Chemo scares me more than the disease

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  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    KBeee

    Sorry you also had a "second time around" like me........It really sucks!! Good to hear you did not have such a bad s/e with both of your chemos....

    (((hugs)))

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Kicks

    Another positive experience. This is what I like to hear although I do know not all react the same to these treatments. I admire your enthusiasm and love for life. I guess its just fear of the unknown for me but I will get thru it. My tx starts next week so Im preparing myself and shopping for all my "should haves".

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Chloesmom

    Im soooo happy for you! This is the beginning of a better part of life for you. Enjoy it and keep up the happy dance!

    (((hugs)))

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Nancy

    Of course I am going thru with the A/C.. starting next week. I am thinking more positive today after seeing MO and getting so much feedback and support here. MO told me when they do A/C keep ice in my mouth and it will hopefully prevent the mouth sores? Have you heard that? I will try anything. As for my hair I dont mind losing it as long as I find a cute wig..will be looking for it tomorrow.

    (((hugs)))

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Rosem

    I did have surgery already but am still getting the Perjeta. I did not ask about TCH because I dont know what that is. MO didnt tell me I had choices other than studies. What is TCH?

    (((Hugs)))

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Susan

    You are right about spreading the s/e around. Give each organ a fair chance.....lol but you have a good point.

    (((Hugs)))

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited April 2015

    Do you have a port, or getting one? I've read here that A/C is hard on the veins. Plus, it makes it easier for any blood draws. I'd def give the MO a call and get one!! I still have mine.

    As for the ice, I didn't do it, didn't know about it. Wish I had. Check into cute hats, some come with a bit of hair peeking out, but not a full wig. I found mine to be hot and itchey and hardly wore it. A hat, ball cap, embroidered with No Hair Day kept me cooler, and didn't get sunburned. It's HOT here in the summer, LOL.

  • susan3
    susan3 Member Posts: 3,728
    edited April 2015

    spooks good point. They thought I could do ac without port. Didn't get one and almost couldn't finish and had calasping veins. Have a port now ...much better...never have to nervous if they can do treatment or not if they can't access

  • rozem
    rozem Member Posts: 1,375
    edited April 2015

    TCH is a very common chemo protocol for her2 positive bc. If you go to the her2 section there is an entire thread on TCH. No Anthracycline which is what may cause heart issues. Its worth asking your MO about it.

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited April 2015

    anewbeginning

    Yes definitely suck on ice during adriamycin. Use Biotene mouthwash as well. I got one mouth sore and it wasn't even that bad.

    I second the port. My first infusion was without one and I actually had what looked like a burn on my hand. MO said definitely getting a port. I got it in August and it was taken out in a January. I never had any problems with it.


  • Meow13
    Meow13 Member Posts: 4,859
    edited April 2015

    i think you have to really believe in your treatment. A positive attitude and strength is needed to make it through chemotherapy.

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Spookiesmom

    I had my port placed when I had my surgery. Will do the ice for sure as but hope they give me warm blankets cause Im always cold. Hate hats so Im hoping to find a nice wig today

    (((hugs)))

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Rozem

    MO thinks this is the best tx for me so I guess I have to trust his decision.....praying for the best outcome

    (((hugs)))

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Meow13

    Love the kitties

    Im sure they bring you much joy and love. Have a wild 4mo old pup here that is sure to keep me busy

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Nancy

    Will put Biotin on my long list of things to have before chemo. Not the kind of shopping I look forward to especially when all the spring clothes are coming out.

    (((hugs)))

  • SweetHope
    SweetHope Member Posts: 439
    edited April 2015

    Love the "No Hair Day" ball cap!

    Infusion center provided ice chips and toasty warm blankets. My big issue with AC was not the chemo, but the bone pain from the Neulasta shot. I finally realized that Claritin was not working for me and I switched to Zyrtec. Big improvement!

    As comforting as a snugly puppy is, I was told to not let my dogs sleep with me; and don't let them lick me. So many rules.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited April 2015

    Nobody told me Spookie couldn't snuggle with me? She was ok anyway. And we adopted Kris from a rescue while I was doing chemo. Other than snitching my coffee, he was ok too. image

  • susan3
    susan3 Member Posts: 3,728
    edited April 2015

    Rachael welsh web site has great wigs. That is where I have gotten all,mine. I personally don't like wigs, I am a hat person. I get so many compliments when I do where them. To order , here is what you needs om know, ask your hairdresser if you don't know.....length at crown length for back and maybe sides, and hair color by number.....5,6,7,8 etc. they also have combos of colors. Mine have low and highlights in them . For wigs, reasonable pric

  • ruthbru
    ruthbru Member Posts: 57,235
    edited April 2015

    I went to a salon that specialized in products for people with hair loss (cancer patients, people with Alopecia etc.). The owner is a beautician who is a breast cancer survivor and feels like it is her mission. So it turned out to be a great experience. She fitted me with such a gorgeous wig that nobody knew I didn't have hair unless I told them (in fact, I got way more compliments on my 'hair' than I ever did before or since). If you get a good, custom wig they will fit like hair, and be more light weight and comfortable than if you order one from someplace. This shop had a nice assortment of scarves, turbans, hats (some with bangs so it looked like you had hair). Everyone feels differently about the wig/no wig thing, but it was really important to me physiologically to look just plain normal when I was out and about.....I didn't have the energy to deal with people asking questions or feeling sorry for me.

  • Kicks
    Kicks Member Posts: 4,131
    edited April 2015

    I definately second getting a port! Mine has never used for blood draws as I have great veins so much quicker and easier just to 'poke' for a draw. (Well - it was once but that was just because I had a draw scheduled for the same day as a flush so when she did the flush the RN just went ahead and did the draw at the same time.)

    I was not told to worry about being around any of my '4 legged babies' including the horses and my bunny. My Codestar couldn't really schnuggle with me - he would have squashed me as he was a Gordon Setter (the black and tan Scottish version of setters - Irish are red, English are 'spotted') so he was quite a big guy. But he was never more than a few inches from me at anytime. Shortly after I was DXd, Hubby lost his 'Baby Girl' (mixed breed) to cancer and had been hunting for a hound with no luck. The day before my UMX, I had stopped at the Humane Society and low and behold there was a black and tan hound. When I was in my room after surgery, I sent him (and Son) to see her and she came home the next day (she had to be spayed first).

    I am always cold and the Center always had 'gobs' of warmed blankets. During A/C that was fine, however during Taxol I was even colder (temp averaged between 95 and 96 but was down to 94 at times). For Taxol, I had one of the glassed in cubicles (with hospital bed because the IV benadryl would send me 'nighty night' within seconds of it being infused - would wake up as if nothing had happened 20 min before end of Taxol). The glassed in cubicles each had their own thermostats so they cranked up the heat for me and still piled on warmed blankets. (I never did the 'ice' and had no issues that it supposedly prevents. We are all different.)



  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited April 2015

    Gordon's are so elegant, well, they all are. Don't see many around here!

  • Kicks
    Kicks Member Posts: 4,131
    edited April 2015

    Gordons are not common but I love them. Cody/Codestar was my 4th. He was actually a Humane Society surrender that was a 'Pet of the Week' in the paper. I did not see it but Son did. My OT greyhound (I got her from her race owner the night after ahe ran her last race) was not going to make it much longer and I had said I wanted a Gordon again. So when Son saw Code in the paper he called me. We went out and Code came home and I had him for another 10+ yrs. (Yes he was registered and his papers were surrendered with him and I did meet his original owner.). What was really sad to me was that when I picked him up it was a Wed afternoon and the Humane Society says you have to go to a free Vet for check - Wed afternoon it is very hard to find a Vet for non emergency. The only Vet I could get him into told me to take him back - he would be dead soon from respritory infections and would kill our other dogs. Wrong - I did call an old Vet friend and he told me what to get livestock meds to use for him and not worry. He lived another 10+ yrs.and non of the other dogs had any issues at all.

    I just though of something someone told their 2 legged kids - Cody was a 'long haired Rott'. Well - he was black and tan and long haired so ignorance to reign at times.


  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited April 2015

    Confuse those elegant lines, that prance, and call him a long hair Rottie? Ain't no cure for stupid!!!!!

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    SweetHope

    You made my day with the warm blankets! As for the Claritan did you use it when you got the pain or did you use it 1 day prior, day of and day after as my doctor told me to do. I really dont want to take it 3 days but if I have to its better thank the pain. My friend told me her DH took it on the day of and it helped. I know we are all different.....How long did you pain last?

    Forgot to ask my MO if the Neulasta is only during AC or for the TCH also.

    As for my puppy she is only 4.5 months old and still in the puppy biting stage so I have to keep her off the bed.

    (((hugs)))

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    SpookiesMom

    Spookie is a cutie!!!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2015

    anew - You can start the Claritin as little as an hour prior to the injection, but should continue it for at least a couple of days. You will know after the injection whether you experience bone pain (I only had it mildly, only needed Tylenol) or not.  Whether you continue needing Neulasta after the AC portion will be dependent on your white count/neutrophil count after you make the switch to the subsequent regimen.

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Kicks

    Animal love here too. Lost my maltese 2 cancer and got yorkie pup 3 days before dx. I dont know if I would have gotten her had I known because she is alot of work being a pup and also being a yorkie she is FULL of energy. I hope I can keep up with her. If ever I was sick my maltese would lay on my stomach 24/7. It was so comforting but this little is too full of pepper and just wants to play....

    I sometimes take 2 Benadryl to sleep but it does nothing for me. MO prescribed Adivan, said it would help me sleep, help with the anxiety and also make me "forget" I was nauseous ?? I wonder if that really works that way. Love the story about Code.

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Special K

    Thanks for the heads up! I do have a high tolerance for pain so maybe Tylenol will work. After MX other than what they gave me in the hospital I never took anything for pain. I am learning so much here as I notice I forgot to ask MO so many questions even though I write them down. Duh!


    (((hugs)))

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Spookiesmom

    I do have a port. Got it the day of MX but it hasnt been used yet. Got a cute wig yesterday. My friend took me to a place where they do alot of cancer patients. Valet parking, back door entrance if you dont want to walk through the Salon area and everyone gets a private room. Wig started out longer than my hair but they cut it so close to my style so I think I will be ok with it. I wasted money ordering 2 online and I hate them. My hairdresser cut them but I wasnt happy. I will keep one for an emergency but hope I wont have to wear it. I still have my hair so I will go back for a head shave and they will adjust the fit. Im not a big fan of hats, wish I was because they have some really cute ones.. I know its hot in Fla....stay cool

    (((hugs)))

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Ruthbru

    Im with you.......dont want pity!!

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