Young mom scared
hi all
I'm new here just diagnosed today. I just turned 30 and have a 4 old baby. I am so scared. My biopsy results were invasive ductal carsinoma poorly differentatied with er-/pr- her 2 pending. I'm not sure what do next... Planning to call a doctor but just scared and in shock. I'm so young.
Comments
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Hi LillieRose. I probably cannot say much to ease your fears at the moment, but hang in there. I'm older that you but also mom, single mom in fact, to a four year old. When I first got my diagnosis in January, it was thoughts of him - he not understanding or me not being around- that upset me the most. Things will start happening fast. The more you learn and when treatment starts, you may feel much better about it mentally. I am the type person that was so ready to "do something about it!" once I had the official diagnosis.
I am er/pr- and her2 +. Does your her2+ pending meant more testing or are you waiting on that test result?
You will find lots of information and resources on these boards. All the women are amazing.
Hugs
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Hello dear, So sorry you are having to be here, but so glad you came here for support. There are lots of loving, caring friends waiting to help and comfort. I am her2+++. I am done with chemo, surgery and almost done with radiation. Sugarcakes is right, things can move pretty fast. Start a journal and keep a binder. My cancer center had a special service with someone called a Breast Cancer Navigator. You might want to see if that service is available to you. Mine helped me know what to do and in what order. She also helped things move along smoothly when something or someone was delayed.
I am thinking you need to arrange to see an oncologist first--my primary care physician helped me with that. The oncologist will have a consult with you and help you get moving forward.
I am older than you, but considered young for this mess too. I have four kids. I was terrified too. But I will tell you that I have had great results so far. This journey is very hard, but it can be done. Enlist the support and help of all around you--family, friends, church, etc. If you are religious, get close to your Heavenly Father. Be vocal and find someone to share your feelings so you can sort through all of this. My heart goes out to you. Take care.
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I just keep thinking I'm going to die and never see my baby grow... This is horrifying. I want it out of my body. How long did it take for you to get your first surgery?
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Hello Lillyrose,
We're so sorry you just received news that you have Invasive Ductal Carcinoma,
We understand that you're scared but remember you're not alone. The compassionate and kind ladies and men here will understand and be able to support you though this.
The information about your diagnosis can be overwhelming so we're here to help you navigate your way around.
The Breast Cancer 101 section on our main site has a wealth of information to help you sort through your diagnosis, treatment plan, and other day to day issues you may have concerns over such as your job, complementary medicine, talking to your friends and family and more.
Sending you gentle hugs and kind wishes,
The moderators.
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Oh honey, I remember feeling the same terror, and sometimes I still do. But I am learning that letting the worry take over is absolute poison. It will take time to wrap your brain around this, but I promise it will get easier to march forward. I'm so sorry for all of the pain and fright you are feeling. Keep hugging that little one all you can. My husband has always had a good philosophy that I never felt the value of until I got hit with this frightening mess. "Don't worry about what hasn't happened yet." I am learning that he is right. I have spent countless hours crying and fretting over the answers I didn't have yet. Was I going to die, what will happen to the kids? Will it hurt? Am I stage 4? Often I would do all of this worrying and then find out that things were better than I thought. Scary, but not the nightmares my imagination was running away with. It's OK to be scared. Go ahead and cry and feel. But try to breathe and don't worry about the worst YET. Wait for more information.
OK, to answer your question. First, even the worst breast cancer does not usually progress so fast that you have to act "tomorrow". My dx included Grade 3, her2+. VERY Aggressive. They recommended chemo first. This scared me because I was like you--I wanted it OUT. But I learned that the chemo combo they wanted would shrink my tumor, maybe even to nothing. I did my homework and found that they should be trusted. I got dx in Aug 2014. Chemo started Sept 2014. Surgery--lumpectomy--was January this year. I will add that my tumor was gone and my MRI showed ZERO cancer by that time. Surgery removed lymph nodes and a margin of tissue around the tumor site. Biopsy showed ZERO cancer cells. Not even dead cells. I started radiation in February. Things have been hard, but they've gone well. I know many who are having the same experience. I live in Washington, do you live near by chance?
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hi!!!! I'm 37 and was just diagnosed with a recurrence. I went through this before. 😡 it's somhard, especially when you are as young as us. You WILL be ok. PM me If you wanna chat.
Ali
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Alibeths--So sorry for your news. I'm glad you are here to help Lillyrose.
Lillyrose--You are welcome to PM me as well--anytime. But I will also understand if you feel better talking to Alibeth who is closer to your age. (I'm 43) I hope you are able to find some peace and comfort soon.
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momie--how was your chemo? I may do that one this time around !
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Ali--It was tough for me, but I had excellent results. Tumor and all signs of cancer cells completely gone before surgery. I had cause for an MRI one week into my first round of chemo. They didn't see the second thing they were worried about, but they were able to see that the first tumor was already shrinking. MRI in January showed everything gone. Surgery tissue biopsy confirmed cancer gone. There are many women who are having the same experience. I see that you are not her2+ so I don't know if they use that chemo drug combo on anything other bc types. I wish you the best dear.
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Hi I was 30 with a 2.5 yo daughter when diagnosed. I was diagnosed Dec 4, 2013 and had surgery Feb 28. Honestly you are in the hardest place emotionally and mentally right now. At least it was for me. BUT you can do this. It is a one moment at a time thing but I am feeling more like myself every day. This sucks and I am sorry that you are joining us. You will find the strength to get through. PM me if you want.
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thank you all so much for your support and I will private message you when I know more. I live in Boston and was lucky to get into Dana Farber tomorrow! I am scared but glad to be taking some sort of control.
I was looking over my mammogram results and notice they said my left breast looked clear and the only thing they see is the mass we can feel in the right... Is that a good sign that is not spreading from breast to breast or am I just reaching here?
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Alibeth are you just doing chemo or do you plan to have anything removed?
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Have you had a biopsy, an ultrasound, an MRI, a pet scan? Do they see anything in the lymph? The mammo is just the first line of testing. Here, they do an ultrasound after the mammo. They checked my lymph. The unltrasound showed a questionable node. Then I went for biopsy of the lump and the node. This allowed them to determine the type and grade and a first idea of size of the tumor. Then I had a breast MRI for another type of measuring and to see if there were things not seen in the other tests. Because I had some small lymph indications, I was also sent for PET scan to make sure it hadn't traveled into more of the body. All of these things will help with staging.
I'm glad you have your first appointment. Being proactive really helps. Take care dear.
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I'm sure someone has already stated that if you are HER2+ they will likely suggest chemo + antibodies first. Getting the her2+ status is scary because of the aggressiveness but I must say (and I mean no offense to anyone) if I had to pick out my own certain set of circumstances, I would pick er/pr- and her2+. There are amazing documented results out there. I was dx'd in Jan with a rather large tumor at 4.5cm. In March before my 3rd infusion, I nor the MO could even feel the lump anymore. I'm expecting to becancer free after the chemo. There will still be surgery, radiation, and more antibody treatments for a year. Your fears will subside a lot once you feel as though you have started the fight.
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MombieZumbie, we are cancer twins. I'm just a few months behind you. Loved reading your comments
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Sugarcakes--I see that you are right--twins. I hope you get the same good results I got. You are right about this seeming to be the "lucky" bc type now. It wasn't so very long ago that it would be more dreaded. I think the herceptin and perjeta are really changing that.
I posted this in another thread or two, but I'll mention it here too. I met lady at my chemo center that got her dx back in 2005. She was her2+ and among the early ones to be treated with herceptin. She is ten years out and going strong. She doesn't even need follow-ups with her MO anymore, just routine checks with her primary care. It was awesome to meet someone who is living proof. Gives me hope.
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I had my first appointments at Dana Farber yesterday. It was overwhelming but I left feeling like I can fight this. They want to do chemo first. Followed by surgery and then radiation. I am er-/pr- but we are still waiting for my Her 2 results... I just they take awhile. They are also doing genic testing on me because I am so young and have no family history of ANY cancer (talk about shit luck). I have a "team" and I feel confident in them. The only thing I didn't like was they do not plan to do a Pet or MRI... They did more mammograms and ultrasounds but they don't think it has spread to my nodes so they feel that an MRI or pet is extra radiation I don't need.... And she said that it can course more worry then help. She said the chemo will be full body so if it's slipped out anywhere the chemo will get it...she said that is the advantage of starting with chemo early. They said I am stage 2 and they said I caught it early! That seems good right? I'm so scared but I feel like this is good news... Tumor is 2cm... They said that is on the line of being stage 1?
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LillieRose - I am sorry that you had to join our group, but we are fighters and we support our own! You are right - you can fight this and win! Chemo isn't great, but those of us that have had it have made it through or are making it through. There are some really great discussions that pertain to the month you start chemo. Once you have a start month, check out those discussions. You will find great information and probably make a few new friends.
Sometimes the FISH test for HER can take awhile. Mine took an abnormally long time...6 weeks.
Take this time to soak in the information you need to start your fight, but remember it starts with YOU! Tell yourself that you can do this. Give yourself the time to take this all in. Remember to breathe...sometimes we forget and above all...take it a minute at a time if you need to. Some people say take it one day at a time and sometimes that is okay, but sometimes it is minute by minute.
While you are preparing yourself for this journey we call breast cancer, remember that you are important and take the time to do the things that you like to do and make you happy, even if for just a few minutes.
Remember - we are here for you!
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All great advice. I like the minute by minute part. Very true. Hadn't thought about that until now. Good thoughts.
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Hi Lillie,
I am so sorry you have this diagnosis. This is a good place for information and support. We are here for you!
Once I met with my team (BS and MO) and got my treatment plan, I was so relieved! I was stage 2 at DX as well. And like you, my tumor measured just about 2cm. My docs did not recommend a PET or bone scan, but my MO said she would do one if I was losing sleep over it. She said the results would not change the treatment plan, so I decided to move ahead without either.
Like many of the ladies posting, I had a complete response to chemo therapy--nothing left in the breast tissue. The surgeon could not find any evidence of a tumor in my breast and the pathology team examined the tissue extensively and found nothing. My docs feel that if any rogue cells got out, chemo probably took care of them.
I like ml's advice. Take it one minute at a time and remember to be kind to yourself. Hang in there!
Amy
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My dad's cousin was diagnosed with breast cancer at age 32. I know that her course of treatment included a BMX and chemo. Of course everybody's journey is their own, but we all deserve to know about the good stories. And there are good stories. She had 2 young children at the time (under 3, I believe). That was 29 years ago. She's an incredibly vibrant and active 61 year old today with her PhD. And she looks fantastic.
I wish you well. Blessings to you and your beautiful family. -
Love the success stories
61 sounds great!
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Love the good stories!
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Hello Lillerose:This National Breast Cancer Foundation has a video presentation that gives you some basic info
http://www.nationalbreastcancer.org/breast-cancer-clinical-trials
Read as much as you can...the more knowledgeable you are, the less fearful you will be, and the more you will be able to ask questions of your doctor,
I am like you, found out in March 16. Stage 2, Grade 3, ER/PR- HER2+...Got best news yesterday of clear margins, negative sentinel mode (0/1). DO NOT LIGHTLY GO WITH ANXILLARY DISSECITION. IF YOU CAN AVOID IT, DO. I SIGNED CONSENT FOR IT A WEEK B4 SURGERY. ON DAY OF SURGERY, I TOLD MY DOCTOR I WILL HAVE SURGERY, LUMPECTOMY AND SENTINEL LYMPH NODE DISSECTION (SLND) BUT THAT I WANT TO CANCEL AXILLARY CLEARNACE EVEN IF 1/4 OR 2/4 OR 3/4 LYMPH NODES ARE +VE (ESP IF IT IS IN MICROMETASTASIS STAGE).
If it is macrometatasis, then, perhaps one have no choice, but if it isn't, save your axillary if you can. Coz removing your axillary means that hand cannot life anything heavy, like carrying your child, heavy groceries anything over 5 pounds...also longer recovery, and you cannot have anything done to that ar eg vaccination, take blood, IV insertion, taking your blood pressure, practically everything. I was very very lucky my Doctor is such an understanding person. She gave me caring and support all the way. If you can find a doctor who you feel totally comfortable, who is willing to address all your concerns, who takes the time to call you back like my current doctor.
The more control you can have over your decisions, the better you feel. Please go also to pubmed where there are many information posted by doctors and medical professionals and experts. http://www.biomedcentral.com/1471-2407/9/254
I know you are pretty scared right now, but the sooner you overcome it, the more you can benefit yourself. You are fighting for your life, and for your child. BE STRONG. If you must cry, cry. YOU WILL SURVIVE when your MORE PREPARED. TELL YOURSELF EVERYDAY - YOU WILL OVERCOME AND SURVIVE IT, FOR ME, FOR MY CHILD, FOR MY FAMILY.
This site, breastcancer.org at this link has this pdf at the bottom of this link page you can print out.
http://www.breastcancer.org/symptoms/diagnosis/getting_path_report
It explains many things you have questions over. Print and read through them. I have found it to be EXTREMELY useful. These knowledge & my doctor's patience kept me calm thus far on my journey, gave me ideas to do more research online.
May STRENGTH be with you always.
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LillieRose, I am from the Boston area as well. We are lucky to live near the best hospitals in the world for treating cancer. You are in excellent hands at Dana Farber. While I was not treated there (I only have "garden variety" BC), I have a good friend who has been treated there for many years. Don't worry about MRI or PET scans. Sounds like yours was visible on a mammogram, so less worries about a mammo missing something (which is typically why they do MRIs). PET scans can only see tumors greater than 1 cm, since they found your Cancer at an early stage, you likely don't have mets. Once they do chemo and surgery, more will be known. I'm sure Dana Farber won't miss a trick. Good luck to you
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Hi ladies, I'm certainly a bit relieved to see that other's that are Stage 2 have not had scans suggested either. I just did my last chemo and I'm having a really rough time. A lot of fear, pain and crying. These threads are great, but I looked up mets and now I think it is in my spine. I've had a lot of back pain with chemo. I feel like I'm worse now than when I started. My dr. doesn't suggest scans at Stage 2 either. I just don't know if I should ask for peace of mind, or just end up freaking myself out waiting for more tests. Then you read about the high false positives. Anyone here been through chemo yet? I started getting a lot of pain after treatment 3 and it's still here. MO isn't really worried and said we will watch it. I had treatment 4 Wed. so right now I'm feeling a bit hit by a bus.......Love to you all!
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U4--Some of the chemo and targeting drugs can make you hurt. I had pain all through chemo. My back hurt a lot. I had a lot of bone and joint pain. I also hurt where my tumor was and in my shoulder where I had referred pain from the tumor. I was scared that I was getting worse too. I wasn't. I didn't have any scans during treatment. They waited until after. (I take that back, there was cause to have an MRI one week into my chemo. The thing they were scared about was not there, but they got a rare look at what my drugs can do to a tumor after only ONE week. It was already shrinking!!) My MO said that we become hypersensitive when we feel we are in danger. That doesn't mean we aren't having pain and such, but it means we might be in high self-protection mode, so we feel every nuance acutely. She told me to try not to worry.
Most of my pains went away. The bone and joint pain stayed. Herceptin, which I continue to have infusions until October, causes that part.
I know these drugs are powerful. I have four friends with your Dx and they are all doing well now. They all had full response to treatment.
Chemo is truly hard to go through. I know that "hit by a bus" feeling!! I use that expression a lot. LOL I am sorry you are hurting and miserable. But YOU CAN DO THIS!! We'll all be cheering you on. Something to look forward to--that day when three weeks have gone by and you are feeling more human and you DON'T have to go in for another treatment! It's pure bliss. <big hugs>
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if I could do it all over again. I would have had hem do a full aux dissection. I has 0/2 nodes nack in 2013, so obviously they didn't. Well, I just had a recurrance in my lymph node. 😥 thankfully, it's only there but I often wonder if or could have been avoided. I just had surgery.
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Alibeths--So sorry you are in recurrence. That must be so frustrating.
I am glad they took mine. My BS was great about trying to minimize damage. The parts about hand usage and lympedema risks regarding how much weight to lift and such are up for debate. The risks are real, but I have learned that the arm involved can be allowed to do a lot more than we are sometimes led to believe. I am allowed to do heavy lifting, but only after I do exercises to slowly build up to it AND I am adivised to wear a compression sleeve during the exercises and/or heavy lifting. Even hot tub and hot bath can be low risk activities if you follow the water temperature adviseries. However, I would never ask anyone to follow what I am saying here without also getting advice from your lymphedema therapist and doctors. I'm only passing along what my professionals are telling me so that you can ask questions. The professionals will only tell you standard safety precautions unless you ask specific questions, then they will pull up other resources that show you what is safe if you want to pursue a questionable activity.
I have a friend that had ALL of her lymph removed from both sides of her chest, even the upper ones around the clavicle. She was stage 3 and her original pronosis was a bad one. However, she is going strong 10 years later. Now she wants to go back to being on a rowing team. Her doctors are giving her the green light.
Having said all of that, I agree with Nat. Axillary removal should not be taken lightly and there is evidence out there to support that doctors may be making the decision to remove too often. There are so many decisions to make. It's a lot to take in. I'm at peace with the things I agreed to. Peace to each of you who are still making decisions.
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