Young mom scared

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  • SugarCakes
    SugarCakes Member Posts: 353
    edited April 2015

    Alibeths, may I asked how you found the recurrence in your lymph nodes?

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  • clarrn
    clarrn Member Posts: 557
    edited April 2015

    I only had 3 lymph nodes removed and still got lymphedema during chemo when I definitely wasn't up to doing anything high risk. Sometimes you are just unlucky :) There are no guarantees with this disease. But I can guarantee love and support from friends and family so I count myself extremely lucky.

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  • kristylk88
    kristylk88 Member Posts: 1
    edited April 2015

    Hi, I'm new here. I am 40 years old and have a great husband and 3 children, 8,5,&3. I went for first screening mammogram because of my age. I didn't feel any lumps. Long story short was diagnosed in February with IDC and DCIS in my left breast. Both < 1 cm but far away from each other so they recommended mastectomy. On 3/27 I had a double mastectomy with expanders placed. I meet with plastics tomorrow for a follow up and maybe get some of these drains out. Then meeting with onocologist next week to talk chemo. I'm triple positive. (er + pr+ her2 +) I'm happy I found this site. It helps to hear everyone's story and struggles. Thanks ladies!

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  • MombieZombie
    MombieZombie Member Posts: 509
    edited April 2015

    kristy--I'm sorry you have to be here, but we welcome you.

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  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    I felt a little lump in my armpit while putting on deod! My MO thought it was nothing but thankfully, didn't dismiss it...Honestly, as angry as i am, i am thankful i found it. Going for a 2nd opinion today, regarding treatment. : )

    Hope everyone has a good day. Has anyone here used cold caps?

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  • msphil
    msphil Member Posts: 1,536
    edited April 2015

    hello honey, i was young back when diagnosed, 42, and in process of marrying the man ofmy dreams, the one i prayed for my second husband, we were making wedding plans, when i found the lump, had my cry and was also scared of the unknown, come here sweetie, for questions and support we are here for you, once treatment plan in plce, things will get better. For Inspiration i am a 21 yr Survivor(Praise GOD), hang in there. msphil(idc, stage 2, 0/3 nodes, L mast, chemo and rads and 5 yrs on tamoxifen)

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  • Michelle42
    Michelle42 Member Posts: 8
    edited April 2015

    LillieRose, you can do this!! I was diagnosed last July and finished chemo in nov, 2014 then had my mastectomy in dec, 2014. I'm doing great and you will too. The key for me was finding the right mix of meds to combat those chemo side effects. I would get up and take my anti reflux, anti nausea, anti diarrhea, ect.. And then was able to go to work and take care of my kids and live life. I hope you do as well.. stay positive

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  • bgum
    bgum Member Posts: 13
    edited April 2015

    @alibeths did your underarm lump hurt? I had multiple painful underarm lumps during treatment that would come and go. Almost like sore little pimples--on the right side where I had lymph node involvement. My dr seemed to dismiss me about them, because they came and went. After neoadjuvant chemo, I still had 2/7 nodes involved--though they did shrink some. I'm just afraid there are still nodes in there affected. Ugh.

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  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    it did hurt. 😊 if you have lymph node involvement they will probably just remove them all

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  • bgum
    bgum Member Posts: 13
    edited April 2015

    Did the lump come and go or stay constant. After chemo, I had two nodes. (But, my MRIs always showed 2 nodes. They got smaller with chemo, just not all gone). But, throughout treatment, I would get sporadic red-sore nodules under my arm that would last for a few days. I'm worried cancer cells were breaking away from my nodes, causing the sore bumps. And, now, that they're just trolling around in my body looking for a place to land. I didn't have a PCR. So, I just feel like a recurrance is inevitable. :(

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  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    Whats a pcr?

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  • bgum
    bgum Member Posts: 13
    edited April 2015

    A complete response. :) I may have gotten the initials wrong. There are so many acronyms. Haha. My breast tumor only had 10% cellularity. Which, my doctors were pretty pleased about. But, I still had 2 nodes. They did shrink in half. But, I was hoping they'd be gone. So, now of course I'm freaked out. Sorry to take over this thread. I was just curious about your underarm lump and what I should be looking for

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  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    I am sure your fine...Its so awful to worry, but i think it is impossible not to! : )

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  • JenJenJen
    JenJenJen Member Posts: 39
    edited April 2015

    Hi LillieRose,

    I am in the same boat as you. I am 35 and just diagnosed 2 weeks ago. I have a 5yo and a 4yo and also really scared as well. I worry about who's going to take care of them. For the first week after diagnosis, I was very depressed, crying a lot and worried about how soon my death will come. Now after doing some research and finding this site, I am more optimistic that I can fight this cancer! Definitely hearing these stories of all these ladies has given me much hope! Thank you strong ladies!

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  • MombieZombie
    MombieZombie Member Posts: 509
    edited April 2015

    JenJenJen--Welcome. Sorry for what you are going through. Glad you are finding a little peace here. I hug my kids everyday and sometimes still worry about the future, but there is a lot of hope here. Keep that optimism you've found and fight, fight, fight!

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  • Honeytagh
    Honeytagh Member Posts: 483
    edited April 2015

    Hi every body

    Ali I m happy to hear from you again. You're always in my thoughts and prayers.

    LillieRose and JenJenJen

    I was in the same boat as you as I was diagnosed at 32, but now after finishing all my treatment every thing looks great and I enjoy my life more and more. Although I have my fears from time to time but I think this disease has given me some rewards that I could not receive otherwise. Even I think after passing the hard treatment days l am much happier than before and try to live my life to the fullest while being extremely happy with my new hair growth. At the clinic that I go for my checkups I have seen some survivors of many years living happily witnessing their children growing. Though we are all new and young I hope all of us will be inspirations in many years for all the new patients.


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  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    Jenjenjen: I am so glad you found this site and I hope you will find some comfort here.

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  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    Where is Everyone from? I'm 37 from south florida

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  • MombieZombie
    MombieZombie Member Posts: 509
    edited April 2015

    43, from Northwest Washington--I live out in the sticks on a oak woodland prairie, near a large creek. Lots of green.

    Ali--are you in city or suburb, or...? what's it like?

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  • Lmonelli
    Lmonelli Member Posts: 95
    edited April 2015

    Alibeths. I'm from south fl also.

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  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    I live in parkland, FL. It's a suburb. But close to the beach!!! Lmonelli, where d0you go for treatment?

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  • JenJenJen
    JenJenJen Member Posts: 39
    edited April 2015

    Thank you ladies for your support! I'm from the bay area, CA (San Francisco area)

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  • Honeytagh
    Honeytagh Member Posts: 483
    edited April 2015

    Hi everybody

    I'm from Tehran, Iran . I m a young mother of a 9yo daughter sharing the same disease and the same emotions. Wish all of you long happy lives.

    Hanieh

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  • BooblessBritt
    BooblessBritt Member Posts: 13
    edited April 2015

    Hi, Lillie! I'm 29 years old and was diagnosed back in October 2014. I have a 4 year old and almost 2 year old daughter. I had surgery first and then started chemo. My husband, fortunately, was here for my surgery and first type of chemo - Adriamycin/Cytoxan. That was a pretty rough dosage and I was glad to have his help. He went on deployment last month, so I'm left to take care of our girls on my own. I'm currently on 12 weekly Taxol/Carboplatin rounds that I'll finish this Thursday (Yay!). I must say that I'm pretty proud of myself. I am still working full-time, made all of my appointments, and still have managed to keep life pretty "normal" for my girls all with not too much outside help. I know I may be an exception but I've felt okay during chemo and life has just kept chugging along. I also have not been recommended to have any scans.

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  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    Wow, Boobless! Good for you.

    Hello, Hanieh.

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  • Alibeths
    Alibeths Member Posts: 656
    edited April 2015

    hey boo less!!!

    Was the carbo easier then ac

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  • Kicks
    Kicks Member Posts: 4,131
    edited April 2015

    For me - Taxol was much worse than A/C which wasn't bad at all. We are all difcerent and no way of predicting what our individual experiences will be based on what some else experienced.

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  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    Kicks: Was your Taxol biweekly or weekly?

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  • Kicks
    Kicks Member Posts: 4,131
    edited April 2015

    I did 12 weeklyTaxol. I was given 3 options. The one that was suggested by my Dr and the Teams at 3 Facilities he was on Staff at was 12 weekly Taxol. DD Taxol was one of the other and don't remember the other option. I didn't give it second thought - go with what was suggested as best option for me. I will never regret my choice as it was right for me. Weekly keeps the level more consistent. However, I do wonder a bit if I had done DD if I might have had only 1 week of exhaustion and 1 week not so bad. I started feeling better a week after last Taxol (the day after I started rads.

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  • LillieRose
    LillieRose Member Posts: 112
    edited April 2015

    Thank you all for your responses! I'm just coming back around! It's been a ride sure...

    Turns out I am BRCA- which is Great news but I was hoping for some explanation for why a super healthy, fit, 30 year old gets Triple Negative cancer...in the end I guess it doesn't matter because I have it but something to "blame " would be nice!

    I got into a trial for TNBC they are testing Cisplaitin and the 12 weekly Taxol. I got the Taxol.. Started last week... Of course 6 mins in I had a major allergic reaction.. I literally thought I was having a stroke :( they brought me back fast tho and I was able to make it through treatment... Ever since I've been having head issues tho... Things will be fine and then they get fuzzy or I get dizzy.. Then last night I had the worst headache of my life! Felt like it would explode... Now I'm terrified of having more chemo tomorrow...

    Plus I'm nervous about only getting the 12 weekly Taxols before surgery (I'll get AC and rad after). I know that I'm at Dana Farber and they know what they are doing but I'm scared. I mean you can't make a wrong decision when it comes to your life. The standard treatment would have been the AC 4x and then Taxol 4x dense dose... Part of me wanted to just do it but then my doctor said she was "giving me tomorrow's treatment today". It is so hard to just do what they say... I hate even leaving the cancer in my body! I was it out but they say chemo first... Ugh I hate this... :( I miss just relaxing with my baby... Now all I think about is cancer.. I cannot turn it off...

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