Pregnant 3 years after DCIS and DMX
Hey guys. Well, Im pregnant. As much as I want to be jumping around for joy...and I am...I am also very nervous/concerned.
So I'm looking for anyone who is or has been pregnant after DMX for DCIS. I didn't have hormonal treatment or chemo or rads - just the dmx.
Before I got pregnant i spoke with my oncologist at my last 6 month checkup and she said that pregnancy was protective against bc and it would not put me at risk for a recurrence. That was reassuring. However at my last gyno appt the doctor advised me not to get pregnant because of my bc history? I never had er testing because the oncologists at the cancer centre i went to said that they don't do er/pr testing on dcis.
i think I'm just paranoid - because like most in my situation i feel like i dodged a bullet. Praise Jesus. i know He protected me thru this.
Im just wondering if anyone else here went thru or is going thru this same situation? I am super emotional about not being able to breastfeed. This will be my third child. I breastfed both my daughters happily - and I have no idea what I'm doing with bottle feeding.
To be honest this news has made me doubly afraid. Perhaps with a 98% cure rate I am being a whiner. But recurrence is always in my thoughts each week. Sometimes its worse than others. Sometimes I don't think about it at all. But every puffy bit of skin, every ache or cramp...gets my mind thinking about cancer.
They say I have no breast tissue remaining. But "what ifs" are consuming at times. I try to eat a healthy non-inflammatory diet to help with hormone levels but sometimes when I am broke, its hard. I end up eating Mr. Noodles instead of sprouts. And then my fears return again. Its like a very sad and quiet merry go round. And now I am bringing a baby along with me.
I almost feel like getting pregnant was irresponsible of me. What if this pregnancy were to bring up a recurrence and its bad, and I bring a new baby into the world with a sick mother? I need to get a grip. Because these what ifs are consuming and sadly, I'm just not connecting with other new moms out there. So I was hoping to find some here. Someone pragmatic yet hopeful?
Comments
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Hi NanG,
Congratulations!!! What a happy news!!!
I have read on a different forum, young survival coalition, of women with different forms of invasive cancer have successful pregnancies with no recurrences. Also, there is a thread here on pregnancy (I just can't find it).
Another place you might want to post is
http://community.babycenter.com/groups/a57535/moms_with_breast_cancer
With only 2% recurrence rate you should try to enjoy this pregnancy. There is a study that states that pregnancy after bc does not increase recurrence.
Good luck and I hope you have a happy and uneventful pregnancy!!!
Hugs!!!
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Hi NanG,
First, I wanted to say congratulations! Second, I wanted to let you know that I was also pregnant after a BMX for DCIS. I was very ER+ and my doctors actually had no problem with me getting pregnant after my implant exchange, so my daughter was born 16 or so months after I was diagnosed. While I was preganant I was worried at times if my beng pregnant would cause a recurrence but all of my doctors said that I really had little to worry about because I had good margins and so little tissue left. While I didn't have hormonal therapy since I had the bmx, I did consult an oncologist who had me get a baseline mri before I became pregnant to get a sense of where any left over tissue was in case it swelled and freaked me out. It confirmed that I had very little tissue left, which helped calm my fears. Now that I have an active toddler, I'm more concerned with my general wellness than a recurrence due to the relatively low risk.
I wish you a wonderful pregnancy and delivery!
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Hi, Nan - I remember you from 2012 when we had our BMX's. I just wanted say congratulations! Those worries never go away, but there is much to celebrate. I was still trying for a second child when I was diagnosed and now I'm too old, so I am happy for your sweet blessing. I hope you are feeling well!
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Nan- Congratulations on your new little addition! I can not answer the question regarding pregnancy after DCIS but I may be able to reassure you regarding the breast feeding/bottle feeding concerns. Three years before my DCIS I was diagnosed with peripartum cardiomyopathy after the birth of my little surprise at 40. I was quite ill and advised to stop breastfeeding at diagnosis-when my little one was 10 days old. I am a NICU nurse and had 18 years between my girls so I was really looking forward to nursing her and enjoying some time at home. I was surprised how much I missed nursing-it's not like I nursed my other daughter to two-she was five months when I stopped-but it felt like such a loss. I never thought I'd be one of those moms crying over breastfeeding but there I was! I am happy to tell you-formulas have come along way and while breastfeeding may be best for us to reduce our risk for breast cancer and for our little ones- their needs can be met very well by formula. I used Enfamil Gentlease, just one I liked from work experience but I would encourage you to ask your pediatrician what they recommend. My daughter is a very bright 4 year old and did just fine despite the lack of nursing. She is a character and blessing. I understand the loss, but if you can try not to dwell there and just love your little baby. He or she will do great and I bet your experiences will help you appreciate even more how special each day with your kids really is! Best of luck!
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oh my God thank you all so much for your replies!
<3 tonight is a rough night. I have no idea where this is going - but its another part of my journey.
Jennig - my oncologist said the same thing and i was actually booked for an MRI because i had some weird pain and itching on my scar recently. my ps said it was hypertrophic scarring and gave me an injection which took away the pain and the swelling.. but he was sending me for an MRI just to settle my spirits and be sure. the day of my MRI was the day i found out i was pregnant. so i didn't go. its now rescheduled for next year but that still always in my mind. my margins were good. first incision was positive, then the did another excision and it was negative margins so i guess that is a good thing? she was pleased (the surgeon). i don't really get what that means really for DCIS.
have2laugh - that is very encouraging. i am nervous that i am going to fail at bottle-feeding. i wanted to go with midwives but i think i might have to go with doctors and get help from nurses because i feel like they might know more about formula feeding than the midwives? people keep recommending this chest apparatus that i can hook up so my baby can suck on my nipples and feed through a tube and I'm like...ummmm...i don't have nipples...
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Hi Nan,
Congratulations on your pregnancy! I hope I can provide a little reassurance.
I had a single mx in 2010, with a 9.5cm tumor that was 100% ER+ / 100% PR+... and I have since gone on to have two children (ages 3 and 6 mo). I trust the research about pregnancy/breastfeeding being protective against BC, and otherwise am not really concerned about the act of having children leading to a new primary in my remaining breast. I will most likely be getting a prophy mx later this year, after I wean our 6 month old, out of concern for my lifetime risk of a new primary.
If you would like to have a midwife deliver your child, please don't forego that opportunity just because of bottle feeding! I would say, interview midwives carefully, explain your situation, and find out what their bottle feeding experience is, and/or whether they can connect you with resources to help (I'm assuming a home delivery here). If you deliver your baby in a hospital (even with a midwife), nurses will be caring for you and the baby thereafter and no doubt they will be able to help with bottle feeding.
Good luck, whatever you decide!
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Congratulations on your blessing! As for worries about bottle feeding, please don't! I breast fed my son and then soon after got pregnant with my daughter (so much for the old wives tale about how we don't ovulate when we are breast feeding! LOL) and for some reason, I could not make enough milk for my new baby daughter. So, I fed her Enfamil (and this was in 1980!!!!!) and today she is a healthy and very beautiful and successful Attorney! So, the formula does contain what is needed to raise a healthy baby! I imagine it is even much better today than it was then! Hugs and enjoy your new baby and don't worry about the recurrence stuff. The odds are in your favor!!
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Hello Nang
I find myself in your situation right now. My doctors tell me I shouldn’t have a baby at all or wait 2 yrs after removing my cancer. I’m sooo worried if I get pregnant again I’ll have the cancer to come back. I wanted to see what is your thoughts on this pls blc u have been in my shoes. How did everhtibg go after get pergant abd having your homrones go up and down. Have u see any cancer coming back.
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