PET Scan revealed nodule

Options
chocomousse
chocomousse Member Posts: 157
edited April 2015 in Waiting for Test Results

Hi,

I recently had a CT scan for a mass in my chest. My pulmonologist recommended that I get a PET Scan to help better determine what it was (it turned out to be an enlarged thymus gland). During the PET Scan, a nodule in my right breast was detected. It lit up 3x greater than the surrounding tissue. The pulmonologist sent me to an oncologist who reviewed the film and the report and gave me a breast exam where he felt the lump which is 1.8cm and about an inch to the right of the areola. He said that although PET Scans aren't definitive, the fact that the nodule absorbed so much glucose and lit up so brightly is a sign that it probably is cancer. I have a mammogram scheduled for next week. My question is, could a benign lump light up on a PET Scan? If so, what kinds of breast lumps/conditions absorb large amounts of glucose and trigger false positive PET Scan results? I'm 44, no children, thin, non-drinker, non-smoker, non-drug user, never used hormonal birth control.

TIA.


Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2015

    Hi Chocomousse-

    We want to welcome you to our community here at BCO. We're sorry for what brings you here, but we're very glad you've found us, and hope you find the support and information you're looking for!

    PET scans are not typically used diagnostically for breast cancer, because of their unreliable screening ability. For example, to answer your question, yes, benign lumps can indeed show up on a PET scan. While cancer cells grow faster and absorb more glucose (thus making them glow brighter on a scan), benign tumors and lesions can also absorb large amounts of glucose, as can infections and inflammations. So false positives on a PET scan for fairly common, which is why a scan is usually followed up by a more thorough diagnostic test (in your case, a mammogram).

    The majority of breast lumps turn out to be benign, so the odds are definitely in your favor that this will end up being nothing for you to worry about. We know it's hard not to worry, but try to remain focused on your favorable odds, and think positively! Once you have your mammogram, you'll have more answers. We're hoping your results are benign, please keep us posted!

    The Mods

  • chocomousse
    chocomousse Member Posts: 157
    edited April 2015

    Thank you so much for your response!

  • Fakeboobs123
    Fakeboobs123 Member Posts: 92
    edited April 2015

    I think you might see the radiologist as well as the tech when you go for your mammogram, because if they've found a lump there's a good chance they'll want to biopsy it after the PET scan findings. The radiologist does the biopsy and this will be an opportunity for you to ask her or him and the PET significance. I am waiting on a biopsy result right now and I know my radiologist is very experienced, and although pleasant he's very business like, he fielded my questions but then after biopsy he was out of that door fast to get on with other things. He didn't give much away. I keep asking him if it's cancer can you tell if it's early stage etc and he just told me to wait for the biopsy results basically.

  • chocomousse
    chocomousse Member Posts: 157
    edited April 2015

    Thank you. I suppose the person who did the PET Scan was a radiologist but she didn't tell me anything afterwards. I've always been told to follow up with my doctor after all the scans I've had. I developed Acute Respiratory Distress Syndrome as a result of Pneumonua last year so I've had 4 CT Scans in the last 16 months. I find it interesting that none of the CT Scans picked up the nodule in my breast. My last CT Scan was on March 4th.

  • Fakeboobs123
    Fakeboobs123 Member Posts: 92
    edited April 2015

    that's interesting, sorry about your recent health troubles with the acute respiratory distress. The breast surgeon did a 'cursory' ultrasound on my left breast and missed a 9mm mass, MRI picked mine up and then they found it with ultrasound using MRI report as a reference.

  • Kicks
    Kicks Member Posts: 4,131
    edited April 2015

    PET scans can pick up on ANY inflammation - not just cancer. When I had my PET before TX, it 'lit up' on a spot along my lower jaw. I was in the next day for a biopsy of the area and had the results the next morning - no problem. Point is - not everything that 'lights up' on and scan, even a PET will be a 'bad' area. Get it checked out.

  • chocomousse
    chocomousse Member Posts: 157
    edited April 2015

    Thanks Fakeboobs12 and Kicks. My mammogram is on Monday. Hopefully the nodule edges will be smooth rather than irregular. I was told that irregular edges are a sign of malignacy.

  • Fakeboobs123
    Fakeboobs123 Member Posts: 92
    edited April 2015

    my nodule 'lit up' on an MRI I guess that's a phrase they use, they said it looked oval on the MRI but when they examined it further on a diagnostic ultrasound they said it had 'indistinct margins', so it's been biopsied. Waiting for results, they're due tomorrow. I have 'scattered cysts' in other Breast, they're not concerned with. Good luck and. Let me know how you get on. It's great you're in good shape, and don't smoke etc

  • chocomousse
    chocomousse Member Posts: 157
    edited April 2015

    Thanks everyone for your optimism! Just back from the clinic. I had a mammogram followed by a sonogram. The results aren't good. The Radiologist stopped in afterward and said I have a cluster of calcifications which are suspicious for cancer based on the PET report, he didn't have the films. I have a biopsy scheduled for this Wednesday. My husband asked for a timeline as he just wants whatever it is removed. The Radiologist said that with a biopsy this Wednesday, they can have the results by Monday at the latest and if they are cancerous, I can be in surgery within 2 weeks getting either a lumpectomy or mastectomy with or without radiation and/or chemo. But he said everything at this point is speculation until the biopsy results are in. I asked him if he could tell the stage based on the imaging, he said no but thinks it's beyond stage 1 due to the shadowing of the calcifications. He also wants to examine the PET film to be sure there were no bright spots in my lymph nodes or elsewhere. I told him about the mass in my mediastinim which did illuminate which my Pulmonolgist thought was my Thymus gland instead of my lymph nodes. He seemed sceptical. The tech said they'd install a titanium chip inside my breast during the biopsy...I've never heard of that. The tech asked me again if I was sure there's no breast cancer in my family to which I said yes.

    As long as I avoid asking/wondering why this is happening, I won't get depressed so I'm really going to need to control how I process this over the next couple of weeks.

    To Fakeboobs, hoping your biopsy results are negative!

  • Fakeboobs123
    Fakeboobs123 Member Posts: 92
    edited April 2015

    Hi Choco thays a lot to take in, I'm glad to read you're married, your husband sounds like he's onboard to tackle whatever may come up, that's a great great thing. Are you happy with the Breast Center you're currently at? Where do you live? I'd say now is the time to give that some serious thought and research. I was considering adjusting my insurance to go to New York Presbyerians Breast Center which is known for research including being one if the first places to use cold caps for chemotherapy preserving hair..not that that's a top priority but a nice plus. I have read these boards extensively recently and been looking at stats also, they are all so promising. On the boards the overwhelming majority of women seem to be living their lives and doing well, despite it being a tough road at times. I got my results today and they were negative. I am obviously very happy about that. I have to say during my ultrasound the tech was acting like she felt sooo sorry for me, which scared the living day lights out of me. I'd also asked the radiologist "if it's cancer can you tell what stage it is? I mean it's pretty small" he said no we can't tell anything until be get biopsy results, no reassurance offered at all. He also said "just because it's small doesn't mean early stage". They're not giving any reassurance about anything until that pathology report comes in. I got my result from the Physicisns Assistant at my Breast a Surgeons office over the phone, I knew if it was bad news I felt more comfortable dealing with them, the radiologist just seemed curt and busy. My pathology report says its just normal Breast tissue apparently, but it was referred to as a nodule with indiscriminate margins. The pathology report will tell you exactly what you're dealing with. Unfortunately the wait is excruciating. I took my son to the Central Park Zoo today, I'd just finished watching the sea lion show and was in a happy place when my results call came in. I recommend doing things you enjoy, getting out and about. I ate lots of yummy salad from the salad bar at Wholefoods so I didn't get indigestion then get paranoid something else was wrong with me. Shortly before my breast lump was found I had been to ER with really bad pain in my rib on the same side, my PCP had been testing my heart, pancreas etc. So when I found out about the Breast lump needing to be biopsied you can imagine where my mind went. I also noticed I felt less pain today and my muscles were a lot looser. Don't underestimate the pain anxiety can cause. About a week ago I woke up with my gland under my chin swollen and pain in my jaw so bad... I think it was caused by teeth grinding from stress. Although not knowing the status of my breast lump I began to get very fearful. Thinking good thoughts, make yourself do that and please check in here to let me know how you're getting on. I am your supporter during this horrible waiting period.

  • chocomousse
    chocomousse Member Posts: 157
    edited April 2015

    Yay, glad your results were negative!

    In thinking back, the woman who did my PET Scan kept staring at me with a look of pity.

    My biopsy was rescheduled for Monday. I had a mild fever which I usually get when my period is on but they were adamant about putting it off until I felt better...they didn't want to risk doing an invasive procedure while I potentially had an infection. Four days shouldn't make much of a difference. Although the odds are against me, I'm really hoping/praying that my microcalcification cluster is benign.

  • Fakeboobs123
    Fakeboobs123 Member Posts: 92
    edited April 2015

    ahh how frustrating, as I type this I can hear my husband cursing wrangling with five trash bags I filled earlier today doing a Spring clean, haha! I can hear him removing items of his I tried to throw out.. Hope you are keeping busy! I read these boards extensively and read about microcalcifications coming out benign, women get those with ageing don't they, not just cancer, also from injuries like car accidents etc.. Any further examinations of the PET?At least that's already out of the way, most women are very worried about that scan, and it's already done. I read about women with stage 2 Breast cancer who haven't had one and its a source of anxiety. You already have that done which is good, after biopsy is done all bases will be covered. I will keep thinking good thoughts for yo

  • chocomousse
    chocomousse Member Posts: 157
    edited April 2015

    Thank you. Yes, calcs are common but are considered suspicious when they cluster. I have none of the risk factors so I assume this resulted from all of the radiation I've been exposed to over the last 16 months. Oh, and it's a titanium clip, not chip, that they'll be installing as a marker for future exams or surgery.

  • chocomousse
    chocomousse Member Posts: 157
    edited April 2015

    Had the core biopsy on Monday....there were 3 distinct, brutally sharp pains. I was told that it wouldn't hurt given all of the numbing but it did so it caught me off guard. The entire process of cutting to drilling took about 3-4 minutes. Then the clip was inserted, sutre glue applied and off to get another mammo to confirm clip placement. Had a few sharp pains that evening but no pain on the 2nd day. Still applying the ice as my biopsied breast is still quite swollen. The pathology report will be in on Friday. My husband asked if it had grown since my last visit to which he was told no, that type doesn't grow quickly....which gave me the impression that my Radiologist already has a good idea of the type of cancer it is.

  • chocomousse
    chocomousse Member Posts: 157
    edited April 2015

    My primary called me about 20 minutes ago. She just received the pathology report and it's positive for DCIS. She said the next step is to have it removed and recommended a couple pf breast surgeons. Thanks to this board, I was prepared so I'm not shocked or devastated right now. She said the pathology report doesn't tell her the hormone status or the stage so I don't know that yet. Thanks everyone for your support. I guess I'll start posting in one of the other forums now.

  • Fakeboobs123
    Fakeboobs123 Member Posts: 92
    edited April 2015

    oh Choco just read your results now, the IS in DCIS means in situ doesn't it, which is a great thing and means it's not invasive right? Well yes I guess the ladies in the diagnosed section will be able to best advise, but I will come and spy on you now and again to see how you're getting on. I hope treatment is a simple and smooth course. I also hope you are completely happy with the hopsital/ breast center you're with as I'd say that's the top priority for you right now. Was that a core biopsy you had? I didn't feel anything on mine but I have the fake boobs and have lost feeling in them in places thanks to two cosmetic surgeries! Thanks for coming back and updating, I think it's so helpful to women reading to see the outcomes and pathways women follow when going through Breast screenings.

  • chocomousse
    chocomousse Member Posts: 157
    edited April 2015

    Hi!

    Yes, it means in situ. I found out later that it's DCIS Grade 3 or high grade which means that it's highly active. This is probably why it lit up so much on that initial PET Scan. So although it's considered non-invasive and pre-cancerous, excision and radiation are still recommended.

  • Fakeboobs123
    Fakeboobs123 Member Posts: 92
    edited April 2015

    I went to spy on your posts in the diagnosed section! hope you find a Breast surgeon you feel good about next week and good luck with those hormone receptor tests. what's been found out about your diagnosis so far sounds promising if that makes sense. I wonder will you need another PET scan, like a full body one? There's a question for the Breast surgeon, best wishes for next week.

  • chocomousse
    chocomousse Member Posts: 157
    edited April 2015

    They've only mentioned possibly needing an MRI after surgery.

Categories