April 2015 Chemo Crew... Starting in April? Please join us!

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  • ksusan
    ksusan Member Posts: 4,505
    edited April 2015

    Wishing those in the chair today well! Lynn, you may just have to spell it out for him. Sorry you're having to manage that in addition to the chemo. Great photo, God1st!

    I'm home from the Neulasta, put Burt's Bees avocado hair treatment on my very sore scalp, poured a little melted coconut oil on myself, and am now drinking my oz. 90-100 for the day and resting with the hope it will become a nap.

    NO nausea, NO diarrhea this time around. I have no idea why, but I'll take it! Thai leftovers anticipated for dinner. I'm married to a woman, so she has been socialized to pick up the dirty dishes :)

    Oh--I was directed to take Claritin the night I had my infusion and 3 more nights, with Benadryl. Since my MO allowed me Claritin for allergies, though, I took one the night before as well, and may take it through the resolution of any Neulasta achiness.

  • Fran2014
    Fran2014 Member Posts: 140
    edited April 2015


    Hi gals- looks like it's been a rough few days for many of you...sending out big hugs & lots of positive vibes for you all!! I was told the same thing about the Claritin..1 the night before and then continue for another six days. I do have to say that it did really appear to help with the bone aches (still felt low back pain but very manageable).

    Also, here's a helpful tip for any of you that also recently underwent a bmx (or will be in the coming months). As per the suggestion of my ps, I just started using BioOil (every day you massage it all over your new boobs-especially the scars). Wow! what a noticeable difference in just one week. Don't misunderstand me, they still look crazy scarred up and bumpy but there overall appearance is much softer and improved. It's been a month and I'm still sore but now have more mobility in my arm range.

    Hang tough ladies.. we are getting through this!!

  • ThePrincess
    ThePrincess Member Posts: 424
    edited April 2015

    From what I understand, the antihistimine in Claritin helps keep the bone marrow from being so inflamed from being stimulated like that?

    I hope the gals that got this week get a great weekend!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2015

    Good advice on the bio oil Fran! Hope everyone else is feeling OK or getting ready to feel ok heading into the weekend. I'm in awe of you that work the day of and the day after chemo....all I can do is a fee house chores and nap. I go back to work right before AC 4 though, so I'm pretty worried. I have flexibleish hours and an active desk job. How are other working ladies handling it?

    everyone's pics are so cute! My mom comes for my treatments to, bless her heArt.

    Mmj, I have it I pill for as well as cookies and buds. For nausea, smoking a tiny tiny amount works the best, but my husband hates it, so I'm trying other ways that might have the same effect. I have no tolerance and tend to overdose easily. I use it for break thru nausea between pill times.

    ksusan, is the co count oil for dry skin?

    Ufh....wish this fatigue would let me off the couch!

  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    have a great weekend ladies!!!!!!

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2015

    Trying to catch up after garage sale. Done now. Whew! Successful, but a lot of work. DH is having a picnic here tomorrow for his whole department (after just getting back into town yesterday. Thankfully he is pretty helpful around the house when he's here.

    Lynne, I think you need to sit down with your family, explain how it's going to be for the next next few months, and set some ground rules. I purposely made my parents leave before my first treatment because I wanted to get some firm routines established. When my folks are here, they let the kids do anything and they do not hold them accountable for anything. I knew from doing this before that I needed to get everyone in my family to pitch in. If your family does not help, then let DH know he can spring for someone to come in and clean for the next few months. One of the best things to come out of chemo last time was that my kids all now do all of their own laundry...and they continued to do so after treatment. I help them now and then, but they pretty much do it. If you need to have your MO talk to hubby, do it, but your family needs to get with the program and pitch in. Either that, or you need to stay in a motel and relax on your bad days. I am sorry you are having to deal with that. You do not need that additional stress.


    I hope everyone who had chemo this week has minimal side effects. Everyone deserves to have a restful weekend.

  • greenae
    greenae Member Posts: 540
    edited April 2015

    my rx for claritin is night before shot, then 2 more nights. Neulasta stimulates bone marrow to make red and white blood cells. It also makes histamines. The Claritin calms the histamine-making and should ease the bone pain caused by the histamines. After 2 infusions I have luckily had maybe 2 hrs of bone aches, relieved by motrin 600 mg. my bone pain comes on night 7, so I take the Motrin before bed.

    Hugs and good luck for minimal aches

    Arlene

  • sheshe3
    sheshe3 Member Posts: 70
    edited April 2015

    ugh... diarrhea. My stomach was cramping within hours of getting home from chemo yesterday. I got up twice during the night thinking here it comes, but nooooo, it just kept my in discomfort and sleeplessness until this morning when all h#!! broke loose...literally!!! Sorry, I know, TMI. So far, that and dry mouth are my two complaints. So, I will rant no more for now!

    Alibeths and God1st, hope all wentwe'll for you in the chair today...and anyone else who sat today. Great pic yesterday and today from the chemo chairs!

    Hey Kbee, I used my lint remover this morning and was so happy!!! I am so ready to be rid of this stubble! It's so uncomfortable under my wig, hats, etc.

    I was also told take the claritin the day before and six more. I forgot to take it my last two days last round and paid for it in achey bones.

    Hope all SEs take a hike for the weekend and all you ladies have a good one.

  • sheshe3
    sheshe3 Member Posts: 70
    edited April 2015

    OKay, I couldn't share this from my chemo chair with my Thursday sister's because of bad WiFi. So, here I am in all my baldness. (thats a buff around my neck)

    image

  • slv58
    slv58 Member Posts: 1,216
    edited April 2015

    SheShe3 you look gorgeous! Really! I love the blue buff, it matches your eyes!

  • ksusan
    ksusan Member Posts: 4,505
    edited April 2015

    Great photo, sheshe!

  • georgie61
    georgie61 Member Posts: 95
    edited April 2015

    I was told to take Claritin for the first 5 days. For whatever reason, I did not have any bone pain from the Neulasta. Also, I think today was the best day I've had. So, maybe the next week until my next AC treatment will be a little more positive??? A girls gotta dream. My 26 yo son is driving to see me this weekend and use his computer skills to set up a home office network so I can get some work done from home. Hopefully the weekend will treat us all well!

  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    gorgeous pic!!!

  • gingeel
    gingeel Member Posts: 102
    edited April 2015

    really beautiful pic!

  • Karen30
    Karen30 Member Posts: 135
    edited April 2015

    hello ladies- im seeing all the posts about Claritin and neulesta - I had my shot right after my treatment and no Claritin was prescribed at all- I've felt a little back stiffness but that's it- still tired but definitely feeling less spacy now - PET scan today - interesting experience- glad it's over- now just echo next week and then hopefully they will stop running on test after another!!! Hope you are all having a happy friday

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2015

    Sheshe you do look gorgeous! I agree that you have the most beautiful eyes! I use my lint roller on my head every day too!!!!! The stubble drives me crazy

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    sheshe3, beautiful picture!

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    Lynn, I am so sorry that you are feeling down. I would feel the same if I were in your position. But as others have said, men are not very sensitive to our needs. So instead of feeling sad on your own, you should tell him that it's a difficult time and you need all the help and support he can give. We have always been the one who takes care of the family and everything, this is THE time when we need to be taken care of. Lot of hugs!!!

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    Hi ladies, I just learned that Carly Fiorina is a breast cancer survivor too. She was diagnosed with breast cancer in Feb 2009, chemotherapy until October 2009. So I guess it's a pretty long/harsh regimen. One month after she finished chemotherapy, she started running for the Senate. I don't know how capable she is as a politician, but I gotta say she is one brave and strong woman!

  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    Have a great weekend everyone!!!!!!!

  • Stephmoen
    Stephmoen Member Posts: 563
    edited April 2015

    I just got my blood results last night I had a CBC done 8 days post first chemo my wbc count is 0.9 when normal is 3.8 to 10.6 I'm so worried now why didn't they give me a neulesta shot? I was a at work last week with animals if I knew my wbc were so low I wouldn't have been out doing the things I was doing :(

  • mamajencoz
    mamajencoz Member Posts: 52
    edited April 2015


    Yeah baby! back on track! SE gone. hungry now. I think the campizine is the culprit to me not feeling the best. After I stopped taking it the clouds parted and the sun shone again.

    Any way I had my husband finish off my hair last night, Its been falling out like crazy yesterday ever since I got it shaved down on Tuesday for that matter. Now my head is picky and cold. I pray the rest falls out sooner than later.

    Ive noticed a pattern already with my SE and ive only had 2 AC. The biggest change is while Im "down and out" I crave salty foods. When I come out of the SE hell... all I want is sweet foods. And I almost NEVER eat sweets! I buy 5 lbs of sugar a year ladies! But all I want today is ice cream and French toast. Maybe i'll eat coffee ice cream and that will make it ok for breakfast. LOL

    I hope you all have a great weekend!

    Jen

  • allicat1214
    allicat1214 Member Posts: 84
    edited April 2015

    Hi ladies.

    Love the pics sheshe, God1st, alibeth!

    Glad you're feeling better mamajen!

    Re: Claritin and neulasta: my MO / nurse navigator said nothing about claritin. I learned about it from this board! The same goes for rinsing my mouth with salt/baking soda to prevent/alleviate mouth sores!

    re: husbands: Littleblue...."smoking works best but your husband doesn't like it" & Lynne: no one cleaned up...

    Ladies, Please please please speak up. Find your voice and be heard. I separated from my husband of 31 years in January because I never spoke up as I was afraid of his anger. The few times I did speak up it was ugly. Had I learned to speak up from the beginning things might be different.

    You --we -- are going through one of the worst things we as women can face: an assault on our breasts and hair and ultimately psyche.....things that help identify us as women. As my acupunturist said to me: You need to be in a protective cocoon of love right now to restore and heal your body and soul.

    Our families should be doing whatever it takes to help us get through this. My husband and I have been talking by phone regularly and the conversations usually end up with him complaining to me about old issues. I finally said ENOUGH. I am trying to build my cocoon and his anger and ugliness have no part in it!

    Take care ladies! I have learned if WE don't take care of ourselves, NO ONE else will!


  • Karen30
    Karen30 Member Posts: 135
    edited April 2015

    quick question- so suddenly last night I started with a stuffed nose and sore throat and headache - no temp- is this the Neulesta?i haven't been near anyone sick dispute being at work all week- supposed to do an ACLS class today but I'm going to skip it bundle up and stay home- all the things alibeths said make so much sense.

  • ankledolphin
    ankledolphin Member Posts: 99
    edited April 2015

    thank you everyone for when you take the claritin...i took one around 1030 last night since i didn't want it to interfer with my steroid that i have to take....and today i woke up with heart racing and shaky.... i think that is the reason i never took it for allergies when it first came out and a doc told me to take it....i didn't like feeling that way...but then again that was 20 years ago and by now i thought those side affects wouldnt happen again! oh well....todays plans are to stay home in bed....my mother in law is coming by soon to give me my shot....the drive to the doc/hospital for it is an hour away so they were able to have it so i can do it at home and my mil is a nurse...so perfect for me!

    have a good weekend everyone!

  • lovlilynne
    lovlilynne Member Posts: 405
    edited April 2015

    Karen - yes, based on my experience, that is the Neulasta - made me feel like I was coming down with something - sore throat and that tired achy feeling. I've been taking the Claritin since day of shot - they didn't tell me how long to take it, but I think I'll go with 7 days based on what some of you are doing.

    Sheila, great picture, you really do look lovely in it, I know that you probably don't feel as good as you look, but at least you can know that you are rocking that look!

    mamajencoz, I don't have any cravings, I have no appetite.

    Stephmoen, my understanding is that they can only give the Neulasta from 24 hours to 4 days, then the window closes for it being most effective. However, you ended up getting a blood infusion, right? Or am I thinking of someone else.

    So, after I sent the message yesterday, I was thinking about it, and decided to call DH. I asked him why he had not cleaned up, and started crying, and told him that I hated that I had to be having this conversation with him which made me cry even harder, and I felt even worse about it, because I hated the fact of what I was doing to him. I mean, he's at work, and he can't do anything about it, and I know how shitty that must have felt, but I needed to get it out. He told me to not do anything, and he'd take care of it when he got home (like 8 hours later - right), and I told him of course I was going to pick it all up, but I just didn't think I should have to be having this conversation. I was crying so hard by the end of the conversation. I'm glad I got it out, but I still feel bad and need to have a follow up conversation with DH and apologize and explain - I just haven't been able to start because I'm afraid of getting emotional again and we had stuff to do and places to be last night.

    I had already talked to him about how he was going to have to "step it up" with the stuff at home and with the girls. My son is at college until early May, so he's not an issue. DH thinks that the girls should be doing a lot more, and I agree, but he doesn't realize that you have to be on top of them every 10 minutes - he thinks you can just tell them to do something, and they should do it. I guess if we were beating them if they didn't, maybe they would, but they just keep ignoring us/it. And, yes, even with consequences like taking away TV, phone, computer, etc. They don't seem to care.

    I'm feeling a little bit better physically today. I took a Claritin, but skipped the Zofran to see if I could get by without it. I'm feeling a little bit nauseated right now, though, so I may need to take one. How long do you guys take the anti-nausea meds? I am chemo + 4 days today. Days chemo +2-3 were the worst. I was so tired and felt like I was fighting the flu. I have no appetite, but I can eat when it's meal time, just small amounts, then I would feel very full. I would have these weird pains in my ribcage, like someone was squeezing me, then it would go away. I hope the clearer head this morning stays - I'd like to try to get out and take a walk.

    You know, all in all, the SE have not been horrible, but nevertheless, I feel like "how am I going to go through this all again?" I am not used to feeling sick or not 100% and not knowing when I'm going to feel better. It's going to be hard doing this all over again knowing what it coming.

    -Lynne


  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited April 2015

    Lynne, Good for you! Do not feel bad or guilty! Your husband has to step up and do more. This is not forever...just a few months. I would have a "family" discussion and let your daughter tell YOU what she will do for her part. You have been there for her (and your husband). It is not unreasonable at all for them to pretty much take over things now. LEAVE the dishes. Even if you can struggle threw it......and we can because we are women, don't do it. If you knock yourself out doing things, the family will think you are able to do it just fine. They do not know how much your body is going through. Leave it! Take care of yourself. If you do not, you are only hurting yourself, and, right nowYOU are #1. Just my opinion

  • AndreaC
    AndreaC Member Posts: 220
    edited April 2015

    Hi all...I am starting chemo the last day of April...so I barely squeaked in on this forum!

    This is my second experience with cancer...I had colon cancer in 2013, followed by surgery then chemo for 6 months. That was pills though and didn't cause severe side-effects. This time it's more serious...I had bilateral breast cancers, double mastectomy on March 26. I have lymph node involvement. So now it's IV chemo. I am having a PICC line inserted on Wednesday. Hopefully all I'll need is four cycles of chemo (3 months) - then it's radiation afterwards.

    I have already had a PET scan, am waiting for results. In the meantime, I am feeling great so this whole thing is surreal.

    Off to shop for a wig today!

    Andrea

  • Karen30
    Karen30 Member Posts: 135
    edited April 2015

    Lynne- I hear you - it's really hard going from being the person shooter is the glue that's always on it to suddenly within a week being the fragile "unwell" person I'm struggling with that as well- and 8 days post treatment one I'm still not feeling better it seems one SE dissipates only to be replaced by another- but I'm holding onto what these ladies are saying- this is not forever and for right now we do need to cocoon ourselves and put ourselves first- hopefully your family will rally around you good for you being strong and brave enough to even have the conversation - be kind to yourself Lynne

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2015

    Lynnne, I completely empathize with you. Husband's have no clue what we need right now. It's so hard, since we are used to being strong women, to ask for help. It's even harder when we do ask, and stuff doesn't get done to standard so you feel like it would have been easier to do it yourself. I'm so sorry you are going through this. My husband's response to me being sick is to basically dive into the TV and not come out. Unless I specifically ask him to do something, he wont. Sigh. He's good at denial. I wish he could see how doing basic house chores when I'm too tired is actually helping me get better! Oh well, tomorrow is a new day and only 2 more AC to go! How many do you have left?

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