DIEP 2015
Comments
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Just wanted to poll all of you... What are your thoughts on having a recliner to sleep in when you get home from the hospital? Is it necessary or do you think a bed will be okay? We don't have a recliner but we are considering renting one or borrowing one for a short time.
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Karen: That's wonderful!
I am having my surgery sometime in Aug and I am renting a recliner.
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Brandi and Trvler, we have 2 recliners but both operate with a right-hand handle. Prior to surgery I tried it keeping in mind that my right arm would probably be next to useless and found it impossible to get out of! Even if I could reach the handle comfortably I found the motion to unrecline very 'harsh' and figured it would be painful. This may just be our recliners though. I found sleeping in my own bed to be somewhat comforting. I just used 3 pillows under my knees and 3 pillows for my back. Doing the log roll to get out was very easy. I have since graduated to using a body pillow to sleep on my side! I would suggest trying the recliner first to see if you think the operation would be easy/smooth.
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Brandi.A recliner is nice, I tried the bed a few times but always went back to the recliner. My recliner is REALLY comfortable anyway, and it is electric so it was great to sleep in. I spent two weeks in that recliner.
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I've came home from hospital yesterday. I've opted for my own bed and it was a lovely feeling getting in last night. I have lots of pillows including one for under my knees as advised by the nurses. My bed is quite high, and I was a bit worried, but that's useful as I don't have to sit down far. It has a shelf around which has proved useful for pushing up to get in, and a half way place to put my feet for getting out. Without that I'd probably get a small stool. I've opted to make my base downstairs in a firm but comfortable sofa we have in our study. This gives me a quiet space away from the hustle and bustle of the house but accessible.
We have two puppy (9 months) border collies who have sought me out for a sniff and a lick. One has decided I'm boring so hasn't bothered me much. The other (who is ball mad) brings me things to throw and I'm not playing back at the moment. I have family around to look after them.
I did need to get up three times for the loo (toilet) which was doable. I woke up quite thirsty so must keep up my fluid intake.
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Scwilly happy to hear your home and recovering! I had to laugh because I have the exact same bed situation- my bed is high with an appropriate foot shelf to push myself on.
Annie, it sounds like you have a much smoother recliner than my mechanical one! If mine was electric and smooth I probably would have used it because once in it is also very comfortable, unfortunately getting out of mine would have been painful! Thanks lazy boy 2002
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I just slept in my bed with 3 pillows propping up my back, a pillow under each arm, and one under my knees.
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slv - that shelf hasn't been a good feature as I've caught my leg a few times and actulally smashed my IPad glass as I put it down too hard. Good for it to have a positive role now.
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Thank you slv58.
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hartrish: so sorry to hear of your diagnosis. I too was ILC.
I think I could have had a small implant (and matching reduction on other side) - but several doctors did say that because of the radiation - which tightens up skin so it doesn't stretch as much - the DIEP would probably work better. And, I had a personal aversion to implants so that was ok by me. I tried BRAVA + fat grafting first, and my radiation damage was severe enough that also didn't work well (it might have if I was willing to do 8-10 procedures but I called it quits after 6 and had DIEP) because the radiation made my skin too tight to stretch. Don't be shy about getting multiple opionions!
brandi: I got a backmax countour pillow, but then found that pillows under my knees and lower legs worked fine.
Proof that there can be light at the end of the BC tunnel - I just got my first NORMAL bathing suit since diagnosis 7.5 years ago!! Still from Land's End since they make longs, but NOT a mastectomy suit. it is so nice to feel just a little bit normal even with the "franken-boob" look. I'm doing great after stage 1 on Jan. 15, go for Stage 2 on May 28 and I will call this DONE. I could stop now and be 90% happy. I donated all my prosthesis to Duke Cancer Patient Support when I went for my annual checkup in mid-Feb. Yippee!!
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We have a recliner, but it's a manual one, not electric. I used after my BMX, but after my three tries at implants, I found I liked being propped up in bed with pillows better. Our recliner is in the living room, it won't fit in the bedroom, and it gets lonely out there at night. Plus I have two big malamutes that would try to climb on with me.
I saw my PS yesterday, and everything's a go for May 4th! His only concern is the size of the veins in my chest. They're pretty small. I really want this to work, cause I don't want to try a lat flap. I'm excited, but nervous, and want to get this show on the road
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SheriCola, as I say, may you have an uneventful surgery Monday, and heal quickly.
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But just wanted to point out that the difference with this surgery is the abdominal involvement, which affects how you move more than mastectomy or implant surgeries ....
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I had an electric recliner for recovery for diep surger and two minor revisions. I loved it. Slept in it for a couple of weeks after diep and a couple of days after each revision. For me, it kept me sleeping on my back, so I had no fear of turning over and lying on a drain, etc. One tip if you have an electric recliner - make sure the battery back up is working. I got stuck twice during my first recovery when the power went out during an ice storm!
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Morwenna, I can't believe I forgot about that! I swear my brain has left the building sometimes!
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Well, it's sunrise out here where I live. I have taken my Chihuahua out into the back yard to let him do his business. I'll then go shower and off to the hospital. Another surgery will soon be over. Wonder how many more I must face before I can put this BC misadventure behind me.
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Good luck today, mefromcc
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I'm sending best wishes healing thoughs to you Mefromcc and also to Shericola, Blessed 15, Hartrish and anyone else having surgery this week.
((Gentle hugs)) to those recovering just like me. It's Day 8 for me and so far I am doing really well and so happy I have had my surgery. I've not been up to much and am looking forward to moving on from drains etc. A shower is something of a distant memory and what I am most looking forward to when allowed. My little puppy is whining for a cuddle at my bedroom door so think I'll just let her in for a gentle one. Sarah x
(edited for typos)
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Best to you, Mefromcc.
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thank you.
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Everyone, thanks for the well wishes. My surgery went fine, my PS was able to find the pain area being strangled by scar tissue. As long as I was under anesthesia, he did some fine tuning of the foobs. He matched both sides, which meant taking off tissue from my unaffected side. He didn't waste anything, he tucked the fat he had removed into the foobs. These doctors are sure clever, aren't they?
Well, I am on my way home. I need a nap sleep 💤😄.
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I am considering a delayed diep, after having a bilateral mastectomy with tissue expanders placed in December 2012, followed by an implant exchange surgery in May 2014, and then had my right implant removed due to an infection in my radiated breast. At this time I have an implant on the left and nothing on the right. I am struggling with the decision to scar up another part of my body (abdomen) in order to make a halfway decent looking breast. I am thin, but my PS says I have some fat/tissue in my abdomen that he could use for a DIEP, along with placing a small implant behind it in order to match the size of my left side. Are you happy with the way your DIEP breast looks/feels? What about the large scar across your abdomen? I know I don't want to continue looking the way I do right now, but am concerned about having two "scarred" areas, rather than just living with a messed up looking breast. . . Any suggestions would be great! Thank you
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Som: My suggestion is to spend a lot of time researching PS's and their techniques. Not all DIEP flaps are created equal. (I have not had my surgery yet but I am going to have it probably in August). The more I read, the more I see how getting a good surgeon is crucial. Don't just take a referral. Find out what they do and what it means. I was given a referral to one of the PS's that a BS I consulted with uses. After a lengthy telephone conversation with his assistant surgeon, I canceled my consult with him. His methods concerned me a lot. I went elsewhere.
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Hello ladies! I'm scheduled to have BMX and Diepflap on April 23rd. Having never been under anesthesia other than port installation, completely terrified !!
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Hi StillStanding66!
I'm scheduled for a BMX and Diepflap on April 22 in San Antonio (PRMA.) Where are you having your surgery??
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Hi Sharon! I'm also in San Antonio PRMA! Small world! Is this your first surgery?
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Yes...My first..Surgery. I was just diagnosed in March. .Are you at Methodist Hospital?? Are you local to San Antonio? Dr. C from PRMA says they keep all the Diep patients on one wing of the hospital. Maybe I will see you there. I'm flying in from Georgia for the surgery so I will be staying at the Marriott Townsuites for the rest of the time.
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I will be at the Baptist Hospital. Dr. O is my doctor from PRMA. I live just outside San Antonio and was diagnosed last August. I've completed my chemo. My last treatment was March 10th. So is chemoin your treatment plan?
How long will you be staying in SA
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Hi Mefromcc, so happy Your surgery went well and your home resting
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Som, I, too, had the mastectomy and the expanders. I couldn't go with implants because my skin was so thin from the radiation, so it was Diep or nothing. I thought the same thing you did, do I want to mess up another part of my body to make my chest look ok. Yes I think the scars suck, but I would do it again because at least when I put on clothes or even a swim suit (my two pieces went bye bye) I look OK. I can wear a tank top and don't need a bra, and still look OK. Put it this way, I am not as self conscious about my scars as I would be if I didn't have breasts. That would be a lot harder to deal with. I know the scars will fade, and will take awhile and yes the breasts are nice and soft.
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