Starting Chemo March 2015

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  • ninjamary
    ninjamary Member Posts: 306
    edited April 2015

    katy,

    I like the one at 3:43. It's what the clock says!


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  • shaz101
    shaz101 Member Posts: 718
    edited April 2015

    Katy, big hugs to you. I'm sorry you've have a rough time. I wish I knew what to say that could lift your spirits. Just know that you mean a huge amount to me and I'm sure many others on here. 

    Bekah, I'm so glad people were watching out for you and they got you safely home. It shows how much everyone loves you. 

    Theresa, family can hurt the most when they are so in there own head that they don't consider others. 

    I've had 1 more migraine since I was on here last. But other than that I'm good! I even managed to have lunch and a bit of shopping with a friend.

    Sending healing thoughts to you all xxx


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  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    #3

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  • Italychick
    Italychick Member Posts: 2,343
    edited April 2015

    The blonde one, hands down. Throw the grey one in the fire, who wants to be gray? I don't. The dark one is okay, but I think the blonde one frames your face in a very attractive way.

    Oh, did I say burn the grey one yet? Lol! I'm gonna be an old Sicilian woman (hopefully) with my hair dyed until my last day.

    The color they put on your cheeks is nice too, and they did something with your eyes that looks good. It's the eyeliner I think.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    Thanks Theresa!

    I actually look like my mother in the grey. It was an interesting experiment.

    Blonde seems to be the winner.

    I did the makeup myself hahaha! Just a bit of coaching. I never used to wear makeup much, just a little mascara. But this was fun and maybe will give me more options on the next blue day.

    But for now.....officially snapped out of it.thanks everyone for being there for me.

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  • shaz101
    shaz101 Member Posts: 718
    edited April 2015

    I like the 3rd one. I'm glad they all fussed around you in a nice way. 

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  • shaz101
    shaz101 Member Posts: 718
    edited April 2015

    Its interesting about hair colour. I was starting to get grey through my hair and I'd started dying I occasionally. But now I worry about the chemicals and I'm thinking of just letting it be whatever colour it is when it grows back (although I may change my mind when I see it) does anyone else think like that?

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  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    It crossed my mind for about a second. My hair is kind of a warm light brown with grey. Not enough grey to look nice. I put blonde highlights and lowlights so it does't go too blonde.

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  • Italychick
    Italychick Member Posts: 2,343
    edited April 2015

    Katy, I hope I didn't offend you about the gray wig. But you totally rock the blonde and look way younger and more vibrant in that wig. I bought three wigs, and only one of them ever gets worn because it is the one that I feel the best in.

    Shaz, I'm gonna dye my hair until the last day of my life (or senility, whichever occurs first). I use the least toxic hair dyes I can, but I'm gonna be dying it! When it gets gray and I can't do dark colors anymore, I'm gonna do blonde.

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  • ninjamary
    ninjamary Member Posts: 306
    edited April 2015

    Shaz,

    when my hair comes in I'm not coloring it or anything. It will come in dark brown and gray. My stylist said that a lot of young girls are experimenting with gray hair. They have so many toners now that it can be "cool" and not so old lady looking. Down the line...I'll probably go back to my original color though. I look washed out in blondish hair so gray might not work in the long run.

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  • Karen30
    Karen30 Member Posts: 135
    edited April 2015

    no I am having the port put in this week Wednesday and then chemo next Friday - I'm also having 4 of the AC but spread out at 2 week intervals - did your SEs begin immediately? What about your hair any thinning yet

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    Theresa- of course you didn't offend me. Silly goose.

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  • eheinrich
    eheinrich Member Posts: 792
    edited April 2015

    Katy, I vote for the 3rd one, although they all look good.

    Trvler: It's not our job to make other people comfortable. If it bothers someone that you are bald then they are not people you should worry about making feel uncomfortable, they just suck. Today is my first bald day, so I may change my mind, but so far the hats that I've tried on scream cancer just as much as my head. I've been rocking the one boob thing, I may just wind up doing the same w/ my bald head.

    This is what I did today. One of my best friends is also my hairstylist. We spent about an hour making crazy haircuts along w/ pizza and some white wine.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    Welcome Karen! You will probably be a little sore from the port for awhile. If you can, get your mo office to call in for the emla cream. You put it on at home an hour before you go to chemo. Put regular Saran or press n seal over it. Then also ask them to spray the freezing stuff on it. that will help.

    Nobody can predict the when's or even the which's of any SEs. We all seem to be different. Try to remain as calm as you can but it's perfectly normal to be scared. Terrified even. But we have all waded in now. You can do this. We will be here to help and you will get close with your sisters in the April group too. But you're welcome to come back and slum in the cheap seats whenever you like. Sending a big hug your way.

    E- way to go GF !!! Pizza and wine with a friend. Sounds very healing. And I realize the farther I get into this, I really don't care if someone else is uncomfortable with my head. I've been pretty unfudgingcomfortable for about 120 days now, between sticks, pokes, tests, waiting for tests, being afraid to die, not to mention an amputation. I think my uncomfortableness trumps theirs in their most wild imagination. So, not to put too fine a point on it, screw'em

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  • eheinrich
    eheinrich Member Posts: 792
    edited April 2015

    Hmmm....my pic didn't post first time - there we go!

    image

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    Awesome pic! Looking for the telltale evidence of wine glasses.......

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  • DavisD
    DavisD Member Posts: 338
    edited April 2015

    Katy-I like number 3. You look good in all of them but that one looks most natural. I'm so glad you went to the class and are feeling some better. The nearest one to me is over an hour away toward the city but they're trying to get one closer. I've only heard good things from those who attended.

    Theresa-So weird. Just got back from our dinner out the night before chemo and I said how I didn't like to make people uncomfortable. I went to work with my do rag thing on today.  My daughter said "I think you should rock that bald head, who cares if they're uncomfortable." I did feel eyes averting mine on the elevator. I felt kind of like something between a cleaning lady and a cancer patient..ha.

    Sharon-Glad your migraines are less frequent and that you finally got to enjoy some time out.

    Tomorrow is round 2 and my stomach is in knots but I'm glad to just get this show on the road. Sooner I get this done, the sooner I can get on with my life. My daughter is taking me and my son is going to meet us there for a little while. Chemo bag packed let's do this!

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  • eheinrich
    eheinrich Member Posts: 792
    edited April 2015

    Katy, the evidence is in the mohawk!

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    GO FOR IT DIANE!!!!!!

    People always avert eyes on elevators anyway.

    I will be with you in spirit tomorrow. All day.

    Glad you have company coming and a well stocked chemo bag. You have got this!

    Enormous hug.

    K

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    E- oh yessss! Lmao.

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  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited April 2015

    Tyler.

    KEEP GOING! Put a scarf on and go! Who gives a crap whether you have hair or not!

    Lynn


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  • eheinrich
    eheinrich Member Posts: 792
    edited April 2015

    I decided to put my money where my mouth is and took my bald head on a walk to the grocery store. Felt sort of liberating (yet chilly - didn't realize what an insulator hair is!).

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  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited April 2015

    Jackie,

    Oh, my gosh.You look so pretty! I like them all, but vote for the dark one in picture 2! I will definitely do this when I get to that point. Did you just call the ACS to find out about this?

    And,,,,the reason I know I am having chemo....before surgery (this Friday), is because my surgeon had a Mammoprint test done on my biopsy tissue and it came back high. Mammoprint is the "new" test that looks at 70 genes - many more than Octotype. It comes back high or low. High is chemo. :(

    Being on this site is very helpful. I guess I will be on the April or May chemo page too.

    Lynn

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    Lynn- thanks!

    I heard first about the LGFB program here on this site. I assumed my urban area was too small to support one but then i saw a poster at the MO office. I think you can just type in look good feel better and there will be an engine to search on zip. It's free, you just have to sign up so they have enough product in the right skin tones.

    Surgery this Friday? Gulp. How did I miss that! Do you have everything ready for that? It's as much work as a chemo bag!

    I will be thinking of you. Your bs sounds like he/she is on the ball. The mammaprint is the latest. I didn't get my oncotype done till about 60 days post surgery. Doing it proactively from the biopsy would save time.

    Check in when you can.

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  • Italychick
    Italychick Member Posts: 2,343
    edited April 2015

    Diane, don't forget to ice your mouth! Sending good thoughts your way for chemo no. 2! How many rounds are you doing? My oncologist wants me to try for six - ugh. But with negative receptors, I guess it is all I've got.

    Eheinrich, rock the bald! I saw a woman today walking with her sides shaved off and only hair on the top of her head, kind of like a punk kind of haircut, so if she can do it, we can too. And love the Mohawk picture.

    Lynn, good luck with your surgery. Are you doing a lumpectomy or mastectomy?

    Just got home from a bike ride, kind of whipped my butt tonight. But hubby is cooking dinner, love him!

    Katy, I really think they eye liner on you looks great, you look sexy and mysterious with it on. I'm sure I will be doing lots of eyeliner because if I can manage six rounds, the oncologist told me my eyebrows and eyelashes will probably both go. I thought about trying the Latisse stuff, but was told it can make brown areas around your eyes. That would not be attractive at all.

    Does everybody still have hair over a week out from round 2? I have quite a bit left, and I thought I would be totally bald by now. Kind of like ugly ducking hair. Blows in the wind and tickles.

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  • DavisD
    DavisD Member Posts: 338
    edited April 2015

    Thanks Theresa, I did forget about icing my mouth! I'm also going to try the coconut oil on my gums, tongue and everywhere this time. I hate losing my taste buds again. Just starting to like food this week. I'm supposed to have six rounds three weeks apart so yeah, it is going to be a long summer. I hope I can tolerate it. Can't let those HER2 cells have a chance to take over somewhere else.  I looked at my path report and only 5% was ER, and PR was 20% so that leaves the rest HER2 positive but I'm not going to dwell on it. Thanks for the show of support and I think you are strong and will be able to get through anything! Enjoy your evening with hubby.

    Have a great day on Tuesday all. I'll check in on Wed most likely.

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  • eheinrich
    eheinrich Member Posts: 792
    edited April 2015

    Theresa, I guess it depends on which cocktail you get in terms of hair-loss. Mine started 12 days out of round one. Today - 2 weeks out I still had hair, but patchy and thin.

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  • Meme117
    Meme117 Member Posts: 194
    edited April 2015

    Katy hugs to u!! And I love the blond wig also, you look like a tv star but I can't remember her name. Thanks for reminding me about the makeup class I need to look into it.

    Had my bw today, all good which ones are the baby whites as my report does not list anything as such? Do you have your bw taken from your arm or port? My mo office said they only use the port on chemo days which I think is ridiculous.

    I don't think I'll be able to do the bald thing, I'm so proud of all of you who do!! I had my haircut very short on Friday, awesome cute style and today it is starting to flake out and my head is itchy. Actually I feel a bit itchy everywhere. Today is day 14 for me and not looking forward to next monday😞 my stomach still is upset after each meal and dairy is an absolute no.

    Diane best wishes for round 2 tomorrow

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  • Italychick
    Italychick Member Posts: 2,343
    edited April 2015

    meme, the baby whites may be listed as neutrophils. Mine are 12.5 after chemo 2

    I am 35 days from first chemo (have done 2 so far), and I have more hair left than I thought I would have. Kind of look like a concentration camp survivor. But I don't care anymore, if it was a hot day I think i might have to just go bald. The other day I was helping my daughter get the kids in the car and she looked at me and said "you are going outside like that?" I looked down and I had on patterned knee socks and flip flops, shorts, and no head covering. I'm so over the hair thing except at work I wear a wig. Plus if I wear a wig around my grandson he tells on me anyways. When I wear my do rag, he says grandma, are you covering your hair? And I say yes, cuz I have a haircut like you do. Kids can be so cute.

    Diane, I ate ice the whole time, and had to pee like crazy, which was probably also a good thing. A couple of times I thought can I hold myself like a little kid does, I'm not sure im gonna make it to the bathroom lol. I will be interested to see if you think icing helps since we are on a similar chemo, except,I am not getting the Perjeta because my her receptors were low, but still enough to try Herceptin.

    Have a good night all my chemo buddies. So awesome to have you all here to vent to, and share stories.

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  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited April 2015

    Katy, I vote for #3, hands down.

    BB


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