Roll Call! Oncotypedx lower range but still intermediate

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  • Nash54
    Nash54 Member Posts: 837
    edited March 2015

    Allicat....my score was 24 and I was 59 at the time. My Onc was not leaning towards chemo but would certainly do if I chose it and I would have chosen it if that was his recommendation. I went with his recommendation of lx, radiation and possible 10 years of femera. I have not seconded guessed my decision...it just seemed right for me. Best of luck with your decision.

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  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited April 2015

    My score was 25 I am 62 and have had 3 rounds of TC. 1 to go.

    Would I do it again? Hope to live into 90s like my dad. If recurrences typically occur at 10 yrs and I have 30yrs to hopefully live it's worth it. Did the math. 3 months for hopefully and extra 20 years. I'm not able to work as I work with kiddos with runny noses. Had to take disability time, but biggest issue is fatigue. Wishing you the best with your decision

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  • Cmo65
    Cmo65 Member Posts: 96
    edited April 2015

    Mine is 18; doctor feels chemo is not worth it.  I asked her what she'd do if it was her; she said she would not do the chemo for an 18 oncotype.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited April 2015

    Hi mine was 34 chemo strongly recommended but I didn't do it.

    I am still ok.

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  • ndgrrl
    ndgrrl Member Posts: 741
    edited April 2015


    Hi CM0 65- You and I have the same diagnosis . My onco was also an 18 and I had two oncologists tell me that I did not need chemo that the benefits at that number were not worth the risk that comes with chemo. 

     

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  • clmtootie
    clmtootie Member Posts: 63
    edited April 2015

    Hi all.  I haven't been on these boards in a while.  My Ocnodx score was a 20, my BS immediately ordered the Mammaprint.  He said he uses that as a backup when the Ocnodx comes back in the intermediate range.  The Mammaprint came back as low risk, the recommendation was no chemo, just Tamoxifen for 5 years.  Although he would leave the decision up to me.  I chose not to do the chemo and just do the Tamox.  I worry and second guess myself everyday!  I'm changing the things in my life that environmentally could be a contributor to the breast cancer and hope that helps.

     

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  • loristory
    loristory Member Posts: 2
    edited November 2015

    Hi Ladies,

    I am 50 yrs old and just recovering from 2 surgeries within 18 days of one another. The 1st surgery was a double masectomy (only right breast had cancer) The 2nd surgery was because I wasn't healing as well as my plastic surgeon would have liked and he went back in and cleaned up what he felt needed cleaning which meant some skin grafting.I just met with the oncologist for the 1st time and he is recommending AC /Neulasta every 2 weeks x 4 followed by Taxol every 2 weeks x 4. My oncotype recurrence score was 19. I am really struggling with a decision of doing the recommended chemo.treatment The side effects are many and risks are far worse than bc. . Any advice is greatly appreciated

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  • NisaVilla
    NisaVilla Member Posts: 574
    edited November 2015
    Lori - my response would depend on your pathology results not just your oncotype score. Tumor size and other important details would be helpful to know but my first gut response is to get chemo and never doubt yourself in the future. But again, I could change my response based on more data. You might want to you complete your profile. We are here for you whatever you decide.

    Hugs, Nisa
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  • Nash54
    Nash54 Member Posts: 837
    edited November 2015

    Hi Lori...sorry you have to deal with this decision. My oncotype was a 24 but due to my age, tumor size , hormone status my BSO did not recommend chemo.  That being said, if he had recommended chemo I would have done it based on my faith in his opinion.  

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  • loristory
    loristory Member Posts: 2
    edited November 2015

    Hi Nash54, My pathology report was 1 lymph node positive, it was 1.4 cm out of 16. There were 2 foci 0.8 and 0.5 cm,. I am still trying to process and understand it all. It is so much to process. But because I have been a smoker for 35 years and have heart disease in my family history, the risks are terrifying. I could essentially go through the chemo and be cured of the bc but at risk for far more. I want to make sure I explore all my alternatives and possibly get a 2nd oncology opinion. I am still healing from the 2 surgeries and have 2 drains and stitches that need to come out and heal before I can even begin any treatment. So I want to use this time wisely and understand the statistics and risks if I choose to not do the chemo.

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  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited November 2015

    My family has huge heart disease history so they didn't give me the stuff that is hard on your heart. I got T

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  • dtad
    dtad Member Posts: 2,323
    edited November 2015

    Hi everyone. Just want to through out there that my MO told me the recurrence rates on oncotype are incorrect! She said they are using stats that are 30 years old! She said that the real stats are much lower. Really? We can't do better than 30 years ago? The more I learn about bc the more I realize how far behind they are. Makes me really mad......

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  • Nash54
    Nash54 Member Posts: 837
    edited November 2015

    Dtad.....amazes me that there appears to be little progress being made in the fight against BC. But good to know the recurrence rates are actually lower.   Glad your MO shared that info.  

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  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited November 2015

    Theoncotype hasn't been around 30 yearsso how do they say that. Gets more confusing

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