Back pain on Herceptin

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I have been having mild back pain (worse when sitting or lying down) for several weeks and my doc scheduled an MRI for next week. I had surgery 6 weeks ago and the path report showed a complete pathologic response. I am still getting Herceptin and Perjeta every three weeks. Has anyone else had the cancer metastasize so quickly after a good response to chemo while still on Herceptin. Thanks- this is keeping me up at night.

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  • Moderators
    Moderators Member Posts: 25,912
    edited April 2015

    Hi Ddsmomm, welcome to Breastcancer.org. We hope you find it to be a place of support and helpful information! Sometimes it's slow during the weekend but we're sure you'll soon get responses from other members who can help with their own experiences and advice.

    In the article Back Pain, from the main Breastcancer.org site, you'll learn about some treatments for breast cancer that may cause back pain as well as tips for managing it. Hope this helps a bit...

    We're thinking of you and sending good vibes for your MRI results.

    The Mods


  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2015

    How fast is your Herceptin infusion?  I did not have much bone and joint pain during chemo (6 TCH) and my Herceptin was run over 90 minutes when I was receiving all three drugs together.  My first Herceptin only infusion was run over 30 minutes and I had very intense back/hip pain for days afterward.  The next infusion I asked for it to be slowed back down to 90 minutes and had no further problems.  This is not a universal truth for Herceptin - some can get it over 30 minutes and have no issues, but wanted to mention it.  Also, your hormonal receptor info is not attached to your posts, but are you taking any anti-hormonals?  They can cause joint and bone pain also.

  • Ddsmomma
    Ddsmomma Member Posts: 5
    edited April 2015

    I am getting 30 minute infusions but had no symptoms after the first two. If my MRI results come back negative and the pain continues maybe I will ask for them to slow it down. Thanks

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