April 2015 Chemo Crew... Starting in April? Please join us!

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  • mamajencoz
    mamajencoz Member Posts: 52
    edited April 2015

    Sleep helped a ton. Of coarse i got up every 2 hours to go to the bathroom.  I think the nausea was more related to my head being swimmy. It would come in waves.  I ate ice chips and applesauce everytime I woke up and only took 1 anti nausea med last night.  We shall see where today goes. Thank you ladies for the 

  • lovlilynne
    lovlilynne Member Posts: 405
    edited April 2015

    Ginger - you are back on the list - sorry about that, not sure what happened. I did sort the list by date, but then I put it back. Anyway, feel free to update with your name now - I updated with first date.

    You may want to check with insurance on the self injector. I forget where I read it, but someone said that they had to have the shot at the hospital or the insurance co. wouldn't cover it (and it's very expensive).

    I think we are all done this week for starters - a bunch more next week.

    I cannot believe how little the MOs said about SE yesterday - they hit the big ones, but didn't mention constipation, diarrhea, acid reflux, sleeplessness, mouth sores, headaches, or bone pain. I am definitely going to ask more questions about SE tomorrow.

    Lynne

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    Hi all, I am new to the group. I actually started my first chemo on March 6 (TC x 4). But just before my 2nd chemo session, I had a panic attack and decided to change to a more aggressive treatment (which was also on the table when I was making the decision). Now I am doing dose-dense AC-T (4 biweekly AC and 4 biweekly Taxol). My first AC was on April 1, so I consider myself starting in April :)

    Compared with TC, AC is a lot harder. I almost didn't feel anything with TC, just a bit tired and short of breath for 2-3 days and that was it. But with AC, I started feeling it right away. I was really nauseous and sleepy for 3-4 days. Now it's been a week, the nausea is much better but I still have a poor appetite. I am already dreading my second AC next week.

    Good luck to us all with getting through the chemo!

    -- Lemonade

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2015

    Mamajencoz, I set my phone alarm to remind me to take my nausea meds for the first 5 days. It worked. It is important to stay ahead of the nausea. I hope you feel good over the next few days. Make sure you are taking Claritan now and over the next few days to help with the Neulasta pain. Keep us posted on how you are feeling.

    Lynne, The Neulasta varies by insurance company. I know my doctor did look into it for me and it was covered for me to do my own injection. Since I do them all the time at work, they just send it home with me to save me a trip in.

    Lemonade, welcome to the April group! What day do you go for your second AC/ My second one is next Tuesday.

    How is everyone else feeling this week? Who else heads to the chemo bar this week?

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    Hi Karen, I am doing my 2nd AC next Wednesday, so one day after you. Are you doing the dose-dense (every two weeks) AC as well? And are you doing the biweekly or weekly Taxol?

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    Hi mamajencoz , hope you feel better already. I also slept a lot after my AC. I started to feel better on day 4.

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2015

    Lemonade, I am doign dose dense, every other week. I will then do weekly Taxol.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2015

    Oh boy....heading to the chemo chair tomorrow for my first dose of AC....any advice on what to do before hand?


  • Rockerwife
    Rockerwife Member Posts: 63
    edited April 2015

    Had my first TC yesterday, April 7th. Doing okay so far. Keeping on top of nausea by taking of zofran on time. Last day of steroids is today. I have always had a little acid reflux and that is acting up so I am taking Zantac. Also taking a probiotic to keep my gut in order. Oh yea, I took miralax the night before chemo and the night of. So far still constipated from Zofran. I am keeping a journal and wrote down a lot of notes. It was a long process yesterday.

  • mamajencoz
    mamajencoz Member Posts: 52
    edited April 2015

    Littleblue.. i just had mine yesterday so i am  not an expert by any means. It wasn't as bad as I thought it was going to be.  drink alot before  you go. Just don't over hydrate! I took cheerios to munch on during. The place I go issuper nice.  They had warm blankets and snacks. Tv with dvd player.  I met everyone from my nurses to the pharmacist to financial counseler and regular counseler. It went fairly fast.  I pray everything goes good for you! Keep us posted

  • Karen30
    Karen30 Member Posts: 135
    edited April 2015

    hi there-

    I am going to be doing the 2 weekly AC x 4 and then weekly taxol x12 - just about to check in for port placement - I still can't believe I am here - it's almost surreal . So glad to have found you all to do this with- it's a scary places on R on your own

  • lovlilynne
    lovlilynne Member Posts: 405
    edited April 2015

    Interesting to see the Taxol weekly - I did not hear MO say that, but I might have missed that detail or just assumed every 2 weeks for everything. I'll have to ask local MO tomorrow.

  • mamajencoz
    mamajencoz Member Posts: 52
    edited April 2015

    After 4 AC (every two weeks) i wil do 12 weekly taxol too plus herceptin . Then after taxol over , herceptin every 3 weeks for the rest of the year

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2015

    littleblueflowers, I went for a long walk. And like others said, hydrate, hydrate. Also, bring ice or popsicles to suck on during AC. And, if there is extra fluid in the IV bag at the end, have them run it in. It's worth staying the extra few minutes. It's an easy way to get fluids. Make sure you get Emend as part of the premeds. None of the other antinausea meds work as well for AC. I had both Emend and Aloxi, and they did hte trick nicely!

  • GingerChi
    GingerChi Member Posts: 252
    edited April 2015

    mamajen, so glad you're feeling better today!! I'm scheduled for the exact same treatments you are, I start 4/13.

    Karen, hope all goes well with your part placement!! I had mine this morning and so far so good. I'm woozy and My neck is sore but not terribly so. I know just what you mean about ths being surreal...iit still hasn't totally sunk in for me either.....

    Good luck to you today as well Allison, let us know how it went!!

    Rockerwife, so glad you are doing well so far!!

    Thanks Lynne and KB for the info...I'll be sure to check my insurance coverage on the injector!!




  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2015

    Thanks for the info, everyone! I'm gonna make a note to ask for emend for nausea. And I'll drink some magnesium calm tonight....that might help premedicate for constipation... I get my port in the same day, so the whole song and dance about no food or drink after midnight tonight. Ugh. Guess I'll slam water as soon as that is done and hope the iv fluids take care of the rest. Does anyone do juicing here? My sister just gave me a juicer....thought it might be a good way to load nutrients on a messed up tummy. I kind of want to shave my head tonight just to get it over....for some reason losing my hair is really messing with me. Kbee, you are my inspiration for that cause you look so badass! Mamajen, cheerios sound like a perfect snack! Hope everyone is doing OK today! Thanks!

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2015

    Hoping all goes well for you LBF (littleblueflowers)! I had my port the same day too. I asked for as little sedation as possible to minimize the drugs in my system, and they complied. I am not freaked out at all by medical procedures though. When I was done, I went outside for a short walk because it was a sunny day. Then I headed up to chemo. I am a worrier and know I would have stressed every day worrying about when my hair would fall out; that's why I shaved it ahead of time both times. It did mean 2 less weeks of hair, but for me, it also meant 2 weeks of not worrying about it, and that is worth more than hair for an extra 2 weeks! It also gave me something to have control over. Hoping all goes as smoothly fro you as it did for me.


    Today I went for my normal 3 mile walk...and then I ran for 1.5 miles. It was my first run since starting chemo. It felt good. I know I may not have many more as my counts fall, but it still felt good. Do realize that I use the term run loosely these days. If my body moves faster than a walk, it is considered a run.

  • ankledolphin
    ankledolphin Member Posts: 99
    edited April 2015

    is anyone experiencing lower back pains?

    just wonderig if it really is my mattress that is causing so much pain. i also think i have a cold as does everyone else i the house!

    i think i have been in major denial over all of this since i stayed home from work today... i really thought i could handle sitting at my desk and with the pain and the overall feeling like i was hit by a semi is making me feel so useless even at home...

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2015

    That is the Taxotere. I had that when I was on Taxotere last time. From days 3-5, I felt like I had back labor. I took Ibuprofen and it helped somewhat. I hope it goes away soon.

  • mamajencoz
    mamajencoz Member Posts: 52
    edited April 2015

    image

    So i just got back from the day after shot. Apparently i have steroid rash. Nice sunburn look.  Yuck. doesn't itch or hurt just feels warm to the touch. The things they don't tell you . 
  • Karen30
    Karen30 Member Posts: 135
    edited April 2015

    port in and it's a little uncomfortable but not terrible- had consult with wig man- so in May 1 st - before shedding startshe will shave my head in the morning, I will have chemo mid day and on my way home I will pick up my wig made with my very own hair- style will be the same as it is now - i know people say they are itchy etc but apparently this wig maker is awesome and woman have been really happy - we will see!

  • Rockerwife
    Rockerwife Member Posts: 63
    edited April 2015

    Littleblue I have a vitamix and drank a protein shake a few hours before my first chemo and drank about 4 cups of water. I was so hydrated and I know that helped. So with all that fluid including the saline, I had to take my IV cart to the bathroom about four times during my session. I was trying to keep my sense of humor and asked other patients if they wanted to race. It lightened the mood and some laughed and others didn't get it. I went for an hour walk with my Sis today and that felt good. Like KBee said fatigue will come in play and I want to do what I can before I go down. I was working out 5 days a week before all this cancer fun. I will get back there in a few a months

  • Stephmoen
    Stephmoen Member Posts: 563
    edited April 2015

    Hello I was diagnosed with Idc march 17th after being told by my gynecologist it 2.5 months earlier that it was just a cyst and I'm too young for cancer still makes me upset! I'm 29 with a 5 year old and 1 year old my mom was diagnosed with bc in situ last February had lumpectomy and radiation and doing great now. I was not so lucky my cancer is grade 3 and her 2 positive so chemo is first for me. I have my chemo teach tomorrow and I had my port inserted today as well as a pet scan it was not a fun day at all! I'm surprised some of you are getting chemo the same day as your port I was told I have to wait at least 5 days because it's too sensitive. Anyways I will be receiving tch with perjeta I am very anxious about my pet scan results my drs think I'm stage 1 but I need to know for sure. For now I have been taking a half a Xanax at night to help me sleep from all the anxiety (my grandma have it to me it helps her get through those grueling detroit lions football games)..reading everybody else's comments on here makes me feel not so alone I will be back often on my chemo journey for the next 4.5 months

  • lovlilynne
    lovlilynne Member Posts: 405
    edited April 2015

    Welcome Lemonade and Stephmoen - I have a list of all of us - only if you want to share, here: https://docs.google.com/spreadsheets/d/1Goesf6x_13...

    Do any of you know what the steriods do? I have read some people taking them orally before chemo, some getting them infused?

    Lynne

  • SpriteB
    SpriteB Member Posts: 49
    edited April 2015

    Stephmoen - sorry you have to be here but glad you found us. I was diagnosed at age 37 with IDC, grade 3, her2+ in February. My Obgyn is actually the one that felt the lump and thankfully agreed to send me to have a mammogram and ultrasound. I can tell you that this testing and waiting part is beyond stressful. I had to have a CT and bone scan because they thought I may have mets in my clavicle but it ended up being an old injury. I too started taking xanax and it did help on those days when I couldn't shake the anxiety. I haven't needed it as much lately, thankfully. Keep coming back here. These boards are full of wonderful supportive people.

    Lynne - I orally take dexamethasone the day before, day of and day after chemo. I was told it was to help lessen the chance of allergic reaction. I also think it helps with pain because it decreases inflammation. They only Meds I got at the Office on infusion day were my chemo and aloxi for nasuea and orally they gave me Tylenol and benedryl.

  • lovlilynne
    lovlilynne Member Posts: 405
    edited April 2015

    Thanks Stephanie

  • jat017
    jat017 Member Posts: 4
    edited April 2015

    Update on my first day:

    Went to the gym at 545a, entered the center at 720 with my son. They accessed my port without any problems and I did not feel anything (I was worried about not having the Emla but no issues). Met with the team to review blood work and some last minute instructions. Went to the chemo room. My nurse started the emend and I had oral decadron and zofran. Then she pushed the adriamycin while I chewed on some ice. She was really great at engaging me in conversation to distract me from what was happening. Then she hung the cytoxan infusion. Again, no issues. I was done and out the door by noon. Ate PHO soup for lunch. I figured if its good for a hangover, It might be good for chemo SE. Walked a little in the neighborhood this evening. Then watched a couple of movies with my son.

    Neulasta tomorrow. I've been taking the claritin for the past couple of days.

    Upped my fiber, kept well hydrated and ate small meals all day. Hope I can manage any constipation. I plan to go to the gym and to work tomorrow barring any acute issues tonight.

    I was really worried about this day, not being physically able to handle it and to be emotionally a wreck. I hope the upcoming days will be as easy peazy as today was but might be a little too rainbows and unicorns for me.

    So today's quote for me at least is from a movie I have seen with my kids at least 30 times:

    Dr. Peter Venkman: We came, we saw, we kicked its ass.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2015

    Cry havoc and loose the dogs of war! Shakespear, julius Cesar. That's how I'm trying to picture chemo now....my war dogs sniffing out the enemy wherever it hides...

  • ksusan
    ksusan Member Posts: 4,505
    edited April 2015

    Greetings all. I had my first of 4 TC infusions last week. Not too bad, though I'm happy work is flexible.

  • lemonadehk
    lemonadehk Member Posts: 106
    edited April 2015

    Hi Lynn, thank you for sharing the list. As for the steroids, they are for potential allergic reactions. Taxotere can cause severe allergic reactions, that's why patients need to take steroids for TC regimen. For AC-T, it's not necessary to take steroids.

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