Taxotere, Carboplatin and Herceptin

CassieCat and Kthielen -- Thanks for the info on when nail problems started...

*sigh* I'm only just in my 5th cycle, so I can still get the lovely nail lifting in future. Oh, joy!

Oh dear...I'm so sorry your nails are lifting again. That is just completely unfair.

I'd like to polish mine so I wouldn't have to see them, but I'm worried about getting polish or polish remover under the nails.

I know it's crazy!! I hope they don't lift more than they are now. They don't hurt anymore so hoping it's done!

April, sorry to here about your drop foot:(

Cancer sucks!!

Kathy

debiann == Whoah--drop foot from surgery? Geesh... who knew? I hope you're doing ok, too. Good luck with the cyst, too. Hope it doesn't cause you trouble...

Kthielen == Yeah... cancer and all the treatments for cancer definitely sucks! I keep thinking I'll manage to avoid bad SEs but things keep popping up anyway! --But at least I'm not getting the pain that comes with neuropathy. And I really do hope something can be done for my drop foot. I used to walk fast and even run around a bit, but can't do it with the stupid foot! Hopefully I can get a brace in the meantime, just so I won't trip over my foot again and re-injure it... and maybe be able to get around a bit more easily. I can walk, but I have to be careful when I do it, and I can't move quickly at all... *sigh*

Another whine from me….It's 4 weeks since my last TCH. I gained 12 pounds in a few days. My feet and legs are so swollen that only one pair of pants fit. Elevating the legs doesn't help. I told the infusion nurse at Herceptin day that the doctor just didn't care. She just wanted me to wait it out. She didn't believe me. My Albumin and Protein came back low. She thought the doctor would recommend albumin (o and a transfusion, hemoglobin is low). But, true to form the doctor said wait it out. Norco doesn't touch the pain. I sleep in 90 minute shifts. This sucks! I'm just coming off of 10 days of antibiotics for an eye infection and 5 days of antibiotics for a UTI. Oh-and I still have dry mouth and my mouth tastes like (*(*)(*)(*. I knew that 6 treatments was going to suck but really, 4 weeks after the last one and I still feel like crap and have a low quality of live!

I want to eat dinner with my husband at a restaurant (I've been quarantined for most of the last 12 weeks) and eat a meal that tastes good and that stays down. Is that too much to ask????

God I hope tomorrow is better than today.

minivan, one of the ladies in the August chemo group had a lot of swelling too, and I believe her MO gave her an Rx for it eventually. She did finally lose all that fluid weight, but it was slow going if I recall correctly. I hope you're feeling better soon. Cancer sucks, chemo sucks, it all sucks. But it does get better.

mini - when was your last echocardiogram and what was your LVEF? Foot and leg swelling can be indicative of chf and should not be ignored by your doc. At the very least you can have a low dose diuretic to help you get rid of the excess fluid. You need to be a squeaky wheel

mini, sorry about your swelling and pain, I too don't think I pee as much as I should, drink all day, and pee very little, I had my second chemo on the 19th and 1st hercepton after that and I broke out again with acne, but this time it's in the scalp too, anyone else get pimples that are sore? Another infusion Wednesday, so will bring it to Drs attn maybe I'm allergic to hercepton?

hope that more peeing will reduce swelling under arms at surgery sites, each side from the double mast. But of course when you go for chemo or hercepton you get more hydration along with drugs that probably make you retain fluids. Still drinking but not peeing it out. Hope it won't be months later that it eventually goes, going to dr tomorrow to see if seranoma needs to be drained? It's getting uncomfortable.

No perjeta.... They are still telling me chemo. It seems to appear 5-6 days after the big chemo. I am putting an older cortisone cream on it and that seems to be fading them , if they weren't on my face, I might try the benedryl cream, they tell me the ones on top of the scalp are sore because of location? hydrate girls, I do feel better since drinking more. Lol. Not booze?

Gretagirl

I finished this treatment in March. I get Herceptin only now. You will be premeditated with many anti nausea meds. Chemo is hard but you can get through this. Surround yourself with caring supportive people. Ask questions to nurses and your Medical Oncologist (MO) one of the biggest things that helped me was I applied bags of frozen peas to my toes and my fingernails during the taxotere portion. It saved my nails. No lifting no change. Easy to do. Just pack a cooler and bring every tx. You will lose your hair by the 2nd tx. Get ready shave it before. Get a wig now. If you want a real hair wig which can cost up to 2000.00 or you may just do scarves. You can apply for a free wig at Lollyslocks.com.

We are here for you. I am so sorry you have to deal with this. Please private message me if you have any more questions.

PMR53

Gretagirl - Slow Deep has hooked you up with the group who will be going through the experience with you & that's very valuable. I also read the chemo group just before the one I joined. Below is a thread that lists most of what you'll need to prepare. Again, it's not very active but we keep "bumping" it so that new people will be able to read the advice. Good luck.

https://community.breastcancer.org/forum/69/topic/...

Hello

I just had my first TCH treatment last Thursday and it has been a week. I was fortunate not to have severe sideeffects. But I am puzzled at a few that I did have because I didn't read about them anywhere. Can anybody tell me if they experienced them? Thanks in advance.

Eyeball pain, pressure, vision changes where saturations seem up and everything was bright. I had to wear my sunglasses in bed. I had some nausea and I thought it was a GI symptom until I realized it was from the eye pain. After the 3rd day I took some ibuprofen and it made it all better.  A week out now, I still have some eye pain and pressure and vision changes. No watering, no focus problems, no itching or dry eye.

Stabbing pain on head. I have a few sore spots on the back of my head that hurts like someone is stabbing me with a pencil. It is a specific areas and hurts below the skin above the bone.

Weird jaw and teeth pain. Discomfort all along my molars and stabbing pain under my jaws. sometimes stabbing pain in ears. I also have bleeding gums now. I had my teeth checked by a dentist a few months ago everything was OK.

Pain under my collar bone and down under the sternum. It is like someone kicked me there and there is squeezing pressure then slowly lets go. It occurred a lot after port placement, like very hour but now it is only occaisionally. It also hurts and tightens my breathing when I first lay down, then eases.

My stomach, thighs and buttocks are cold!. I am warm elsewhere, even a little sweaty but my belly and butt are sooo cold. I use my heating pad and rotate around the areas and it never gets warm!

thank you for sharing with me! I found this response by accident. How do I find any responses to my post?

Gretagirl - click on the link that says "add to my favorites" when you are in a thread. Then you'll see My Favorite Threads on the left & it will show activity. I'm not sure who you're asking about the PM, but I didn't get any messages.