Starting Chemo March 2015

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  • KBeee
    KBeee Member Posts: 5,109
    edited March 2015

    Diane, They can only give Neulasta within a couple days of chemo; it has to be given 14 days before the next round. Neupogen (a similar drug, but much, muc lower dose) can be given in between if counts fall.

    Shaz, One of the most accurate words of wisdom my friend gave me when I was first dianosed, was, "people will say stupid things. Expect it". I did not understand what she meant, but now I wish I had written them all down; I could write a book. It is really frustrating when people who have never been through chemo tell you how you should act or feel. I remember my mom telling me that I just needed to keep a smile on my face and it would really keep the side effects away. Oh my. I did generally have a good attitude, but seriously, like smiling would raise my neutrophils magically. Chemo is about doing whatever you need to in order to get through each day and each week. Period. Thankfully, everyone here gets that

  • DavisD
    DavisD Member Posts: 338
    edited March 2015

    Yea! so glad you're back Theresa.  Warmbloods are nice but pricey here in the States.  Thoroughbreds are a dime a dozen and people are always trying to give me a "free horse off the track" but you know how the free horse business goes....poor owners, ha! I'm going to post to one of this big handsome Friesian my daughter and I got to ride for a friend who was training him upper level dressage. We had the honor of riding him through some lower level tests and what an experience. like a Cadillac!

    I know this is a sucky time for you and a lot of us really. Until today, I had so much bone pain and right side pelvic pain I was convinced I had bone/pelvic/breast cancer...(still wonder)

    imageThis was in my awesome 40's and Jess in her braces around 13 yrs old. What a day that was. We shouldn't have been allowed to ride that beast in a low level show, he cruised around that ring like we were just passengers and he was the pilot!

     but it's finally gotten better today since I'm back on steroids (lesser of two evils MO said) but now I have this prickly, painful rash on my back and legs. I go for labs tues and it sounds like I'm getting that Neulasta shot or maybe they will see what my WBC count is?? It's all so confusing. Feels like I don't have any idea what my body is going to do from one day to the next. I know I'm not eating much but also not losing weight, so there's that downside too! I really do understand how you must feel if you've always had a high tolerance for pain and now you can't get a handle on it. I went to work last week but two of the days I only made it a couple hours, two days I kept having to pull over and sleep in my car and Friday I finally made it all day but not as productive. The only reason I'm not taking sick leave is I'm the only person on my team. We just hired a partner but she won't be completely on board until mid April. I also worry I may get worse and need the leave more later....? what to do?  Please stay in touch and if nothing else, we can talk about horses. Anything as a distraction right now.  I'm going to try to get some sleep tonight. My son is coming to visit for the day tomorrow and I don't want to be nodding off!  Best wishes to all of you!

  • DavisD
    DavisD Member Posts: 338
    edited March 2015

    Theresa-I was getting ready to type what a cutie and then saw how ferocious he is, ha ha! He is adorable. I have a friend that does greyhound rescues, has a couple older big ones and one Italian greyhound and one Whippet. Her house is quieter than mine with just two half bred hounds...does yours bark much? Way to go on your ride. Don't for a minute feel guilty about living your life without quite as many SE! We never know what tomorrow will bring right? Besides you inspire all of us to push a little more.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2015

    Bekah- I have to concur about your most recent photo. A smashing scarf, and I want one. but more important, the beauty and clarity of your eyes just dazzle. You are a beautiful woman, sick or not, cancer or not, hair or not. Ridiculously punishing SEs or not. I know people on this and other boards have saiid how they hate it it when stupid people say, "well, you don't look sick"!

    Im not saying that and I hope I don't diminish your struggle in any way by saying that your dignity and grace define you. Not cancer

  • DavisD
    DavisD Member Posts: 338
    edited March 2015

    Kbee Karen-Hi you! Just saw your post about the shots. That makes sense. I hate to say it but I'll bet whatever my insurance covers influences what they give me/or at least I hope they don't give me something I can't afford!

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2015

    Katy he is a complete cuddle bear. I got him all worked up so I could take that picture. He lets the grandkids love all over him, and he adores them. He doesn't bark much unless he is telling us we are stupid and not meeting his needs. There is literally a blanket and a little lay down area for him in every room of our house, and in our cars. Give an Italian greyhound a lap and a blanket, and this breed is one happy dog.

    And he also manages to hog half of our king sized bed, so we sleep on the edges. But I love him to pieces.

    I think my dog treats me better than most people do.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2015

    Italychick, I for one am inspired by your rides and am so glad you can do it. Honestly, it has been in my mind when I push myself a little further on my beach walks, which today was a good mile. I get Aloxi in the bag too, and emend, and very luckily indeed, nausea and vomiting has not played a large role in my SE. I am very grateful because that, quite honestly, that was what I had feared the most.

    There was a time when I lifted, ran long distances, and was very fit in general, but this year I entered into my 3 ring cancer circus in the worst health I've ever been in in my life. And it makes no sense to me either why and how we are hit with the SEs we get.

    Bless your little Jack. It is so hard how we love our dogs and cats and horses and all kinds of pets, and we are nearly powerless to help them and it doesn't even seem, at least in my case, to prepare me for what waits for us in some fashion. Anyway, I know your marvelous trainer/husband must use his magical knowledge and caring to help your Jack through his Journey too.

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2015

    Katy my husband Roger works on our little Jack all the time. He has him on mushrooms, all kinds of things. We must be doing something right because he has been living with cancer for two years and he still plays like a puppy. I don't know how long we will have him, but I hope for quite awhile longer. I don't know what I will do when I don't see that little sweet face anymore.

    He gets co2 laser treatments every two months for the spots on his skin, but there isn't much we can do about anything internal other than to give him as much nutritional support as we can. He will be my second dog with cancer. We lost our beautiful lab Buddy about five years ago to cancer. He died right in front of me and I have never gotten over it. Why can't our dogs live as long as we can I always wonder. They are such sweet souls

  • Italychick
    Italychick Member Posts: 2,343
    edited March 2015

    Diane, I posted my response to you to Katy. Sorry about that. What can I say, chemo brain? Haha!

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    Theresa please don't feel guilty. We all love your shares. They can inspire me to try a little harder. I managed 5 mins walking on my treadmill this morning. I'm planning on doing another 5mins soon. Such a gorgeous dog. I love animals. 

    Diane I'm sorry your having the bone pain. Its hurts so much and drains your energy. Here's hoping your days are all uphill until the next round. You are so lucky riding such a beautiful horse. What a great photo. Warmblood are expensive here too. I was lucky/unlucky to get this boy. I lost who I considered my soulmate (17.3hh thoroughbred) we went through so much together. He helped me through the end of my marriage amongst other times for us both. He would just stand with his head against me for hours if needed. He died of Ross River virus about 3 years ago. I still miss him dearly. The vets that were helping were also devastated when we lost him, it was a 6 week battle of twice daily vet visits. They had another client with a warmblood that couldn't compete at the high level she required. They mentioned me to her and the next thing I have a new horse. We negotiated a purchase price after a 12 month lease but I haven't heard from her so here he stays. Hes wasted here at the moment, but maybe I can use him for some inspiration soon. 

    Katy are you OK?

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2015

    Diane-what a great experience to ride the Fresian in that event! Pilot indeed.,

    I have shared what I tried to get as action shots of Jack running on the beach, and me dolled up with my tinted spf cream and a little tinted Burt's Bees (I'm amazed as I haven't spent so much time on my appearance for over a decade). What is more impressive is it is spring break here. It's the weekwnd. Where are the people? No footprints in the sand......imageimage

    image

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2015

    one more of my little racehorseimage

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    image

    This is my pet sheep. Her name is Macey and she thinks she is a dog. She tries to come inside and sleeps by the back door and plays with my friends dog.

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    Great photos Katy. I love the beach, its clears the mind. Jacks action shot is superb. I think more about trying to look better than ever before as well. Bizzare. Well worth the effort though because you look great! Your even well coordinated! 

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2015

    Shaz: Macey is priceless! I love her! Yes I am fine, well maybe fine too strong a word, but I got a nice nap in today and feel much more stable. I am so much more worried about you! You might want to talk to your mo about dosage. Maybe he can adjust slightly ?

    I am glad you seem a little better today.,but it seems so very unfair to me that you suffer migraines all night, and nausea, vomiting and pain all day. I think of you a lot. I wish there was something....anything...I could to help.

    Katy

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    Remember to put yourself first Katy! Take lots of naps if it helps you to stay on top of it. 

    I think because its a public health system I don't have as much time or access to my mo. I did ring the chemo hotline but the nurse told me he wasn't there and that I should see my GP about my migraine meds. I think when I see him next I'll push to get him to help. Surely they've had migraine sufferers before who's chemo triggers them. I did tell him when I met him about my migraines but at that time he didn't think that chemo would affect them.

  • DavisD
    DavisD Member Posts: 338
    edited March 2015

    Gentleman Josh 1995 or 1996image

    Katy look at your Jack run??!!! He is superdog alright. I just love looking at the beach where you are. I've never been to Oregon, Australia or California. I haven't been so many places. Life always seemed like it might be too long, now I don't know. All three places have been fast tracked on my bucket list though.

    Sharon do you have any pics you could post of the horse you lost? I would love to see him when you are up to it. I had an old schoolmaster named Gentleman Josh, the love of my life. The Friesian was just a fling, ha, no he was just a horse my friend was training and they wanted to put some miles on him at every level.  Josh was a 16.2 h bay TB who evented through preliminary level. They decided taking him to advanced would be pushing him too much so he came up for "adoption" and I almost didn't get him. Another lady rode him before me and said she wanted him. Fortunately her boyfriend thought he was too old (17) so I got the call the next day. It only took me about five years to learn how to really RIDE that horse but it was worth it. We didn't jump past novice level, I felt he'd done his time and he spent the rest of his 32 years teaching me a thing or two. He went on his last trail ride when he was about 30 and still didn't show his age. I was at work when my husband called a year later and said "something happened to Josh, you better come check on him." We think he had a stroke or something, every couple steps he would stumble and for a horse that didn't care much for the mushy stuff once his halter was off/he came and put his big old head across my shoulders as if to tell me "it's time."  I knew I had to listen to him but it was the hardest thing I've ever done. We had a foot of snow on the ground but got the vet out right away thank goodness. My husband had prepared for this day years before so he is buried on the farm with some other old champs. I can't believe I'm in tears just remembering him and that day. It feels good to really feel something other than cancer though....I hope this wasn't too morbid. Macey is fabulous! I know nothing about sheep but when I first saw this pic I thought if was photo shopped. She is beautiful and hilarious at the same time.

    Theresa-My friend with the greyhounds..they ALL sleep with her and hubby and sound like similar personalities. Your Jack sounds like a real fighter and we have to believe you have such positive energy that it's made a difference for your little friend too..(don't worry about the names, I knew what you meant)

     


     

  • DavisD
    DavisD Member Posts: 338
    edited March 2015

    I want a like like like button!

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2015

    Diane- not too morbid- a wonderful story and tribute to your magnificent old schoolmaster too. I think it's wonderful that we are all talking about life with cancer, and sharing tips about SEs, ranting, and everything else we do here. But talking about just "LIFE".....that's the best part for me. The fact that we are sharing the very best of ourselves, along with the unfortunate worst, inspires me and fulfills me beyond what I believed Iwas capable of.

    Thank you to each one of you for uplifting me

  • slothabouttown
    slothabouttown Member Posts: 449
    edited March 2015

    Well my two dogs and I took off for the coast on a steroid high yesterday after work. I didn't realize spring break had started and we had a hell of a time finding a place to stay. We finally got lucky just as night fell and we woke up at the beach with the sun shining! Anyway the steroid crash happened around 2 pm and I practically had to hand the wheel to one of the dogs driving home, but we made it. I feel pretty rough and a little reckless for taking a road trip right after chemo, but those steroids can deceive a girl. Need to remember that for next time...

    image

  • slothabouttown
    slothabouttown Member Posts: 449
    edited March 2015

    And since we're on the subject, here are my two girls posing together. Savvy is the intense border collie and Helen is her distracted sister. I love seeing everyone's animal family. I work at the humane society here in Portland and I never get tired of hearing stories about animals in great homes!

    image

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2015

    wonderful picture Slothabout! And wise to recognize that steroids are very strong and potentially dangerous medicine. I wonder, based on what so many of us have experienced, why there isn't a little more counseling on the subject. I guess in our situations, the total amount of information and danger is just a quagmire to sink into.

    But I can't help but be glad you got out there and did something that made all 3 of you happy. And now you are home safe. And that makes me even gladder.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2015

    Slothabout- "LIKE". Adorable

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    Diane I love reading about josh. Makes me remember my beautiful boy(s) 

    This is cossie (brown) and chester(red). Both are now buried in their paddock. Although I had chester for 10 years and he died of age cossie and I were truly connected. I'm teary just thinking of him

    image

    image

     

  • shaz101
    shaz101 Member Posts: 718
    edited March 2015

    Slothabout I love your dog!!!!!

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2015

    Shaz- great horsies! Thanks for the nice share

  • so-she-did
    so-she-did Member Posts: 202
    edited March 2015

    Here are our two fur babies. Mother and daughter.

    image

  • rleepac
    rleepac Member Posts: 755
    edited March 2015

    Thanks for all the wonderful comments about my scarf! It showed up in the mail one day and I honestly can't remember if I ordered it or if someone just felt generous and sent it as a gift LoL... To be fair, I don't take pictures when I'm not feeling good so you guys are only seeing the best of the best ;)

    My DH says "Your beautiful spirit shines through your eyes..." He's a keeper :)

    Oh and I have a 100% Border Collie. She's neurotic and never stops moving or playing but when she comes up to me she is very calm and almost submissive - like she can sense I'm sick. She's not a 'crawl up in your lap' kind of lover but she is a sweet dog. After she licks me for a few minutes she goes back to herding the free-range chickens, throwing the frisbee or a stick in the air for herself to catch and play with, or just plain pacing to give herself something to do!

    Bekah

  • so-she-did
    so-she-did Member Posts: 202
    edited March 2015

    I, too, like the posts about everyone getting out and living life and exercising. No need to feel guilty about not having many side effects. I can live vicariously through you when they really hit hard. It was a good distraction when the days (and nights) were really rough. I'm glad I'm feeling good right now and that I still have a bit of time to feel good before it all begins again.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited March 2015

    Amy so glad you're feeling better and good to know it helps to hear about everyone's adventures

    And your two girls are beautiful.

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