Life After Cold Caps: a place for ex-cold-cappers to share

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  • HockeyCat
    HockeyCat Member Posts: 222
    edited April 2015

    This is the product my hairstylist used to color my hair

    http://www.davines.com/en/in-salon/all/a-new-colour

  • CurlyG23
    CurlyG23 Member Posts: 36
    edited April 2015

    Hi girls,

    I am 5 wks PFC & have no shedding, since so much broke off :( so I recently broke protocol by straightening it twice a week & I feel it adds more length since I have naturally curly hair which bounces & shortens up.

    ....I hope my rebel ways don't hurt me in the end? I'll include a few pics of before & after w/ curly & straight short hair....it's hard to get used to...Pardon my late tired midnight pic w/ no makeup & hardly there eyebrows :( one side is shorter so I put it behind my ear...

    Now that I'm back at work & have started radiation I feel like I never have time to be on these threads anymore :( I do wish all you ladies the best...kick ass!

    Lori

    imageimage


  • Gatomal
    Gatomal Member Posts: 483
    edited April 2015

    hey curly girl and other cold capppers! Just found this thread this morning, at like 4 am, since I woke up with pain from my lump and reduction. Nerve pain and swelling...ouch. Anyway, I am just 5.5 weeks PFC. Couldn't really reach the showerhead to pull it off, bend over, and use cold water on my hair after surgery, so last week I used lukewarm water to rinse my hair. While standing upright. From the showerhead! Seriously, I cannot wait to blast my head with hot, hot water, I miss it so much. soon, though!

    I haven't had much shedding post pregnancy or PFC. Wondering if surgery will do it, but so far so good. I am really going this week to get my hair cut. Probably like 1-2 inches only, and a dry cut, or I'll wash it myself at home, then walk down to the fancy salon. My eyebrows looked like I tried unsuccessfully to shave them off. What happened? Little stupid eyebrow hairs, how could you leave me. I still have the arch and long part, it just the thicker part of the beginning of the brow that thinned. Easy to fill in, but look so Cancer-y in the mornings. I feel like I look like I've really aged. I want to laser my face, get Botox, get my hair bleached, get my nails done, etc, but I'm still holding off. Going back in for a dirty margin in mid May, I'll treat myself to the rest maybe after that. Keep posting ladies, I'll post an after cut photo here soon. Hugs

  • nottoday
    nottoday Member Posts: 162
    edited April 2015

    Hi Gatomal,

    I laughed at your eyebrow description. After I finished chemo, mine looked like I'd gone very OCD w the tweezers. Just when I thought they would disappear entirely, they started growing back in and now, 16 weeks PFC, they look great. Never thought I'd feel so happy about having eyebrows!

  • JeniferE
    JeniferE Member Posts: 130
    edited April 2015

    Oh, Gatomal, isn't it great to wash our hair UNDER A SHOWER?! Your earlier hair photos look great. I have had two trims( finished chemo 12/8/14) and am waiting until June for a color weave as I golighter and need harsher color. Hope to look okay for my daughter's wedding at the end of June. Hair is not my old really thick mane. But it is there!

  • Gatomal
    Gatomal Member Posts: 483
    edited April 2015

    hi jenniferE! I am still using lukewarm water for the under the shower thing, and only once a week, but I'm going for a trim next tues. I'll post pics after that.how exciting for your daughters wedding! What a wonderful thing to look Forward to.

  • Leslienva
    Leslienva Member Posts: 489
    edited April 2015

    I finally went for a haircut last week! It was three months PFC because I was actually enjoying my hair long for awhile. But I had about three inches cut off and it feels and looks so much better! She was also able to cut more bangs to cover my thinning spot in the front. I can't wait until next month when I can get rid of the gray strands with some non ammonia hair color and stop using the Color Mark!

  • goldenpawsKim
    goldenpawsKim Member Posts: 165
    edited April 2015

    Good morning ladies. I'm now almost 6 weeks post chemo. I can't stand my roots any longer. Is there anyone that colored their roots with non peroxide or no ammonia products around this time. As you can see, it's getting really U.G.L.Y. I normally have lighter colored hair with highlights .... I can do without the highlights at this point as long as I can color my roots. Any help? I know there have been posts before but I can't go thru 14,000 of them. Lol. I'm using Toppik but it's too far gone.

    Have a great weekend. Thnx again for all your advice. Wouldn't have made it through CCing without you all. ♡ Kim

    image

  • Leslienva
    Leslienva Member Posts: 489
    edited April 2015

    Kim, have you tried Colormark? That's what I use to cover the gray. Madison Reed also has some brush on color that might work. I'm 14 weeks PFC but I'm going to wait until next month to color. Just don't want to jinx it at this point!

  • PatinMN
    PatinMN Member Posts: 920
    edited April 2015

    Kim, I colored at about 7 weeks PFC with a no ammonia, no peroxide color. Clairol Beautiful - but I don't recommend that particular brand. DaniellaD had a better suggestion I think - maybe send her a message. Anyway, I was not shedding and Colormark was barely making a dent in my gray roots so I went ahead with a color. My regular salon color person applied it. The directions call for heat but I was afraid to sit under the dryer so I didn't that first time. About 4 weeks later i used the same color again but this time sat under the dryer and it turned out better. As it faded it turned greenish. Also, it dripped color when my head sweat at the gym. After using Clairol Beautiful twice I went back to my usual salon color. Are you shedding? I don't recall anyone posting that their shedding had restarted after coloring. Good luck whatever you decide.

  • goldenpawsKim
    goldenpawsKim Member Posts: 165
    edited April 2015

    Thanks for the tips, girls. I will try to wait a few more weeks to color this mop but it's so tough. Patin - do you have blonde hair? Is that why your hair turned green? I'm still shedding but nothing like I was. It actually feels like it's starting to fill in. Thnx again! Kim

  • PatinMN
    PatinMN Member Posts: 920
    edited April 2015

    Kim, no, I have dark brown hair. (Well, I used to before it got gray.). The fade-out from the Clairol Beautiful dark brown color was definitely greenish.

  • goldenpawsKim
    goldenpawsKim Member Posts: 165
    edited April 2015

    Patin - I hear ya about getting gray - what the heck!! I think I have more now than ever .... not that I was stressed out or anything?! Ok, I won't be using the Clairol. I will contact my salon in a few weeks and see what they recommend. Thanks.

    When did you girls start washing your hair with warm water? I'm still using a shower cap (how sexy) when showering and wash my hair in the kitchen sink. I'm ready for that to be over too. Thanks.

    Kim

  • pch
    pch Member Posts: 218
    edited April 2015

    Awesome pic, Kim! You look great.

  • goldenpawsKim
    goldenpawsKim Member Posts: 165
    edited April 2015

    Aww, thanks, pch! You'll be here before you know it!! ONE more treatment, baby! Then we can celebrate ... with hair!!

  • MIMomma1
    MIMomma1 Member Posts: 60
    edited April 2015

    Okay, now that I'm two weeks PFC I've decided it's time to make the move over to this board. Greetings fellow cancer-kick-butters!! (Okay, I just reread that...I think I meant cancer-butt-kickers!! God, my brain is swiss cheese sometimes.) I know I have lots of questions, but I'm going to catch up reading all the past entries here before I start asking. --Bethany

  • Hortense
    Hortense Member Posts: 982
    edited April 2015

    I have "blonde" hair and by five months PFC it looked awful. It was dry with long dark roots that had strange grey hairs mixed in. After hearing about Penguin's protocol, my hairdresser decided to just to put a glaze on my hair the first time, which she said was gentler than bleaching, and she trimmed it beautifully, making it several inches shorter so that it instantly looked thicker and healthier. The glaze gave it a nice shine which was welcome after how dry my poor hair had looked. The following month she began putting in blonde streaks, finishing with a glaze again, and I began to look like myself. I have read about others successfully streaking their hair much earlier, but I didn't want to chance anything bad happening.

    I do think a glaze can be used much earlier than I used it at five months, and that hair can be trimmed as well. I would hold off on an overall lightening/bleaching until after six months. I also think hair could be given some streaks to help blend the roots in with the rest of the hair as long as the bleach is kept away from the scalp - don't apply it at scalp level, apply it farther down as if the streak had already grown out a bit.

    I had a lot of new hair growing in all over my head by five months PFC, really a lot! Eventually, the wide part in my hair that had developed during chemo filled in and I had a full head of hair again, rather than a thin one. That first growth was a bit curly, but after about five inches of wavy hair growth, it reverted back to my normal straight hair pattern.

    I credit the strong regrowth and filling in I experienced to taking BioSil, liquid silica drops. Liquid silica has been proven in double blind clinical trials to grow thicker stronger hair, which is why I started taking it shortly after my last Chemo treatment. My doctor assured me that it was safe to take. BioSil needs to be taken a long time, 6-8 months, before you will see a difference because it takes that long for hair follicles to be affected and to grow hair long enough to be seen. I get between a half and 3/4" a month growth, judging by my roots.

    I also took and still take Biotin, but I do not feel it does much. I say that because I slacked off on taking BioSil out of laziness last summer and by the fall I began to shed a lot which upset me. I think the shedding was due to the fact that I am on Arimidex which is known for causing hair to thin. I had dropped from BioSil's recommended twice a day regimen to once a day thinking it wouldn't make a difference, but it did, as I was taking only half the recommended dose. After about four months of shedding, and when I could see that my hair was actually getting thinner in volume, I decided to try going back to taking BioSil twice a day. About a month later the shedding slowed way down. I believe that taking BioSil is counteracting the thinning effects of the Arimidex so I plan to stay on it twice a day.

  • Gatomal
    Gatomal Member Posts: 483
    edited April 2015

    I hear you hortense re: the blonde roots gray strands situation. I actually pulled out my grays, which I would have left if I could get my hair bleached, but I could not cope with them otherwise. Pretty reckless, huh...pulling hair out after all this! When are you going to go full highlight? I just got my hair cut at 7 wks. PFC. It's going to be a long wait for six months. I may only be able to make it to four. I heard that bleaching after chemo makes the hair tint greenish. I hope they can tone it out...please post here with your experience, and maybe some pics

  • Hortense
    Hortense Member Posts: 982
    edited April 2015

    I didn't bleach until after six months, and had no off color problems. My hair looked great.

  • pch
    pch Member Posts: 218
    edited April 2015

    Hi everyone! Yay. I'm moving over.

    So how long are people waiting for the Nioxin? I've seen a month, shorter, longer. I've twelve days PFC. Can't wait. Also did anyone on here experience frostbite without losing hair? We screwed up on the final infusion. Unbelievable. I have a tiny bald spot right in front. Hoping it won't spread down my part. We'll see.

    Anyway, let me know. And yay!

  • goldenpawsKim
    goldenpawsKim Member Posts: 165
    edited April 2015

    Yay for PCH!! Congrats & welcome to this board. So happy and proud of us. We did it. Same questions here... I'm 7 weeks out. Hair looks horrible. When can I start washing my hair again in the shower. My sexy purple shower cap really needs to be retired :) thnx everyone again (especially pch) for getting me through the toughest part of chemo .... capping! It definitely works!! ♡Kim

  • Leslienva
    Leslienva Member Posts: 489
    edited April 2015

    Beware of anesthesia! I stopped shedding a few weeks ago only to have an expander replaced last week. Over the past several days, a lot of hair fell out. I'm pretty sure it's either the anesthesia or the Emend they gave me for nausea

  • MIMomma1
    MIMomma1 Member Posts: 60
    edited April 2015

    Congrats and welcome to the other side pch!! I'm with you goldenpaws, when can we stop the cold water cup washing every third day and move back to warm shower washes that are every day (or at least every other day)? And has anyone found at least a passible nonperoxide, nonammonia blond hair dye?

  • MIMomma1
    MIMomma1 Member Posts: 60
    edited April 2015

    BTW, how are the rads going goldenpaws? I was supposed to start this week but there was a huge screw up with scheduling when I went in for my simulation...my RO walked in and had no idea why I was there and had no plan worked up yet (even though I had met with him previously and had made this appt a month earlier). Then I tried to discuss with him about alternatives to getting the placement tattoos. He preceded to bully me into getting them by telling me they wouldn't do it any other way. I should have stood my ground and I feel terrible that I didn't. My DH, my knight in shining armour, has complained to the department manager and insisted we get transfered to another doctor, which we have. Still I now have these three blue dots that don't look like freckles, no matter what the doc says. I now start next Tuesday.

  • hope49
    hope49 Member Posts: 370
    edited April 2015

    mimamma, that is so wrong for your RO to treat you that way! Glad you made the switch. I like all my docs but my RO is my favorite - I didn't want the tattoos on my chest so he said no worries we will mark with a sharpie and keep it under a clear piece of surgical tape. If it fades, we'll remark it. I did get tiny ones on each side but they are tinier than a freckle and I have to really search to find them. I hope yours will fade in time. Hang in there! I found rads very easy - best advice is to stay very hydrated inside and out. I drank a gallon of water every day and slathered myself with the lotion they gave me and the Aquaphor at night. 28 rounds and my skin didn't even get pink. You'll do great - hope the new RO is awesome

  • pch
    pch Member Posts: 218
    edited April 2015

    Thanks MIMomma1! Happiest trip to the UPS I ever made yesterday. Also looking forward to normal hair schedule …


  • MIMomma1
    MIMomma1 Member Posts: 60
    edited May 2015

    Thank you, pch! Hopefully the new RO will be better...but I'm still left with tattoos I didn't want. All my other docs were so great that this just blindsided me. And what really pisses me off is that the RO also said I needed the tattoos in case of recurrence. Like I need to hear that! Okay, I'm going to stop ranting. We will get through the rads and then have the tats removed (and if my husband has his way, the hospital will cover it)! And I will take your advice and drink lots and lots of water. Thanks again!

  • Jaejk5
    Jaejk5 Member Posts: 29
    edited May 2015

    hi everyone. I'm also moving on to this post. My cold caps are on the porch waiting for Fed Ex to pick them up today. Yesterday was my last day of chemo and cold caps. I lost approx 25% of my hair but hard to tell because it was all over, no concentrated areas. It is much more layered in the back now, broken off I guess. 6 months to wait until I can get the blonde on the roots, but it was so worth it. My avatar was from yesterday, post cold capping and chemo. MO ask which company I used. He has another patient interested too. Feels soooooo good to be done

  • pch
    pch Member Posts: 218
    edited May 2015

    Yay Jaejk5!!

    (I know I already said it, but it's fun to say it twice. CONGRATS!)

  • Leslienva
    Leslienva Member Posts: 489
    edited May 2015

    I thought the tattoos were for the techs to know where to aim the beam. You can't have radiation twice, so I don't see how recurrence even comes into the picture.

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