Starting Chemo March 2015
Comments
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Eheinrich,
Ugh. That would make me so mad. What do these people think Cancer is? It is an invader. Chemo is my seal team 6 hunting the rogue operators. I had someone ask me if I was going to give up meat. Really? Eating a steak gave me cancer? Don't get me started.
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I had someone tell me their friend was fighting off stage 4 cancer by eating a really healthy diet, "like lots of blueberries." I've eaten that way my whole life! And look where it got me.
My new port hurts A LOT. Like more than after my lumpectomy. Somehow I didn't expect it to be very painful.
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Welcome Kazza! I hope you find this group to be of great help and support as it has been for me. Sorry we have to meet this way.
Carrie-Smooth sailing with the PICC install and first spa day. We are all behind you. You can do this.
E- how very disappointing for these questions/issues/doubts to come from a place where you had felt support and safety before. There is no accounting for these types of questions from these quarters especially. My own dear brother, when I was getting the pets, cts, Oncotype, etc., who had been previously (and since) nothing but supportive actually asked me if my doctor had ordered these tests, or if I had asked for them for my own piece of mind. (Because he knew, he and his wife knew, the next door neighbor knew, someone who had the same cancer, same grade, whatever, and, yet didn't remember hearing about any of these tests being run, or chemo even being a possibility. Or another personal favorite, totally not getting the implications of ten years of HT).
The day you get your cancer dx you are changed forever. In that instant, lines are drawn between who gets it and who does not. None of them will ever understand. This I understood well almost immediately. What I did not grasp so easily was that I have no idea how they feel either. I have no idea how hard it is for them to wrap their heads around what is happening to their loved one. What fear they feel about what their life will be like without me in it.
So I try to remember that this is the well from which springs most of the stupid and insensitive comments people that I KNOW love me make. It doesn't make it it right, but it helps it hurt a little less..
It does not apply to insensitive co-workers, a-holes, and other stupid hangers-on, who quite rightly, as Princess Karen says, must be bit*h slapped. Karen, I lol'd so loud when I read your post I woke my neice up who thought I was having a nightmare. Well, actually I am. But I never wake up.
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Molly, so sorry your port hurts so much. Mine did too. It seems such an invasion, especially after all we've already been through. Quite honestly, mine was not comfortable for over a month post install. The pressure on my windpipe, difficulty breathing, soreness in the general and specific area, general protective fear about anyone coming towards me with theirs arms open for a hug....the list goes on. But it finally did get better and I'm glad i have it now as i know it will spare my never very good veins over the course of the next months of blood draws and infusions.
Make sure to get a script for the EMLA cream and ask for the freezing spray every time
NinjaMary- I love the imagery of your Seal team seeking and destroying the invaders. I think I shall try using that myself.
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3 people -- all of whom I consider dear friends -- baldly asked me if I knew what chemo would do to me. Like that's a secret? Really? I told 'em yes, I knew exactly what chemo would do to me: SAVE MY LIFE.
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ok-revision- Bit*h slaps may be doled out even in cases of dear friends. Off to have a steak and blueberries for breakfast. Having them together should totally confuse the rogue invaders.
Sorry if I offended anyone for trying to make excuses for those insensitive stupid comment-makers.
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Molly - the port was definitely more painful than the lumpectomy. Sometimes I still use my boobie pillow while driving as the port lays right on the seatbelt line. On a good note I only feel the port while driving. If you are like me you'll have chemo shirts and non-chemo shirts. My chemo shirts make easy access to my port. The other shirts hide the damn thing.
Katy feel free to use my seal team 6. I'm all about visual imagery. The mind is very powerful. Not that you can "will" cancer away, but it helped me through my last round of chemo. Also...I have a thing for a man in uniform. Even little men in my bloodstream.
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Bekah: That's going to be the best laugh I get all day so thank you. (the coconut oil thing)
Stupid comments: My half sister told me alum in deodorant is linked to bc and she switched deodorants. Good for her. I am sure she is completely safe now.
Wow, MOs. Maybe they have to remain detached because they can't handle it? I don't particularly like mine either. She asked my support buddy if she was in the healthcare field after she asked a couple of questions. Like, don't question ME unless you are in the field. I am only going there for convenience. The nurses are nice though and I guess I will spend way more time with them anyway.
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Diane: Don't forget we have a rule against apologizing for whining.
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I also had someone question my need for chemo telling me it was poison. I know they mean well but still.
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This all just reminded me that some chirpy person told me yesterday they don't need to use chemo anymore because Duke University is injecting people with polio virus and "it's killing the cancer! Isn't that great?"
Junk punch and bitch slap ordered. No asterisk
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No, of course you didn't say anything offensive, Katy. I just chose to take a very firm stand very early. As soon as people heard my news, the pushy advice started crawling out of the wood work about what I should and should not do. Well-intended, yes, but crazy-making. But I can't paleo diet my way out of this, there is not enough dope in the world I can smoke or otherwise ingest that will make my cancer go away, and nope, I'm not heading to some clinic in South America, either -- ALL of which were strongly recommended to me early on as a substitute/replacement for the treatment plan I and my doctors had decided on. I love my peeps, don't get me wrong. I do. But for crying out loud already. While I appreciate their concern and their fears for me, I'm in the driver's seat and I'm fully capable of making my own health care decisions. If being polite doesn't work, the nuclear option is on the table as far as I'm concerned. They'll respect my choices. Or else. LOL
Also, LOL, trvlr about the deodorant. Too funny!
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Princess, Ninja, Katy, Trvlr...all of you ladies - I read through...and I just appreciate your candor so much!!!
Speaking of "stupid" comments, I had someone tell me yesterday "Good thing you start chemo on April 2 instead of April 1, you know April fools day, because that would be weird..." Ummmm WHAT THE!?!! Who would joke about chemo!?!!! Is it just me, I was like...WTF!?!!!
Anyway...I did some research on resources and I though I would share them. It is a small list, but a list nonetheless. I hope it can be of use to you!
Chemo Angels – will send encouragement during the course of chemo
Lydia Project – Filled tote bags for chemo patients (it is only $10.00 for shipping, they are handmade and a note can be included)
Happy Chemo – A great site with lots of information. They have a Box O'Love which they will send out for 29.99 shipping filled with a quilt and other goodies for chemo patients.
Cleaning for a reason– Free cleaning nationwide for cancer patients.
Casting for Recovery - Free fly fishing retreats, nationwide for breast cancer patients
1 up on cancer - A comprehensive list by state and area of free resources and helps for cancer patients, including free hats, wig discounts, cleaning, mileage, ect…
I start chemo Thursday morning and I am clearly trying to keep myself busy until then! I have 4 kids (DD -18, DS -12, DS-10 and DD-8) and I have their Easter baskets done and ready; as well as the eggs for our annual family Easter egg hunt! I am hoping for as much normalcy as possible as we head into Easter weekend, trying to have everything in it's place as much as possible. To all of you in the chair this week, I wish you minimal SE's and a wonderful weekend!
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I bought some really good coconut oil from Amazon. You can find almost anything on Amazon. I pay the yearly fee for Prime and get everything delivered in 2 days and no shipping. Since I buy a lot from Amazon, it is worth the fee. Sometimes, I find books, toys for grandkids, all sorts of things for less on Amazon. Check out mastectomy stuff too.
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Supernannymom,
I wish a good first treatment for you and a great week end. I do not start this for another month, but am not looking forward to it, but, am reading this thread to get familiarized with what I have to look forward to. I cannot imagine having to do this with 4 children! You are amazing.......everyone on here is. I was at the cancer center yesterday for my pre op for my surgery next week and talked to a woman who had just had her last chemo treatment. She also has 4 children. She looked really good. I asked her how she did it and she said, she just "plowed through it". So, if she can do it....you can too. Prayers going up for you.
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Even my own mother said "are you sure you want to put that poison in your body? You're always so careful about what you eat and what products you use."
Me: "No mom...I don't WANT to put that poison in my body, I NEED to put it in there if I want to be around long enough to put you in a nursing home. If you prefer that I decline treatment because it might be bad for me, please keep it to yourself because it's MY cells that decided to f*ck up, not yours"
She didn't have any further comments...
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Bek...had the same conversation...Hello...there really isn't a choice here!!!! Either have chemo or allow cancer to grow...Hmmmmm...ugh! I try to be kind and graceful but sometimes....
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Mysunshine, She gave you a very honest answer, we all plow through it. You make your decision, and just go for it. Don't look back just move forward. Not easy by any means, but in the MOM way we do it. Moms can do anything
What chemo are you going to use? I finished AC/T on 11/25 and I made it, you got this! Cheryl
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Mysunshine!
Thank you...we have explained this to our kids. They ask me things like "once you have chemo will all of the cancer be gone" and "mommy, I don't want you to have chemo" but we feel that we need to explain things to them, at their level, they need to understand why mommy isn't feeling well and why I need to go to the doctor so often.
As my DH reminds me, we are in this together as a family, and we will go through it together. When it's over - we will take a nice long Vacation together!!
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Katy: My husband told me that he saw something on CNBC yesterday morning that said that 60 minutes story reported something that is not new at all and that they have been doing that research for years.
Super: I agree. I am going to take a fabulous trip after we get through this year. Not sure where yet. Europe is pretty cheap these days.
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rleepac, Priceless! Nobody wants chemo, I have eaten plenty of broccoli, I am a moderate drinker, and my mother is already in a nursing home. Guess I have nothing left to try so sign me up at the chemo bar. WTH?
I told my brother I finished the treatment plan, and would be going back to chemo soon, and he wanted to know why I would do that. Uh if I don't go I will die........thank you for the support. But he did say we may be able to get a two fer discount at the nursing home if I room with Mom, uh reload.
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I don't usually talk to my mom (or anyone) that way but she just hit me with the line of questioning at the wrong time and I wasn't feeling well already. I usually just chalk those comments up to the 'Extra Grace Required' category and not get ruffled by it - but I was all out of grace at that particular moment.
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I get it, Bekah. I know at one point, after so many comments like that, I will let someone have it, too.
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I don't suffer fools gladly. That's not to say I verbally filet people fresh out of the gate. I don't. "If I don't do this, I will die." I should never have to repeat that statement. Anyone who elects to ignore that back-off warning to Godzilla stomp into my personal business deserves what s/he gets.
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Karen: you are Godzilla. They are the gnomes. Just sayin'
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Katy,
OMG I LOVE THAT PICTURE!.
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a bit of dark garden art from my visiting neice
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Jackbirdie, maybe she can hang around with us, I like her humor. Very funny. Cheryl
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yeah,,, she gets it... I'll tell her she's invited.
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If anyone ever says a stupid ass comment to me about chemotherapy I will go off! My mother was diagnosed in 1985 with breast cancer and she had a partial mastectomy and lymph node removal. After surgery her doctor prescribed radiation. Two (2) years later she was dead (bone and liver cancer). Her MD says she didn't need chemotherapy. Maybe things were done different back then, but her doctor was an asshole. No follow-up tests after radiation. Nothing, Nil. Would chemotherapy have kept her alive longer. I have no idea, but in my gut I'd say yes. Would the cancer metastasized eventually? Maybe, maybe not. It was 30 years ago and research has come a LONG way since then. I don't know. All I know is that I'm attacking this with the recommended course of action that doctor's and researchers have decided is best. Not what some dumb blogger with a bunch of hack science thinks.
Off my soapbox. (for now)
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