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speace
speace Member Posts: 116

Hi ladies, I'm having my first visit to radiologist this wed. Can anyone ell me what to expect? I've been reading things like SIMS and markers and so on. What do they all mean?

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  • Jeeper4
    Jeeper4 Member Posts: 70
    edited April 2015

    My first meeting was just to discuss rads in general, side effects, duration of treatment time, q & a session, steroid cream prescription. RO then plans the treatment field based on mammo/mri etc. Then I was scheduled for the SIMS. This is where they will mark you with stickers, sharpies, and sometimes tattoos which are tiny dots (they did not hurt me). They will also check to see if you can lie face down on treatment table vs being on your back.They will take some films that day too as well as throughout treatment as a protocol to make sure you are positioned correctly. The stickers and markings stay on during treatment and helps them line up the table and machine very quickly each day you go in. After that they will ask what time is good for you and mine was the same time every day for the entire 21 days. I did 16 treatments plus 5 days of boosts. For me, radiation was the least scary thing I've been through since this whole nightmare began last November. Also, at the first meeting they gave me a list of supplements to avoid during rads. I'll add more later if I think of anything else and others will chime in with their experiences too as experiences can vary place to place.

  • Bippy625
    Bippy625 Member Posts: 890
    edited April 2015

    hi speace!

    Rads is better than chemo. Still emotionally a challenge, but if you get good caring techs, you will have it made.

    Sim is a simulation they do once to set up the measures. Just laying on table and they position you and make you a special molded pillow that conforms. You lay in it each tx. The tattoos are tiny little pinpricks, also used for measuring. You go every day, and it only takes about 5 mins on the table. Takes more time to change and drive. I had 25 treatments total but all are different.

    Most ladies do not get burned or too red. They can give you stuff. I was only one of the very few unlucky ones and had major burn issues, BUT I had rads to my armpit area as well. It is always worse since that area is so sensitive. The chest did not even bother me. It was uncomfortable and difficult BUT nothing like chemo. And it felt kinda good to know that it was killing off this chit.

    When do ya start? You can do it!

  • speace
    speace Member Posts: 116
    edited April 2015

    Heello Jeeper4, Thankyou for your input, none of that sounds too bad at all of compared to other things. I just want to get the ball rolling and get radiation over with and start my tomaxifin and try to enjoy as much of the summer as i can. Xo

  • speace
    speace Member Posts: 116
    edited April 2015

    Hello Bippy625, I agree, I'm pretty sure this will be better than getting chemo!!! I'm supposed to have rads 5 days a week for 7 weeks. I guess that's the norm???. I very much appreciate your input! Xo

  • tgtg
    tgtg Member Posts: 266
    edited April 2015

    speace--rads really was no big deal (mainly time-consuming since I had a 50-minute round trip drive--my choice--to have a fantastic RO do my rads). BUT don't expect to enjoy a typical summer in the sun at the pool or beach! My RO was adamant about not adding sun exposure to the rads field--that area is assaulted enough during treatment and needs to be protected for a year. She suggested a rashguard shirt for swimming outdoor laps and sitting at pool, and at least 30 SPF even directly on the radiated areas, and a cover-up shirt at all times outside. (My 35 rads started in mid-March and ended first week of May, so summer rays were decidedly a potential problem.) TG

  • speace
    speace Member Posts: 116
    edited April 2015

    Great advise ! A rash guard will be a sure thing for me this year! I'm going to mexico in august and will remain totally protected from the sun!!

  • Jeeper4
    Jeeper4 Member Posts: 70
    edited April 2015

    Such a bummer. I always look forward to summer and driving topless. ;)-

  • speace
    speace Member Posts: 116
    edited April 2015

    Hi Jeeper4, I saw in your bio that you started tomaxifin, I was just wondering how you are feeling on that? I'm gonna be starting soon.

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited April 2015

    I did my radiation in November/December and was by far, one of the lucky ones with my skin, but I also had the holidays for extra days off to help with the healing.  I barely got burned and hardly used any aquaphor or silverdene.  The nastiest part was not using deodorant.  My center was only 5 minutes from work so I did my rads on my lunch hour.  I had the "bolus" every other day.  This is a packet of gooey stuff that brings the radiation closer to the top and was used because my BC was so close to my chest wall. 

  • speace
    speace Member Posts: 116
    edited April 2015

    So are you saying you can't use deodorant at all or just not before your treatment?

  • Jeeper4
    Jeeper4 Member Posts: 70
    edited April 2015

    speace-I keep looking at that bottle of Tamoxifen. I just can't open it! My Onc would not be happy with me but I'm not too happy with her right now either lol. I should have started, and would have, except I read on foodforbreastcancer.com that zoloft interferes with tamox so I've been weaning off that. hurt my leg on the trampoline last week, waiting for that to feel better, so i'm on a clean slate so to speak before i start. eh, bet i'll try and find another excuse but i can't delay too much longer! since we will be starting soon I'd like to keep in touch about S/E's. gawd, good luck to us both!!

  • speace
    speace Member Posts: 116
    edited April 2015

    Omg, I have been on zoloft for 10 years, am I going to have to get off that?? It's the only thing that keeps me sane!!!!

  • Jeeper4
    Jeeper4 Member Posts: 70
    edited April 2015

    yes, when my Onc put the tamox script in her computer, it red flagged it. I said yes, already read that, already started the weaning process. but i was pissed, she had my list of meds from our first visit--all 2 of them Zoloft and Ativan. I think there are only a few that do not interfere. Effexor stands out as one (hope I'm right) and that also helps with hot flashes. I'm going to try and do without. I will say I've been a big crybaby since weaning off and I've only been on since early January. :(

  • speace
    speace Member Posts: 116
    edited April 2015

    Oh jeez, I can't even think about getting off of it after so long!! But if I have to then I guess I will. Omg, trying to get off the zoloft may be harder than having cancer!!!! Ugh. I hope it's going easy for you!!!

  • Jeeper4
    Jeeper4 Member Posts: 70
    edited April 2015

    It's not going too badly. I started taking 1/2 pill for one week everyday, then 1/2 pill every other day, then went to nothing. had some very mild brain zaps. couple of days had headache. another woman here on a different thread said her onc told her wait 2 weeks before it is totally out of your system (mine said 1 week-I'm going with her onc suggestion as i am beginning to lose faith in mine.)before starting the tamox.

  • speace
    speace Member Posts: 116
    edited April 2015

    ugh!!!!! The brain zaps are the worst. I hope it continues to go ok. I'll keep you in my prayers.

  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited April 2015

    I was told not to use deodorant, but to put some cornstarch in a nylon and pat that on after radiation every day.  Nor could I shave that area.  I did not use any lotions or creams on my right side 4 hours before radiation and always ran a damp cloth across my right side, just before I left work for radiation, just to make sure that area was clean.  You might want to talk with your Onco or techs to see what kind of tips they can give you. 

  • speace
    speace Member Posts: 116
    edited April 2015

    Thankyou, I will be curious to see what the radiologist says about all this.

  • bibble35
    bibble35 Member Posts: 1
    edited May 2015

    Hi ladies! I'm new to the site and first time to post . I too am doing radiation therapy right now. Scheduled for a total of 20. I believe I have 8 to go. Just now starting to feel a bit tired and sore. I too need to stop the zoloft but dr hasn't started decreasin it yet ??

  • speace
    speace Member Posts: 116
    edited May 2015

    Hi , welcome to the club ;) I had mentioned to my doc about having to go off he zoloft and she said she there was no need to. That no red flags popped up when she put my meds in he computer along with the tomaxifin. I really need to find out what the heck is up! Do I need to go off or can I stay on! I know the docs are all about or working with the drug companies but I don't think my doc would intentionally have me stay on the zoloft if was harmful. Ugh!

  • Jeeper4
    Jeeper4 Member Posts: 70
    edited May 2015

    wth speace--no red flags on the zoloft? I would really like to go back on. Have a second opinion scheduled for today to discuss Herceptin so I'll ask and see what his computer says. Thx for posting about it.

  • speace
    speace Member Posts: 116
    edited May 2015

    Keep us posted! I'd love to get a straight story!

  • Jeeper4
    Jeeper4 Member Posts: 70
    edited May 2015

    "If treatment with an antidepressant and tamoxifen is necessary, it is preferable to use an agent with less potent or no inhibition of CYP2D6. Sertraline (zoloft), citalopram, venlafaxine, and escitalopram are considered mild inhibitors...in an analysis of CYP2D6 inhibitors, the following order of inhibitory potency was observed in descending order: paroxetine, fluoxetine, sertraline, citalopram and venlafaxine." This MO said he was glad I had weaned myself off the Zoloft so Tamoxifen can fully do its thing. Zoloft is in the middle of the above list so he tries to prescribe something that is even less inhibiting. He said one of the side effects of T can be mood changes, and if I needed to go back on Zoloft because something else didn't work it wouldn't be the worst thing to do. He had a printout from Clinical Pharmacology (I can't access the site) in regard to a trial of 1298 patients, women taking T and antidepressant had higher rate of cancer recurrence (13.9% v 7.5%) An observational study was also cited where 215 of 1990 patients showed no clinically significant difference between the two groups. Since Zoloft is considered a mild inhibitor that's probably why your doctor said you can stay on it.

  • speace
    speace Member Posts: 116
    edited May 2015

    Thankyou!! That is awesome info!!!! I appreciate you taking the time to type it all out!!

  • Jeeper4
    Jeeper4 Member Posts: 70
    edited May 2015

    You're welcome. I would feel better about remaining on it after speaking to him.

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited May 2015

    I had 33 sessions of rads last year and it wasn't bad at all. I got tired but by the time I was getting sore it was over. I would shower in the morning , go to rads, and then put on Toms of Maine Original unscented deodorant immediately afterwards. Its not very effective but is the most recommended by ROs. They also gave me Elta Light and then Elta cream to use a few times a day and that was all I used. The other thing is that how much skin is affected is not really affected by the skin tone. I am fair and freckly and got through with no serious burning. The rashguard shirts are wonderful. I went swimming in them once I was finished with rads with no problems.

    Hope everything goes smoothly for those of you just beginning ladies!! Wishing you all the best!!

  • speace
    speace Member Posts: 116
    edited May 2015

    It's great to know you came through pretty much unscathed! ! That's encouraging, I start on may 11. For 7 weeks. I just ordered 2 rash guards for the summer also. We are going to mexico in august, so I will definitely be wearing them down there.




  • Iwona
    Iwona Member Posts: 7
    edited May 2015

    I started my radiation on April 29th. I will go through 33 sessions. Today was my 12th session. So far I'm good. I also don't use deodorant, only the corn starch.

  • speace
    speace Member Posts: 116
    edited May 2015

    Hi Iwona, I just had my 4th treatment today. I don't know if it's from the stupid deodorant they told me to use or from the radiation, but my armpits have been itching like crazy! Have you experienced that? Also I'm noticing just a very slight soreness on the breast they are treating. Is that normal also? Thanks Sandy

  • Cmo65
    Cmo65 Member Posts: 96
    edited May 2015


    speace,

    I also started radiation on 5/11/15 and just had my 4th treatment today.  Yes, I also have a slight soreness in the breast they are treating.  I also have soreness in the rib area but the operators say its all in my head.  Hmm. 

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