April 2015 Chemo Crew... Starting in April? Please join us!

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  • eheinrich
    eheinrich Member Posts: 792
    edited April 2015

    I used a sticky lint roller on my little stubbles. I still have some hanging on a month after most fell out.


  • ksusan
    ksusan Member Posts: 4,505
    edited April 2015

    Lint roller for me, too. I tried a sterilized Furminator, but I am the wrong kind of cat!

    I got a drip of the steroid omitted in the morning, then finished the T with no trouble. Went out for a bookstore run and early Thai dinner before humans with diseases want to eat. Now resting before treadmill, then early sleep. Offered Neulasta today, but results are more variable and I am presenting at a conference next week so I want my immunity up. No nausea, which surprises me greatly. So far no loose bowels, and this time around I have permission to throw Imodium at it. I've had 100+ oz. of liquid today. The steroids make me want to eat carbs, that's for sure.

    I hope my Thursday sisters feel well soon.

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    georgie61, I was also experiencing extreme fatigue even after a week of my second AC. My MO said my RBC is low and the fatigue is due to anemia. He gave me blood transfusion (red cells only) yesterday and today I feel much better. You may want to check with your MO whether you have anemia.

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    ThePrincess, did you have Neulasta? I have Neuprogen and haven't experienced pain. But a friend of mine who had a Neulasta shot is experiencing serious bone pain.

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    Positive_spirit, I also had a ECHO done yesterday (after my second AC). The ejection fraction was down to 59%. My pre-AC ECHO was 66%. The cardiologist said fluctuation is normal. Did you have ECHO before chemo starts? Did the numbers change?

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    wrmbrownie, I am glad the Taxol wasn't too harsh on you. What I have heard, AC in general is harsher. But everyone's reactions are different. You can see some ladies are handling it quite well but others have a more difficult time with it. I only had 2 ACs so far. The second one is much more harsher on me. For the 1st one, I was having nausea in the first few days and fatigue; by day 4, I was feeling pretty good already. But for the 2nd one, in addition to nausea, I had shortness of breadth and extreme fatigue, which lasted for a week. The MO said it's chemo-induced anemia, which is quite common for AC. I had a blood transfusion on day 8 post my 2nd AC and today I feel much better. Don't worry too much. We can all get through this!

  • eheinrich
    eheinrich Member Posts: 792
    edited April 2015

    I get Neupogen & do get some pretty bad bone pain. It's weird how the same tx effects us all so differently.

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    God1st , my scalp hurt a lot too for my first infusion, but once my hair started to fall, the pain is gone. Hope your pain will go away soon.

  • ThePrincess
    ThePrincess Member Posts: 424
    edited April 2015

    I got the Neustala shot - I just thought by day 9 i would be safe from bone pain - I was fine on day 10 w/out the Claritin - next cycle I'll keep up with the claritin through day 9!

    Hope the ladies that got meds this week are feeling well!!

    TGIF is an UNDERSTATEMENT!

  • lovlilynne
    lovlilynne Member Posts: 405
    edited April 2015

    GM April ladies, thinking of Allibeths and wmbrownie at the chemo bar today. Not sure if Alicia is on 2 or 3 week schedule, if 3 week, she is back at the bar today.

    I am feeling it today, I'm guessing that most of this is from the Neulasta shot. I started with a sore throat last night. I was way more tired yesterday, I had to take a nap at lunch time. This morning I took another Zofran as my stomach is still feeling off. It's the weirdest thing - I have no appetite, nothing appeals to me, but then I make something to eat and devour it like I'm starving. My face hurts. Does anyone else's skin feel like it's sunburned? The back of my neck and shoulders feels this way.

    I was very sad, angry, hurt this morning. Last night I made dinner - just some ravioli and a salad and some garlic monkey bread, nothing too taxing, but I was so tired, that I went to bed right after dinner. This morning, I found all the dirty dishes still everywhere - my DH had put away the food, but left out things like the olives that we had on the table for the salad, and the onion that I had cut, and the butter - really? And he just left the dirty serving dishes on the table, and other dirty dishes all over the kitchen and our dining table. I just want to cry. I don't want to deal with this - not the cleaning up, that is the least of it, but WHY do I have to spell this out for him/my family??? I hate being a nag. I feel like I am not asking much to have it cleaned up after dinner, right? I hate this.

    Lynne

  • ksusan
    ksusan Member Posts: 4,505
    edited April 2015

    I had bone pain for about 4 days after the Neulasta/last steroid day. I found that the pain in any previously broken bone and bc surgical sites continued to have intermittent pain. Some of my nail beds ached all the way through, especially at night.

    After TC yesterday, I walked a treadmill for an hour on moderate slope, 2.5 mph. I slept well with Claratin, Benadryl, and lorazepam and lots of water. As I write, I'm doing a morning hour at 2.5 with water and attention to balance and foot placement (I'd have slept another hour but I didn't want to wake my partner again with another bathroom visit and then putting my clothes on). I'm wearing a bandana to catch my hair, so I'm sweating nicely.

    Neulasta today, then only working by email until Wednesday or Thursday

    I hope all of you are doing okay!

  • Rpayton
    Rpayton Member Posts: 235
    edited April 2015

    all of you posting your symptoms, so helpful. No wonder this chemo thing is so complex. On day 7 since my first. Today noticing back pain and stomach pain. Keep telling myself it will pass and it will.

    My heart just breaks for those of you with small children who are dependant on you. Just remember your chikdren will grow more compassionate and thoughful adults because of what they also are experiencing. All is part of our growth.

    Renee

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2015

    oh lynn, it's so frustrating sometimes when your family is like that!, I'm pretty sure my husband hasn't done a single load of dishes since I got diagnosed. it must be a way of pretending everything is normal? Hugs!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2015

    Well, day two post second AC hasn't been that bad. Was able to leave the safety of the bathroom floor at some point during g the night and go to bed. Had started adding peptobismol to my zofran ativan compazine routine, and it seems to really help. In addition, when I first got home and was extremely sick, tiny amounts of mmj really helped. Today I was able to get up and make some orange carrot apple kale juice and drink some marrow broth. We shape see how the rest of the day goes. How are the rest of those who had or are having treatment this week doing today? Hoping for minimal SES and no bone pain ! Neulasta....ugh...

  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    I am in the CHAIR!!!!!!!!! Wish me LUCK LADIES.....


  • ThePrincess
    ThePrincess Member Posts: 424
    edited April 2015

    Good luck Alibeths!! You'll be fine!!!

  • slv58
    slv58 Member Posts: 1,216
    edited April 2015

    Alibeth - you go girl! Remember to drink lots and imagine the drips attacking every nasty

  • Karen30
    Karen30 Member Posts: 135
    edited April 2015

    hello ladies- I week since first AC and I am still not feeling near normal- still lethargic and spacy am working but it's draining and dragging for sure despite good sleep- I keep hoping I will bounce back and start to feel semi normal - PET scan today so I'm NPO right now only water - that high protein high fat diet was hard for me - I have an ACLS class tomorrow and. Just not sure how I will manage it feeling like this - ugh!!

    Wishing you all a lovely weekend doing good things for yourself .

  • georgie61
    georgie61 Member Posts: 95
    edited April 2015

    what is mmj? Can't think.

  • lovlilynne
    lovlilynne Member Posts: 405
    edited April 2015

    medical majuana

  • mamajencoz
    mamajencoz Member Posts: 52
    edited April 2015


    Hello again,

    I'm sorry I've been out of touch lately. Had my second AC on Monday and today is the first day I've had energy to post. My nausea was controlled better this time. They gave me 5 during infusion and 2 to take at home. I started round the clock Monday night and haven't stopped yet. I'm afraid Ill feel sick if I stop taking it. Bone pain from the shot is bearable today. day 2 and 3 were bad. I took my Rx pain prescription from my surgery to help it. Yesterday I'd hoped I'd be better but my energy level was rock bottom and I had no appetite at all. Today I'm eating small amounts and resting instead of sleeping. I'm ready to feel better now. Aint no one got time for all this! LOL

    best wishes to you all

    Jen

  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015
  • God1st
    God1st Member Posts: 20
    edited April 2015

    Alibeths-Good luck on your treatment today. I am currently in the chemo chair myself .

  • God1st
    God1st Member Posts: 20
    edited April 2015
  • ThinkingPositive
    ThinkingPositive Member Posts: 834
    edited April 2015

    Looks like most of you are having AC+T.. hoping you all feel okay. Were all of you told to do this regimen or were you given a choice. Not that it matters at this point as I am done with chemo as of Feb 5th...but was just wondering as I continue to worry every day.

  • melb44
    melb44 Member Posts: 130
    edited April 2015

    ThinkingPos - My mammaprint came back with a high score so that is why they suggested it for me. It might be overkill but they told me that is what they recommended. I might have been fine with TC. My 2nd opinion oncologist said that on the west coast they almost always use TC so I guess it is a regional thing too. They thought I had no lymph node involvement but 1 came back positive from my sentinel node biospy.


    Alibeth - I will be watching you. I start AC-T with cold caps on Tuesday. Hope you have few SEs!


    God1st - You and your mom are so cute!!! Good luck today!

    Littleblue- Hope you are feeling better. Thinking of you.

    Lovilynne- I am sorry about your husband. Be sure to tell him that you are going to need help. I find that men sometimes need things spelled out super clearly. I have been wiped from my port insertion and sentinel node biopsy and my husband has been stepping up a bit. I was sure to tell him how thankful I was because I want him to keep it up. It is going to be a long summer.

  • ankledolphin
    ankledolphin Member Posts: 99
    edited April 2015

    quick question for those that take the Claritinfor the nuelasta shot pain....when do you take the Claritin? I get my shot tomorrow early morning and no idea when to take the Claritin!!


  • ThinkingPositive
    ThinkingPositive Member Posts: 834
    edited April 2015

    I was told to take the claritan night before and then 6 nights afterwards... had very little pain from the shot.

  • Rpayton
    Rpayton Member Posts: 235
    edited April 2015

    I was told the same take claritin for 7 days. I wonder what specifically in the Claritin is so recommended and helpful?

    No pain from the shot. The annoying part has been intermittent back and stomach pain.

  • gingeel
    gingeel Member Posts: 102
    edited April 2015

    Hi all! day 3 after first AC...starting to feel like myself. I sent my mom back to NJ, and did some light housework, walked to school for pickup, and ate 2 pepperoni slices from papajohns! The fatigue is what is so annoying. It's like the moment I sit or lay down, I could fall into a deep sleep. Also, if my stomach is feeling fine, do I stop taking the zofran and composine? I'm afraid if i stop, I'll get sick....Should I wean off of them?

    Littleblue....are you smoking the mmj? or is it in a pill form? Just curious...

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