Recurrent Pleomorphic ILC

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nash
nash Member Posts: 2,600

Hi, ladies--I was very active on these boards in 2007/08 when I was diagnosed with pleomorphic ILC . Just found out today that I have a local recurrence. Not sure about distant spread b/c still have to have scans, etc. I used to do a lot of research but had stopped after treatment was done in 2008. Now I'm finding that there were studies that came out in 2008 that say Tamoxifen doesn't work for ILC, and even some studies that suggest that it actually encourages ILC to spread and makes it worse. So frankly, I'm sort of pissed off. And the only reason I found out I had a local recurrence was b/c I kept pushing for MRIs after my onc said I didn't need them any more b/c I'd been stable for six years. I'd insisted, we compromised on every two years, and bam. Sorry to be rambling, but I'm just irritated about the whole situation. I don't feel like I can trust the docs b/c they don't pay close attention to my subtype of bc.

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  • bevin
    bevin Member Posts: 1,902
    edited April 2015


    HI there, I don't blame you for being irritated. Good thing you had the strength to speak up for yourself and demand scans. I hope hou are okay and it has stayed local. When will your scans be scheduled?

  • nash
    nash Member Posts: 2,600
    edited April 2015

    I have to call dr and surgeon on Monday to get the ball rolling on appointments, etc. Just got path results Fri night.

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