Pity party weight gain...need help.
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Hi Gals,Welcome to all the new ladies struggling to lose those extra pounds.
Raidergirl ... we are the same height and our ideal weight puts us at the same size as well. I'm a 12 now too and look fine, just not comfortable. It's that 5 extra lbs around the upper middle area that get me.
I didn't have chemo so I can't speak to how long it takes to lose those pounds after treatment. I have no idea why I gained 15-20 lbs with treatment. The only thing I can figure out is that during radiation, I started eating a ton of food and meat to combat the extreme fatigue.
I see the doctor on Thursday and I've decided not to get on the scale. F- it. Why make myself more depressed. Those nurses can't force you to get on the damn thing. I once refused to get on the scale at the surgeon's office and the nurse about flipped out. wahhh! My sis saw her doctor yesterday and refused to get on the scale too.
I confess, I'm nervous about the appointment. I've been having trouble swallowing and have been throwing up my pills when I take them. My dad died of esophageal cancer and he had the same symptoms.
I'm thinking a pedicure to get ready for springtime would do wonders right now. Want my toes to look fabulous when I go to San Diego in two weeks.
hugs
Bren
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Bren2007- I give you my mantra too " Its nothing until its something" Repeat multiple times a day. Really, I send you healthy wishes.
I also did not have chemo, I did have a pity party and a difficult time with medication.Also, the fatigue I feel is great and I believe that effects the metabolism too. There are no studies on rads and weight .
Also whenever I weighed in at the Rad MO they would say Oh Good You Not Losing Weight.
Also, thank you for the not getting on the scale at all idea. I decided I don't want to and they cant make me. I feel more powerful already.
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RG and Bren, I love this thread!
They can't make you get on the scale unless you are about to have sx, or an rx change, and they need to calibrate the dosage of something by weight. Maybe you could offer to have the nurse pick you up and estimate?

I have got to say, I am worried about this issue. It's hard to explain. But I don't want my stomach and thighs to get enormous since I am so flat-chested. And yet I don't feel well enough to run, and don't know if I ever will. And, also, I feel like I should eat a lot of small meals full of nutrients to build myself back up, no matter what the calorie count is. I am extremely vitamin deficient and I am about to get walloped by my PCP for that.
Well, I think I explained it! XXX
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bobogirl
If you are run-down this is not the time to think of weight loss. You have to eat really nutritional foods to get strong again.
What woman can "run" when they are weak. Honestly, girlfriend drop that thought altogether. Maybe a gentle walk, or stretch yoga, or just doing more at home is already movement.
Does your area offer any kind of nutritional counseling? The cancer center in my area does free of charge.
Get well, get strong then get to your ideal weight.
The scale: Yep , a weigh in at the MO office is not needed unless the weight must be known for meds, etc. Its just something they do with every single patient. Weight, vital signs.
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Bobogirl....we all give you permission to eat healthfully. You are right, if you are vitamin deficient, you won't be well enough to exercise. You might try gentle walks, though...I love to go out at night and peek into people's windows. I have gotten a lot of decorating dos and don'ts that way. I never linger at the windows...don't want to get arrested. LOL.
As far as getting weighed, I have never had a nurse tell me I couldn't take off my coat, jacket, shoes,. Quite frankly, if I could strip down buck naked, I would. I also carefully select my garment for the appointment. Chiffon, unlined skirts, etc. I avoid my padded bras and denim.
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Bobogirl and MsPharoah ... it's great to see you.Bobogirl ... I have always loved seeing your name on the boards. My most favorite dog in the whole world was named Bobo. Makes me smile when I see your name. I can't imagine running ... even if I wasn't weak. I'd pass out after about a 1/4 mile.
MsPharoah ... I might get on the scale at the doctor's office if I could be buck naked too.
Raidergirl ... Is the fatigue you're feeling a side effect of Aromasin? You and Beachbum are probably still recovering/going through treatment. I know I was drained physically and emotionally the first year.
hugs
Bren
PS ... Raidergirl ... thanks for the little pep talk. I need to remember that "it's nothing until it's something."
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Hi Bren, I will be done with rads 2 weeks ago this Thursday. Still peeling and feeling the fatigue. Went for my port flush today, and skipped the scale. My MO was busy, not sure why, but I said had to run and I would reschedule for next month when I need my port done, and I ran. She is always busy, and running around all frazzled and I was in no mood to be ignored. So when she said "what about chemo" I told her she should try it sometime, the SIDE-A-F**KS are amazing! I told her that I have had enough for 10 months straight, and I would see her next month. Maybe not the best approach, but it worked for today.
Now if I can just lose the weight, but Spring is here so good to go walking.
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Bren, RG and Ms P, thank you. You are right. Bren, who is that beautiful dog you are hugging in your avatar?
Ms P, no one in her right mind would arrest you. Gentle walks sound very good for you. I use to be a runner -- I enjoy hardcore types of exercise. I haven't felt like myself, not doing it.
Beachbum, sounds like you were listening to your intuition. I feel like I should do that more too.
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Bren 2007 I am told the fatigue is a combination of things. For one I was on hormone replacement before BC happened. That was like a superwoman tonic. Now on aromasin, its the complete opposite of HRT. I believe that surgery of any kind is an assault on the body. I did ok with rads.
DH and I run a business, I work allot, there is little down time. Perhaps its just my life that is tiring. My nurse navigator who is also a bc survivor counseled me that this fatigue may never pass but I will learn to adjust to it. She said she has that also, but other meds caused joint pain so she rather be tired then in pain.
The MO had offered to switch meds again, but that will be another adventure in SE.
I'd rather be tired.
Beachbum- did you say 10 months of chemo? Girlfriend, how have you done it...you're amazing.
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RaiderGirl.....I found that exercise was really helpful in getting back to myself, and was about 95% there about 6 months following radiation which ended early June, 5 years ago. I was exercising throughout that period. The other 5% took another year or so. Now, I am fitter than ever, or will be once I get in full swing of training for summer cycling events.
I found exercise potions...gels and energy bars....a godsend that summer. I didn't care if it took one to get me going because I would be better off at the other end. I do admit to a bit of joint pain, but ibuprofen is a wonder drug that way. None of this is as bad as walking much farther than planned in my snazzy heeled boots last night because of a gridlock in Seattle, and the bus wasn't moving!
I will say that without exercise and strength training, it will be very hard to lose weight and keep it off. But that is true with those who have not been through breast cancer treatment.
I was remarking about that while at a wine bar party last night. Wonderful spread of cheeses and salumi to go with the winemaker's featured wines. My friends were there, and everyone eats. All of us also exercise, including the lady who cycled into work (remember that she got there because traffic was gridlocked). So I really do believe that exercise is the magic bullet.
Reflecting on what your nurse navigator said, I am worried about setting the bar too low. I expected to have a full recovery, and I did. But I to admit it takes work, and I don't think you get there without exercise. Not as much as I do every single day, but at least what the guidelines for adults are. So what I would aim for, and who knows beyond that?
Good luck and feel perkier soon! - Claire
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Claire_in_Seattle.
I can't decide if you post encouraged me or not. When I leave this office at the end of the day I can barely drag myself to the car, The very thought of weight training or anything just throws me into a despair. I am not a lazy person I do all day long . I wake up tired. I have never been a morning person so getting up before 6:30 will never happen.
I am doing yoga at our local cancer center . Its a safe place where women can exercise without prosthetic . Its just us girls. Can't say that it helps but its movement. There is allot of stretching and isometrics. My muscles are trembling when done and I sweat like a pig so it not just relax kind of yoga.
What is your age? I will be 57 on Saturday.
I don't think that the nurse was setting a low bar. I think she wanted to put me at ease that fatigue was not a sign of something worse than a SE, She assured me that she works full time in a demanding job, keeps home and family, and volunteers. Fatigue is just part of her life and I like she will find ways to deal with it.
Today , I feel old. I feel sad. I going to log off and get busy.
Thanks for tying to help me, you are a sweetheart.
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Claire_in_Seattle, I was inspired by your post... I am very new to treatment, only 3 weeks past surgery tomorrow and I still have my TE's and 2 drains in. In an attempt to get off the couch I went for a walk ... well that was a no no! I had a DR. Appointment yesterday to see if I could have my drains out and although they were beneath the 30 cc's for the 3 days prior the day prior to the visit they were above 30 due to my walk... Needless to say I was told NO WALKING and I left with my drains still in! I am counting the days until I get cleared to do any physical activity.
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Oh Cindy_K, that is so horrible! It should remind us all that just because something is good for us, it doesn't mean it is good for us all the time. Rest and recover. There will be fun walks in your future for sure.
I ended active treatment October, 2013 and have been on Femara since August, 2013. I have had to learn to listen to my body. Some exercises that I used to do before BC are just not good for me now, (maybe OK for others). I am just now at a point where I am taking the AI at the right time of day for me, doing the right type and amount of exercise to maintain my weight, (I would love to lose 10 more lbs) taking all my meds at the right time of day and I feel so good. I think it is so very individual and we all have to find our balance. My motto is....if it hurts....STOP IT!
MsP
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Raidergirl ....
Bren
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This cracked me up. I put it on my FB page!
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Bren 2007 : awwwwww sucks. you made me smile.
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Bren, so very cute and oh, so true! I love the minions. They are irreverent, just like me.
MsP
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I love the minions too -- make me smile every time!
RaiderGirl -- have you had your ferritin/iron levels checked lately. I was exhausted after my second surgery -- granted it a long one, but even after 6 months, I was tired, and I am usually a morning person. When I had some blood work done last summer, it showed that my iron had dropped by more than half -- I wasn't anemic, but it was much lower than it had been. So I've added a couple of more pills to the mix, and I am feeling better.
As for exercise -- the only think I'm doing right now is walking -- I use that time to catch up with friends -- usually walk 3 times a week for at least an hour with different friends -- the walking seems to fade into the background and we solve all kinds of issues as we chat and walk.
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Bren - I love that!
Walking is the only exercise I have the motivation to do. I admire those of you who commit to more. I'd encourage everyone to get a pedometer. The first step is knowing what you actually do during the day. There are even apps that will count steps on your cell phone. I found myself parking farther away and doing another lap around the block if I hadn't reached my goal. And jogging in place before I changed into my jammies. And success breeds more success.
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Just got a call from GP office my blood numbers are horrible pre-diabetic high LDL and triglycerides. She said Dr wants me to sign up for a pre-diabetic class. I was like no thank you I know what I need to do. Got motivated did 1 hour on treadmill and started my good diet. Oh yes my B12 is on the low side.
The first week is the hardest but I want lose weight for my May trip.
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Well Monday came and I have started my eating clean diet-no carbs, watching my sugar and salt, no alcohol- low sugar fruit (apples, navel oranges, strawberries), veggies, fish and chicken mainly. Down 2.8 pounds since Tuesday morning. I am motivated and hope to keep treking along. Grammy you really motivate me with the walking-I am going to add that to my regiment. I want to get a fit bit or something similar-I hear that helps a lot so thanks for the reminder. -
I love my fitbit. DH and my grown kids have one too so we compete. It's a fun way to stay connected. Down .2 lbs - I've decided .2 is the new 2 lbs and I'm going to celebrate every victory. Eating right feels good - much better than binge eating and feeling miserable
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Lucy, how does the Fitbit work?
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Interesting comments here. My surgeon gave me the OK to cycle after my follow up visit. I think the effect was that I had my drain longer than I would have had it in otherwise. I certainly learned that aerobic exercise generates lymphatic fluid! This was also true of walking, but not to the same degree. I also made sure that I did the arm exercises they sent me home with, but nothing beyond that for my upper body until the drain was out.
I had a lumpectomy and felt basically just fine the day after. I needed a nap to recover, but scared everyone as looked no worse than a bit more tired than usual. I have no idea what would have happened if I had needed a mastectomy. I am thankful that I didn't.
I turned 65 a month ago, which I celebrated with a weekend x-country skiing with my guy. We had a blast, except that I need something to keep my right boot from rubbing on my ankle bone. Just glorious scenery, and yes we ate well.
For the record, I will say that during treatment, there were days that I didn't feel like walking. But I did it anyway, and always felt better afterwards. (I didn't feel like doing last night's walk either, post website screw up which I did trying for perfection....all is just fine now.)
I make exercise a priority in my life. I will do crunches on the exercise ball prior to leaving for the office (after I redo the website changes that I wiped out with the restore last night). I will either do a 5k run or a 2 mile walk after I get home depending on the amount of daylight left and whether raining. I will do my free weight routing while cooking diner. I have a cycling date with a friend who is between jobs for Saturday AM, followed by a trip to a bakery.
I have seen women on the Let's Post Our Daily Exercise thread go from having difficulty moving to running 5k races. (I did one back in December and was dreadful...but I don't care....I did it.) These moments are always exciting.
I think I learned about the importance of exercise from my mother. She waited too long to have her hips replaced, and she was left unbalanced. So she had to do her miles of walking(in the woods on logging roads with her dog) with two canes. Others would have been wheelchair bound. - Claire
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I have the fitbit one and I keep it on a chain around my neck. They say to put it on your bra or something but I don't wear one.It does some hocus pocus magic and it records my steps and some other things. I have it linked to MyFitness Pal and they talk to each other and share food and exercise information. (I know, kinda creepy, huh!) I can add friends to the fitbit and my kids and DH and I keep up with each other and invite others to challenges and such. My kids and DH have the fitbit you wear around your wrist and they prefer that. I thought it would be pretty easy to get 10,000 steps, but it isn't. Last night I was walking around the house to get my final hundred steps in!
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Claire - your mother is amazing! What a great role model. You're a great role model for all of us, too!
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My mother's first name was "Lucy", and I grew up on a dairy farm. My parents had no sons, and I was the eldest. So guess what I grew up doing! My father was good to us by making smaller bales of hay that would be easier to lift and stack.
One thing in this whole equation is to make sure you get enough protein. I found that I needed for at least 2 years post treatment, and I even mentioned this to my oncologist a month or so again. Her reply: you have muscles, and muscles need protein to grow and build. DUH!!!!
The protein, because you don't have energy reserves post treatment. These take a while to rebuild. I was eating what I ate in my teens plus a lot of energy potions that first summer. I couldn't do cycling events without a lot of help to compensate for the energy reserves I didn't have. I am fine now, but toss this out. The American Cancer Society has guidelines so a place to start. As I just mentioned, you need to do this long after you are finished treatment, and it makes a HUGE difference with energy. - Claire
p.s. I used this as an excuse to eat steak. My bad, but hey, what I wanted. And fried clams to rebuild my iron levels.
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Going to try this again ... not so great with posting pictures.
Claire ... I hear you on the protein. During treatment I craved red meat.
hugs
Bren
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I hear you loud and clear. I have always had a weight problem. Each year I gained more and more. I went and had the lapband done and found a way to get around it although it did help some. Ended up with a 20 lb. weight loss at the end. Lost more but gained some back. THEN....I was watching Dr. Phil and Dr. Stork was on talking about his book, "The Doctor's Diet". I bought it first for my Kindle and thought well I have just wasted 8.50. But I didn't. He has a diet that you can live with for the rest of your life. After we were on it for about 2 months I thought I am never going back to the way I use to eat. That was a year ago. I lost 33, my husband 42 and we have kept it off. The books makes so much sense and ironically he talks about preventing cancer. Wish I would have started it years ago. If you have any questions feel free to ask me anytime.
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