34 year old wife just diagnosed

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jmute
jmute Member Posts: 34
edited April 2015 in Just Diagnosed

I'm scared to death right now, my 34 year old wife was just diagnosed with invasive breast cancer. They called her today and told her it is invasive with a component of in situ? What does that even mean?


We have a 3 children age 15, 12, and 9 and I don't know if we should tell them today or when we find more out after her appointment on friday? we just lost a family friend to breast cancer 3 years ago at the age of 39, they're going to relate their moms cancer to that and it's not going to be good.

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  • Kicks
    Kicks Member Posts: 4,131
    edited April 2015

    Real quick reply as I have to get to the chiropractor - wait til you have more information before you tell the kids. They will need support and knowledge (appropriate to each ones age). Not having information as to what is going on AND what will be done to handle it is very important. Young minds can 'run' to all sorts of scary 'places' when presented without explainations as to what is going on and how it is going to be handled in a positive manner.

  • fralaliso
    fralaliso Member Posts: 63
    edited April 2015

    Hi jmute. So sorry to learn of your wife's diagnosis. If it is of any consolation, please know that IMO this is the scariest part. You know the diagnosis, but don't have any details, treatment plans, etc. Personally, I think things tend to get better after you know what you're dealing with. I would wait until after you learn more this Friday to tell your children.

    I learned my diagnosis right before Christmas this past year and waited to tell my kids (ages 12 and 9) until early January - after the holidays and when I knew the treatment plan so I could give them an idea what to expect. They seemed to take comfort in knowing the logistics (when was surgery, how long I'd be in the hospital, etc.).

    Hang in there!


  • Moderators
    Moderators Member Posts: 25,912
    edited April 2015

    jmute, we are happy that you have found our community. We suggest you take one day at a time, take a breath, and understand the steps. Here is an article from our site on talking to your children:10 tips for talking to kids

    Here is a page about invasive breast cancer, and the different classifications: Invasive breast cancer

    In situ means, early cancer that has not spread into nearby tissue.

    Please keep us posted.

    Warmly,

    The Mods

  • kcat2013
    kcat2013 Member Posts: 391
    edited April 2015

    jmute, I'm sorry your wife has been diagnosed with bc. I was in a similar situation when diagnosed with having lost a close family friend to cancer shortly before. I knew my kids first thoughts would be of our friend so we waited to tell them until we had more information (about 1 week).


    Kendra

  • Sunflowercat
    Sunflowercat Member Posts: 177
    edited April 2015

    I also feel that right now is probably the scariest time. You don't have all the information about her tumor/treatment plan. Definitely wait to tell your children until you have more information on her type of breast cancer and a treatment plan in place. This way you can answer their questions much more thoroughly and set their minds at ease. I know that the loss of your friend will be fresh in their minds, but you can ease their fears through knowledge. I waited to tell my kids until I had that information for them and it really helped them cope with it. Your kids are stronger than you know. Just be very open and honest. Good luck!

  • jmute
    jmute Member Posts: 34
    edited April 2015

    I guess my confusion was with the invasive bc with a component of in situ......does that mean it's invasive or in situ? Or both?


    I just wish they could have told us more, so many questions and no answers right now. I was hoping to talk to the doctor today when I called to get copies of her reports (for 2nd opinions if needed) but she was busy with patients.

  • gypsyjo
    gypsyjo Member Posts: 304
    edited April 2015

    My initial diagnosis included both invasive ductal carcinoma and in situ. The sample was in situ. They really don't have a final diagnosis until the full lump was examined post lumpectomy. It turned out I had a rare type of invasive ductal carcinoma - mucinous which is not very aggressive.  It is so hard to wait as the diagnosis evolves. This is the worst time since you can imagine all the possibilities. I wish you both the best.

  • Jeeper4
    Jeeper4 Member Posts: 70
    edited April 2015

    She could have both. Mine was DCIS with a microinvasion (very small part broken through cell wall). So the invasive will trump the dcis in terms of treatment. The beginning is so hard and emotionally devastating. My youngest is 10. I did not tell him until I had the treatment plan in place and my own emotions under control. Others on here told me kids will take their cue from how I am handling it. But you have an extra layer to all of this with the death of a close family friend. During this time, it helped me so much to read these boards. I also purchased Dr Susan Love's Breast Book. John Hopkins has a site where you can ask very specific questions and get timely answers. I found it particularly helpful with pathology questions. Prayers and hugs.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2015

    jmute - if you look at the signature lines of many who post here you will see a combination of in situ cancers - DCIS (ductal carcinoma in situ - meaning contained within the duct) or LCIS (lobular carcinoma in situ - meaning contained within the lobules or milk glands) and invasive components of those same cancers - IDC (invasive ductal carcinoma - the most common type) or ILC (invasive lobular carcinoma).  This is very common, and the link above in the moderator's post explains the differences in types.  I second waiting to tell your children - and also not necessarily telling them together - the information appropriate for your oldest may not be the same for the youngest.  You know your children best and should judge how much to tell them, but having answers for their questions is best - so I would personally wait until you have a treatment plan in place and can assure them of what the problem is and how it will be handled. 

     


     

  • bettysgirl
    bettysgirl Member Posts: 938
    edited April 2015

    If it were me, I would wait until you go to the doctor to get all the information. Once you best understand the whole picture, you are in a better frame of mind and armed with a little deeper knowledge to talk with your children. The beginning of diagnosis is indeed a roller coaster ride and it takes time to be able to understand all the information you are given. The mixed Diagnosis isn't uncommon, mine was invasive Ductal with Lobular features. Once you talk with the Doctors you will be able to talk to your children. So sorry you are here but you have come to a good place for information and support.

  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    Another vote for waiting to tell your kids. I am sorry about your wife's diagnosis. It is a emotionally wrenching time. I am glad you have found this resource. It is a godsend. I have two girls 9 and 11. I waited about a month before I told them. I wanted to have a plan in place, although it took longer to get the plan in place so I just had to tell them. If you have a plan in place or at least know what you are dealing with, you can better reassure them. But please don't rush into a plan. Do you know how big the tumor is? In most cases, you have time to research. So many women want that cancer out NOW and don't do enough research into doctors and procedures. (IMO) I went to a very well regarded breast surgeon the day I found out and I didn't agree at all with his approach. I saw 3 more breast surgeons before I found one I felt I was comfortable with and agreed that he was taking my concerns into account. I wish you and your wife the best. Please send her here if she needs support. We are here for both of you. :)

  • jmute
    jmute Member Posts: 34
    edited April 2015

    We meet with the oncologist tomorrow and the surgeon on friday, we will make a decision after that on if we want to stay with this team or go to a higher rated breast center (cleveland clinic/ohio state/ indinapolis) right now we are in the local community center in dayton oh.


    When will we find out the stage of the breast cancer or the grade of the tumor?

    Seems like I'm going back and thinking about all the times my wife said her chest was tight, or she felt fatigued....now I've got myself convinced she got late term BC.. .I'm such a pessimist.


    We've both kind of put our lives on hold this week and took a weeks vacation from work to focus on home and the kids. Hopefully we get some good news in the next few days and it's early stages. I know my wife loves her new management job but shes willing to quit it to focus on beating this BC and our children. We're pretty lucky I have a well paying job with good insurance.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2015
    Grade should be noted on the biopsy sample, however grade sometimes changes when pathology is done on the surgically removed mass, as tumors are not homogenous.  Staging is done after surgery as it is based on size, location and nodal status.  You are sometimes offered a "clinical stage" based on imaging prior to surgery, but that is not written in stone as imaging is not foolproof.
  • jmute
    jmute Member Posts: 34
    edited April 2015

    I guess I should give you ladies a back story since I'm asking alot of questions and you guys,are so helpful.


    Last may my wife was dianosed with dfsp, a rare sarcoma that rarely spreads, she had it removed via mohs and we continued on with our lives. Around September she complained of headaches and we were sent to an oncologist to make sure the dfsp hadn't spread. she was given a head ct scan and chest xray, both later came back good and she found out they were most likely cluster headaches Which went away.

    fast forward to January, her next 4 month oncologist check up for dfsp. My wife told him she had noticed a lump in her right breast below her 5"scar from dfsp. He sent her to a mammogram and ultrasound. They noticed 3 lumps and ordered a biopsy, the hospital that did the biopsy did another ultrasound and said only 1 of the 3 lumps needed biopsied, which came back a cyst.


    Fast forward to now, she had her next 4 month check up with oncologist. She was driving home from her chest ct scan when the oncology office called and said the biopsy people had biopsied the wrong area in January. They noticed after the ct scans that the wrong area was tagged And they ordered another biopsy which came back invasive breast cancer with a component of in situ.


    Hope we caught this early and the oncologist and hospital didn't drop the ball.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2015

    jmute - most breast cancers - other than highly aggressive types - have been in place and growing for years before they are detected.  Many of us have had imaging miss things, biopsies be inconclusive, been relegated to "watch and wait", etc.  It is more common than people think.  Generally speaking, a few months are not likely to make a lot of difference, and I am sure I speak for all when I say I hope this was caught early as well.  It is unsettling to have a second type of cancer diagnosis and your wife is quite young, there is actually a thread on this site for those with multiple types of cancer.

    https://community.breastcancer.org/forum/142/topic/819406?page=4#post_4348943

  • jmute
    jmute Member Posts: 34
    edited April 2015

    thank you for the link, this site is great

  • jmute
    jmute Member Posts: 34
    edited April 2015

    we got good news today,they think the tumor is only 1cm big, grade 1. She is er+/pr+ her-, which is best case senerio I guess.....good overall prognosses they said.

  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    That is great!

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited April 2015

    Fantastic news! Congrats. Cheryl

  • Sunflowercat
    Sunflowercat Member Posts: 177
    edited April 2015

    excellent news! That's pretty much the same as my diagnosis and I got off fairly easy treatment wise. (Surgery and tamoxifen for 10yrs, no chemo since my ocntotype was 16) Aside from downtime for surgery, it has hardly affected my kiddos (3/6/9) - I just needed help with getting them to/from school and activities. They handled it really well and are very matter of fact about it. Most people don't even know I had cancer unless I tell them. Point in fact: yesterday as I dropped my 6yo off at dance class the teacher came out and gave me a big hug...I was bewildered. Apparently my son had told her I had breast cancer during the last class. She felt bad, because she had no idea what I was going through. Hope all goes well breaking the news to your kids. Good luck to your wife in whatever treatment path she chooses!

  • jmute
    jmute Member Posts: 34
    edited April 2015

    sounds like my wife may get by with no cemo as well if her lymph nodes are clear, she'll be on tamaxofin if all goes well.


  • jmute
    jmute Member Posts: 34
    edited April 2015

    They actually said she could keep working too if she was able to during the radiology

  • jmute
    jmute Member Posts: 34
    edited April 2015

    and thank you all again for giving me a place to vent, you are all so helpful.

  • placid44
    placid44 Member Posts: 497
    edited April 2015

    No chemo is huge. Not everyone has the same experience, but I found chemo to be the hardest, with the most long term effects. Still glad I did it, though. (had to.)

  • jmute
    jmute Member Posts: 34
    edited April 2015

    Met with the surgeon today, he wasn't as optimistic as the oncologist. He said the tumor is bigger than the oncologist thinks, maybe around 2 or 3 cm, said we're still looking at a stage 1 or stage 2 diagnosis.

  • JohnSmith
    JohnSmith Member Posts: 651
    edited April 2015

    What is the subtype from the biopsy? IDC (Ductal), ILC (Lobular), etc?

  • jmute
    jmute Member Posts: 34
    edited April 2015
  • jmute
    jmute Member Posts: 34
    edited April 2015

    I've got myself worked up again from the differing opinion from the oncologist and the surgeon (general surgeon). The oncologist was giving us a very positive vibe with the grade 1 tumor only being 1cm big, now the general surgeon is saying the tumor is grade 1 but thinks it's closer to 3 cm big.

    The good part is I've just about got my wife talked into going to ohio state breast cancer center because it seems our regional cancer center can't even get on the same page of how big it is. Ohio state probably has the 2nd best breast cancer center in the state of Ohio after the cleveland clinic. This week has been such a damn roller coaster ride.

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2015

    Jmute-

    A second opinion is always a good idea! We hope she can get seen, and that the news is what you both want to hear. You're in our thoughts!

    The Mods

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited April 2015

    Hi jmute, sorry for all of the confusion, but I have the same frustrating thing going on. My MO and BS can't decide on the stage. The MO swears it is Stage IV and the BS swears it is Stage III. The BS swears that I may be curable, and the MO swears I am only treatable. I think I may just buy a season pass to Cedar Point and have all of the roller coasters at my disposal for the whole summer! At this point, I just try to hang on it is a wild ride.

    I am guessing that you live near OSU? I am a patient at the CC.

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