Chemo scares me more than the disease
Comments
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This is a summary of how the oncotype is used( from the BCO home pages, you can check there for the complete article if you want a more thorough explanation)......as you will read, it is not something that would be useful in your situation.
The Oncotype DX analyzes the activity of a group of genes that can affect how a cancer is likely to behave and respond to treatment. The Oncotype DX is used to help doctors figure out a woman’s risk of early-stage, estrogen-receptor-positive breast cancer coming back (recurrence), as well as how likely she is to benefit from chemotherapy after breast cancer surgery
You may be a candidate for the Oncotype DX test if you’ve recently been diagnosed with stage I or II invasive breast cancer, the cancer is estrogen-receptor-positive, there is no cancer in your lymph nodes (lymph node-negative breast cancer), and you and your doctor are making decisions about chemotherapy.
Most early-stage (stage I or II), estrogen-receptor-positive breast cancers that haven’t spread to the lymph nodes are considered to be at low risk for recurrence. After surgery, hormonal therapies such as an aromatase inhibitor or tamoxifen are prescribed to reduce the risk that the cancer will come back in the future. Whether or not chemotherapy is also necessary has been an area of uncertainty for patients and their doctors.
If you’ve been diagnosed with early-stage, estrogen-receptor-positive breast cancer, the Oncotype DX test can help you and your doctor make a more informed decision about whether or not you need chemotherapy. (Some research also suggests the test may help postmenopausal women with estrogen-receptor-positive breast cancer that has spread to the lymph nodes make chemotherapy decisions.)
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anew - Oncotype Dx is only used for ER+, Her2- patients, so based on the sig line info for you this test would not be appropriate - you are the exact opposite of the receptor/Her2 status needed for the test. I recommend icing your nails to prevent lifting during the taxane portion of your chemo as well. I used bags of frozen peas. If you are having AC first, you would just need to ice later during the Taxol. Same applies to the nail polish, but you may experience some ridges and darkening from AC, but not usually lifting. Not sure where the info came from about not having SE on the first infusion - you will, but your SE may not be consistent from tx to tx - sometimes they get worse, sometimes they get better. You do learn the further you go how to manage them better though The ones you have for AC will be different from the ones you have with Taxol, and I assume Herceptin/Perjeta.
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Wow, that is really a lot of toxins...and my MO gave me 3 options: 3 months, 6 months and 12 months treatment. He recommended 6 months, but I chose the 3 months one...he NEVER press me, and respects my wishes, although he asks me to give his recommendation some thoughts...you know you could asks for a more reasonable one...of course, it depends on your cancer factor....I wish us well in our journey as I shall be embarking on mine sometime next week or week after...(he even let me choose when to start: 4 to 6 weeks after lumpectomy surgery is normal. He said that would gives me time to recover from surgery.
Just so you are aware, both Herceptin and Perjeta are for HER2+ patients and both manufactured by ROCHE. I really think having both are just too much. Of course, it is just one patient's opnion. I am sure there are others who disagree with me. Like you, I just want to get it over and done with....and I am glad my MO allowed me to choose my 3 months plan. I have to do another 3 months of radiation daily (Mon - Fri) for less than 10 min each time, he said).
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Nat, were the cocktails the same for the 3, 6 and 12-month treatments? What drugs did he recommend (other than the Herceptin and Perjeta)?
Sue
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Ruthbru
Thanks for taking the time for this explanation. Although it doesnt pertain to me Im still learning.
(((hugs)))
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Anewbeginning - I am 66 and scared too. Ask your doctor for a Mammoprint test. Google it. It tells your rate for reoccurrence
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MammaPrint can only be used to analyze early-stage breast cancers. It can be used on cancers that are:
- stage I or stage II
- invasive
- smaller than 5 centimeters
- estrogen-receptor-positive or -negative
And I quote from the BCO research section, "While the research done on the MammaPrint test so far is promising, more research is needed. The MammaPrint test isn’t included in the NCCN and ASCO treatment guidelines."
Being ER/PR negative, HER2 positive, and stage III; your doctors are absolutely correct in their treatment recommendations for you!!
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Special K
I have to say I'm learning more from you and the wonderful ladies here than I have learned from my facility. Actually I think my MO told me about the s/e with the first infusion. Sometimes I wonder if the docs tell me everything or sugar coat things. Of course I didn't sleep on and off more than 3 hours last night. Trying to drink water to get my body used to it but I have to run to the bathroom every half hour so how will I be able to ever get out of the house? I cant get past 4 12 oz bottles and Im told that is not enough. I'm also afraid of the diarrhea coming on without a warning so I'd guess I'd better stay close to home for awhile........too much for me to think about.
(((hugs)))
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I wouldn't be worrying so much about the "big D" it's more likely you'll be constipated and there are many ways to help that out. - the water drinking takes a little getting used to and it sounds like you are well on your way - I made it a rule during chemo that I didn't leave the house very early in the day just until I got used to whatever the "morning routine" was going to be - you're supposed to be resting anyway so try to relax - take all the meds they recommend.
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It's always good to have an extra set of ears with you, especially in the beginning. There is just soooooo much said, it doesn't sink in. Take a notebook with you, write it down. Or if you have phone, ask doc if ok to record.
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208 Sandy
I dont know which is worse.....LOL
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Spookiesmom
When my bf came with me she took notes. When my son came with me I did record the session....got most of it but didnt realize I was turning pages and rustling papers and alot of background noise. I know better now
(((hugs)))
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I do better just listening I pick up more. We are all so different in that way. For me, there is acquiring to much info , that will lead me down the obsession path. I really like my doc which helps, and in my case, the knowledge I have accumulated is because of the years and years I have been going through this. This is going to be a bad analogy, so I apologize in advance..haha....but for me ( the knowledge part) I learned as I went along. Stored the info in my head that people gave me, but we are all so diff, just like our kids, and eventually you see the bigger picture and understand what you body Is going through, and what makes yours unique in comparison to others.
God bless and enjoy every moment you can hug your arms around
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I kept a notebook & would write down all the questions I could think of ahead of time & then write the answers next to them in a different color pen (so I could tell if I missed any or not). I would also jot down notes as we talked and write them up later. I've kept a kind of medical diary since then.
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I too had a note pad (actually a steno pad) that I wrote questions down in leaving room between to write the answers. I also made a list of the questions and handed them to the Dr so he could answer them and combine them if the answers were similar for more than one of them.
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Nat, I had the Perjeta/Herceptin combination, and it really wasn't that bad. The infusion nurses told me that the two drugs worked great together.
My doctor told me to eat mashed potatoes and plain chicken. The potatoes I had no problem with, but I had a hard time eating any kind of meat. I had to rely on Greek yogurt and cottage cheese and, rarely, fish for my protein. I guess that's why the nurses stressed not to neglect your protein, because it's hard to want to eat meat. I ate lots of fresh fruit. I would take bowls of it to chemo, because after a few months of eating the Cheezits and stuff they give you, my stomach rebelled against them.
If I had to rate my chemo side effects, I would give it a 4, unless I couldn't keep anything down or had diarrhea. Then it was a 6, maybe.
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