IDC+DCIS new dx

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maxdog
maxdog Member Posts: 147
edited May 2015 in Just Diagnosed

Ok, so got the official call Thursday evening..Grade 2 IDC and DCIS in right breast. Staging to be determined after further testing, but at least stage 2 based on size per biopsying radiologist. I see breast M.D. Weds and find out where we go from here. Also awaiting appointment at Dana Farber. Where do I go from here? Assuming blood work and possible scans? I just want this poison out of me. Everyone here seems so supportive!

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  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited May 2015

    Dear maxdog,

    I'm so sorry that you're going through this. Every woman (and man) on here has had that experience and this is the worse time. Once you know your full diagnosis, which will take some weeks, and you get your full treatment plan in hand you'll have more of a feeling of control. I'll tell you the tests that were done on me as an example of the diagnosis process: after a biopsy confirmed cancer, my surgeon referred me to an oncologist who ordered a number of scans: Pet/Ct, breast MRI, brain MRI and maybe something else and full blood tests. Seems like a bone density test somewhere in there. I did have some mets to my spine so I was stage IV. Then I started a course of chemo and a targeted drug which pretty much reduced the breast cancer to nothing. Then I had a mastectomy a few months later. This started in October, 2011 and I had my mastectomy in May, 2012.

    That doesn't mean that you'll have chemo before surgery, but sometimes it is recommended. Either way, the cancer is attacked and destroyed, hopefully completely.

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  • maxdog
    maxdog Member Posts: 147
    edited May 2015

    Thank you! I don't know why my signature didn't show up , but so far I know it is grade 2 ER+ PR+ HER-. I just wish this process was a bit more efficient...like 1 full day of scans, blood work, etc. Then a follow-up with all results and treatment plan. Just eager to move forward with treatment as I have a young family.

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  • Midgiemoon
    Midgiemoon Member Posts: 174
    edited May 2015

    Sorry you are going through this. I got the same results on Friday. My IdC is smaller, and I am older, but it isan uncertain time. I am planning to go for a second opinion this week, at Mercy Hospital in Baltimore. I eould like to be treated at my local center since it is 5 minutes from home, but I feel like I need that second opinion. My local surgeon recommended lumpectomy and radiation. My on a good note my KI67 proteins were only 3-5%. Which is the lowest she had seen.


    I am originally from Mass., and Dana Farber is a wonderful place. If I were still thee, that's where I would go, too. Keep us posted, wishing you strength for the journey!


    midge

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  • hyphencollins
    hyphencollins Member Posts: 109
    edited May 2015

    So sorry to hear about your dx. Waiting is rough but hang in there. I think there is a lot of variety in the way providers proceed after dx. For me, I had an MRI of both breasts and additional biopsies in each breast (2 of 3 biopsies were benign findings so don't panic if they do want to biopsy more...the other finding was another tumor in the same breast but finding it really didn't impact my prognosis although it did mean mastectomy vs lumpectomy). Then after the surgical pathology report and oncotype my adjuvant tx was determined. I never had any body scans or blood work at all at stage 2 with one node. My MO won't do anything unless I have symptoms but I know other doctors work differently.

    I've heard Dana Farber tries to schedule testing all together so you don't have so much disruption. All the appts are like a FT job in itself, and its tough when you are also parenting young kids... hang in there, you will all get through it. I had a great second opinion consult at Dana Farber but that was post surgery so while they reviewed my pathology slides, I myself didn't need to do any testing.

    Best wishes.

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