Diagnosed today: IDC

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  • bw49
    bw49 Member Posts: 36
    edited March 2015

    Thank you I hope so too!

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  • caligirl3
    caligirl3 Member Posts: 86
    edited April 2015

    bw49: So sorry about your diagnosis. I know how scary that is. Sending you good wishes and prayers for a low oncotype score.

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  • bw49
    bw49 Member Posts: 36
    edited April 2015

    I finally received my ocno score 18- am a little worried they may suggest chemo- with my score only 1 point over the low risk I am hoping for good news- anyone out there have any thoughts- the tumor was .6mm clear margins no lymphnodes- will have to do radiation and hormone therapy- metting with oncologist in a week

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  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited April 2015

    bw, you could ask for a mammaprint test if you are in the intermediate range and still undecided...I'm not sure if the size of your tumor matters. I had score of 21 and did chemo. No regrets here. best wishes!!!

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  • bw49
    bw49 Member Posts: 36
    edited April 2015

    Did they give you a choice and tell you what your precentages where by not doing chemo- or did they just saw you need chemo?

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  • farmerjo
    farmerjo Member Posts: 518
    edited April 2015

    Bw49 - mine was 19. Told no chemo.

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  • bw49
    bw49 Member Posts: 36
    edited April 2015

    Jilly did they offer it to you? I do not want it! Did the Dr say it was ok not to have chemo

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  • Nash54
    Nash54 Member Posts: 837
    edited April 2015

    BW49 - mine was a 24 and no chemo....BS felt lx plus radiation plus AI was the best treatment for me. Clean margins and no node involvement.

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  • farmerjo
    farmerjo Member Posts: 518
    edited April 2015

    Bw49 - it was never offered. They said chemo would only add 3.5 % benefit over 10 years. The risk of chemo outweighed the benefit. They told me no chemo upfront.  Said hormonal therapy alone would be just fine. Most women that fall into our area, low-intermediate, do not need chemo. There is an ongoing study to determine how well this group does; half were assigned chemo/hormonal therapy and half assigned just hormonal ttherapy. It's called the TaylorX study if you want to google it. No data yet.

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  • bw49
    bw49 Member Posts: 36
    edited April 2015

    THANKS Jilly I feel so much better- hopefully my oncologist will not want me to do chemo- just radiation and hormonal therapy- I go on the 20th

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  • farmerjo
    farmerjo Member Posts: 518
    edited April 2015

    Bw49 - check back in and let us know what they say. I would be surprised if they offered you chemo with your stats and Oncotype score.

    Good luck!

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  • Slappy-Squirrel
    Slappy-Squirrel Member Posts: 296
    edited April 2015

    bw49, my Onc score was 18. When they told me chemo would only improve my recurrence chances by 1%, and the decision was mine to make I said no chemo.

    Shirl

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  • bw49
    bw49 Member Posts: 36
    edited April 2015

    thank you so much- feeling better with all of your responses- I go a week from today- will keep you posted!

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  • Lmonelli
    Lmonelli Member Posts: 95
    edited April 2015

    Hi,

    I was diagnosed march 20th with IDC. I am still trying to find a place where I fit in. I've been posting on other threads but for some reason i don't feel like I belong. My surgery is scheduled for April 29th. The first place I went to didn't find the cancer they said I had enlarged auxiliary nodes. GYN had me see bs just for second opinion. He was the one who found the cancer and had me redo mamo at another place along w ultra sound which came back birad 5. Had biopsy which confirmed cancer.. MO felt my nodes yesterday and didn't feel the 40 mm the first place said I had. We think they switched my reports with someone else's.

    It's been sometime since my dx so I've come to accept it. Getting nervous but trying to keep busy and live a normal life. I was extremely anxious in the beginning but I have calmed down. Don't know how I'll feel next week. But for now I'm doing okay.

    I guess I'm anxious about what they will find once they're in and take out tumor and do snb but their is nothing I can do about it now.

    Thanks for listening.

    Lori

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  • Nash54
    Nash54 Member Posts: 837
    edited April 2015

    Hi Lmonelli.....It amazes me that we get through all of this ...but we do. Sorry you're here but just wanted to say welcome. It really helps knowing others have been thru similar situations. For me the anticipation was always the worst part. (((hugs)))

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  • windingshores
    windingshores Member Posts: 704
    edited April 2015

    I noticed that some other people have high ki67 (and grade) but lowish Oncotype score. I asked for a retest of my Oncotype because the score of 8 was from biopsy, not surgical sample, and I was worried because it did not match my grade and ki67. Maybe I am worrying needlessly. Did any of you with these inconsistencies between Oncotype and pathology get an explanation from MD's? Are we Luminal B and therefore fall into a category that benefits less from both chemo and hormonal treatment?

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  • bw49
    bw49 Member Posts: 36
    edited April 2015

    my pathology report from biopsy said grade 2 but when they did the lumpectomy it was grade 1- not sure why they were different-

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  • farmerjo
    farmerjo Member Posts: 518
    edited April 2015

    My biopsy said grade 2, Ki67 29.1. Pathology said same. My Ki67 is considered high but Oncotype 19, so no chemo.

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  • farmerjo
    farmerjo Member Posts: 518
    edited April 2015

    Bw49 and Windingshores...I know sometimes pathologists can read thing's differently. My biopsy said lymphovascular invasion but surgical pathology said no.

    Lmonelli- There are so many threads and you may want to add several to your favorite topics: Stage 1, April surgery sisters..There are threads for diet, emotional issues, etc...Peruse several and at some point you will find your favorites. Most of us frequent more than one thread.

    You will find many friends here!



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  • bw49
    bw49 Member Posts: 36
    edited April 2015

    Good news is that I mean with Rad-oncologist and she said she would not do chemo- so I went yesterday for simulation if that is what you call it- and start on tues- I ink hurts where they put it in you- just sore- they told me to buy remedy skin- any suggestions? I go see the oncologist on monday - I feel like a weight has been lifted- hoping to never go through this again- thank you for all of your support-

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  • Nash54
    Nash54 Member Posts: 837
    edited April 2015

    bw49....so glad no Chemo for you. I used aquaphor after my radiation was finished to help with the "sun burn". I did internal rad so my experience is a bit different. I didn't have any skin irritation until about 3 weeks after I completed. Best of luck and soon this will be a distant memory!!!

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  • bw49
    bw49 Member Posts: 36
    edited April 2015

    Is any one else on hormonal therapy for 10 years?

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  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited April 2015

    yes I am on hormonal therapy for 10 years. My MO said it was because I had lymph node involvement. If I hadn't she would only have me do 5 years.

    Nancy

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  • bw49
    bw49 Member Posts: 36
    edited April 2015

    that's what I was wondering I have no lymph node inv- but ocno score 18- so maybe that's why- what do you take? any side effects for you?


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  • farmerjo
    farmerjo Member Posts: 518
    edited April 2015

    Bw49 - hooray no chemo! I had negative nodes but MO said I would be on an aromatase inhibitor for 10 years. Side effects, if any, differ from woman to woman. I started at a quarter of the dose and plan to steadily increase to a full pill - I have drug sensitivity issues. I am a little more achy and definitely more moody. :(

    You can puruse the AI threads to get a general idea of the most commonly reported side effects.

    So you are Stage 1? There's a thread for you! :)  This site is chock-full of informative threads. Everything I know about BC I learned here.


     

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  • bw49
    bw49 Member Posts: 36
    edited April 2015

    THANKS will look it up

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  • Nash54
    Nash54 Member Posts: 837
    edited April 2015

    bw49....my BS indicated that I would pry have to do 10 years...

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