Starting Chemo March 2015

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  • migrantt
    migrantt Member Posts: 26
    edited April 2015

    hey all-

    i ended up back in the hospital last night. dehydration and mild allergic reaction - to either more adhesive allergies or possibly taxotere (because i missed my first pre-dose of decadron before the "surprise" chemo this week) or even better! possibly to the keflex i was taking because of last weekend's infection. overnight and fluids and my fever's down enough to go home. plus a heavy dose of milk of magnesia to open the floodgates since i've been massively constipated since tuesday.

    you guys are so inspirational- i've only had a few minutes here and there to try and catch up (spotty internet connection). i wish i could reach out to each of you and hold your hands as you go through your treatments.

    i'm going to try and get some sleep (why is it so hard to get actual rest in the hospital?). catch up more tomorrow.

    happy easter to those of you celebrating!

    xxoox

    michele

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    oh, Michele! So very sorry foranother hospital stay. I hope you are on your way out of the woods now. I will be thinking of you and look forward to hearing from you again soon. A warm hug on its way. Katy.

  • eheinrich
    eheinrich Member Posts: 792
    edited April 2015

    Bekah - how wonderful. It sounds like you and your daughter have a fabulous relationship. I'm already in a weepy place today and couldn't help but tear up.

    My hair started falling out today. I was on our boat w friends. Hair whipping about. We stopped and i pushed my hair out of my eyes and much came out in my fingers. So officially at 2pm 4/4 I started losing my hair. I wasn't expecting it to hit me so hard. I think it was a reminder that this is all real. not a fan...

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    E- so very sorry about today. There's never a good time for it. Thinking of you. Big hug.

  • DavisD
    DavisD Member Posts: 338
    edited April 2015

    Katy-i just LOVED hearing and visualizing Jack running and playing with his buddies but that pic is hilarious/cute/priceless!!

    Michele so sorry you are back at the hospital. I hope they care for you well. You will be on my mind today..

    E-I had a similar experience and reaction to my hair coming out at work and the. 24 hrs of being really emotional. I felt much better when DH shaved me last night.

    Theresa how are you? Hope you get some great riding weather in this weekend!

    Sharon- I have to thank you again for starting our thread. I hope you could enjoy the BBQ.

  • Ckonicki
    Ckonicki Member Posts: 10
    edited April 2015

    Good morning everyone and Happy Easter. I wish everyone peace and love today. Thank you all for your support and kind words, it means a lot to me. So far my chemo is going well. I am thankful I am not having many side effects and my port is working great. I am still in school and able to attend classes even on the same day as chemo. The only side effect so far that I have had been fatigue, but I realize there are many causes for that as well. I wish everyone the best and hope you all have a great holiday. I am on my fourth dose Tuesday, when did everyone start losing hair? I am just getting the paclitaxel right now.

    Cathy

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2015

    Bekah

    Sorry to hear about the lousy s/e. Hoping today will bring much relief. Happy Easter!

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited April 2015

    Cathy, you and I both get our Taxol on Tuesdays. I am two weeks ahead of you, so this Tuesday will be my 6th; I'll be halfway through it, yay. I can't help you with the hair question. I'm doing cold caps like Wpmoon, trying to save my hair. I am shedding a little, it started a week ago, but most of it is so far hanging on.

    Happy Easter to all. May your Sunday by side effect free.

  • DavisD
    DavisD Member Posts: 338
    edited April 2015

    How Cconicki- I started chemo on . 3/17 and started noticing good amounts coming out around day 17, got the buzz last night and now it's just a relief to have it over with. The hairs were falling down my back and itching like crazy. I'm on a three week schedule and will be getting my second treatment on Tuesday. I wish you the best.

  • Karen30
    Karen30 Member Posts: 135
    edited April 2015

    hello ladies- I have just been diagnosed, I believe chemo and a port are in my future and will know more one I see the oncologist on Tuesday- it's just comforting to be here , read your posts and those of the veterans and know I am not alone- hope you don't mind me popping in here to chat:)

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    dear Karen30- we don't mind pop-ins! It's good you are making yourself familiar. I am so very sorry about your dx. This is one of the worst times, in between dx and all the test results, consults, deciding what to do, and trying to talk to people who just don't get it. I wish you peace and a hug. You are definitely not alone.

    Cathy- so glad to see you here. I have been thinking about you, your brother, your entire family.I know the last couple of weeks have been shocking and sad for you. And now you get to return to YOUR life. A big hug for you. We are here for you.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    and BB! My how time flies! I still remember your first morning so well. Congrats on this milestone.

    You are very strong, and I admire your fortitude

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2015

    Michele, feel better soon! I hope you can get some rest!


    I am going to let the kids decorate my head like an Easter egg today...just because I can. Must have some fun with the craziness! I will post a picture eventually.



  • IndyGal35
    IndyGal35 Member Posts: 340
    edited April 2015

    You're beautiful, Diane!

    As much as cancer has taken from me, it is a reminder that I am so much more than the sum of my parts. I shaved my hair the week before chemo (TCHP). I started being able to pull out strands on day 15 after my first chemo. I am now 5 days past my second chemo, and I still have a ton of hair sprouts. The hair is barely growing in some spots, but I don't have many actual bald spots still.

    Bekah, I have offered to let every woman that I know the chance to feel my tumor. I feel that, if I can save one life by teaching them what to look for in their own exams, this can serve a higher purpose.

    I'm still feeling icky today. I can't seem to shake the nausea this time, and I'm so drained from the diarrhea and from not being able to eat/drink much. I didn't have much nausea at all last round. I think that every round brings new and exciting surprises. Still, I'm 1/3 done and charging forward!

    Hope you are all having a nice Easter.

  • rleepac
    rleepac Member Posts: 755
    edited April 2015

    My Easter started out pretty good. I woke up feeling great so I took a shower and got dressed for church. Kicked DD out of bed and we made our way to church. The minute I pulled in I got hit with massive nausea and I felt like I was going to pass out. If one of the guys didn't grab my hand I think I would have been down for the count. DH was helping direct traffic for Easter church so I just sat on the curb until he was done. Then before I knew it they had me in someone's car being taken home. Thank you God for such a wonderful church family!

    Bummer I missed church but glad to be cuddled up in bed and not worried about puking or passing out on anyone.

    Guess I wasn't ready...

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    Indygal- so sorry you got hit with more nausea this time. I hope you have some good meds to help stabilize that. Try to keep a saltine and some ginger ale down if you can. A gentle hug coming your way. And such a wonderfully generous and smart thing to do to use your own body for on the job training. My tumor wasn't huge, about 1.5-1.6 (but that was after they carved off7 pieces in the USG core needle biopsy), and I couldn't feel it even after I knew it's exact location. Nevertheless, it is important that we use every available tool to identify this monster.

    And Bekah, that must have been a huge disappointment to wake up feeling good and looking forward to worshipping with your church family, then BAM! Does not sound fun at all. I'm glad they were there to attend to you quickly and lovingly. I'm sorry it messed up what I'm sure was a special day for you. Thinking of you always.

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2015

    Happy Easter from my crazy clan!

    image

  • Jem27
    Jem27 Member Posts: 15
    edited April 2015

    Karen, I love it. Happy Easter/Passover to all who celebrate,

    Hugs xo

  • DavisD
    DavisD Member Posts: 338
    edited April 2015

    Welcome Karen30! Not the best place for us to meet but you won't find a kinder bunch of ladies than on these threads. We all have a common bond that is so often hard to find in our day to day lives. I hope when you know your plan you will take some comfort in knowing what is to come. Feel free to ask questions...someone will know the answer or how to get it!

    Kbeee-it's so nice you can have a sense of humor with all you've been through. It will do you and the kids so much good and I love the egghead, ha!

    Bekah-I'm sorry for that big disappointment at church but you got to see how wonderful and supportive your family and friends are to embrace you and get you safely home. I will be thinking of you and hoping you will have more good than bad moments this week.

    Indygal-Thanks for the compliment..any time I hear that while someone's looking at my bald head I know they are the best! I haven't quite gotten used to it but feel so relieved to have it done. It looks like you and I are both triple positive and on the same chemo and targeted therapy. I'm eight days behind you so I'll pay close attention to how you're doing if you don't mind? Best wishes for a beautiful day!


    Katy-Happy day to you! Did you get little Jack his own Easter basket? I hope your rash is getting much better. Sending you a hug just because!

  • DavisD
    DavisD Member Posts: 338
    edited April 2015


    I just realized my first post to this thread was on March 7. Not even one month for me and so much has happened! Sharon started this off in early Feb so we've only known each other through cyberspace for less than two months. For all my complaining about too much social media, etc, I'm so grateful this exists for us for right now.  Just sayin I'm grateful.

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited April 2015

    Side effect question - I know that bones and joints can hurt, but what about joint inflammation? My wrist has been hurting since Friday morning, but today it's hurting even more and doesn't let up. It's a little red too, and my husband confirms that it looks inflamed. Can this be a side effect of chemo, or is it just a random, unrelated inflammation

  • DavisD
    DavisD Member Posts: 338
    edited April 2015

    BB-I don't know if it's related but it seems like some of the most random symptoms have turned out to be connected in some way to the chemo. Maybe it's some kind of over response to what would have been a minor strain. I have Sjogren's disease and it's been difficult to sort out what is related to the BC and what is just worse because of the Sjogren's and chemo. If your MO is good about responding I'd just give them a call on Monday. Doesn't hurt to ask right? 

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited April 2015

    Diane D, you're right, you just never know with chemo. I'll see how it is tomorrow and I may give the MO a call. Or I may just wait till Tuesday when I go in for the infusion.

    I'm sorry you have to deal with double whammy

  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    I gotta believe everything is going to be chemo related in some way.

    Shaz: I am so happy to hear you had a good night!

    Bekah: I was worried when we hadn't heard from you in a couple of days. I was hoping to hear you were doing well. What a lovely story about you and your daughter.

    Kbee: What a wonderful way to turn a - into something fun. You are inspiring!

    I still haven't lost a hair yet, but I know after my next visit to the chemo fairy on Tuesday, it won't be long. I have dreams about it just about nightly. I honestly think losing my hair is low on my list of worries right now.

    Happy Easter, everyone!

  • slothabouttown
    slothabouttown Member Posts: 449
    edited April 2015

    Everyone looks so good in the scarves! I haven't tried any, being in the Northwest I can wear a ski cap still and blend right in with the skateboarders and hipsters! At least I think so but I'm sure I'm not fooling them.

    Hope everyone got to enjoy themselves some this weekend. I was lucky enough to be invited to a Seder on Saturday and an Easter brunch on Sunday! Lots of sunshine and good eating.

    BB, is your wrist swollen on your surgery side? That might be significant although not sure how. I've had a lot of weird nerve and muscle pain in my arm and hand on the side I had a lot of lymph nodes removed from. I still can't feel my elbow!


  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited April 2015

    so, I'm scheduled to go to the "look good feel better" shindig tomorrow. It's probably good since being at home alone now for 3 day has me falling down the rabbit hole. When I went for my last blood work they advised me to only go out if absolutely necessary cuz the baby whites were so low.

    The weather has been a bit dreary, and except for the short trip to the K-9 field to get Jack some play yesterday, I've been a total non-entity.

    Today, against my better judgement, I stupidly watched a very good, well-produced documentary on Oregon's Death With Dignity law. It's called "How To Die in Oregon". I guess I thought since I lived here I should know more about it, and my friend that recently went on hospice (and who is not doing well at all), is planning on availing herself of her rights. It was very good, but I am very stupid. I've been crying off and on all day since. I recommend it, but perhaps not while we are in the middle of chemo and needing all of our wherewithal to deal with that.

    So here I am, asking if my friends here will send out a virtual hug to their friend in need. I feel lost and pitiful at the moment. Where is the grace and peace and joy I was feeling only a couple of days ago? And is this just a huge let down after my neice leaving? Is this some unexpected (well, they all are, really) bipolar swing, or all part of processing something that 4 months ago only happened to someone else

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited April 2015

    Katy, I'm sorry you're having a tough time now. Im sending hugs. I hope you can get some peaceful sleep.

    Slothabouttown, yes, the pain and swelling is on my surgery side. I have been evaluated for lymphedema a few weeks ago. I'm considered a very low risk. I'm trying to remember if I've ever had this pain in that wrist before. I'm almost thinking I may have, just never for this length of time and never with a swellng.

  • slothabouttown
    slothabouttown Member Posts: 449
    edited April 2015

    Katy,

    You've been such a source of comfort and encouragement on this thread, remembering birthdays and spa days, acknowledging all of our fears, celebrating our accomplishments. I know everyone here counts on your words of compassion and wise counsel, but we all know you're going through this too, and have been hit with some particularly shitty SEs and complications. So of course you get a huge hug tonight and every single day until we all come out on the other side of the chemo tunnel. I'm a documentary junkie myself, at least I was until all this happened, now I find myself only watching romantic comedies and sitcoms. I guess my own reality is all I can process right now. I hope tomorrow is less dreary and that you find joy in your birds and your companion Jack. I think some of us are getting hit with the thought that we are really doing this chemo thing, we're right in the thick of it and it's gonna be a long road. We might question if we're strong enough and we're still able to remember back to before our diagnosis and what "normal" was like. That's a lot of heavy stuff intersecting in our fragile psyches and I think many of us are probably due for a really low day. Or two. Or three. Remember you're not alone and you're special to this March group. We're going to see each other through this shitstorm. Got it?

  • so-she-did
    so-she-did Member Posts: 202
    edited April 2015

    Here is a huge virtual hug for you Katy! I find it so hard to have visitors because it is so difficult to deal with them leaving. It leaves me in a funk for days. I am dreading my sister leaving in a few days so I know where you are coming from. You are not alone and I am glad you reached out here for some hugs.

    I'll be back on the discussion board more when my sister leaves. I've got to post a pic of my shaved head - if I can ever take a flattering one! I can't stand how I look bald but it is what it is. My hair started falling out at about day 12 and I was practically bald by the time I shaved it on day 15.

    Completely forgot about my CMP blood draw on Friday so I have to call 1st thing tomorrow morning to see if I can still sneak it in before chemo on Tuesday. Hopefully it still gives them enough time to get the lab work back. I really do not want to have to delay chemo.

    I'm thinking of you all!



  • avmom
    avmom Member Posts: 324
    edited April 2015

    Jackbirdie, here's a virtual hug for you. I have tried, unsuccessfully, to watch the Ken Burns cancer documentary. Do go to the LGFB class tomorrow, and let us know how it went. As for me, my task in the days since round number three have been all about endurance. I went to a surgery consultation on Wednesday, and everyone agrees that I should have further surgery to remove my other Breast. I have a reconstruction/plastic surgery consult in May, and it might be possible to arrange the second mastectomy, and maybe reconstruction, a month or two after my chemo ends in June. On Thursday, I had a needle biopsy of my thyroid, and results should be available in about a week. That was lots of travel for me just after a chemo round, and the nausea and fatigue have increased with each round. Last time, the nausea lifted on Friday afternoon, so I had Friday night, Saturday and Sunday with a more settled tummy before getting back in the chair last Monday. So far, I endure. Only one more AC, and then I move on to paclitaxel.

    Gentle hugs

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