Starting Chemo February 2015

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  • Darumama
    Darumama Member Posts: 135
    edited April 2015

    live deliciously: Good luck with Taxol! I start mine on Friday. For what it's worth, my oncologist says it is only 50% as hard as AC. We shall see... He also said I might have neuropathy and aches and pains. He said it is common for some people to feel flush while the drug is being administered. The chemo nurses said the infusion sessions would be quicker. They also told me I shouldn't feel as nauseous but they are keeping me on the full compliment of anti nauseau drugs. I've felt pretty crappy on AC- at least for the following week, so I'm hoping what they tell me is true- not that it sounds like any picnic. But 50% less awful = 50% better. At any rate, each infusion is one closer to being done! Keep thinking of June

  • MaryJC
    MaryJC Member Posts: 350
    edited April 2015

    Thanks but 100% not interested in bmx absent implants at all. I'm gonna consist with the radiologist, breast surgeon and plastic surgeon. I did read about the possibility of numbness, etc.

    yes I know what you mean lol ;)

  • MaryJC
    MaryJC Member Posts: 350
    edited April 2015

    ah.. June! Most of us should be done by or around June, yes? God willing we can all stay on target with no delays.

  • SweetHope
    SweetHope Member Posts: 439
    edited April 2015

    Chloesmom, I'm a lurker from Jan. Chemo group. You are the first person that I have read that has feeling back in her MX area. Yeah, you! I sure hope there are others out there.

    MaryJC, what ever your decision, you have this lurker's full support.

    Best wishes to you all.

  • Darumama
    Darumama Member Posts: 135
    edited April 2015

    MaryJC - I had the DMX with tissue expanders implants. It definitely has made the surgery recovery a little more tricky, but that's mainly because I had an axillary dissection on my right side. My recovery on the prophylactic side has been much easier. I will tell you honestly, for the first day or two after the surgery I really regretted the tissue expanders. They put them behind you chest muscle and you really feel it. I don't regret it anymore. Time heals. It has gotten easier and I am taking a long view of the reconstruction project. I do have that feeling of wearing a tight bra all the time, but even that has improved a little. I keep telling myself , these are early days in the process. One nice thing about the expanders is you have a certain amount of control over the final product. I was very big on top and since the mx have decided I actually like being on the smaller side. I told the plastic surgeon that I didn't want the Cs she had planned for me and wanted to stay in the A+/B range. My plastic surgeon plans to switch them out for permanent (15-20 year) implants 6 months after I finish radiation. Good luck whatever you decide😀

  • MaryJC
    MaryJC Member Posts: 350
    edited April 2015

    thank you both for your replies! Omg so much to consider. Do people and even teens really go thru this just to have bigger boobs??? I've already had my nodes taken out with the lumpectomy. So I wonder if it would be as bad or complicated. I think I saw that Rita Wilson had her dmx and was on red carpets in 3 weeks. Can this be true??? Anyhoo, I too want smaller ones. These things been stalking me since I was 11yo. I'm ready for a C- or B+ if they come in those.

    Goodness another round of Drs appts/consists etc makes me think I can be done with the rads faster. There's no easy decision with this.

  • rossileo18
    rossileo18 Member Posts: 245
    edited April 2015

    Darumama and Live Deliciously,

    I haven't been very active recently, but I thought I'd let you know that i finished ACx4 about a month ago and have had Taxol three times (next one tomorrow) and have found it MUCH easier to deal with. With the AC I took off a whole week of work and then worked for a week. With the weekly Taxol, I've been taking the day off for the the infusion (I'm on a Wednesday schedule) and working the other 4 days of the week. Not feeling any nausea. Fingernails continue to deteriorate, though. Definitely a lot of fatigue but part of that may be anemia from the AC. My RBC are only 8.8.

    So, hope both of you experience the same as me. The biggest problem is that it just seems endless.....


  • neverthought
    neverthought Member Posts: 90
    edited April 2015

    Hello, I hope no-one minds but I'm from the March group. I'm on TC, 3rd round tomorrow and just worried how bad the muscle problems are going to get. I'm hobbling around with muscle fatigue and back of my knees all tightened up like I went on a 20 mile hike or something. Getting worse, not better and wondering what to expect. Arms get tired too if I do any lifting and really feel it going up stairs. MO said if I had taken megadoses of Vitamin D I might not feel so bad, but I was afraid to because of kidney stones.

    Guess this was not a SE I expected.

    Surgery: left mastectomy for DCIS + Invasive +lobular, 4 nodes (all neg)

    Chemo: TC x 4

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited April 2015

    MaryJC. Two of my friends are happy with recon. One told me what it involved and I lost interest, but I applaud her and am happy that she is happy with her choice. She said the only downside now 8 years later is the lack of feeling. Another friend had a botched job. The implant slipped sideways toward/ under her armpit. They tried to redo and she got an infection. She had so many revisions she gave up then had to have still another surgery to get the excess skin removed . Since the implants go under your muscles it changes the line of pull and a 4th friend is unhappy as her arm strength never fully came back.

    What got me on the topic is that I understand more people opt for non recon than recon, but the PS wants to be in business and I was put off by how much they seemed to discount the pain and assume that was my choice. I felt like a remodeling project they wee excited about We will just take a little fat from here and fill it in there... My tumor was on the top of my breast near the skin and the doctor said it would be a challenge to rebuild things. It reminded me of when we repurposed our kitchen cabinets to redo the kitchen by cutting up some of the bases.

    All I wanted to do was get back into swimming again and have no more procedures. Like Baskin Robbins. It's good we have choices.

    I look at how many revisions some of the ladies have endured and wonder if they'd known what was involved if it would have been their choice. Like the rest of this BC stuff it's another crap shoot. I hope you have an excellent doctor and get super results like my 2 friends!

    As far as the sensation is concerned I lucked out. Not disturbing the tissues with the simple BMX my nerves must not have been torn very much. I am so nice and flat and smooth as I rally do look like a 10 year old boy. Just the scars are numb lines and the area where the nodes were removed. the doctor said it could go either way, but I did get a top surgeon at Hopkins and he was very skilled. Every night I rub Jason V it E. Cream over the skin to keep the tissues loose and that has helped a lot.

    Wish everyone well with their choices!

    Today is 2 weeks post final infusion. Slept 1/2 the day and dragged myself up the steps. Talked to a friend that had TC years back and she said a she had the heavy legs for 2 months. is it June soon? :).

    hugs to all

  • Darumama
    Darumama Member Posts: 135
    edited April 2015

    Rossileo18, Thanks for the encouraging report on Taxol! I'm hoping it lets me reclaim some normalcy in my life.

    MaryJC, before my DMX I wore a 34 G - yes, I said G! If there is any silver lining in this nightmare it's that I don't have to carry that around anymore. The grooves I had in my shoulders are almost gone already.

  • MaryJC
    MaryJC Member Posts: 350
    edited April 2015

    Good Morning Sisters... Ugh have #4 coming this morning. I've been fasting ahead of my treatment. I'm looking forward to a mango after! I'll reach out during or after. I don't get great signal there which is a bummer. But i get to lounge n watch daytime TV. I'll follow bs k up soon. Wish me luck!

  • SweetHope
    SweetHope Member Posts: 439
    edited April 2015

    Yesterday the news was reporting on genetic testing for $249. Just read this new post and wanted everyone here to see it:

    JohnSmith wrote:

    This information was posted in the "Clinical Trials, Research Studies, News" section, but since some never venture into that portion of the forum, it warranted a thread here.

    A California based start-up called "Color Genomics" (or simply "Color") is offering a $249 saliva test kit for breast and ovarian cancer.

    It analyzes these 19 genes: ATM, BARD1, BRCA1, BRCA2, BRIP1, CDH1, CHEK2, EPCAM, MLH1, MSH2, MSH6, NBN, PALB2, PMS2, PTEN, RAD51C, RAD51D, STK11, TP53.

    The test includes the CDH1 gene. Like the well known BRCA gene, CDH1 is a "tumor suppressor gene". Without this gene, a cell has a higher chance of mutating. CDH1 is responsible for encoding the E-cadherin protein. The hallmark of Lobular BC is the lack of E-cadherin.

    Color is not yet able to ship test kits internationally. Within the U.S. they can't ship to Florida, Maryland, New York, Pennsylvania, or Rhode Island, as each state has different regulatory requirements around genetic testing. This may change in the future.

    As a side note, my wife had the same exact genes tested last year, but spent over $2000 out of pocket, since insurance only covered a portion.

    Color Genomics website. (Either go to new articles for link or google it. It won't work on this copy.)

    Media articles:

    Startup Pledges To Cut Cost Of Breast Cancer Genetic Testing From $4000 To $249

    (Please pass this on. I've posted on Jan. and March Chemo group and Lumpectomy Lounge. If you live in a state that is listed, have the kit sent to a friend who can forward it to you. I am doing that for my niece in Florida.)

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited April 2015

    just starting to feel a little better since last 3 chemo, that neulista shot sucks. I am a lot older than you gals so I know that I was done with boobs, did the nursing thing, what happened to the protection? From nursing? In the meantime, surgery site still pretty numb, don't know if that will improve, but I can live without the gals, they were in the way before, I slept on my stomach last night, felt pretty good. And you are so right without boobs you can ce any size you want too. From what I understand, the radiation depends on location of tumor and strength of it, my margins were good, all clear so no need. Which I am glad,

    Going to enjoy the next few weeks without chemo, Did you know you can get the herceptin infusion put in over 90 minutes, I am doing 60 because at first they were rushing me, and I heard its less traumatic on your body. It works for me. Hoping the mouth sores diminish, they are back again, but doing the baking soda and salt almost every hour to neutralize the mouth. Ok girls have a great day. Chin-up and were almost done this phase of this crap. Hydrate hydrate hydrate.

  • Ldavidson17
    Ldavidson17 Member Posts: 12
    edited April 2015

    Good morning all.  I was supposed to have TCH # 4 this morning but was pushed back.  This was due to what last week they thought was a staph infection but actually turned out to be shingles!  This is my 2nd time to get shingles and it was not fun.  I never would of thought I'd have shingles twice in my life let alone twice before age 30 (first time was when I was 24; I'm 29 now)!  my MO pushed back chemo a week because she said the steroids for chemo could make the shingles flare if not completely healed.  So I understand, but am still bummed that it was pushed back because I want this stuff over with ASAP lol.  Hope you all have a fantastic day!!

  • live_deliciously
    live_deliciously Member Posts: 346
    edited April 2015

    i had first did taxol yesterday. My iv went in first time yeah! I didn't have any allergic reactions either. And today so far I feel Much better than I did on a/c. Still have to do neulasta shot today so we will see what fun that brings . will say it took longer to infuse with taxol than ac because they give you more steroid twice as much and the taxol bag took 2 hours by itself. Labs to Dr visit thru infusion took 5.5 hrs. I did get an earfill from Dr when I told her I'd been gardening and landscaping around house . She said absolutely not. Cant be around soil because it can lead to a respiratory fungal infection. Really burstmy bubble. Can't even mow. She said not even with gloves and a mask until all chemo is done. I had not read this anywhere .just seems like we can't do anything normal.

  • Nina2015
    Nina2015 Member Posts: 16
    edited April 2015

    Sorry I've been MIA for awhile. We got genetic results back and have been dealing with a lot. I got A/C #4 monday and nausea med infusion today since none of the take nausea meds have been working. The nurse stuck me twice today without a good blood return, needless to say I'm in a little pain by my port. I will deff be requesting she not do it next time since another nurse had to step in and save the day. Everyone is supposed to be done by june? I get surgery in June and will start rad in august, so won't be done until mid September (minus herceptin)! Hope you ladies are still kicking this cancer's butt!

  • Bikerbabe17
    Bikerbabe17 Member Posts: 116
    edited April 2015

    hi all--my good week after chemo has been nothing but horrible. Those itchy hives have been from an allergic reaction to the warfin I was taking. It travels all over me, even my lips. I think it's finally starting to subside, but it's been so miserable. On a really happy note, my baby girl surprised me with a visit, she's in grad school in Chicago. So happy to see her, even if just for a short few days.image.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited April 2015

    imageExhausted today, but pushed myself to walk the dog for 2 blocks. Felt good to get fresh air even if my legs feel like cement. Today is 37th anniversary of Blues Brothers movie so I dressed up to lift my spirits in a Fedora and sunglasses.

  • vr423
    vr423 Member Posts: 29
    edited April 2015

    Had round 3 on Monday, last round of FEC, nausea worse than before. I hope it's true nausea isn't as bad with Taxotere, because I don't know how much more I can take.

    It's my 40th birthday today....and Im pissed that instead of celebrating this milestone, I am so sick.

  • Bikerbabe17
    Bikerbabe17 Member Posts: 116
    edited April 2015

    Happy Birthday VR423🎉. Make plans to celebrate another day when you are feeling better. I'm sure it's disappointingnot to feel well enought to celebrate today.

    Love the pic chloesmom😊. I get out every morning for a walk, regardless of how I feel, and I think it helps. Some days I'm slow as turtle and only go a short distance. My dog expects it, and I hate to disappoint him.

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited April 2015

    VR. My stomach was icky but never really nauseous with taxotere Just ate light foods and lots of things were revolting like when you're pregnant. The doctor kept me on Zofran alternating with Compazine and Ativan for 3-4 days each infusion so I wouldn't have a chance to get nauseous so that might have been the reason I was ok. I stopped after 4 days but had to take the stuff a 5th 2 over the infusions when I started to feel off. What was weird was my stomach made big sloshy sounds like a washing machine sometimes. Good luck with the taxotere Hope it's easier for you.

    PS my Grandmother was from Harbor Grace a long time ago. We have been down to NF several times. Love it!

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited April 2015

    good to hear from you gals, I got a reschedule of my chemo, and they added 2 more treatments into July. I am NOT happy, had hercepton yesterday and that was ok, but messed up my bowels yesterday. Thought I was going along fine, but guess not, pain from neulista shot was still with me yesterday, minimal, but still there, from last Friday! my nurse navigator said to keep up with the clariton, can't hurt, but not as effective, maybe slightly. Trying to get cheerful as I am going on Saturday to a breast cancer event with pampering, hope to feel better and enjoy the day Saturday. Hang in there girls, it's going to get better, they tell me!

  • Darumama
    Darumama Member Posts: 135
    edited April 2015

    I had my first Taxol infusion today. LiveDeliciously, you were right. It was a marathon. When the nurses told me it would be quicker they thought I was getting the 12 weekly infusions. I had a 5 1/2 hour visit too. Usually the SE don't hit me for a few hours, but I have noticed an uncomfortable feeling in my mouth, like I could get a sore any moment now. On AC the doc told me to suck on ice chips or a really cold drink to help prevent the drug from bothering my mouth. With Taxol they said I wouldn't need to, but I may do it next time. I got Benadryl in the infusion this time and I slept for over two hours -a good thing. I do feel a little achy, taste buds screwed up, but no nausea😀. Wondering what the next few days will bring

  • SmartassSmurf
    SmartassSmurf Member Posts: 157
    edited April 2015

    Hello Ladies

    I just wanted to stop by and give you some encouragement. I am a year ahead of most of you with this awful disease. I started my chemo in January 2014, but because of some delays with my uncooperative liver and heart...I ended up being more like a February start.

    I just want to tell you it does finally end! Whether you are doing one chemo, two, or adding Herceptin for a year...eventually, you get to have less visits to that darn infusion clinic.

    Stay strong, be gentle with yourself, and embrace the days you feel good. The side effects do start to lessen when you finish. I hope you all get rid of them entirely My thoughts and prayers are with you all as you work through each hurdle of your treatment.

    Sending love your way.

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited April 2015

    hey gals, not as fatigued here, but still have mouth sores, taste is horrendous, and spent most of the day on toilet. Cramps after everything this time, milk, water, sandwich, I have run out of anti diarrhea pills, so off tomorrow to get a super pack. And this was 3rd dose of chemo on the 16th if April, and last thurs the hercepton, guess this stuff is cumulative for me. I pray none of you have these SE's . Even uncomfortable to talk.

    Have a seminar for breast cancer tomorrow, gonna wear my depends, take anti diarrhea , and hope for the best, about 4 hours long, with 45 minute ride each way. Wish me luck.

  • MaryJC
    MaryJC Member Posts: 350
    edited April 2015

    anyone get side effects from zofran? I feel lousy. Damned if I do or don't :'

  • Darumama
    Darumama Member Posts: 135
    edited April 2015

    MaryJC, I never feel good on Zofran: Constipation, heartburn seem to bother me on it, (Although they say that heartburn is probably more steroids). My MO gave me a script for suppositories when I complained about the SE, but since they were labeled as anti-psychotic I got cold feet and didn't try them. Lol. I tried ginger tea for nausea and that helped a little. I hope you are feeling better soon! I think the nausea is the worst.

  • MaryJC
    MaryJC Member Posts: 350
    edited April 2015

    thank you! And yes I am feeling better. It says can cause dizziness headache and something else on the bottle. Jeez. I can't wait until we are all past this part of it.

  • MaryJC
    MaryJC Member Posts: 350
    edited April 2015

    what do u ladies do for constipation? I don't like taking things like senocot etc because my body gets dependent on it fast. I'm just able to tolerate water again w/lemon but not much. My probiotics n pb yogurt usually gets things moving but I've not had the stomach for anything :

  • Damselfly
    Damselfly Member Posts: 62
    edited April 2015

    I have heard that baths with bath salts can help, though I don't know from experience. Most of my remedies involve eating or drinking even though I don't generally feel like it. And exercise, which seems to help everything.

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