2015

    hi debic,

    Thanks for the post. I am hoping that the degree from a naturopathic college is only part of what counts towards board certification in integrative medicine. I hope a big chunk is a degree from a conventional medical school. I so like the quote, which I'm misquoting, that goes something like this. Just because an airplane is flawed, doesn't mean flying carpets work.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited May 2015

    Debic,

    I have twins with autism, and am very familiar with the alt-med approaches to treating autism. Just as there are "Mommy wars" between working and stay-at-home Moms, there are similar "Mommy wars" in the autism world between those who use alternative treatments and those who do not. That's why I no longer post on autism parenting boards -- too many people being judgmental about other people and their choices! Still working on getting the right meds for one of my sons -- he's flunked Risperdal, Abilify, Focalin, and Prozac (10 mgs and 5 mgs) so I can't say traditional medicine has addressed all our problems. But, not ready for chelation at this point.

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited May 2015

    I think everything goes in cycles. I remember the 'sixties when the buzzwords were "organic" and "natural", although it was a little less mainstream then than it is now. But it cycled out of favor and, now, it's cycled back in.

    Conventional (or science-based) medicine isn't perfect; I think we all know that. It has its weaknesses, its pitfalls, and its contradictions, but it continues to strive to uncover the source of disease and the best way to treat it through proven methods. Unfortunately, the human body is so complex, answers aren't always possible as quickly as we'd like them. Each new piece of information uncovered has to be confirmed, tested, verified, corroborated, and held accountable. That takes time and time can be something that someone who is really ill doesn't have. Hence the appeal (and abuse) of alternative "cures".

    There's also the belief that "natural" is better and less toxic. The thinking is that it's been around for millennia and; therefore, it must be better for us. After all, our ancestors survived against all odds in the natural world, so it works... right? Well. Not really. Infectious diseases such as smallpox wiped out whole communities. Children died from scarlet fever, diphtheria, measles, and whooping cough. Life expectancy in Neolithic times was 20 years. In classical Greece it was 28. In 19th century Britain it was 30 years and by the early 20th century it was 31. In 2010, life expectancy was 78 years.

    Some would argue that our increased life expectancy is due to many factors, such as improved diet, sanitation, working conditions, etc. - and they would be entirely right - but a lot of it has to due with our increased understanding of disease and medicine, including the discovery and development of antibiotics and vaccines. These things are not produced naturally, but are the result of science. They have saved countless lives and have contributed to our quality of life.

    That's not to say that "natural" has no value. Many of our modern pharmaceuticals have botanical bases, that have been proven to work and, I'm sure, there are a great many plants out there that have value that has yet to be quantified by science. But I do believe that - if one is going to claim that something "cures" or works against a disease/disease recurrence - then one must provide scientific proof. Anecdote isn't enough, nor can it be confirmed, tested, verified, corroborated or held accountable. Some would argue that the very nature of alternative medicine means that it can never be quantified. I would argue that anything can be quantified. It's not the quantification that's at the heart of the issue; it's the outcome. Does it work? Doesn't it work? That's what we need to focus on.

    Bringing integrative/naturopathic medicine into mainstream institutions is a two-edged sword. The down-side is, it gives an aura of authenticity and acceptance to something that really hasn't been proven yet, but it also brings integrative/naturopathic medicine under the umbrella of conventional medicine which is regulated and does operate under strict standard-of-care policies, protocols and accountability. Some of that will, I hope, rub off on integrative/naturopathic medicine and then we will be able to see more clearly the value (or not) of it. Its outcomes will be documented in such institutions, which will be the ultimate proof of whether- or not it works, and will define whether- or not it has a role to play in treating disease, and what that role will be. Because we really do need to find out. Medicine as a whole can only benefit from the discovery of new treatments.

  • abigail48
    abigail48 Member Posts: 1,699
    edited May 2015

    gary has said : "try it", & if it doesn't work for you stop."

  • bluepearl
    bluepearl Member Posts: 961
    edited May 2015

    There is only one thing to be trusted...evidence. That's all there is. Belief doesn't cut it. Science has basic rules and procedures, perhaps imperfect, but that doesn't mean we have to then resort to magic. If a claim is made, then evidence must be provided and it has to be good evidence, not the usual anecdotal accounts. It is all we really have because if we accept any claims, then all claims can then be considered true just because someone believes they are. There is the placebo effect AND the nocebo effect.

  • abigail48
    abigail48 Member Posts: 1,699
    edited May 2015

    no way to know what is good evidence unless we experience it for ourselves

  • abigail48
    abigail48 Member Posts: 1,699
    edited May 2015

    there's flawed, fraud, conflict (s) of interest, ignorance (not enough knowledge yet as with early birth controll pills), and even evil intent

  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2015

    how many people know that drug companies pay out billions each year in fines for innacurate or falsified "research" or incomplete disclosure of side effects?

  • Deblc
    Deblc Member Posts: 479
    edited May 2015

    Lily, do you have links regarding this info that I could read? If that is true, at least there is oversight and accountability of the drug companies. With the alt industry, including the billion dollar supplement industry, there is absolutely no oversight whatsoever, so nobody ever gets fined or held accountable for selling herbal supplements with questionable ingredients, malpractice, or for profiting off of unproven "cures"

  • abigail48
    abigail48 Member Posts: 1,699
    edited May 2015

    if they had accountability we would no longer be able to use such things as the cost of the accounting would be prohibitive.  no more mint for out stomachs, etc etc

  • Momine
    Momine Member Posts: 7,859
    edited May 2015

    Lily, I believe that is probably the case, but as Deb pointed out, at least there is actual oversight. Also, science is not the same as drug companies. There is certainly overlap, in clinical trials, for example, and also in drug development, but if you have hard science that XYZ works, then it still works even if some drug company does something wrong in the process of bringing it to market.

    Personally, I do not have a problem with the concept of integrative medicine. At the lowest level it is concerned with making patients more comfortable, physically and psychologically. This is a good thing. I also think it can help in another way. A lot of people take supplements, especially cancer patients. An integrative doc is more likely to be told of such supplement use and therefore be able to counsel the patient with authority that will be accepted on what is safe and/or helpful and what is not. Lastly, the integrative medicine movement does seem to be leading to some more studies of and openess to approaches outside the strict mainstream.

    As one example, the study of exercise as part of cancer treatment started with exercise as an "integrative" approach that was thought to increase psychological wellbeing and possibly ease fatigue. Studies followed to quantify and verify the assumption.This lead to further interest in exercise and cancer, more studies etc. and we now know that exercise does more than just ease fatigue.

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited May 2015

    "A lot of people take supplements, especially cancer patients. An integrative doc is more likely to be told of such supplement use and therefore be able to counsel the patient with authority that will be accepted on what is safe and/or helpful and what is not."

    Exactly.


  • Deblc
    Deblc Member Posts: 479
    edited May 2015

    Selena and Momine...you are right on with everything, as usual!!

    I agree that it is a plus if integrative medicine will be now subject to the same oversight as traditional medicine, now that it is being more and more recognized as a MEDICAL specialty

  • lightandwind
    lightandwind Member Posts: 754
    edited May 2015

    I agree with everyone for the most part except that often it takes years for something that has been traditional medicine in other parts of the world for centuries to be accepted or recognized in the western medical world. Sometimes people don't have the time to wait for a doctors blessing, just do the best and most diligent, and critically minded research to become their own authority on the subject of their health. I do agree it is ideal to have the blessing of a doctor of some kind who is well aware of what you are doing. I just find often that MDs are not well- versed in the field of alt medicine and integrative practitioners are not always available or covered by insurance, which makes their services very expensive.

    Also, I do think that blood work, occasional scans, and ones own experience of their state of health (level energy/fatigue, stamina, pain, quality of life) are forms of evidence, which can be followed to determine effectiveness of conventional or alternative.

    As someone who started with conventional treatment and now using alt., the difference to me is a mindset and a lifestyle. When taking the AI, I felt like I was in the ring fighting an enemy, which I hated. I got beat up every day. When fighting in the ring, I had a great coach who would pump me up, train me, tend to my wounds and check on me regularly, reminding me to get back in the ring and fight. When fighting in the ring, sometimes you win, sometimes you lose. The biggest problem for me fighting in the ring (conventional med) was that when my nose gets broken, I suffer a head injury, or I get knocked out, there is nothing even the best coach can do about it. I'm still being beaten and suffering from that beating every time I go into the ring. No matter what kind of attitude, the reality was that I knew I was suffering, my health was declining in many ways, and I was becoming injured. I felt I was going to suffer long term damage. Sure, there was a chance that I could wind up the champ, from fighting but I was tired of fighting, as I was taking a beating ,and no matter how hard I fought., I felt I was losing. I decided that I am really not such a competitive person, that I would take a daily beating on the slight chance that I could become the winner. I just wanted mercy. I wanted out of the ring.

    An alternative mindset, and lifestyle for me now, is more like hiking in the wild, climbing a big mountain. I take maps (information), a survival kit (supplements/protocols) that may or may not do me good along the way, healthy food, fresh clean water. There are trails of those before me (anecdotes). Sure I could fall off a cliff if I'm not careful. There's not many doctors around. It's not like the predators do not exist, or that I don't know they might still get me. It is just more like a journey, where I can fully live it, enjoy it, stop for a bit, reflect, learn the life lessons and deeply feel my emotions, along the way. It is hard to climb mountains, but I feel grateful knowing that my body is getting stronger. There can be pain, fear, and fatigue, but I know me and my determination to keep taking the next step is deep in my heart. I want to keep going. I will keep going. I feel inspiried by health I have attained thus far. I can breathe deeply the crisp air from the new altitude. This is why I like to call it "natural." For me, it is more natural.

    No way can guarantee anything. That is fact. But everyone takes a chance on something. The risks are always going to be out there no matter what. We can't live life avoiding risks. I can't anyway. That's just me.

  • pipers_dream
    pipers_dream Member Posts: 618
    edited May 2015

    Wow L&W, that was an amazing analogy and I'm going to stick that tool into my "backpack." I hope all is going well.

  • lightandwind
    lightandwind Member Posts: 754
    edited May 2015

    Hey there Pipers! Nice to see you on the trails today.

  • MusicLover
    MusicLover Member Posts: 4,225
    edited May 2015

    L&W, I love your post also.

  • lightandwind
    lightandwind Member Posts: 754
    edited May 2015

    Thank you MusicLover.

  • juneping
    juneping Member Posts: 1,594
    edited May 2015

    light - you rock!!

    Tamoxifen gave me bad edema. I ran out of options.....I am glad there's alt forum that ppl share. I don't have luxury to wait for scientific proof.

  • lightandwind
    lightandwind Member Posts: 754
    edited May 2015

    back at ya June!

  • leggo
    leggo Member Posts: 3,293
    edited May 2015

    Hi June. Has everything resolved since stopping the tamoxifen? Hope you're doing ok.

  • leggo
    leggo Member Posts: 3,293
    edited May 2015

    Hi light. Beautiful analogy. Hugs.

  • juneping
    juneping Member Posts: 1,594
    edited May 2015

    leggo - saw my BS last week and she insisted i stop my ovaries....and i'll be talking to my MO somewhere in june. so we'll know more. i am hesitate to chop off my ovaries or try another hormone blocker. i am only 43 not menopausal yet biologically. after i exercise regularly i don't even have hot flashes anymore even when i was on tamoxifen.

  • leggo
    leggo Member Posts: 3,293
    edited May 2015

    I sure hope that appointment goes well. I certainly understand the hesitation. Frickin' cancer.

  • lightandwind
    lightandwind Member Posts: 754
    edited May 2015

    Hi Leggo, thanks. Hope all is well with you.

    June, It is a hard decision, I know. Hope you're okay. Send a PM if you want to talk.

  • juneping
    juneping Member Posts: 1,594
    edited May 2015

    I will keep you two posted....thanks for reaching out

  • pipers_dream
    pipers_dream Member Posts: 618
    edited June 2015

    Well here's how I feel about science based medicine. As you all know, we have the scientific method where you develop a hypothesis and you need to have an independent variable and a dependent variable and you can basically only test one thing at a time and if you don't, you have no idea what worked. Now, I get why this is necessary, but it's so damn slow! It's like they have a huge barn in front of them and they're throwing darts and each one of those dart holes represents a study. It will be forever before we have anything resembling a complete picture of what's going on. Even after a study is done, the results are often confusing b/c it maybe doesn't fit with a prior study that was done. I mean, look at what a hard time they're having just figuring out whether eggs or coffee is good for you! And flax and soy--should I or shouldn't I?

    Alt meds on the other hand is often based off of centuries old trial and error--some of these healing methods are over 2000 years old! And now, b/c we have the scientific method, we arrogantly toss out the knowledge of the ancients. Go figure. And for anyone who is doing mostly holistic, as you know we toss everything at it that we think will help but when we're cured we won't really know exactly what did it. I'm fine with that kind of uncertainty, but I've learned that I live in a very small group.

  • pipers_dream
    pipers_dream Member Posts: 618
    edited June 2015

    And June, that offer goes with me too.

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