The pink ribbons
From the moment I received my DX, I have been dreading the pink invasion into my life. I have refrained from telling many people about my DX in part to avoid it. I guess I have a problem with "marketing" diseases. Beyond that I cannot articulate why the pink branding bothers me so. I have seen parts of Pink Ribbons, Inc and even that didn't help crystallize things in my mind. The Komen website has provided a great deal of useful information, and for that I am grateful. I'd love to hear the community's thoughts either way on this.
The wikipedia page on breast cancer awareness is currently written in such a way that speaks to some of these issues: http://en.wikipedia.org/wiki/Breast_cancer_awareness
Comments
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bump! I'd love to hear your thoughts and feelings on this - good, bad or indifferent. Especially if you're not a "pink person," how you deal with people who want you to be one...
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Personally, I refuse to get involved with any "pink" activities anywhere or buy any products with the pink ribbon emblazoned it them. I feel that if you want to give to breast cancer research, do so. Donate directly and quietly, don't try to make money off it or use it for publicity. Everyone thinks that - because I've had breast cancer - I should be more into the whole pink thang, but I'm not. I hate pink.
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I have NEVER liked the pink ribbon thing - I despised it long before I was diagnosed and there's no reason to change my mind. I told my family straight out that I did NOT want any pink ribbon items, donations to pink groups, etc. Fortunately, they were all able to see my viewpoint and respect my wishes.
Frankly, I HATE the way that whole thing is imposed on us - even the app. that this website promotes insists that it 'had' to use the pink ribbon. Barf.
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I hate pink and avoid it. I am not a marketing campaign, I am not a runner or walker, I don't care that the NFL promotes the pink, I don't want a pink hat, shirt, shoes or anything else pink. It's time to put the marketing money into research. While I do think that many people benefit from the support and enjoy the activities, I do not. I look at the money spent for research, and how much they spend on triple negative research, and I feel like the orphan of BC.
I just hope one day the pink fades away, the walks and runs stop, and when we say breast cancer people will ask "what is that?
Hopefully we will all see the day of the cure, the day that we all say NOT ONE MORE, because there won't be anyone walking behind us........
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I hate pink. Especially Pinktober. ENOUGH already. We are all AWARE, so how about putting that money towards a cure!
I give to local organizations that directly help women. No Komen in my life.
JJ
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it was already over for me when I realized they (I.e. The "pink" establishment) make everyone think there been so much progress in BC treatment that it's like getting the flu! It was hard to get my loved ones to realize how serious this was because all they ever see are the "marketed" success stories.
But when I found out Komen partnered with Kentucky Fried Chicken and Mike's Hard Lemonade, I made sure anyone that cares about me does what was suggested above by another poster. Donate quietly and effectively, directly to research.
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There is a thread here called Pinktober revolution suggest OP reads it. I'll bump it.
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I'm so sorry about your recent dx, but we totally get your feelings. The amount of pink marketing has become incredibly offensive. I remember when I was first dx'd and my local hospital handed me a glossy little pink shopping bag with bc literature, and I left thinking, what the heck???! It was like they actually thought a fancy shopping bag was appropriate. OTOH, I have received little gifts from family & friends that featured a pink ribbon, and in those situations, I think you just have to be grateful that they care and are reaching out.
I also think as you navigate your tx and look into SGK a bit more, it will become much clearer that SGK has gotten so carried away with their awareness message and dumping far too many millions back into what has become a marketing holiday for many corporations -- a chance to slap a pink ribbon on their donuts of vacuum cleaners, hoping people will buy more believing they're doing something to support "the cause" -- not to mention the companies whose products actually increase your risk of developing cancer, some of which SGK has actually partnered with in the past. The other thing wrong with SGK's message is that it perpetuates a myth that if you just find your bc early enough, you'll be okay -- basically sweeping anyone with a Stage IV dx under the carpet. This is why so many of us are now fighting back and demanding that donated funds go to research for what is still a deadly disease for far too many.
OTOH... I also feel that totally trashing SGK may confuse people about the past or future benefit of donating to any bc non-profit. So I prefer to say that we have enough awareness, and that we are better served by organizations that spend more than the measly 18% of revenues SGK does on research.
Just my two cents worth... but absolutely you are not alone in feeling the way you do! (((Hugs))) Deanna
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It's not just sweeping women with a stage IV dx. under the carpet - it's all who are dx. with bc. Any stage 1,2 or 3 can turn into a four - which is something the general public does NOT understand.
I think that linking the idea of early detection with "the cure" has created an erroneous, subliminal message to the public that early detection EQUALS cure. I realize that's not what SGK is TRYING to do but I do believe that's the effect of their marketing. Even to deceive women that early treatment is curative is misleading, in my opinion.
This is not to downplay the situation of those who are stage IV - just to remind that NO woman with bc gets a guarantee that she will not "progress" to stage IV.
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Whew! SO glad to see I'm not alone in feeling this way. Thank you all!!
So when people want to pinkify you, how do you diplomatically respond? I'm specifically talking about acquaintances, colleagues, people you aren't necessarily close to.
Spookiesmom, I found the other thread, I'll check it out now!
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I HATE the color pink and have for as long as I can remember - long before I knew anything about BC. As soon as I was old enought to have any say in what I wore - never anything that was pink or had pink in it was worn (purple too). I still do not ever wear anything pink except in Oct. To me, it is something small I can do to possibly make someone 'think' - get checked. I have met quite a few fantastic people who are survivors/fighters or ones who had a beloved one who was dealing with/had dealt with the Monster that only approached me because I was wearing pink/pink ribbon.
Hubby and Son both wear pink wrist bands all the time - it's their choice, I didn't ask them to. It is amazing how many times guys will approach them asking questions or just to talk. It is not unusual for me to get a call from someone (or a beloved one) they talked to and gave my number to.
So yeah - I hate pink and that some use it to make money but IF even one person seeks care or education because of the Pink Campaign - that's great! To me, it individuals than matter one on one that matter.
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Exactly Hopeful! You said much better what I was trying to say. That although early dx is very important. It does not = cure.
And I have always been taught to look at where and how much $$$ actually go to The "mission" before donating. Not nearly high enough with SGK. IMO.
Maybe it's fair to say that at one time the awareness issue was much more important.
Today, as I like to say, I'm pretty Effing aware. What I want to know is what best to do next!
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CheeseQuake--(I got it right..........I did this thread years ago. It's an attempt to evaluate organizations. Choose an organization and give it a try.
It helps to follow the breadcrumb trail.
https://community.breastcancer.org/forum/110/topic/794711?page=1
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I work in a high school and our girls basketball tam raised $35,000 "Shootin for a Cure". Proceeds go to our local hospital breast cancer center, that's where my $ go ;0)
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When I was first diagnosed, I let my staff know right away. They were concerned and sympathetic, as you'd expect, and we all got a little silly, which kept us from stressing out too much. ("I know a great wig store where all the drag queens go." "Let's all get wigs!")
One woman asked me if they should all start wearing pink ribbons to work. "No, no pink shit!" I yelled. So "no pink shit!" has become our rallying cry.
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love the rally cry, Larkspur!
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"NO PINK SHIT!!!" What a great rallying cry!
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THANK YOU!!!!!!! I will be 2 years out of a double mastectomy 6/26. My first October of Breast Cancer Awareness month nearly did me in! they keep reporting on "tips" not to get breast cancer....no, really? How did I miss all of that! I became so angry over the fact that the media made it sound like you can prevent it! UGHHH!
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I was digging through my closet looking for something to wear the other night for a girls night out with my closest friends. I put on a shirt, stood in front of the mirror and realized it was pink and white checked.
Suddenly I hate that shirt.
Took it off, put it back in the closet - though I don't think I'll ever wear it again.
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it may have been mentioned earlier on this thread, but there was a book called Pink Riibons, Inc., which was made into a documentary. It made me cry and it made me mad.
I had to look hard to find it streaming. Netflix and Amazon no longer sell it streaming. Itunes does. It's $5 for a 24 hour rental. Amazon Prime sells the DVD for $14 or so. The rental was thoroughly money well spent. If October and pink and white shirts upset you, watch this. You won't regret it. And it's not terribly scary and personal like the very well done Emperor Of All Maladies. That I should have saved for later. Pink Ribboms Zi should have watched 10 years ago
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no pink here!!
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OMG! I am so glad that I am not the only one that feels this way. I can not stand the pink ribbons. All of my family and friends automatically assume that I would be into that. SO WRONG! I am actually offended. I am a single mother of two teenage girls and up until January, I supported them by myself, working my ass off and barely made it. But I did. Now, I live off the kindness of family, friends and even strangers. I have been very blessed but when I hear of the millions that are donated to SGK, I only think of the other women that are in similar situations that the $ could benefit. I have had to sacrifice alternative treatments, comfort and even proper nutrition because I cant afford it and I know I am not alone. I just think there needs to be more $ for individuals not the pink ribbon. So happy that I am not alone in my revolution.
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As a guy with BC all the pink washes over me. At last year's Pinktober week event I was asked to talk on male breast cancer. I wore a pale blue t-shirt to symbolise the rarity of my situation and since I stood out in a sea of pink, I thought I made my point very well.
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Hi Travel: I think you did make an awesome point. I have often thought as alone as I sometimes feel with this dreaded business, how much harder and lonelier it is for the men who are dxd. You have my support and good thoughts always. I'm glad you are here. Wait. Not glad you are here. Sad you are here, but since you are here, glad you reached out. Sorry.
Katy
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When I got my dx two of the things I thought were "damn, now I'm a statistic" and "now I gotta deal with pink ribbon crap everywhere" ugh. I have not told my co-workers of my diagnosis and will not until the day before I go out for surgery; I was thinking of wearing pink for that one day only. To those that I have shared, my main message has been GET YOUR MAMMOGRAMs. My DCIS was found on my routine annual mammo. I do not and will not encourage any of them to participate in pink promos. -
Thanks for your thoughts Katy. Actually, the excellent fellowship of women on BCO is fine by me, and I have great support from my partner, kids and grandkids.
As far as pink goes, while it is very successful for fundraising purposes (I understand that more money is raised for BC research than the rest of the cancers combined) l can understand why having BC and living with pink so out there could be a burden for many.
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text- what frustrates me is they raise the money, but where are the results?
And why all the duplicate studies and then huge gaps elsewhere?
And why allowing all these companies selling products made with cancer causing agents being allowed to rehabilitate their images via pinkwashing?
And the salaries. And the marketing. Etc.
ugh
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I'm another non-fan of pink for all the reasons others have stated. I'm dreading October already and it's only June.
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Get ready ladies!!!! It's almost October!
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NO PINK SHIT indeed. I was diagnosed last Sept., just in time to be gifted with a variety of pink shit, mostly from well meaning and kind co-workers. My spouse and family knew better. Yuck!
The whole pink thing has become almost like a celebration of this crappy disease IMO. Yeah, rah, rah, breast cancer! Count me out.
I'm starting a new job in a couple of weeks and do not intend to tell anyone I had BC, maybe ever, but definitely not until Puketobter has come and gone.
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