PATHWAYS, LE magazine

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hugz4u
hugz4u Member Posts: 2,781
edited April 2015 in Lymphedema
PATHWAYS, LE magazine
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  • hugz4u
    hugz4u Member Posts: 2,781
    edited July 2014

    It is really nice to have it come in the mail. I almost feel like someone is listening to my LE concerns when I read it. Fantastic. Excellent news items to and research articles. I almost feel warm and cozy when I read it. If you can believe that.

    Just read thru it yesterday and they mentioned that there is a website where you can go on and find out where to donate all that LE gear you have hanging around. I would be delighted to send off my 30 or so compression tanks that didn't work out and the sleeves and gloves that I just had no heart to throw out.  

    I will provide the infor for donation. The donations go to either India or Haiti or both. Those are lands where they get LE from mosquitoes and they swell hugely. Worst of all they can't afford garments being such poor country's so this would make me happy to even pay for the shipping and send it to a great cause. 

    Curious, Who get the magazine also?

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  • glennie19
    glennie19 Member Posts: 6,398
    edited July 2014


    I haven't heard of Pathways. How did you find out about it?

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  • Marple
    Marple Member Posts: 19,143
    edited July 2014

    I too am interested in this Pathways mag.  I'll head to Google.


     

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  • hugz4u
    hugz4u Member Posts: 2,781
    edited July 2014

    I was told by my MLDist if I join our Lymphedema association in BC, Canada  I would have Pathways sent out to me. I get it 4 times a year and it is wonderful and well worth my membership to our association in BC. I believe it is a Canadian magazine.  I paid 35 dollars to join our lymphedema association, basically a yearly fee to keep it going. Their newsletter gets inserted into the pathway mag also.I imagine if you live in another area and belong to an association then you would have that newletter inserted to.  

    It is like a breath of fresh air when it comes in the mail. This issue is featuring  Lymphedema fylarsis. OOH.... I am not spelling that right. Anyway its the kind of LE from mosquito bites in third world country's. Also an  article on a personal experience of a person visiting a LE clinic in austria and gyne LE article etc. 

    They write on all subjects of LE. Primary, Cancer related, Research, Care, the works. 

    Anyone else get the mag?

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  • Kathy044
    Kathy044 Member Posts: 433
    edited July 2014

    I get it, it comes as a part of my membership to the BC Lymphedema Association, the membership fee is the same  as if I just subscribed to the magazine. A local newsletter  "Go with the Flow" is included.  I joined the BCLA a little over three years ago, just to support the cause, but was also able to attend an event that had Prof Neil Piller as the keynote speaker which was a turnaround event for in me dealing with Lymphedema.

    Glennie Pathways is produced on behalf of  the Canadian Lymphedema  Framework (CLF) , there should be a similar magazine in the USA.

    Marple check the Ontario Lymphedema webpage www.lymphontario.ca they are an affiliate to CLF, ( so are Alberta, Manitoba and Sask. associations )

    Kathy

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  • glennie19
    glennie19 Member Posts: 6,398
    edited July 2014


    I googled it.  I can get a US subscription for $50 Canadian. Not sure how much that is in US$. Sounds like it has worthwhile articles.

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  • Kathy044
    Kathy044 Member Posts: 433
    edited July 2014

    I missed seeing your reply Hugz, either that or it took me over 40 mins to do mine. I stand corrected about the membership fee.

    I learned about the BC Lymphedema Association indirectly through reading this forum. Someone, perhaps Carol or Kira posted an exercise information link to Carl Zuther's blog  (Jan 2011) and there and behold in the comment section was a request for permission to use the exercise information for the BCLA webpage, I went to the webpage to have a look and feeling this great sense of community to all involved In the Lymphedema cause I just had to join in.

    Kathy

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  • hugz4u
    hugz4u Member Posts: 2,781
    edited July 2014

    Kathy, That is what I paid at one time. I forget how much it was these year.

    Glennie, when I buy 100 USA it costs me close to 110. FYI. Your dollars is much better.

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  • Marple
    Marple Member Posts: 19,143
    edited July 2014


    Thx ladies.  It seems I remember someone mentioned Pathways before and I never followed up.  Likely it was you Hugz. 

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  • hugz4u
    hugz4u Member Posts: 2,781
    edited July 2014

    Ok. I said I would find out how to donate used garments. Turns out this is harder than I thought.

     I googled the website for more info on it but couldn't find where to donate so I have just emailed them now asking about the donation of used and new garments. I did find out that it goes to Haiti which is such a poor country and in dire need of the garments. Also the disease from the mosquitoes is called lymphatic filariasis or elephantitis and it runs rampant. They do need our garments for sure. Will get back to you when they answer me.

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  • carol57
    carol57 Member Posts: 3,567
    edited July 2014

    Thank you for such great investigative reporting, hugz!

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  • cookiegal
    cookiegal Member Posts: 3,296
    edited July 2014

    can I be the centerfold? :)

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  • hugz4u
    hugz4u Member Posts: 2,781
    edited July 2014

    cookie, funny ..but seriously they do collect experiences, tips, ideas and print them. pic too! I luvvvvvv that mag.

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  • hugz4u
    hugz4u Member Posts: 2,781
    edited July 2014

    DONATING  OUR OLD/NEW GARMENTS DUE TO AWFUL DISEASE CALLED LYMPHATIC FILARIASIS

    Compression tee/shapers/sleeves/gloves/gauntlets/leg garments 

    Ok guys, Got a reply from International Lymphedema and wound care training institute. They thank us so much for wanting to donate. Sounds excited about us donating  ILWTI.

    Here is their reply:

    "Thank you so much for your email. This is good news! Please collect any donated items which we can courier to Haiti. 

    We are so thankful to Bandages Plus for not only providing quality compression products throughout the years, but now also partnering with us in this international project. They have been so gracious to help collect items and store them for us until we are ready for a return trip .

    Just in the last few days we received grant funding and we are actually going to Leogane, Haiti next week (july 18-21) to formally open the services for Lymphedema patients in the clinic.We are so excited. If you are able to send donations by then that is great, otherwise we will take them back with us in October when we are bringing our first large clinical team as part of the international lymphedema Certificate we offer. 

    You are also always welcome to join a team to help us treat patients in Haiti, SImply sign up for October if you are interested. 

    Thank you so much, and please do share this information with your colleagues".

    Send donations to:

    BANDAGES PLUS 

    Atten: ILWTI Haiti Mission

    1701 NW 82nd Ave

    Miami, Fl 33126

    http://www.bandagesplus.com

    Ok So I am rushing off my 30 or so shapers and my used old sleeves and gloves that don't work for me. I don't care what the shipping costs. I am just glad the people of that 3rd world country can use my stuff that sits in the closet. All these years I didn't want to part with them because I thought I would get skinny and fit into them or either I just didn't want to throw them away due to cringing at the cost and waste. I feel so good doing this. 

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  • glennie19
    glennie19 Member Posts: 6,398
    edited July 2014


    Oh, this is great. I don't have very much at this point, but I do have a sleeve that was the wrong size and a compression tee that didn't work for me.  I will spread this info to some BC bloggers that I know too.

    Let's get the word out!

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  • Binney4
    Binney4 Member Posts: 8,609
    edited July 2014

    Hugz, that's just excellent! Thank you!
    Binney

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  • carol57
    carol57 Member Posts: 3,567
    edited July 2014

    Count me in!  My drawer overfloweth with compression stuff that doesn't quite work. It's great to have a good place to send it!

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  • glennie19
    glennie19 Member Posts: 6,398
    edited July 2014


    Bumping for the info about donating compression garments.  I need to pass this on later to my LE therapist.

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  • hugz4u
    hugz4u Member Posts: 2,781
    edited July 2014

    Ok, Robyn( the women that wants donated garments for the Haiti Mission ) from ILWTI (International Lymphedema Wound Training Institute)  would like anyone to give their experience on self management of LE at the Canadian Association of Wound Care Conference Oct 31/2014 in Toronto. Canada. She would like the guest to speak of personal experience as to how it has been for you to manage LE for a long time.  She said you can stay with her in her hotel room. You would have to find your own way there. 

    This is a real good opportunity and perhaps even could be self healing to share your LE journey. How about it girls? 

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  • glennie19
    glennie19 Member Posts: 6,398
    edited April 2015


    bumping

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