April & May 2015 Surgery Sisters

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  • downdog
    downdog Member Posts: 1,432
    edited April 2015

    Hi Stephmoen. It looks like you've posted here instead of the April chemo crew thread. Glad to hear you received great news on your PET scan.

  • Lmonelli
    Lmonelli Member Posts: 95
    edited April 2015

    how come I can reply to a private message. It's telling me I reached my quota for the day?

  • Lmonelli
    Lmonelli Member Posts: 95
    edited April 2015

    Hello Everyone! I had a pissed off day. Can't respond to a private message because I reached my quota. WTF does that mean? Traffic sucked. I hit every red light and I was just generally uptight and without patience. Ok now that I said that, I would like to introduce myself which I have not done yet. My name is Lori and I am 54 years old living in south Florida. I am married 20 years and have three children. 25 and 17 year old twins. The rest you know.

    Whew...I was on another thread and learned what to bring to the hospital. Some really cool ideas. Anyway...just wanted to stop by and bitch. I do hope and wish everyone having surgery in the next few days a speedy recovery, lots of hugs and peace!

    Lori


  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited April 2015

    Lmonelli- As far as the unable to respond or send more than an allotted amount of messages, is because you are still fairly new to the boards.  They make sure that you are not a spam person or someone trying to gain access to other boards ie. the picture forum.  Once you post more the mods will lift the quantity.  Hope your day gets better.

    I understand about the crap day.  I left work before lunch to go to my preop appt, I got to my PS's office at 1230 appt at 100.  Signed my consents paid my portion for the surgeon. Took more pictures, waited for my PS because he specifically wanted to talk to me regarding my insurance. If I go to a sister facility my insurance pays 100% after my 100.00 copay but if I go out of network its 80/20 policy. But if there is an HCA facility within 30 miles my insurance drops to 75/25, which really pissed me off.  So instead of having surgery at his surgical facility which would cost me almost 4500.00 i'm going to my sister facility. Anyways, I didn't leave his office until 330, starving, thirsty and having to pee.  I am however ready for my surgery next Thursday, can't wait to get these implants out and get a new set.  I did ask about drain tubes, he said as always, it's possible but he hopes I won't have to have them.  Asked regarding the incision if it would mess up my nipples and tattoos, he told me he would try not to mess them up but there is always that risk.  Not what I wanted to hear, but I understand.  Sometimes it sucks being so understanding.   Oh another thing that got me upset, I don't have any veins on my right arm. My best veins were on my left (cancer side). I went through 2 nurses, the first one couldn't find anything so she called nurse #2 who searched then scooted back on her rolling chair and looked down at my legs.  She stuck me in my ankle and found nothing there, then looked back at my wrist and stuck me there. Now my wrist is killing me and I want to cut my arm off.  Yes a little dramatic here but it's the truth. 

    Christy


     

  • MJS1266
    MJS1266 Member Posts: 222
    edited April 2015

    Good news, pathology report showed a complete pathological response from chemo. So all the SEs from Chemo were worth it. Now just have to recover from lumpectomy and reconstruction. I'm not in a lot of pain, but definitely uncomfortable. I stopped taking Percocet as I think it was giving me an upset stomach. Appointment with PS tomorrow, I'm anxious to have him take off the dressing, I am too nervous to do it myself. All the best to everyone, MJ

  • downdog
    downdog Member Posts: 1,432
    edited April 2015

    Fantastic news on your path report, MJ!! Glad to hear you are doing OK with manageable pain from the reconstruction. Take it easy and hope you have someone to pamper you.

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited April 2015

    I am showered with the anti-bacterial soap and have my pillow ready to leave for the surgery center at 5:45 in the morning. 7:00 surgery - BMX with expanders for reconstruction. A sentinel node removal (or whatever they call it). I know I am having the blue dye at the beginning of the surgery that goes to the sentinel nodes. My doctor said he will do that when I am out. Good thing! I am calm tonight, for which I am surprised. But, I know that God will help me through this and the treatments to come. I am thankful there is the surgeries and medicines to get this horrible Cancer out of my body. Let's just be tough and get this life detour over! I will post as soon as I can.

    Lynn

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited April 2015

    mysunshine- good luck tomorrow. I will give you a heads up about the blue dye. I Freaked out when I went to the bathroom the next day and noticed that my urine was BRIGHT green. My nurse laughed at me and said go back to elementary school and remember art. Yellow and blue make green. I told her yes they make green but not bright green. Lol. I wish you the best of luck tomorrow

  • HuntingtonNY
    HuntingtonNY Member Posts: 31
    edited April 2015

    You can add me to this "clan"

    Diagnosed 3/16/15, LX 4/6/15 . Still in shock that this is happening.

  • HuntingtonNY
    HuntingtonNY Member Posts: 31
    edited April 2015

    Sunshine, take a deep breath. Your attitude is the one I share. I believe faith helps me center and keep this in perspective. I will send positive energy your way. Let us know when you've settled in at home in a day or two.


  • MJS1266
    MJS1266 Member Posts: 222
    edited April 2015

    My Sunshine,

    You'll do great. Try not to worry. I didn't remember a thing after they started to wheel me out of the pre-op. Good Luck, MJ

  • SoutherMother
    SoutherMother Member Posts: 111
    edited April 2015

    Hello April Surgery Sisters!  I found a few videos on Youtube that showed how to clear the tubes and drains post surgery.  Each one had something a little different to add to the process. 

    lmonelli, there is a thread,  "Insomniacs place to talk in the wee hours" under the Relationships, Emotional Crisis, Depression and Anxiety Topic.  I haven't visited it myself but saw the insomniac part and thought of your earlier post.  I think there is a couple other threads that get busy in the late hours.  Awhile ago, I remember seeing one that was active on the One Word Game thread.  Did you find out how long you have to go before the limit of pm's is lifted?

    MJS1266, great news on your SNB!  Hope your stomach issue and the aches get better tomorrow. Thanks for letting us know how you did. 

    MySunShine48, we will be thinking of you tomorrow.  Your strength gives me hope to be able to do the same. 

  • Sunnidaze
    Sunnidaze Member Posts: 2
    edited April 2015


    Hello, I am a 51 year old going thru Menopause,

    I went for my normal Yearly Mammogram, then I get a call saying I need to come back because my images looked "Suspicious" that's when the worrying and fear began,  Went back for a second Scan, still could not tell, more Fear, then for a Stereoptic Biopsy, Confirmed...Breast Cancer, then a MRI to make sure it was not anywhere else in my body...I still have not cried yet I think Im at the stage of Disbelief or Denial or something, because I just can not believe I have Cancer.  Im at Stage 0 of DCIS My Surgery is scheduled for April 23rd I am still confused on what I want to do I am thinking about Natural Remedies for Treatment, or I can get a Lumpdectomy with Both Breast Reduced and Lifted at the same time, and Radiation Im really terrified about surgery

  • middleagedmama
    middleagedmama Member Posts: 46
    edited April 2015

    my sunshine, good luck tomorrow! You will do great You can do this! Cancer sucks and tomorrow it will be gone! Stay strong!

  • Lmonelli
    Lmonelli Member Posts: 95
    edited April 2015

    Sunnidaze...like your name! I was diagnosed in March and I am still trying to wrap my head around this. I wish I can do nothing and just bewitch it away. I am 54 and post menopausal. I opted for bmx with TEs and SNB. For me that was the best route to take. However, that doesn't take away the fear of the unknown. Some days are better than others but there is a lot of support here. To be truthful, I am a wreck. When I am alone it is the worst. I am scared shitless of this surgery and what they might find. How I am going to react after surgery, how I'm going to look. I also fear how I am going to behave the week before, the days before, the day before, the morning of. If I am going to shake uncontrollably. I know myself. I don't do well with fear.

    I have appoint with ps Monday and I am going to go over my list of questions and ask for pictures. The first visit I went by myself and was in a fog. Can't remember much of that visit. Hopefully my gf will be able to come with me.

    There is so much support out there for us. I called the American Cancer Society when I first found out and they emailed me a list of local support groups. Going Monday! Also, someone called me last night and spoke with me over an hour. She was really nice.

    Anyway, if you want to talk more you can PM me anytime.

    Hugs,

    Lori

  • downdog
    downdog Member Posts: 1,432
    edited April 2015

    Welcome HuntingtonNY and Sunnidaze to the April clan! Now all we need is our own tartan. Sunnidaze, good luck making a decision on what is the best option for you, and I hope you can be comfortable and at peace with the decision you make. Know that once you've reconciled everything in your mind, that you made the best decision for you at the time with the info you had available and don't beat yourself up. Unfortunately, they're all crappy options and all have a downside.

    Lmonelli, your anxiety is getting out of control and the magnitude of your stress is not good for you. You should ask your Dr for a prescription for Xanax or Ativan to help you out. It will make a big difference. I'm glad you've found a local support group where you can unload some of your stress and receive support.

  • Lmonelli
    Lmonelli Member Posts: 95
    edited April 2015

    downdoog...yesterday was a bad day.My anxiety did get the best of me ..i apolologized...and got prescription of xanax.Today is a better day

    Thank you for your suggestion.

  • MJS1266
    MJS1266 Member Posts: 222
    edited April 2015

    Sunnidaze,

    Know that there are a lot of people out there going through the same thing and that are willing to provide support. When I was first diagnosed, it was shocking too. I decided that the only thing i could do was take one step at a time. I've followed the Drs. guidance and made sure I looked at all the research particularly on this site. I don't regret it. Because i needed genetic testing and had a high grade of tumor, Medical Oncologist recommended chemo first then surgery. The chemo while tough wasn't as bad as I thought and the end result was a pathologically complete response. The genetic testing was negative, so I went with lumpectomy and reconstruction, followed by radiation. I had surgery on Monday and am recovering, off to Plastic Surgeon for first follow-up this afternoon. Do your research and then march down that path with conviction, I don't think you will regret that approach. I would encourage you to consider traditional treatments first. There are lots of options, stage 0 and grade 1 cancer is very treatable. Good Luck, MJ

  • SoutherMother
    SoutherMother Member Posts: 111
    edited April 2015

    KJSun, we are thinking of you.  I know your BMX surgery was on the 6th so you are probably pretty sore right now.  Hope you are getting rest and the healing process is in full swing. 

  • dtorrent
    dtorrent Member Posts: 17
    edited April 2015

    I did it! BMX with SNB 2 days ago. No reconstruction. I was so worried about PONV...my anesthesiologist was awesome. She decided since my surgery was relatively short (it was about 2 1/2 or 3 hours) not to use gas, instead it was all IV anesthesia.

    So no sickness, no pain, great staff all around (Medical University in Charleston SC). I stayed one night and came home yesterday afternoon. I am walking around the house and feeling pretty good. Taking oxycontin with a side of zofran since pain meds make me sick.

    So the long and short...YOU CAN DO THIS fellow April Sisters! It was no where near as bad as I thought.

    Still don't have the guts to take off the special bra and take a look...maybe tomorrow.

    Now the hard part, waiting until next week for pathology results.



    image

  • Redporchlady
    Redporchlady Member Posts: 113
    edited April 2015

    Hi April Surgery sisters!  I had surgery on Tuesday and just got my pathology report.  I got my NED!  No residual cancer in the right breast.  They removed 20 lymph nodes and all negative.  I had 5 nodes that were treatment effected which means my 5 months of chemo killed all the cancer!  My husband is doing a great job of keeping my drain emptied.  I am off the pain meds except for extra strength Tylenol and feel pretty good!  Good luck everyone as you have your surgeries. 

  • Lmonelli
    Lmonelli Member Posts: 95
    edited April 2015

    Thank you Redoorchlady! It definitely put me at ease when I read your post. My surgery is April 29th

  • HuntingtonNY
    HuntingtonNY Member Posts: 31
    edited April 2015

    So happy to see you smiling and happy with your decision. . . . . . wishing you a speedy recovery!

    M

  • DayLily15
    DayLily15 Member Posts: 144
    edited April 2015

    Hello :) i made it through the surgery. it was not too bad. im still taking "good" pain killers so sleeping lots.

    i was given a zantac pill for indigestion/nausea about 2 hours before my surgery. they also gave me a shoulder nerve block [like an epidural but higher] and to be honest i have had no pain, just a few nerve tinges and tingles. im taking my pain pills on time because they also help with swelling reduction.

    the hospital was chaotic and not pleasant i was very glad to come home to rest.

    lip balm is a must, glad i listened to that advice and took some with me.

    wishing the rest of you smooth sailing.

  • SoutherMother
    SoutherMother Member Posts: 111
    edited April 2015

    I love hearing from our Surgery Sisters on their progress.  At first, I was upset that my surgery wasn't until the end of April.  But now, I feel blessed to have the chance to hear all your first hand reports.  I don't have any family members nor friends who have experience with breast cancer.  You all have truly been like a sister that leads the way.  Thank you.

    Dtorrent, you look great!  Would have never known you just had a BMX. 

    RedPorch Lady, smiling from ear to ear because of the good news about the nodes.  I am hoping for a similar response too. 

     DayLily 15, Will definitely pack the lip balm.  Hope you get to sail smoothly into a good deep night's sleep.

     

  • Sparkle2014
    Sparkle2014 Member Posts: 139
    edited April 2015

    a few things I found super helpful after surgery, ask nurses for cups ice chips - suck on them to cool you down (I felt my throat hurt and was very hot from surgery) - they say take roll life savers or hard candy drops,,, i craved cold cranberry juice (now know it was the Vit C and E in it and maybe the nutrients my body needed - another women who had same surgery said that's odd, i craved sugar free ocean spray cranberry too - i found it healing to drink - as well as diet 7 up - the bubbles help the stomach that the meds and surgery upset...

    had a velcrox bra from Pl Surgeon - it was all cotton and adjustable - felt better being tucked in and when took off to change dressing with nurse was when I felt queezy - that circulation i think was being cut off too much after wearing it 10 days! finally i said I need some other bra on,,, less constricting -

    order chicken noodle soups after you get out and applce juice and ice and sip on the juice first - wait about hr then sip slowly on broth - to rehydrate body with some salts and fluids - i dont suggest eating a lot first few days,,, my nurse said definately do not eat greasy or spicy foods or heavy fat foods - i made mistake chowing down on a peanut butter sandwich my mom brought me as i was sooooo hungry - she said it it good protein - well no, that lump of peanut butter got stuck in mid section under my MX area - i then wanted fruit salad and this was first night home - 2nd day post surgery - well nothing was moving so at 4am after not being able to get to sleep and had been up since before surgery for 2 days,,, i vomited up that food as the pressure of it - it hurt to throw up - so yes that was WRONG food to eat - i then decided ok try special K cereal next night - light simple fat free foods and lots drinks like lemonade, 7 up, gingerale, cranberry juice, ice water,,, did that few days and did feel better day by day and made bed out on big chair and couch as lying in bed was awful - so i propped everything up and got lots pillows and blankets and that was better then getting in and out of flat bed - it took a good 12-14 days till i felt ok i am OVER the worst now,,,,, it does get better once get drain out,,, and once know no infections,,


    if you feel queezy or panicky - sit down on chair or floor and catch your breathe and sip on cold something - hold can or cup or bottle that is cold - it will cool you down holding something cold in hand and up to lips,,, seriously! breathe and pray or chant - everything's going to be ok, i will be fine, all with be fine etc,,, I can do this, it will all work out, The powers above - angels are watching out for me - etc,,, practice talking yourself well,

    will be sending healing thoughts to you all who are recovering and about to go in!

  • Lmonelli
    Lmonelli Member Posts: 95
    edited April 2015

    Someone recommended to watch YouTube regarding how to drain tubes. There is a really good one I watched. It was a little graphic but not too bad and she drained them so you got to see exactly how it's done. It is called post op day 3 how to drain tubes.

  • Redporchlady
    Redporchlady Member Posts: 113
    edited April 2015

    My drains are emptied and stripped 3x a day. Every 3rd day we have to change the bio bandage around the tube and reapply the clear bandage. My husband watched them at the hospital and the next time they had him do everything so he knew how it felt. They had him change the dressing on the tube so that he understood where the stitches have to be on the bio patch. At first he was nervous but he said it gets easier. Today he has to change the dressing. They told me to take a shower and let the water run over it so that it comes off easier. My surgeon also said in the shower take the affected side and put your hand behind your head. They recommend no excercises but want you to use that arm for normal activity like reaching in the cupboard for a glass. I am not to do any thing anything repetitive like vacuuming. (Oh darn!)

    SoutherMother - I noticed you got TNBC the second time and you are stage 3c. I also did Carbo as my chemo plan to increase my chance of getting a PCR. I hope it does the same for you! Have you noticed any changes? Under my arm was 5.9 cm and I could feel it shrinking after chemo treatments.

  • Metta
    Metta Member Posts: 84
    edited April 2015

    Dtorrent, you look great! Sounds cheesy, but it gave me such hope and relief to see your smile. Congrats on the complete pathological response, MJ! That is fantastic, and I'm so glad they could just stop with an SNB. Yay for you, Redporchlady, on those negative nodes--that is huge! I have to have an ALND (because of the clinical trial I stupidly signed up for), but it's great to hear that you survived and are okay. No pain, that's great, DayLily! My surgeon does nerve blocks, too.

    All of you who had surgery last week sound fantastic. Thank you so much for reporting back so that we know what to expect. My surgery (BMX, most likely ALND unless I drop out of the trial) is next Friday. Waiting is the hardest part. It's eerie to know that my body will never be the same ... and that I won't be able to do downward dog, go in saunas, lift heavy things. There is definitely a grieving process during breast cancer treatment. I think I'm in that bargaining phase; I am still trying to find a way to outsmart this surgery, like if I pore over my medical records enough, I can find a way around it. Lori, your angry days and worried days are totally normal and part of grief. I am having a hard time relaxing, too. It's really difficult. I hope you find some peace.

    Best of wishes to all of you who are recovering this week--can't remember who said it, but yes, relax and be pampered!

  • MJS1266
    MJS1266 Member Posts: 222
    edited April 2015

    I had my first post surgery appointment with PS. He said everything was normal. I was worried and it didn't really feel or look normal to me but then again how would I know. I was very much relieved. He also removed the drains. One drain site closed up pretty well, the other is still draining a bit. There seems to be less swelling today and a bit more comfortable. I am only taking extra strength tylenol as the percocet seemed to be upsetting my stomach. Glad to hear everyone with surgery this week is doing well.

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