Starting Chemo March 2015

I like the phrase "emotional cramps". Funny. I started calling my little episodes "I-F-Os". ( Irrational Freak Outs).

My IFOs were the worst (so far) right after lumpectomy while wearing the drain. That drain, ugh!

Katy sending positive thoughts and good wishes that PT gives you relief. That would be so great

hi Katy

I know ur spa day is same as mine... So I was wndering where u were today. I hope the PT is helping. I have had great experiences with PTs in the past, for post injury rehab.

Count me in for the reunion! It sounds like a beautiful way to meet. And I am up for the "F" bracelet, too... Love me some good, appropriate cursing. And "F" is certainly the word for this BC BS.

I do have a question... Does this scalp itching, tingling, soreness Ever Go Away? Ugh. Ok, is way better than having a headache, but annoying me! I am afraid to use any oil as I got acne from the TC, and sure don't want to clog scalp pores

Hugs and stay LE free for All!

Arlene

thanks Arlene. Not really looking forward to it. Consider yourself counted in. On the list!

Eileen is right, the movie does have some sad bits and gut wrenching. It is a coming if age movie that I didn't think I'd like. But it's a great story, and the gut wrenching is not gratuitous, and besides I had a dream about the bracelet going all over the world just like the pants! I must obey. Resistance us futile.

For me the sensitive scalp did stop after about 2 weeks, or put in terms of chemo days, it started hurting about day 17 and stopped about day 31. Like over last weekend for me. I am using the coconut oil on my head, but my hairdresser (or should I say headdresser) reminded me it's still very important to shampoo your scalp. So I put the coconut oil on at night, then shampoo my egg in the a.m.

with a wicked sense of humor. The print on the fabric just "sunk in".

Bad

before I read all the posts from today - I want to write before chemobrain sets in - ha ha

Mary I am so so sorry about your mo and hospital fuc up, it makes me boil - my Irish-Italian is boiling! I hope it goes well💓💓💓 do you have a nurse navigator? The hospital cancer center I am at has this and she calls regularly to check on me - I was completely floored but so overwhelmed by the thoughtfulness and now I truly know why such a position would be helpful.

You look so beautiful Sharon! Thanks for checking in.

I'm going to bed since it's back to work tomorrow. Hopefully I can sleep and not obsess about the f****ng CIGNA statement I got indicating they will not pay ANY of the 30,000 bill from the PS because it wasn't medically necessary!  I'm calling the PS office tomorrow because I asked if this would be covered-he put in a new implant after taking the other one out following the excision of the tumor that grew in the mastectomy site. Yes you idiots, I was just wanting a boob job and more scars!  Breathe..

Arlene- why have you been keeping Augie from us? He is flat out adorable! And then to blame the splendid fellow for shedding on you? My word. Seriously though, I know you'll have a but of fun and clean up on some donated products... About $250 worth, at the LGFB. Glad you're going. And they might teach you how to do a cool do-rag like Italychick's!

Yes, I fear the steroids as much as any part of this. It is very hard for me to maintain my hard- fought and won stability. A necessary evil, I know...but it sux.

And Diane- that really pisses me off. Yes I would say someone needs to be "spoken to". Not effing medically necessary? Its hard enough what you're going through without having to fight really stupid battles. When it is so obvious. Oh my. I am reeling! Seething! Please keep us updated on this. It may call for junk punching and pimp slapping. Both the surgeon'soffice AND the insurance company.

Thanks Katy. My dad would do anything for his kids. I'm pathetic I know, every time I get upset or sad I start looking at pics of my mom and dad. Those of you who still have your parents cherish every minute because it's never the same when they're gone.  My dad was still working and 59 when he was diagnosed with lung cancer. He didn't even make it a year and when I look at his pic I remember that day and I think he knew it would be the last time we were together. He's crying in the picture.

Bah!  Done being pathetic. Good night all

oh Diane what a beautiful photo of your dad, thank for sharing. Where r u in VA? I say we have an east coast mini meet if possible after all this shit sandwich. Sorry about your Cigna bill! Utterly ridiculous!

Katy glad to hear your getting some relief. I'd love to wear the F bracelet how do is end my address? I love the sisterhood movie, I believe I read the book first. A thought is we call our get together a Union of the "FC" Sisterhood - thoughts? I figure we haven't met in person so not technically a Re union. I'm just excited to have such a wonderful event to look forward to💓

I love the skull scarf - so appropriate for today!

I also was in the chair - all went well. I didn't ask the nurse the first treatment about what she was giving me I guess I was just overwelmed being there. I asked today and I get Aloxi, Pepcid and decadron and Benadryl before the TCHP, gosh what a load. Today I could feel some movement of the fluids,not sure which one but swear my eyes felt funny a couple of times, anyone have that? Didn't have time to get my F charm as went to the Cheesecake Factory afterwards, this is now my routine.

A strange encounter with MO today or should I say NOT. I'm in the chair, first one not far from nurse computer station and across from other nurse office. MO walks in doesn't look around goes right to nurse station waits for minute then walks to nurse office Right across from me, she never looks around. She has full conversation with nurse about her sons track meet happening later in the day, yes I'm that close I can hear their whole conversation then she leaves. Never looked around, I could have yelled out to her but really? Thoughts? My friend who was with me said she sees people all day every day and just didn't think about it at that moment.but to me who has Cancer and she's my Cancer doctor, I was a bit miffed.

But for what the day was it was a good day - here is me and my BFF of 33 years

Has anyone else had dry spots on your eyelids? I had my 3rd round of chemo last Wednesday and I'm noticing dry spots on my eyelids. I seem to get something new with each round of chemo.

Theresa- 14 miles after a bee sting and broken bike....IS VERY GOOD!!! I'm so sorry though. I thought that protection chemo gives us from mosquitos would work with bees too! Maybe your do rag pissed him off. I certainly hope this does not affect you in any way or affect chemo... You might toss back a coupla Benadryl prophylactically. You don't need swelling..you don't need itching.

Diane- not pathetic- nuff said

Maryellen - great bff pic, both beautiful! I'm glad it went ok today. I was the same about not having a clue what was going in the first time. Second chemo I was less in a fog and asked more questions and was more alert. We have just 2 MOs at our infusion center. Mine, a man, and a woman. Mine usually looks pretty busy and is there on a mission looking for a specific nurse having a specific conversation about a certain patient. But he often looks around, makes some eye contact, and sometimes stops for a quick chat. She walks through, never looks left or right. Her reputation for not tolerating questions and wanting to talk and you just listen, preceded her. I never even considered her because I knew it would be a bad fit. But my fav onc nurse says she has a big heart. I guess they are as individual as we are. But how much time really would it take for them to make eye contact? Nod their head in acknowledgement. I guess they are afraid they'll get sucked in.

I like your name for the FC Sisterhood. You can send Diane and me your address via Private Message on this site. Then we can also exchange emails privately. Click on our avatars/pictures and it will take you to our profile pages and you will see an option to send a pm.

I'll send you one first and if you follow the menu hints you'll get to it and then you can just reply. That might be easier.

oh Eileen...so sorry about your dog...I couldn't bear it

Soccermom - If you have Origins products in your local dept store, they have GREAT natural oils and eye creams that should help you immensely. I love their products.

Sue

yes. That's what it's there for. Don't feel bad taking it when you need it. And right now you need it. You just have to slog through day by day. The day will come soon. You need to stay as physically strong as you can. That means proper sleeping and rest, and not being so nervous you can't eat proper meals.

It's a temporary fix. Just because you take it does not mean you are weak. It means you understand you need to cut your body some slack..

I hope you can get some good sleep tonight.

Hugs

Katy