Starting Chemo in December 2013

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  • Lisaj514
    Lisaj514 Member Posts: 719
    edited April 2015

    1yr pfc today! We are all reaching that milestone or have already! Congrats to all you beautiful, strong amazing women! Love to you al

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited April 2015

    1yr pfc today! We are all reaching that milestone or have already. Congrats to all you beautiful, strong women. Love you

  • DJJ
    DJJ Member Posts: 229
    edited April 2015

    Holli, I feel your anxiety, bumps and lumps and blips no matter what they turn out to be cause a lot of worry.

    Trickybarb,I still take a Zolpidem every night for sleep. I wanted to try and get off them but as the weather warms up my neuropathy acts up. By the end of the day warm weather makes my feet and hands get hot...sigh

    Lisa, YAY One year!!!!

    Tomorrow is my biopsy. My mom came in to town to be with me for the biopsy and results. Fingers crossed. I will have the results in 24-48 hours.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited April 2015

    DJJ, thinking of you. Praying that results are B9! Nice that your Mom could come.

    Yes, Lisa, we have come a long way! congrats!

    I finished the book, "Emperor of the Maladies...History of cancer." Worth reading. I found out that Tamoxifen was first made in 1962!!! Over 50 yrs old. Who knew?




  • DJJ
    DJJ Member Posts: 229
    edited April 2015

    Doctor called, Results are "NORMAL"!!!!! Just dense breast tissue...phew!!!! Is this what we face every 6 months? I have to get a better grasp on this part of our life after cancer. The stress and fear were exhausting. I don't think I was that scared during diagnosis. But knowing now what I didn't know then added so much fear. I long to be the naive fearless woman I was before cancer. I need to work on this life after cancer thing! I mostly just enjoy life and ignore this whole cancer thing and BAM! it came up and bit me...

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited April 2015

    Have been waiting to hear from you all day DJJ. Yipee! But I know what you mean. I have MO appt on fri because of also feeling some lumps/bumps and other weird sensations on both L (bad girl!) and R. Moved appt up 2 wks. Due for mamo and U.S. in June and MRI aug or sept (? I think) but the anxiety is setting in for fri appt of what she will recommend or thinks. Just 1 yr plus 1 day pfc today. Every day counts in getting to that 2 yr mark, 3 yr mark and the all too important 5 yr mark. if you find a way to get a handle on this, please let us know. I dont think there is a way though, because the anxiety is normal and we just have to struggle, kick, cry and whatever, our way through

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited April 2015

    Denise, HAPPY HAPPY news. My feet are tapping with joy for you. I also get so freaky scared at every ache and pain now. Before I just ignored almost everything. Thank God I did not ignore feeling the lump 18 months ago.

    May 1st is my 1 year PFC, and that F does not stand for finishing either!


  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited April 2015

    hopefully Hollie is having as good a time in Hawaii as Michelle is in Mexico ( per Facebook she looks like she is having a blast)

    Hoping to go to China in Oct. Not sure if I said here or not that my youngerson is getting married and her parents are throwing a big party and ceremony in China.

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited April 2015

    DJJ- yay!!! What a relief!!! So happy for you!

    Lisa- Congrats on the one year mark! A few more weeks for me, but getting there.

    Holli- question about mammograms. They don't do any on me since BMX. Is it because I still have TE's? Wondering if I will get those again after the exchange in late May.

    A parent at my school was dx today. She is the sister of my assistant principal. They said it was invasive mammary carcinoma. She is heading to MD next week for a full work up. Her sister told me that they are using me as the examplel when they tell their kids who are 14 and 12. I teach the 12 year old. They said that Katherine has seen me everyday at school this year. She has seen me well, and saw me immediately come back to normal work and cheer and all. I had no idea something like this would happen, but I am so glad I came back and kicked ass at school this year. If I can help that little girl not have too much fear, what a blessing. I do have faith that it was caught early. This was hard to hear but I am praying the road is not like ours. No chemo is my biggest hope!

    This is our life now. It will always be us they think about when they see the ribbons or hear of someone dx. It really does make me want to write down my experience in a book to help. Sometimes people don't want to ask, but they really want to you know. I just want to help but feel helpless in the situation.

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited April 2015

    almost forgot!!! Keepthefaith congrats on grand baby!!! My oldest daughter's name is Emery spelled the same way😉😍. She is my sweetest one too, so maybe it is in the name!

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited April 2015

    DJJ, so glad to hear the news!! whoo-hoo! I don't know that we will ever get rid of the fear of recurrence...

    Jodi,Thanks! Nice that you can see the silver lining around the dark cloud. It's funny how we influence the people around us and sometimes never know! Good for you! I call my GD Emmie...not sure if my DD likes it, but it's a Grandma thing!

    Lisa, I hope your MO appt went well yesterday. We are all coming up on important milestones. Last yr this time, I was about halfway through rads...

    Barbara, China sounds amazing! Congrats on the wedding.

    Have a wonderful week-end ladies!




  • Lisaj514
    Lisaj514 Member Posts: 719
    edited April 2015

    MO appt went fine. The lumps, thick areas that I feel she said are just dense breast tissue. Does not at all feel like an area for concern. I'm sch for us and mammo in June and she feels that is appropriate. I just can't convince myself that it's all ok for some reason. I feel fine otherwise. I'm just so afraid of missing something, and perhaps them missing something. She is willing to see me whenever I feel(or think I feel) something new or unusual. I think I have rational reasons to be anxious about this. I'm trying so hard to convince myself that alls ok, but even after she tells me it is I still doubt, I don't know why.

    Jodi, great to hear from you. You should write that book, you write so well!

    Barb, glad you are planning this exciting trip to China

    Keepthefaith! A grandbaby-terrific!

    Oh and hot flashes have returned with a vengeance. They stopped, or diminished a few months ago and I thought good! But now back. She prescribed Effexor. Tried 37.5mg prior but couldnt sleep so I stopped and continued with my 1/2 tab of ambien (only gives me 4 hrs maybe). She upped Effexor to 75mg,mashing that may help the sleep and hot flashes and if still have diff sleeping I could take my 1/2 tab of ambien. Afraid of getting too dependent and taking too much stuff. The Effexor last night helped the hourly hot flashes. But I didnt take the ambien and without it I it doesn't seem like I can get to sleep, you get it DJJ right. I don'take tamoxifen or any AI so I can cant blame it on that that. its just me

    Holli is in Hawaii! Michelle is in Mexico! Djj, when is your trip to Venezuela (I think?). Barb China. Nice trips! Who else has exciting travel plans for the next year.

  • missy6758703
    missy6758703 Member Posts: 218
    edited April 2015

    Hi my beautiful friends (sisters!!) I have missed you all!!! Puerto Vallarta was amazing....this is my 4th time there and it gets better every time!

    I had a moment on the beach......i was sitting there just watching the waves with one of my best friends that I took with me when i realized it was one year since my last chemo. I wrote this in the sand as most of you saw on Facebook...it was so freeing! I sat there and watched as the waves washed it away. It was something I have said to myself over and over, but i just wanted to tell it to its face. F You cancer!! It felt so good! This picture is of me doing the Victory sign....my arms are so freakin fat that i didn't want this one on FB but you all will understand and not judge me by my fat arms! haha!

    I love you all! Yay for good test results! Yay for everything in our lives!! We deserve it all!

    image

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited April 2015

    Michelle, I whole heartedly agree with your beach message. This is the year to celebrate us.

    Moki, my dog, and I are off to the Bark for Life dog walk for the ACS. Moki walks as a cancer survivor also this year. Last year I walked with a scarf on my bald head, this year I have HAIR.

    Hope everyone's weather is a beautiful as it is here, a bit cool but gloriously sunny.

  • RobinLK
    RobinLK Member Posts: 840
    edited April 2015

    So much GREAT news for everyone!

    Grand baby, clean scans, vacations and survival! How blessed!

    Molly and I walked together at Relay For Life last night. It was an amazing night. So many different emotions. Here are a few pictures for those not on FB.

    imageimageimage

    As we were leaving a storm blew in. Felt like Dorothy in The Wizard of Oz. the winds were incredible and the rain was cold.

  • jbokland
    jbokland Member Posts: 890
    edited April 2015

    hello lovelies!!!

    It been a while and I love reading everyone's posts!

    I went to gyno to ultrasound my ovaries ( my idea). They are fine but uterine lining was thickened. MO said 'dong worry, Tamoxifrn does that' but gyno wanted to biopsy the uterine wall. After having to insert 2 pills (aka abortion pills)into my vajayjay the night before, she still had to dilate me. YOWCH I told my gyn that no one had been there since my 27 year old daughter...the only thing they may find on the wall is a Backstreet Boys poster.

    Waiting for the results but more excited for the birth of my grandson on May 5

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited April 2015

    I have no immediate vacation plans, but I am saving up to take the girls to Disneyworld next April during our school's Spring Break. My oldest also wants to go to Universal for Harry Potter World. So, more coaching and saving it is lol!

    Only thing coming up my way is late May. Scans, and recon. How was the recovering after the exchange of you had it done already? I will have the Lat Flap and doctor said 3 weeks down. I feel like I am starting over- drains, open front shirts etc. 4 days in a hospital!! Send me advice ladies!

  • RHGSR
    RHGSR Member Posts: 774
    edited April 2015

    I'm HOME!! Maui was incredible. I will share more later, but for now... This is something a camp participant (and new friend) just posted. I couldnt have said it better myself.

    -Things I learned at camp from some of these crazy cool cats!

    Anything is possible

    Facing fear is a whole lot easier with friends by your side

    You can't stop the waves, but you can learn to surf and surfing is so much fun!

    Hugs are necessary

    I could officially become a camper/beach bum

    It's never to late in life to make new friendships that will last forever!

    Teaching by example and through love touches ones soul.

    Don't be afraid to have a naked dance party every morning with yourself!

    Sleeping 10 feet away from the ocean, on a cot under the stars painted sky is much better than any 5star hotel

    Listening and learning is better than speaking and teaching

    The greatest power is the power of now. Be present, enjoy this moment.

    Be happy! The way my camp mate says it was like "just be happy" I can hear her saying it like why would you be any other way?!

    Be nice

    Laughing is one of gods best medicines he gave us to heel.

    Being brave does not always come with a warrior suit.

    Be patient and thoughtful to those around you. You never know what battle they may be facing.

    All fear is is False Evidence Appearing Real

    We are all going to die someday, so instead of worrying about it live! Live and laugh everyday

    Doing your best is a teacher to others and an example. Always do your best in everything you do.

    Believe in yourself, your amazing!

    Yoga and I need to become acquainted

    Take "me" time and take it often

    There are such good people in this world!

    Find time and serve others

    In helping others you will find your greatest success

    Listen to your internal compass, it will never steer you wrong

    Cancer does not discriminate anyone can have it at anytime. I had cancer, cancer doesn't have me!

    Body images issues each and every one of us have dealt with. Remember you are beautiful, just the way you are right now.

    Pranks are still just as funny now as they were when we were kids!

    God hears and answers our prayers.

    With a supportive group anything is possible!

    ‪#‎Athletes4Cancer‬

    image

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited May 2015

    Kim- so glad you had a wonderful time!! Please post more pics! One day, I want to go to Hawaii😍

    No news equals good news I suppose! Praying everyone is well!! I'm getting very anxious about what is coming my way. Scans and surgery

  • RHGSR
    RHGSR Member Posts: 774
    edited May 2015

    Apply Jodi. The ages are listed as 18-39. However, we had a lady at our camp who was 40 and another was 42.

    The Maui trip was through Athletes 4 Cancer

    There is also another organization called First Descents that I'm applying to now.

    Also there is Littke Pink Houses of Hope for breast cancer survivors and their families.

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited May 2015

    Wishing everyone a Happy Mother's Day tomorrow.

    I was going to take my MIL out to dinner but she ended up last night in the hospital with chest pains and electrolyte problems. Now looks like a blocked bile duct, hopefully just with a gallstone. I took her down a potted Fushia for her porch and a book to read instead today. She is in a tiny hospital about an hour away. Sadly I lost my Mom about 20 years ago. She was only 77 when she died and I thought it much too young, funny now I would love to be able reach age 77. That would mean beating this curse by almost 18 years.

  • jbokland
    jbokland Member Posts: 890
    edited May 2015

    Barb- think positive and have faith! I hope we all die as old ladies and not hit by a bus first!

  • Mikesgirl17
    Mikesgirl17 Member Posts: 260
    edited May 2015

    Hi girls. Just checking in. I miss you all. All is well here. After a brutal Maine winter that caused me to be very depressed I am happy to say that I am back to my old self now that the weather is nice. I had a scare in February. My left breast had been hard since radiation and it started to soften up and I felt a knot in the spot where I had the lumpectomy. I thought for sure the cancer was back. I was a nervouse wreck for the 3 weeks leading up to my check up. Turns out it was normal scar tissue. Unless you've gone through the hell that we have been through, you can't understand the constant fear we feel that this nightmare will come back. Happy Spring everyone!

  • RHGSR
    RHGSR Member Posts: 774
    edited May 2015

    mikesgirl - I'm so glad everything turned out good. But I had to laugh at your post when you used the word nightmare then immediately after said. " Happy Spring". Doesn't that mimick the life if cancer survivors?

    I may have posted this already so forgive if it's redundant. I blame chemo brain.

    I felt similar lumps. Had mammogram before my Maui trip. The lumps I felt showed as scar tissue. But there was a "Blip" on the mammogram. Have to have follow up mammo in October. But I see my breast surgeon in June. Hopefully I can talk to her about it.

    Hysterectomy scheduled for next week. Having my pre-op appt today. Hoping they will clear me for surgey. I want to get this done so I can finish reconstruction and try to move on form all this mess...

    I've applied for another "cancer camp" ever heard of first descents? (I may have ask this already too... UGH my brain!).

  • kimie06
    kimie06 Member Posts: 215
    edited May 2015

    Hi Ladies

    checking in and have been meaning to for days.... life has been hectic, I lost my day on may 2nd, when does it fucking end....gawd !!

    I am still in a bit of a fog and feel as though I am not processing this at all, I put a call into the psychologist that I started seeing when doing treatments and when my brother passed away. I am going to see him next week, my heart can't take much more.

    TAMOXIFEN... can we discuss, my periods are all over the place now, they were regular for a few months, now I spot for days and then have a period, having some night sweats... and the list goes on and on, I am convinced its putting me into menopause or maybe I am just heading there on my own.

    I need to go back and reread I feel like I am so out of touch with everyone. I hope and pray you are all doing well.

    smooches

    Kim



  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited May 2015

    Kim, so sorry about your Dad. Tough coming so close after your brother.

    Life is a bitch sometimes. Hope you can get some help through your psychology sessions.

    Holly, best of luck with the hyster. Hope you finally get a breaks and heal with no complications.

    Mikesgirl, where in Maine are you? I am visiting my son in NH and staying in Portsmouth Mon and Tue.

    Talk about hot flashes and sweats, aromasin is terrible. I took a walk with the dogs and a friend today and was soaking wet when I came back, yes it was 75 and humid but soaking wet when she was dry completely. Going back on the 1/4 lexapro pill helped a lot but I guess I will try 1/2 pill to see if it gets better.

  • kimie06
    kimie06 Member Posts: 215
    edited May 2015

    crazywabbit.... mikesgirl is in augusta maine...

  • kjfromca
    kjfromca Member Posts: 283
    edited May 2015

    Hi ladies - Catching up on your posts. Sending hugs and lots of love your way.

    It's been a crazy past couple of months and not that I don't love you ALL, but I have been dealing with a lot of family issues...therapy has been really helping us. I have another 4 month checkup on Thurs. I am officially a grandmother too..... My grandbaby came a month early, his name is Hunter. He is ADORABLE!!!!

    I had reconstruction surgery at the beginning of April and have had no issues, thank God.

    Jodi - My surgery was a tissue replacement. The expander switch to the implant was easy recovery for me. My friend, Sylvia, just had the surgery where they use the muscle from your back, I cannot remember what it is called. She said that she didn't have pain after the surgery. She was sore where her tubes were. Her doctor told her she would be out for 3 weeks too. I will be praying for you.

    Kim


  • Jodi040812
    Jodi040812 Member Posts: 383
    edited May 2015

    Kimie- So sorry about your dad! I am just about a year out from losing mine, and I have chosen to remember the good times. It is too painful to let in the pain.

    Kim- I head back tomorrow and have the pre op Thursday along with my scans, I'll post all the info I find out about it here. It is a little different since they will not be cutting my back to harvest the lat muscle. I am definitely asking all the recovery questions Thursday. There are not a lot of women who have had this procedure done with the robot, but I am confident it is going to be easier on my body than the normal way.

    I am putting you all in my pocket this week. Heading back for the Ultrasounds, bloodwork and xrays etc. Praying for good news on Friday!!! If so, I'll be on the chopping block the following week for Lat surgery with gummy exchange. Hugs ladies!!

  • tobyholic
    tobyholic Member Posts: 96
    edited May 2015

    Does everyone get a second PET scan after they are done with treatment? They didnt order me one and now I constantly worry if there is cancer omewhere else that they missed.

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