Winter rads 2014-2015
Comments
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Coyote- love the studio door!
Mgt64- thanks for the inspiring quote, how true!
Kayfry, scuba, allmodesty- congrats on finishing!
Cassiecat and Farmerma- you are so close! I'm right behind you! Finished last regular tx today with just 7 boosts to go! Tired and rather brownish but my eye is on that finish line!!
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Myt64, what an inspiring quote. Love it.
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Last boost tomorrow!
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thanks Coyote for updating all, now that I've finish I pop in every now and then. Going to move over to Bottle of Tamoxifen-I will be starting tomorrow.
Best of luck to all my sisters and thanks for the support!!
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Yes, all the Winter Warriors are reaching the finish line for rads. It's really been an honor to keep the list updated.
Congratulations on tomorrow, Cassiecat!
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Coyote, thanks for keeping the list updated. I was so happy when I saw the smiley face next to my name.
CassieCat, if I am not on tomorrow. I want to say Congrats and high five.
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just watched part 2 of Canxer, Emperor of All Maladies. Wow! Learned, cried, felt hope...
I missed part one but it's showing again.
Encourage you all to tune in. I wanted my DH to join me but understand why he couldn't.
Knowledge is power!
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thank you coyotenv. Your creation of this group and efforts to keep us going made a huge impact on my life. I relied on all of you for support, guidance, friendship and a lifeline. Without your creation, I would not have weathered this storm as well.
Many months of hell made easier.
You're an angel and I thank you so much!!!
BIG hugs to you my friend.
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Celebrate your big day CassieCat! Just a few winter warriors to go. Cheering for all smiley faces on that list.
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Thanks for the generous words and kind thoughts. I can't take credit for starting the topic... our friend ILCMom did that and ran into some issues that pulled her away. I wish her the best of health and a complete recovery from this malady.... and of course the same for all of us!
I'm headed up to St. George to the oncologist office to get this port flushed... yeah, it's still with me. I will have tests and scans in May and, God willing, get it removed when those show that I am NED. I does continue on...
Quiggy ~ I have not had the courage to watch the show. I just cannot do it. The reality I live is about all I can handle. There are certain mental aspects of all of this that surprise me. Apparently, there is an element of PTSD that affects us. It shows up more in multiple timers. I've found that I really don't want to leave my safe little home cocoon (studio is included in that ... and probably more than my actual house/home) I get very anxious about leaving. This is not especially unusual. I'm not sure if there is anything I should do about it.... I'm content in my space - my "comfort zone" as it were.
CassieCat - I hope all has gone well today. I'm "Smiling" for you!
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Last regular treatment today, then my 5 boosts. I asked about doing boosts yesterday to give my armpit a break (it's SO raw and sore), but they said they had to go in this order. Not sure why since I know at least one of us got the boosts out of order, but oh well. I figured I could tough it out through just the two more regulars. I'm almost there! One of the last winter ladies to be finishing up. I already have my Tamoxifen in the medicine cabinet and will start that as soon as I finish up next week. I guess I'll join some of you over on that board!
By the way, my dog has rallied and is definitely not ready to give up his fight. He still coughs on occasion when he gets too excited, but no more blood and his gums and tongue have pinked up a lot. I know the stupid cancer is still in there, but I'm glad he's able to enjoy some more happy time with us. My husband is away on a business trip all week and I didn't want to have to be the one to make any final decisions. Looks like he's planning on sticking around to see him come home. This is him in his prime a few years ago. It's always how I want to think of him.
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Farmerma, I love your dog! He reminds me of Miss Molly, a very lovable and loyal lab that I loved. She was black also, and always knew when to buddy up. I really miss her. We were beach buddies, and when my friend decided to move on, she went with him. I miss her way more than I miss him. Dang dog napper!
Dogs seem to know what we need sometimes, more than we do. He will get you through. I am so glad that you are almost done! I hope the boosts are quick. I had zero issues from the boosts, and the skin is looking really good. I am out of rads three weeks on Thursday. You got this!
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Farmerma. That's one gorgeous dog. Happy that he has more time to spend with you.
Coyote. Skip if you don't want to know about the show at all. :-)
I wasn't sure about the Ken Burns program's impact on me, but it is putting my treatment in perspective and honoring many unsung heroes whose dedication has moved science toward more humane and effective treatments for all types of cancer (and us). The personal accounts which are interspersed with history and science are very touching. The second episode focused on breast cancer, in particular moving from slash and poison to targeted therapies based on the discovery of oncogenes. The development of Herceptin was featured. I don't know how the filmmakers connected with the individuals or how many people's stories were filmed to find the ones they used but I find them amazing for raw emotions and honesty. I do find 2 hours at once a bit overwhelming. And I ask why we are taught the names of military heroes while most of these medical heroes are only recognized within their field. Many deserved Nobel prizes. Even doctors who went too far with methods were part of the evolution of cancer treatment and did so with good motives.
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The dog is beautiful! Hope he hangs on a while longer.
I have 3 more regular and 7 boosts left. So far only a rash in the middle of my chest above my breast and left breast turning pink, doesn't really bother me except for the itchy rash. RO said to use Benadryl spray but it doesn't really help much. Not using anything on my breast so far and holding up well.
Congrats to all who are finishing.
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WheelyGirl - I found Cortizone-10 with Cooling Relief Gel works wonders on the itch. Also, when I come home from treatment, I put some Aquaphor on the bad spots, lather on the aloe gel and use the blow dryer on cool setting. AHHHH! Feels wonderful!
I am taping the Ken Burns show so my husband and I can watch it together when he gets home from his trip. He was diagnosed with Chronic Lymphocytic Leukemia (CLL) a year ago. Yes, him, then me, then the dog. What a year! My dad texted me last night to tell me it was on--already go it on the DVR, thanks Dad!
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Coyote, you have certainly been through a lot. I hope you get good news, and with it some peace, in May. Thank you so much for keeping this list together and for offering so much support to everyone here.
I personally find the Ken Burns special to be riveting, although also sad—but also hopeful. I'm so grateful to have gotten my dx at a time when so much more is known about this disease, or many diseases. We don't have to suffer from the well-intentioned but ill-informed practices such as ultra-radical mastectomies that earlier generations of women did. Flip side, of course, is that probably our granddaughters will be able to say the same thing, and view our treatments as medieval. It remains a very tough disease, but science marches on. As a non-scientist writer who often writes about science, I find the story to be pretty fascinating, and I've learned a lot from this program. But I can certainly respect those who can't bear to see it.
Farmerma, your dog is so very handsome, and such a sweet expression. I have lost many dogs, most of them to cancer, and it's a very hard thing. I wish for you many, many more good days with him. What a year for you, I'm so sorry. I've had a bit of that same kind of year, in a different way, so I know somewhat how you feel. We are also taping the program, as my husband is an early bird and can't manage to stay awake that late. Maybe I will watch the whole thing again with him at some point.
WheelyGirl, I have your exact same scenario, with the itchy rash in the same place, and overall pink on the left breast. The boost area, right around the nipple, was the last four treatments (ending just 2 days ago), and it's pinker still but not itchy, luckily. A little tender. I'm still using Miaderm on the whole breast, and 1% hydrocortisone with aloe on the itchy parts. I need to find that cortizone cooling relief gel! There were times today that it was so itchy in that one spot that I could hardly keep from racking my fingernails over it! I'm now a week out from the regular treatments, hoping the itchy rash and redness start to subside soon. But really, it hasn't been too bad, and I'm mighty glad my skin didn't break down. Armpit is totally fine, just kind of tan. I hope your last treatments fly by.
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farmerma, I'm glad your dog has some more happy days with you. He's beautiful.
Coyote, you can put that smiley next to my name. I am DONE!!!
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Coyote. I think it is not only normal but also wise to want to nest when under assault. Especially if home and hearth (and studio) are happy, reassuring places. Also introverts can be very sociable but gather strength and energy from time alone. I know I am like that. You have supported us here and you do whatever supports you.
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I found it helpful to scratch my leg when itchy. It somehow fools the brain and my itch subsided. Love, Jean
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CassieCat, congratulations!!!
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zjrosenthal - I am trying your method of scratching the leg and you are right it does help some. The itch is really bad today. Benadryl seemed to help last night so I just took two, don't know how long I can scratch my leg. The itch does seem to come and go thankfully.
Kayfry - I will be looking for some cortisone cooling relief gel tomorrow.
CassieCat - Congratulations!!!! I am getting very close can't wait to get my smiley face!
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Cassiecat, Hooray! You're done! Doing the happy dance for you.
Farmerma, your dog is beautiful. I'm glad it looks like you'll have more time together. I have a 12 year old black Irish setter/ black lab mix. My husband and I have decided he is much more of a comfort dog than service dog! Enjoy your time together.
Coyote, may you do whatever brings you the most peace. Hopefully your news in May is good. It is so true that cancer changes us forever. Take good care.
For those of you so close to done, we're waiting for you with smiles and happy dances!
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Thank you all for your support and understanding. I thought you might. We are all strong, yet vulnerable. I spoke with the infusion nurse today while she did the port flush, and she told me that this, as you put it WndrWoman, nesting instinct is not at all unusual. Our priorities become refined and we seek our comfort zones after we go through all of this. Apparently, I fell through the crack when I finished treatments and did not receive the post-treatment counseling sessions.WndrWoman ~ How did you know that I tend to be an introvert? I'm impressed! I have noticed that your comments are always very spot on.
kayfry ~ We have all gone through a lot. Similar fears and similar treatments. None of it has been nice. Educational - yes. Nice - No.
CassieCat ~ Congrats, Congrats, Congrats! A bit of a twist on words, but how appropriate that we all went in like Lambs in the Winter and came out like Lions in the Spring!
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coyotenv, I understand. I've never been a social animal but since all this, I've withdrawn from everything except the things and places I have to deal with. My home is my safe place. I'm glad your home or studio bring you comfort. I don't know if you should do anything and if you did, what it would be. Maybe sharing here IS doing something??
I hope you get the port out and get the NED news!!
Maybe we all have PTSD from this journey, how could we not? It's a hell of a thing to go through! My heart goes out to you and others who've faced this more then once.
Sending you gentle hugs and a promise that you're not alone; we're here for each other.
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WndrWoman, you are so right about introverts, of which I am also one. I'm sure it's one factor in my choice of a solitary kind of career that affords me lots of "thinking" alone time. Which doesn't mean I'm a hermit, I do like to see people, too. But it was one more factor that has made this journey that bit more stressful; having to drive 2 hours to rads 5 days a week was way too much like commuting to a job, except worse.
I can't imagine how hard this would have been before there were the kind of resources we have here. Grateful for everyone's mutual support. I think it's normal for an experience like BC to reorder one's priorities.
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Kayfry, I too have a long drive. Almost 3 hours round trip. It is down a lovely winding mountain road. I try to treat this as a job. It has first prlority right now. We will all get through this. God is with me all the way. Love, Jean
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Jean, I envy you the nice scenery. My drive was on a major highway just about the whole way, with lots of traffic, and not much else to look at. Luckily, I'm done
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Great that you're done Kay. I hit the halfway point tomottow. 3 weeks to go. Love, Jean
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I just finished my rads..16 days and no boosts...not needed.
I am red and tender and did a lot of peeling. Like alligator skin...gross.
but all,in all it was ok.....
I see many people have 5 weeks of it ...that would be hard...
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Jean, I hope those weeks fly by for you. Mine seemed oddly to go both quickly and take forever.
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