Starting Chemo February 2015
Comments
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2nd treatment was Thursday, the nausea isn't as bad this time, but still feeling quite yucky.
I'm thankful that the neulasta is going easy on me, just some body aches.
Anyone else tired of hearing "one day at a time" yet? Lol.
I just wanna fast forward to summer 2016 and be done with this crap!!
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Sugarcakes, I hope you can keep you strength up. I ate 2 yogurts, a banana, 2 dishes of ice cream and 4 pieces of toast today. Not exactly a balanced diet and they all tasted like the inside of a tin can, but i am trying to make myself eat. I can drink water if I make it about 10% juice. Going to try to make a smoothie tomorrow. Tonite I actually started to feel stronger on my feet. Walked around the block with DH when he took the dogs out. The fresh air made me forget about feeling washed out.
About the hair, 7 weeks into chemo,and and the stubble pieces still fall out. The scalp is tender and the only place that has stubble is the very top. If I put lotion on it some stubble still sticks to my hard. The sides a shiny! Crazy stuff!
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vr423 - you mean we have to just "be grateful it was caught early" or "put all your faith in god" or "so and so did chemo 30 years ago and was hospitalized the whole time, it can't be that bad". I'm tired of one day at a time as well.
Yes, I am grateful the doctors believe it was caught early but I'll need another scan in about 3.5 months to make sure my spine issues are degenerative and not mets.
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wrmbrownie and livedeliciously: I haven't yet had any symptoms of lymphadema but I met a woman at physical therapy last week who told me that it developed a year after surgery in her case. She said she got lost on hike and ended up walking an hour more than expected. The arm just got real swollen that same day. Scary because that seems so out of the blue. Not like she was in a 100 degree hot tub or injured herself. My BS said she always checks the knuckles and if you can't see the whites of your knuckles to get it looked at. My physical therapist says that a lot of the things they say about lymphadema haven't really been held up to scientic scrutiny, they are more like educated guesses about what will trigger it. I pricked my "bad" hand with a sewing needle a couple days ago and launched into full blown protection mode with my neosporin and bandaids. No ill seems to have come from it.
livedeliciously: Are you doing Taxol over 8 weeks or 12?
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momof32015 - I still have some hair on the very top of my head, but the rest is pretty bald. I've cut it as short as I can with a pair of scissors so there isn't much left at any rate. My eyebrows seem to be hanging in for the time being. I'm halfway through my AC. The lady at the wig store told me the eyebrows are the last to go and the first to come back. I'm really hoping my brows stay intact.Did anyone here use cold caps to try and keep your hair? At last chemo I was talking to a woman who tried it. She said her hair still thinned a lot but she didn't go bald, however the cold on her head was really brutal. She also had a lot longer time at treatment to keep the cap on. The nurse told me that that they used to offer it for free at the practice I use, but the caps are a pain to manage and when a couple of them started to leak coolant they had to start charging for the upkeep/replacements.
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Darumama, I had a real hair wig made since I figured I would be in it for a long while, and I am so glad I spent the money. Turns out it doesn't cost more than my yearly expense anyways. I figured that trying to cold cap was too intensive with going through AC/T, so wig it is. My eye brows fell out pretty fast on Taxol, but grew back fast but not very full. My eyelashes are back in and very full. I went to Look Good Feel Better and they showed us how to apply eyebrows or just fill in. The make up kit is very nice. You can find it online and it is free to go for chemo patients. I had a lot of fun for two hours. You may like it! It is sponsored by the American Cancer Society. Are you dense dose? I finished 11/25.
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Darumama, I just had my second TC treatment this past Thursday. I am using the cold caps, and yes, they are brutal. There has only been three people ahead of me at my Cancer Center that have used the cold caps. I understand two were successful. They do not promote them but they were willing to let me try cold capping. They schedule me early because it is a bit of a distraction. Honestly, cold capping is tougher than the chemo. But after 8 hours I'm done with the cold capping until my next treatment but the chemo SEs remain. I'm day 28 and did some substantial shedding after washing my hair today. No one would notice but me, at this point. I have wondered if it was the right decision on several ocassions. Only time will tell, but so far so good and I still have my hair. Let me know if I can answer any questions. My best wishes to all, as we go through this journey together. Cindy
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I finished my 4th AC treatment last Wednesday and still have about 15% of my hair left. Im glad I didn't shave it since if I wear a hat, the strands still peep out and it looks somewhat normal. I think of them as my 'survivor' hairs. Still have Taxol to go, so we'll see if they can withstand a second onslaught.
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okay I just needed to share (RANT) how much I'm hating this chemo mess. I just hate it. I have infusion #3 next week and I'm already pissy about it. I want my hair back. I want my taste buds back. I'm sick of these other strange oddities that come with it. Sick of it >:-
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Hi MaryJC, rant away, I so hated it too, and I am sure I am going to hate the next time too. I see my MO today to find out what is coming next. Thankfully the hair does come back, mine is almost an inch long already. But if I have to go to chemo again soon I am sure it will go again. Sadly thanks to chemo I gained 15 pounds, and that really makes me crazy. And all of the other left over side effects, yep still here. The gift that never stops giving. But you can do this, we all do somehow, and hopefully you won't ever have to do it again. You can just go on with your life
Take Care!
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hi duramoma. Just had ct#3 of a/c. Then one more of these fun infusions. not! Then taxol. Same dose dense schedule every two weeks with neulasta. An 8 week phase. I asked the nurse about side effects with taxol and she said could have bone pain. So all the ladies with taxol and neulasta it could be the combo of the two. I forgot to tell you guys I had a full blown period last week. So 6 weeks after my last one and after ct#2. Lasted 7 days. Longest ever had. Dr said it isn't unusual but they think it will stop as chemo goes on. Just added to all the fun. They did say the dry skin will go away after last chemo. My face is so dry. Never had to use face creams before.
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Hi live_deliciously, I had Taxol and Neulasta dense dose, and the bone pain was crushing. I tried the Claritin but it did not help me. I took Tylenol #3 with Codeine. My eye lashes and eyebrows fell out after the second infusion. They did start growing back rather quick, and they look good nice and thick. I did have issues with my nails, they discolored but have all grown out now. My toenails were very sensitive and loose. All of them have grown back except for the 2 big toenails. They are about 50%, but looking good. My hair did start growing back out after the first infusion. The side effects are cumulative, and the fatigue was rough especially after finishing AC first. It was easier than AC, but by no means a walk in the park. Take care Ladies, you are headed to the finish line!
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I will have #9 Taxol on Friday. I finally heard back from the breast navigator in my hometown and she said that it was possible to get the Nuelasta shot at the hospital where she works! She asked before and they said no but she asked a different person this time. I'll give my MO the info when I see her in a week or so. I figure that since she spent so much time on getting the information for me then I ought to go ahead and do the dense dose and get it over with.Beachbum, did your big toenails actually come off?
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wrmbrownie, they were lifting and the new nail is actually growing in under the old nail. I just keep trimming them short until it all grows out. My thumb did the same thing, and I just kept it trimmed, it was almost like two layers growing together. Weird.
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hi everyone, Although my SE seem minimal, the taste buds are gone, haveindigestion, and I was wondering the same thing about my hair, whether all the stubble would fall out. And the hot flashes are starting to come with more regularity. But, I'm still able to walk everyday and I went to work today and lasted the full day, but it's 8:00 and I'm ready for bed.
Sweet dreams everyone, here's hoping we all start the day feeling great
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Hi Bikerbabe, have you tried Tums or Prilosec for the indigestion? I used a lot of lemon pepper on my veggies and chicken to add some flavor. The hair stubble is so annoying, duck tape or lint rollers, and take pictures of that, I couldn't stop laughing when I did it!! I washed my scalp with Johnson's Baby Shampoo. Take Care, I hope you bounce out of bed in the morning!
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The scalp wasn't sore when hair first came out, but it stings now. Even a scarf hurts. The only thing I can stand is a loose bandana. The stubble that's left is soft, the stiff whisker type colored hairs are gone, and the ones that remain are white. So strange.
And my face is so dry I look 10 years older. There are now wrinkles on my wrinkles. DH is an angel. He says. "You are here and that's all I care about!" What a keeper!
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I finished my last round of AC yesterday. I dream of happy dances!
My stubble hasn't fallen out but I do have bald spots. Eyebrows and eyelashes coming out now too. I should go to the eye doctor and get a current prescription. I wear contacts and my glasses are a few years old.
Beachbum - thank you for posting in this thread. What an inspiration you are! Sending good vibes for your upcoming scan!
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Hi Hope, I am so happy for you! Start dancing the happy dance, AC finish deserves a dance party. Before you go to the eye Doctor, make sure you tell them you are going through chemo. I bought new glasses and lens right before chemo and I have issues with blurry vision. Some of it is from side effects, and some of it is from my meds I have now. Just check before you spend the money going into Taxol. You may want to wait a little while longer, but ask your MO.
The American Cancer Society sponsors Look Good Feel Better and it is a nice program to help with eyebrows and eyelashes, make up, wigs, and scarves. They give a really nice free make kit to take home. I had fun and met some very nice ladies. But may be helpful to you as well.
Thank you so much, I appreciate your kind words. I hope your switch to Taxol goes well for you! Cheryl
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i agree with hope in the stars that I so appreciate all your good comments and inspiration beachbum. It is so nice to have this forum but then to have the people sharing makes all the difference . Thank you to all and especially to beach bum. I just had a/c 3 yesterday so I'm one behind you hope in the stars. Nervous already about taxol of course. But I know I will get good experience share here at the forum.
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Hope In The Stars - Congrats on #4 AC!!!! Now, you should schedule your Taxol on Thursdays in Stockton so we can meet and hang out
Bekah
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My vision changed significantly. Distant vision is worse with my glasses on than off. MO said it's very common to have vision change and not to get new glasses until the chemo is over! Hang in there ladies!
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My vision seems blurrier too...but I'm on Taxol. I've noticed that my mouth is always dry (which is good in a way because I will drink more...like take sips all day long.) -
Good evening Ladies, so sorry to hear about all of the blurry eyes and runny noses! Thank you chemo! The blurry vision did come around for me after chemo stopped, and the runny nose, I am still buying stock in Kleenex. Very annoying and it just comes out of nowhere. I always have tissues with me, and I stocked up my car. And that case of bottled water in the trunk, just in case. I still have issues with dry mouth if I am talking a lot, so I carry Brach's Lemon Drops with me. And for the other bad days, I eat homemade ice cream with lots of hot fudge. It doesn't cure or fix anything, I just need it
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good morning all, I've been up for hours, the body aches are waking me up. I didn't have any SE with the first neulasta shot, but seems to be giving me problems this time around. I used duct tape on my scalp last night 😊. My DH was looking at me funny, I just laughed,but it took a lot of the stubble out. If the hair is going to be gone , I just want it all to be gone. I haven't experienced experienced drippy nose--yet, im sure Its coming, but I am stuffed up, a lot. Mostly at night and that too causes me to wake up a lot. Still strugggling to find things to eat that taste good, but I can get behind the ice cream and hot fudge, beachbum😄
6am, guess I can get up now and start the day. Hope everyone has a great da
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Hi everyone, sorry I've been mia...the past few days have been a lot of information. I got my genetic testing results back and have Li-Fraumeni Syndrome. Does anyone else have this or know anyone with it? I guess it is very rare and more than likely I am the first in my family to have it. I am deathly scared my little girl has it and am trying to get her in to get testing done asap. If anyone can say an extra prayer that God has spared her, please, I would appreciate it so much.
Had 3Rd A/C yesterday and more tired this first day than I was last time. The next 5 days or so I will be out cold too. Have to get my neulasta today, which I dread. Last time I didn't get the bone aches, but did the first time. Hoping I get lucky this time again. Hope everyone is having a good week and has a good weekend ahead!
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The stubble is finally out!!! . I washed my scalp with conditioner in the shower and massaged my scalp with coconut oil after. A big patch of stubble came out painlessly. Once it was gone the tenderness and sunburn feeling left. YAY. It's been so tender the last 2 weeks (the worst of 7 weeks of chemo) and now I can wear a scarf comfortably. Pretty crazy when that's the high point of your day!
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Hi there! I've been lurking here and reading but I've only been posting in the March group because my first round of AC was 3/5. But I have a question for those of you who are a little ahead of me. I am having some pain on the pads of my thumbs and index fingers (I guess my middle fingers too now that I think about it) - sort of like a blister feels except there's no blister. Also, my tongue feels the same way sometimes. I thought that neuropathy type symptoms don't hit until I get Taxol. Anyone else on AC experience these things? More importantly, what can I do about it?!?
Thanks!
Bekah
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Hi rleepac, I had AC/T, but I didn't get the blister feeling. I had numb fingers, and numb toes. My left foot was painful, and they X-rayed it because they thought I had a stress fracture given the level of pain. But it was degenerating joints where the toe bones hit the the foot bones. I wore a boot for 3 weeks and it helped a lot. I was given B6 but had to stop it because my levels spiked.
My tongue, lips, and my chin all felt numb. But it has been much better, I still have issues with numb feet. I use Sally's Foot Therapy, a mineral soak in warm water for relief. I also rub Vick's into my feet/toes and cover them with soft socks. That helps me as well. Are you dose dense AC? Rough combo for me. I hope you feel better.
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Yes, dose dense AC. The first round was horrible! Second round they gave me a Sancuso patch which I think helped immensely. It wasn't a walk in the park, but it was much better than round 1. I kinda wish my fingers were numb...but they hurt
I'll try the Vick's Rub. It's worth a shot!
Bekah
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