Can't sleep

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Lmonelli
Lmonelli Member Posts: 95
edited April 2015 in Just Diagnosed

I was able to get an appointment the memorial cancer institute today! The husbands bosses wife is an oncologist nurse at the cancer institute and got me an appointment immediately. But here I am at 3:30 am writing this.

I am leaning towards a double mastectomy only because I don't want radiation with possible reoccurrence and from what I am reading the problems that come along with reconstruction after rads. It still hasn't really set in that I have cancer so I'm still fog like.

I love these boards for the wealth of information. I am 54 and quite frankly not that attached to my sagging breasts. Would love some feedback from you lovely ladies.

Comments

  • SoulShine1969
    SoulShine1969 Member Posts: 3,047
    edited March 2015

    Lmonelli- I am recently diagnosed as well. So, I am also new to cancer. It is a lot to take in. Others can offer you much better advice on treatment than I can. However, because I have the BRCA1 mutation, I actually had a double mastectomy a few years ago. My only advice is to follow your own gut feeling. If you are more comfortable getting a mastectomy rather than lumpectomy do that. It's your body, and your cancer diagnosis. Everyone's experience is different, but I had an easy recovery from my surgery. It sounds like you already have a great cancer center and doctors lined up. That's great! Best wishes to you.

  • ml143333
    ml143333 Member Posts: 658
    edited March 2015

    Sorry you have had to join our group.

    I had a BMX back in August and recovered quite nicely.  I only stayed over night in the hospital and was back to work in two weeks.  I chose the BMX because I didn't want to have to worry about cancer in the unaffected breast.  Heck - one boob was already turning on my so why not get rid of both was my logic.


     

  • gypsyjo
    gypsyjo Member Posts: 304
    edited March 2015

    Lmonelli, So sorry that you had to join our group.  I spent many sleepless nights wondering what to do and changed my mind several times. I found out on a Friday and immediately made an appointment with a surgeon not wanting a mastectomy and not wanting radiation. Over the weekend I spent time pouring over the options and what was offered in my area. I found I was an ideal candidate for an intraoperative one time radiation treatment during the lumpectomy. I had my procedure Tuesday and am still waiting for my final pathology. Everyone needs to make their own choice. What I would suggest is arranging for a first and second consultation to find out what your options are with the pros and cons. If doctors make a recommendation find out why. The discussion boards are also good. There is a lot of information out there that can sway you. There are different types of radiation. Depending on your cancer, the risks vary. Also having a mastectomy does not mean you won't get radiation or won't have a reoccurrence. There isn't one right answer and there are options to explore. It would also help if you would fill in your diagnosis on your profile. Others with similar diagnosis can then share what they have learned. Hugs and good wishes.

  • scvmom65
    scvmom65 Member Posts: 88
    edited March 2015

    Hi Lmon,


    Sorry for your dx. I had insomnia too after my dx. This board helped me, I hope it helps you. You are going to get a lot of opinions from people and doctors but follow your gut. Figure out what will give you the most peace of mind going forward in life with the information you will be collecting.

    Wanting to put a little humor in your day - when I was trying to make my decision of what to do, I would google pictures of masectomies so I would know what to expect. I was leaning towards that and I wanted to prepare my hubby but looking back now it is kinda funny. I would be up all night so when my hubby woke up and walked into the room, the first thing I hit him with was "goodmorning - look at these boobs" and would show him a bunch of pics. We laugh at it now, he says he has never seen so many women's breasts.

    Wishing you good luck.

    Anna



  • speace
    speace Member Posts: 116
    edited March 2015

    Hello, I was just diagnosed on March 25 after having a lumpectomy. I am having a sentinal lymph node removal tomorrow March 30 to determine the stage and course of treatment. I'm so nervous and have been waking up in complete bouts of panic. Is this normal to have here bouts completely out of the blue?

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited March 2015

    It's not out of the blue. Your mind is trying to process while you sleep. It is a very overwhelming and scary situation. Once you have a treatment plan, you will feel better.

    I wouldn't recommend laying there. Get up and have a cup of tea. I prefer sleepy time tea. It's great to help calm your stomach. Do something to keep your mind occupied. There are mindfulness apps that may help you relax and go back to sleep. My therapist recommended them to me.

    Good luck and stay in touch. There's a wealth of experience on these boards and someone is around 24/7. You can do this.



  • Nomatterwhat
    Nomatterwhat Member Posts: 587
    edited March 2015

    Lmonelli, I was diagnosed at 53 with what was thought to be a small lump.  During the lumpectomy the blue dye showed that my right breast was 98% full of cancer, which meant mastectomy.  Upon further testing it was found that I had pre cancer cells in my left breast, so I went with a BMX.  I have been through two surgeries and no reconstruction, 4 rounds of chemo and 33 treatments of radiation.  The ILC they found was a 7 cm mass and close to my chest wall, which left me with no choice but to have radiation.  I didn't mind losing the girls or doing the chemo, but the radiation scared me.  After starting rads I found it to be the easiest of the three.  I was a member of the Winter Warrior Rads 2014 board, but I also peek in on the Spring Warrior Rads 2015 board.  Great bunch of ladies!!!!  Keep us informed with your decision, we are here to help. 

    Speace, you will have lots of bouts of lots of things.  For the first three months I was diagnosed all I did was cry.  Ask lots of questions and if you don't understand what they are telling you, ask again and again and again.  I took my husband with me to every doctors appointment I had for the first six months just for an extra set of ears, and because all I did was cry.  He and I certainly have learned a lot more than we ever wanted to know this past 9 months.  Just remember to breath!!!!  We are here to help with whatever you need.  There is always somebody who has "been there/done that" and these ladies will be invaluable to you as you move forward.  Hugs. 

  • speace
    speace Member Posts: 116
    edited April 2015

    Thankyou so much ladies, you are all so helpful and inspiring to a newbie like myself! Your help is very much appreciated!

  • LillieRose
    LillieRose Member Posts: 112
    edited April 2015

    hi all

    I'm new here just diagnosed today. I just turned 30 and have a 4 old baby. I am so scared. My biopsy results were invasive ductal carsinoma with er-/pr- her 2 pending. I'm not sure what do next... Planning to call a doctor but just scared and in shock. I'm so young.

  • Trvler
    Trvler Member Posts: 3,159
    edited April 2015

    Can you tell us the details of your diagnosis?

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