Back again

Options
liveit56
liveit56 Member Posts: 196


Hi all, I am back after a few years. I was diagnosed with LCIS and papaloma in 2007, had a surgerical biopsy because of bloody discharge from left breast and it  was found... I have been doing the mammograms and ultra sounds every year until Dec 2012 they found  something on my mammogram and ended up having a core biopsy and a marker put in... the pathologic diagnoses was:

1.Fibrocystic changes, with foci of mild to florid usual duct epithelial, Hyperplasia and Papillomatois, and focal prominent micro calcification.

2. Atypical lobular hyperplasia, focal.

I was told to make sure that I check myself and to have my mammogram and ultra sound as always.

Now, I found a small pea size lump in my left breast back in Oct. of 20014, went to my doctor and he wanted me to have a mammogram and ultra  sound done well, for some reason it did not get done till Dec.23, 2014 they did it and when they sent me the results they wanted me to have a recheck in six months...did not really tell me anything different than before...well come Feb. they sent me a letter that it was time for my mammogram so I made an appointment and told them that I was to have a recheck and ultra sound in June so could I wait until then to do it all.... the nurse got with my doctor and he said no...so, they just did it all last Friday and they called me Monday and want me to have a needle guided biopsy and I am scared out of my mind...I feel so different this time...can't explain it...this feels different... I have never had a lump until this time...nothing to feel.  My left breast feels heavy and like something is pulling...hard to explain.  Have any of you had a feeling like this? I feel like I have just been punched in my stomach. Really worried... so sorry if none of this is making any sense...thanks for letting me come here and letting me express my feelings...trying to stay positive for my family but sure is hard...don't want them to know I am worried.

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2015

    liveit56--Have they ever suggested tamoxifen or MRIs ? (since your diagnosis of LCIS back in 2007). I have a lot of that stuff along with my LCIS, and little lumps all over the place. Chances are it is still more of the same. Praying that they find nothing more. I'm due for my yearly breast MRI on April 1st, we can wait together for results.

    anne

  • liveit56
    liveit56 Member Posts: 196
    edited March 2015


    Thanks awb, I remember you back when I first came to this site. I did Evista but had to stop after a year because of SE, same with the others and I have liver problems...yes to MRI but can not tolerate them unless I am sedated and just can't deal with it.

    We are praying they fine nothing on both my husband and I...just want it over.

    Hope you are doing well and we will wait together...we seem to do a lot of that with these problems.

  • Eagle713
    Eagle713 Member Posts: 30
    edited March 2015

    me, too... Back again from 2009... A bleeding papilloma removed and all was fine. Until last week's mammo and US, nothing showed on the US but called back to the surgeon for the mammo. He showed me a new place on left (same side) and now the biopsy is in two weeks. Because none of it was there in Dec. 2

  • Eagle713
    Eagle713 Member Posts: 30
    edited March 2015

    It sounds like we are in this together... I'm also back again, from 2009, and looking at biopsy in 2 weeks. I had the bleeding papilloma removed and all was well until this year's mammo. It is a huge difference from last year, even tho my surgeon couldn't find anything on his fancy US, now I'm pretty concerned. Guess we will take take it a day at a time like everyone else. Prayers for all

  • liveit56
    liveit56 Member Posts: 196
    edited March 2015

    Hi Eagle, thanks for the reply...yes it has been quite a difference. One day at a time is all we can do.

    Will keep you in my prayers...please keep me informed on how you are doing.

    I go Tuesday really scared...take care

  • Eagle713
    Eagle713 Member Posts: 30
    edited March 2015

    Hi live it... Hope everything is well with you. Did you post anything somewhere else? I didn't have much time to check back until today. Here I am... Back from my biopsy. I had a very easy time so far, with a funny story to go with. I didn't realize I'd be having the "lay down on the table" biopsy- just figured I'd be sitting up like the last needle one. So I didn't have a chance to get too nervous. I'd brought my music with me and laid there with the earphone on the ear laying down and the other one so I could hear what else was going on. So I turned on my "barbershop" playlist and when the random song "Lucky Day" came on, the surgeon walked in. I was sure to tell them all that I hoped it was. :) My toes were keeping beat and I didn't feel too bad. Just as they were telling me they were starting the actual samples, the song "Somebody's gonna hurt someone" came onand a giggle slipped out. Of course they wanted to know why and I told them. Doctor starts chuckling too and we all hope nothing slipped 😉. I'm going to keep that memory no matter what the results- and even tonight I'm giggling about it.

  • liveit56
    liveit56 Member Posts: 196
    edited March 2015

    Had the needle biopsy and now waiting for set up for surgical biopsy. I did post in waiting for results. I am really nervous but will do what has to be done. Surgeon said they will do mammogram,insert wire then do surgery .....was not my best moment when she said that. Glad you are handling things ok....take care and good wishes

  • panthrah
    panthrah Member Posts: 433
    edited March 2015

    I had the surgical biopsy with the wire... no biggie. the word WIRE is unnerving but its a really fine wire. youre numb, couldnt feel anything. I did choose not to look and they wrapped it all up after so i couldnt see anything anyways. just remind yourself to breathe and reward yourself when you get home.. netflix marathon.. fav food. itll be a long day.. but very doable. *hugs to all*

  • liveit56
    liveit56 Member Posts: 196
    edited March 2015


    Panthrah, thank you so much...good to hear it from someone who has been there. I still haven't got a date yet...trying really hard not to think about it so much...keeping busy and getting ready for Easter.  Hope you are doing good and all my best wishes to all.

  • AnnieB26
    AnnieB26 Member Posts: 4
    edited March 2015

    Hi Liveit,  I just had the two procedures (needle wire insertion and surgical biopsy) on my right breast this past Friday, after having a stereo needle biopsy result in atypical lobular and ductal hyperplasia.  Like Panthra said, they are very easy procedures and pain free (other than needle sticks), I was slightly sore the next morning and just took a couple of Tylenol to soften it.  The worst part is, it is an all day process.  Bring a book or some music.  I got there at 7:00 am and we didn't leave until 4:30 pm.  The wire procedure was about 30 minutes and the surgical biopsy took all of 45 minutes.  The rest was paperwork, waiting, blood and vitals testing, and more waiting.  After the surgery they just monitor you for a couple of hours before they let you go home.  We were so hungry when we got out of there, we went and had a big Italian dinner afterwards, LOL.  Anyway, I got the preliminary results this morning and it is more atypical hyperplasia, but also LCIS.  She did say the margins around the biopsied area were clear.  The surgeon is referring me to an oncologist so that they can take a look at it all and decide where to go from here.  I also had two biopsies on the left breast (after results of MRI scan) that came back benign, but there were "other areas of concern" in both breasts.  This has all been going on since before Christmas.  I think I worried myself out the month that I had to wait between the MRI scan results (95% malignant) and the subsequent MRI guided biopsy results on the left side (benign).  I was a mess then, but seemed to have calmed once I got the good news on the two left side biopsies.  If you have any questions about any of it, I would be glad to help or be of support.  I will be thinking good thoughts for you and offer a virtual hug from a kindred spirit.    Annie

  • willbefine
    willbefine Member Posts: 19
    edited April 2015

    I found this is so warm place. Huge hugs to everyone!

  • liveit56
    liveit56 Member Posts: 196
    edited April 2015

    This is awarm place to come to where they understand what you are going through....thoughts are with you willbefine

    I had my surgical biopsy and the first part with the mammogram and inserting a wire was not so good for me....I got so nauseated and almost passed out but made it through.....then I had to go across hall to surgical center for surgical biopsy....both places were really good to me and now I am waiting for results....Dr. wants to see me May 5 th and will discuss it then.

    Thank you Annie you are in my thoughts also....will keep in touch.

  • lallison
    lallison Member Posts: 29
    edited May 2015

    I saw your post title and thought I'd just post here if it is okay. I hung out with you gals in 2013 when I had my first stereo biopsy then wire excision after an LCIS diagnosis. I had trouble with Tamoxifen which turned out to be most likely caused by other GYN issues and I ended up having a full hysterectomy.

    My six month and one year mammograms following surgery were clear.

    This year...not. On the other breast, some more stuff showing up. Probably LCIS but I'm heading back for a stereo biopsy (because really, you know, once you've experienced the boob table, you can't wait to do it again).

    My question for the LCIS pros out there. Assuming this is LCIS (and not anything worse, which I am not expecting) does it mean anything, or are there any studies indicating, that a brand new occurrence of LCIS in the other breast is an indicator of more trouble in my future? I know I've read that if you find one LCIS place there is undoubtedly more out there. But they were very clear that this is new. Does that mean anything?

    Thanks in advance.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    lallison------from everything I've ever read or researched, your risk is the same whether they find one area of LCIS or multiple areas; the risk doesn't change. Are you still taking tamoxifen? I also ended up with a total hysterectomy (TAH/BSO) while on tamox; I had large ovarian cysts which ruptured. But they had me continue on tamox for another 3.5 years to finish out my 5 years. I continue with high risk surveillance of alternating mammos and MRIs every 6 months, breast exams on the opposite 6 months, and I still take evista for continued prevention. (over 5 years now; originally diagnosed with LCIS over 11 years ago; my risk is further elevated by family history of bc (mom had ILC). Praying you have nothing more serious found.


    Anne

  • lallison
    lallison Member Posts: 29
    edited May 2015

    Hi awb: I am not on the tamoxifen any more. I expect we'll talk about that again when I see my surgeon after this. Maybe one of the alternatives since Tamoxifen gave me problems.

    Thx for prayers. I'll report back post-biopsy.

    Edited to add: I think my question was more about the fact that NEW LCIS may have appeared and is that a concern. But I am interpreting your response that it doesn't matter how much, where or when....same risk.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited May 2015

    lallison, my understanding is that once you've been diagnosed with it that it is very likely in both breasts. I've joked at biopsy that she didn't have my permission to hit any more of it because we both knew the odds were good she would find more anyplace she stuck a needle...I don't think them finding more makes any difference

  • MsVeryDenseBreasts
    MsVeryDenseBreasts Member Posts: 100
    edited July 2015

    Has anyone here who has LCIS and has had multiple biopsies ever just decided to proceed to excision vs. core biopsy? I've had 3 core and 2 excisions on the same side. I'm now told I have suspicious calcs (again) on the same side that merit 2-3 biopsies. Even if this is more LCIS and nothing further, I expect the surgeon will want to push for an excision anyway. Thoughts? I'm SO bummed :(







Categories