Can doctors in NYC be recommended here?
Hi.
I was given an MRI due to a density found on a mammogram that did not respond to a diagnostic spot compression, in my second mammogram, as the radiologist would have liked. I guess if it had jumped right out with suspicious characteristics he would have gone right to ordering a biopsy. However, just in case I need more tests, or hear the worst....
I live in Queens NY. I'm fortunate to be near Manhattan and some good hospitals. I don't know if this is not allowed on the forum but for breast specialists, surgeons, oncologists, are there any people in particular that are well recommended? I have read in an article that getting the right person depends a lot on exactly what you have, so it can be tricky, and I don't even have test results yet. I'm jumping the gun but don't want to be scrambling if I hear bad news and my brain is frozen with fear.
So far I am looking at the Iris Cantor Center through NY Presbyterian/Weill Cornell. Of course there is always Memorial Sloan Kettering. I'm avoiding it for a stupid reason; just the name of that place strikes fear in my heart; like everyone goes in there to die.
Sorry such a downer. Thanks.
Comments
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Only a thought, but if you need more tests (e.g biopsy) then you may want to stay where you feel most comfortable. If you then need a second opinion or any treatment you could branch out to other centers. One step at a time, and please let us know the MRI results.
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Janeway69, here's a list of the NCI-designated cancer centers in New York. Hopefully, you won't need any additional follow up, but in the event you do, I would stick with one of these facilities, where you will find top breast surgeons/experts. Good luck to you! Deanna
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Thanks moderator. I have considered that. I'm not sure where I'm most comfortable. The only reason I've been going to North Shore/LIJ places is because that is who my GYN for the last 15 or so years is affiliated and as a rule I trust her judgment. However when I asked for breast surgeon names just in case, the two she recommended were the top in the hospital and center, but were oncology surgeons/general surgeons and not breast specialists, plus they did not take my insurance.
I feel like being near Manhattan leaves me with too many other, probably better options by comparison, to ignore them. However you are right about one step at at time. I'm known for jumping the gun. I would just hate to miss something catchable from not being prepared. Thanks! -
Thanks dlb823 for the link. I'm surprised that the Iris Cantor center is not on here and may email the NCI as to why, though I read the criteria for being listed already.
Dr. Simmons takes my insurance for example. Sorry. I'm not trying to argue. I'm just wondering if this is okay.
The idea of going to Memorial Sloan Kettering is terrifying. It's a mental thing.
http://www.weillcornell.org/rmsimmons
I'll give it some thought. Hopefully all will be well. THank you! -
At Weill Cornell BS - Dr. Alexander Swistel; PS - Dr. Mia Talmor and Oncs Dr. Ann Moore and Dr. Linda Vahdat
I had consults with all of them except for Dr. Ann Moore and I found them to be very caring but since I had no surgery I can not recommend them for that.
I loved the Iris Cantor Center and the care they provided to me there for all of my initial testing, mammography, ultrasound and breast biopsies. Best wishes to you.
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I have not used Dr Swistel myself, but have 2 friends who have and they think very highly of him. Mia Talmor (plastic surgeon) at Cornell did the reduction I had after my lumpectomy, and I have only positive things to say about her. She is lovely, caring, responsive, and did a fabulous job. I also saw Anne Moore for a consult/second opinion and liked her as well.
The breast surgeon who has been following me for the past 4 years is Freya Schnabel at NYU. She is tops in her field and great also. When I first saw her and there was some diagnostic confusion (initially thought I had DCIS, but turned out to be atypia) she spent lots of time with my husband and me explaining options. I never felt rushed and she was very compassionate, but also straightforward, which I appreciated.
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Why is Memorial Sloan Kettering terrifying to people? Don't avoid MSK (there, does that sound better?)! It's one of top three cancer centers in the USA. Cancer is what they do. My niece (M.D.) interned there, my brother-in-law is an internist, and they both say you can't do better and you can't go wrong. What they meant is that all of the doctors there use the same protocols, which are the most advanced available. I suggest trying to get past the name and go for the best.
I am newly diagnosed and just had lumpectomy and sentinel node removed last week. I don't know all of the results yet, but I'm very happy with my visits. I come from upstate NY. My insurance company covers the travel because they believe the outcomes are better there than almost anywhere else. In other words, they'll pay more money now to reduce risk of problems later. They also cover New York Presbyterian/Columbia University Medical Center, so that's a good one, too. But those are the only two in NYC. Here is a link to the Centers of Excellence. I personally recommend going for a female doctor. I just think they're more in the same zone. I wish all the best for you!
Karen
https://cmcnetworkmanagementtool.uhc.com/clarity-f... is the link if it doesn't work in the paragraph above. It actually looks like it has the same places as dlb823's link.
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Thanks to those who gave thoughts on Iris Cantor. Ann13820, it's a mental thing on my part.
Also I have a friend who tried NY Presbyterian/Columbia and her experience wasn't so hot. The staff messed up her background information a lot, including wrong date of birth, wrong number of offspring, wrong age of first menstruation, etc.
She also said they overtested though I cannot say if that was stress related or not, because hey, it's hard to know how many tests to do for these things, right?
She later went to a North Shore/LIJ center and felt better going there and her doctor said messing with things too much can aggravate cancers; something I've thought about but I don't know the details. Anyway I think she also chose that place because it was "state of the art" whatever that means, and it was conveniently located. I appreciate convenience when you have only so many sick hours at work, but if I'm near other great options I'd rather go with what's best instead of convenient. As some have written here, people have traveled much further than I would have to, to attend these places if needed.
To momschki, by "NYU" do you mean "NYU langone?" The Perlmutter center? -
Hmmm, have to agree with you ann13820. A friend once indicated that I might now want to go to MSK because it could be a depressing or scary place. Her mother had bc, then had a recurrence years later, and both times avoided MSK. (live in NYC).
I felt/feel the opposite. Like you ann, I urge you Janeway and others who are fortunate to live near top centers to take advantage of it by at least getting second opinions there -- if not your treatment.
I don't work for MSK but frankly might sound like I do in the sense that I could rave about them: if you think they are scary, let me tell you, I don't think there is a place where receiving your breast cancer care could be more, well, caring, and comfortable. I often say thank you to Evelyn Lauder under my breath when I visit. It is a very nice, very welcoming, very comfortable center (the breast center--named after Lauder--a building exclusively devoted to the care of us). And it's not just a physical thing, it is the people, from the greeters in the lobby door to the ones at reception when you walk off the elevator. Everything, everything, is very patient friendly. They even book all your appts for you when dealing with scheduling your next stuff is overwhelming. You become spoiled, because you are left to fend for yourself in other places. There are so many resources to take advantage of there, or not if you choose not to.
Okay. I just don't want you to be scared. Because it's as kind, comfortable, and welcoming a place through its breast center building on 2nd ave and E 66th st as any hospital where you receive treatment can be. I have always felt very fortunate to be able to receive treatment there.
Good luck with everything.
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what Jessica said 👆🏼
Here's what I recommend after 3-1/2 years of Stage IV, MSK. I live in NC, but was living in NYC when I was diagnosed. So I have a local oncology care team and my primary care team at Sloan-Kettering (MSK), and can compare. It's not easy, getting to NYC every 3 months, but I get the best care there. Some of the mistakes my team in NC has made: telling me I had cancer in my liver and needed chemo immediately, prescribing twice the amount of painkiller needed, refusing to follow my MSK doctor's request for an emergency MRI, telling me I needed a CT instead. (I changed local hospitals after that). If it weren't for MSK I would have had chemo for no reason, or truly, could have died from too much pain medicine. MSK is tops in my book because in my experience, doctors don't over-treat and quality of life is always of high importance. As an added bonus, the buildings, not just the breast center, have the most gorgeous art on the walls.
You have time to make appointments with a few oncologists and choose one you like best. I went to three after my Stage IV diagnosis and asked what treatment they recommended based on my test results. Each gave me a slightly different plan, but I didn't feel confused; it made me feel good to know I had options. One oncologist who had an award on her wall for being a top-ranked oncologist nationally refused to let me record our conversation, and answered several texts and a phone call from her young daughter during our consult. I was fortunate that my family doctor had interned at MSK, and had worked with several of the doctors. She recommended Tiffany Traina, the name doesn't sound like a doctor's name, does it. She has given me superb care since 2012. She's not just a knowledgeable, experienced breast oncologist, she's a kind, caring person
Wherever you go, don't settle for less than what you need. And don't be afraid to change doctors, or seek out other opinions when it comes to important decisions. When you have a doctor you can trust, you will feel so confident in your treatment decisions. I hope you find an oncologist you trust and feel at ease with
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I received great care thanks to great recommendations. Had I had a complicated case, I would have gone to the city. Instead, I stayed local. I live on the Queens border. PM me and I will share with you the names of those on my team. Good luck!
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My experience is a lot like TarHeelMichelle's. I'm very fortunate to live in an upscale area with exceptional medical facilities -- probably far better than many places. But there have been some glaring mistakes in my care locally -- probably b'cuz they don't see nearly the number of bc patients UCLA that does, which is why I make the 3-hr. trek to keep my UCLA onc as my lead onc, while also using a local oncologist who is a wonderful doctor, but just not 100% focused on nor dedicated to treating breast cancer the way my UCLA onc is.
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Hi Janeway69,
check out www.laserbreastcancersurgery.com located in Pleasantville, L.I.
Surgery only so you can still go to a Large cancer center for treatment.
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Janeway, yes, NYU Langone.
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NYU Langone. Marleen Myers, oncologist.
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Thank you all for the many options, reports, reviews and names.
Esp where MSK is concerned.
I did not know about the Pleasantville place. Thank you chef127!
Voraciousreader I will PM you. Surgery only. Got it. -
One more Q for the MSK recommenders. Do all or many doctors work together on every patient's case. My virologist friend said his colleagues like Iris Cantor because no matter which doctor you use, you don't just go in with one doctor. All the doctors there discuss every case and work on it as a team.
He told me of a woman who was Dx with Stage 3 BC in the 1990s and is alive and doing well today because of that place.
I know that such cases can probably be found elsewhere, but it sounded good.
I will give MSK more thought. I hope the doctors take my insurance. Any names in particular I should look for if I need it?
I still don't even know yet what my outcome is. -
Since I posted I just thought I'd put my results here.
"No evidence of malignancy. Fibrocystic tissue corresponding to findings on mammogram."
Bi-RADS rating of 3.
The tech on the phone said "It's a GOOD report" with that "Trust me" tone. She was very nice.
However they want me to do a follow up mammogram in six months to check stability.
Before I got these results, my GYN said if things do not change for two years it's considered benign. That was when she hadn't even received results so I am guessing her statement applies to many things.
I've heard cysts can make you more prone to cancer, but it doesn't mean you get it for sure. I know that fibrocystic tissue is not unusual in women. I'm having them mail me all copies of my reports though.
By some amazing coincidence I'm having some pains in my left breast. They are very similar to pains I had in my right one back in 2002, which my GYN checked and said was likely due to a progesterone surge.
Part of me wonders if a biopsy still should not be done, but I've been told that they generally are not done unless truly warranted. Before the MRI the radiologist said if it comes back good, odds are 99% that I don't have cancer. I realize in medicine they never say 100%, just in case. But I wonder just HOW much an MRI can really tell the doctors? -
Regarding Chef127's post of the center in Pleasantville, are not ALL cancer centers using laser surgery?
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PS - Not Pleasantville, NY but it is Plainview, NY on Long Island. -
MusicLover thanks. I checked the site and you're right, the location says Plainview. Thanks!
Having said that, don't all centers use laser surgery now? -
Each place has its own personality.
I love MSK, especially because it is organized and the departments communicate well. They are really professional and the breast center is a much more pleasant environment than at NYH.
Some don't like the long waits at MSK or can find it impersonal.
MSK is protocol driven. If you don't think their suggestions are best for you, you may be comfortable somewhere else.
Also plastic surgeons play a different (secondary) role at MSK than at NYH. MSK also has pretty good secondary services, counseling, social work, support groups, complementary stuff.
(By the way there are some very smart doctors who have done important research at Montefiore, I considered going there for a second opinion.)
I had my surgery at NYH. I really did like Swistle.
I did have some really issues with my hospital stay, communication with MSK, communication within the office there.
A lot of people LOVE NYU, and find it to be more flexible and accommodating. They have some great doctors there as well.
Just a thought, upper east side radiology has a PEM machine which counter-indicated a second non-existing "shadow" tumor found on the MRI.
Good luck.
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I live in Manhattan, my women's health doctor tried to get me into NY Presbyetrian's Breast center but they don't take my insurance, I know if I needed treatment I'd be over there for a second opinion. Sloan Kettering, my friend's sister from the Bronx had chemotherapy there last year and I believe she is doing well. I think those are the two places to zero in on. I see a Breast surgeon at St Luke's and also screening, I have felt that they moved fast with appointments and screening results there, yes theyre busy but they keep it moving, I liked my surgeon. I had a benign biopsy but will be back in six months for an ultrasound of the area of concern. NY Presbyterian does not take the New York State of health insurances.I had an MRI and the radiologist said that they "try their best but none of the screening methods are fool proof" having said that I was told several times that MRI are "super sensitive" my Breast surgeon mentioned that. I am in my early thirties and they did a biopsy on me, even though it was a pain in the butt.. because I have silicone implants which they risked piercing with the needle. I really don't think the radiologists leave anything to chance if in doubt. I think it's really smart you're doing a little research though
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oops, Must have been thinking of the movie. Cog-Fog.
I don't think laser breast cancer surgery is practiced at all? Dr Ansanelli is the only laser surgeon I could find in the country 4 years ago.
He was the only surgeon I saw that was willing to try a lumpectomy for me. He was amazingly successful.
Janeway69......GREAT news. Be well.
Maureen
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Okay so, Cookiegal ( cute name), when you write NYH do you really mean NY Presbyterian? When I see NYH I think of NY Hospital Center ( of Queens in my case).
Fakeboobs123, I'm so sorry about your insurance. Is this a state insurance that existed before the exchanges came along? I hate that in this day and age anyone who pays for insurance still gets turned away from good care. That should not happen in 2015 in the "greatest country on earth." :P
Chef127, no one else does laser? Makes me wonder why this one place does and what the other centers think but in any event, I'm glad you had a great outcome and if it works, people should be looking into it more. It's 2015. I thought lasers should be rather standard for a lot of such treatments; esp if older procedures add to risk of infection, hematoma, etc.
And thank you for the well wishes! Thanks to all the terrific ladies here. FIGHT!!! -
janeway, you are right. I was treated 6 years ago, maybe that name was more commonly used then, I was also treated in the ER there in the 90's. I feel like I had a patient ID that said that. Or maybe an old sign. I lived in that neighborhood for a long time
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I will say I do not like Beth Israel, but I gave heard really good things about Mt. S.
At the end of the day all of these places are good. You need to feel comfortable and like it as much as possible. Btw the researcher at Montefiore I am a fan of is Spanano. He was a big advocate for oncotype testing and reducing the number who got chemo. If MSK had not worked out, that was my next stop. OH and NYP is very confusing with the insurance. My BS was covered but PS was not
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I live uptown not too far from NY Presbyterian... My husband was born and raised here will have to ask him what it was called in the 90s, think I've heard the mother in law call that hospital something weird 😄 NY Presbyterian takes medicaid an that's where it stops it - they do not take any 'Obama care' type insurances, they just opted not to take part apparently. I went to a plastic surgeon after being referred from NY Presbyterians ER, had an allergy to sutres (I'd had a Breast uplift in Europe), I thought the woman I saw in plastics was very good and thorough
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Yes, it used to be called Columbia Presbyterian-- I know because I worked there in the late 80's. It later merged with NY Hospital, and, I believe, Weill Cornell as well
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I want to mention this some dr's at Weill Cornell accepted my insurance and others did not, so it is more of a dr by dr basis. So you do have to check that out before hand.
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